Re: Elevated ASO - off topic

[Guest guest]

Hi -

Just how high was your ASO?

There is literature that supports ASO enzyme having an impact on the inner

lining of blood vessels. I can't remember if it is a direct effect or if it was

one of those things that is 3 steps back.

You may have had strep 10 years ago, and that may have triggered the ASO, and

then the presence of the dysfunction never turned it off.  I'll bet that if you

have high ASO, you probably have low NKs too (I don't know that it's a

requirement). 

Strep throat isn't the only way we get strep, either.  We can have it as ear

nose or throat infections, and maybe even gastro.  The skin strep doesn't

typically cause an elevated ASO so that is less important, but I have seen staph

(skin) increase OCD and anxiety in family members, so who knows.  Most of all,

you can get strep in your mitral valve.  Doctors will assume that without

serious disease

To simply disregard a very high ASO titer without trying to treat with

antibiotics to see if it comes down is highly irresponsible.  VERY. 

Did your doctor run a ferriten panel to check for low ferriten?  If not, request

it.  It can be a subtle marker if you have ongoing strep.  W/ an autoimmune

disease, it probably is low, actually.  The autoimmunity can explain any of the

lab findings that could also support chronic infection.

You may not have had any recent strep, but it shouldn't be ignored.

HTH-

________________________________

From: <jlhank80@...>

Sent: Saturday, May 30, 2009 3:07:43 PM

Subject: Elevated ASO - off topic

Hi listmates, I have a quick question, would like to hear about your opinions

based on the point of view. Recently I developed a hypersensitivity

vasculitis (its my immune system attacking my blood vessels for those who don't

know...) from a simple cold I caught. (Gee I wonder where my daughter's immune

dysfunction came from?? Hee hee)

The doctor checked my ASO and it was high. She asked me if I had strep recently

and I told her I had it 10 years ago. She then proceded to say that that was why

my ASO was high. 10 years????

That just seems wrong to me. We are just ignoring it now because the doctor

thinks its irrelevant. I think it is relevant. What do you guys think???

Thanks!

[Guest guest]

Every time I miss a few hours' sleep, I get a very mild sore throat, but no

fever. Probably strep. I'm working with a homeopath (in addition to a

Western medicine doctor), and she said we all carry strep in our systems. I

avoid sugar and take Zinc for a couple of weeks when I get the sore throat

to keep my immunity up, plus a probiotic.

Kristy

From: [mailto: ] On Behalf Of

Sent: Saturday, May 30, 2009 1:08 PM

Subject: Elevated ASO - off topic

Hi listmates, I have a quick question, would like to hear about your

opinions based on the point of view. Recently I developed a

hypersensitivity vasculitis (its my immune system attacking my blood vessels

for those who don't know...) from a simple cold I caught. (Gee I wonder

where my daughter's immune dysfunction came from?? Hee hee)

The doctor checked my ASO and it was high. She asked me if I had strep

recently and I told her I had it 10 years ago. She then proceded to say that

that was why my ASO was high. 10 years????

That just seems wrong to me. We are just ignoring it now because the doctor

thinks its irrelevant. I think it is relevant. What do you guys think???

Thanks!

[Guest guest]

I totally agree with . Normal strep titers are 0-200. At one point, my

titers were 2,000 and my anxiety was through the roof. I have struggled with

anxiety and OCD type problems since I was 18. The only thing that has ever

helped was reducing my strep titers. I've been on Ery-Ped since November. They

are now down to 893, and my anxiety is much improved.

 

Like you, I hadn't had a bout of strep throat in about 10 years. I find it very

hard to believe that the titers could stay that elevated for 10 years and the

immune system is still considered to be functioning effectively. It's crazy!

 

All the best,

 

Robyn

 

 

From: <thecolemans4@...>

Subject: Re: Elevated ASO - off topic

Date: Saturday, May 30, 2009, 1:41 PM

Hi -

Just how high was your ASO?

There is literature that supports ASO enzyme having an impact on the inner

lining of blood vessels. I can't remember if it is a direct effect or if it was

one of those things that is 3 steps back.

You may have had strep 10 years ago, and that may have triggered the ASO, and

then the presence of the dysfunction never turned it off.  I'll bet that if you

have high ASO, you probably have low NKs too (I don't know that it's a

requirement) . 

Strep throat isn't the only way we get strep, either.  We can have it as ear

nose or throat infections, and maybe even gastro.  The skin strep doesn't

typically cause an elevated ASO so that is less important, but I have seen staph

(skin) increase OCD and anxiety in family members, so who knows.  Most of all,

you can get strep in your mitral valve.  Doctors will assume that without

serious disease

To simply disregard a very high ASO titer without trying to treat with

antibiotics to see if it comes down is highly irresponsible.  VERY. 

Did your doctor run a ferriten panel to check for low ferriten?  If not, request

it.  It can be a subtle marker if you have ongoing strep.  W/ an autoimmune

disease, it probably is low, actually.  The autoimmunity can explain any of the

lab findings that could also support chronic infection.

You may not have had any recent strep, but it shouldn't be ignored.

HTH-

____________ _________ _________ __

From: <jlhank80 (DOT) com>

groups (DOT) com

Sent: Saturday, May 30, 2009 3:07:43 PM

Subject: Elevated ASO - off topic

Hi listmates, I have a quick question, would like to hear about your opinions

based on the point of view. Recently I developed a hypersensitivity

vasculitis (its my immune system attacking my blood vessels for those who don't

know...) from a simple cold I caught. (Gee I wonder where my daughter's immune

dysfunction came from?? Hee hee)

The doctor checked my ASO and it was high. She asked me if I had strep recently

and I told her I had it 10 years ago. She then proceded to say that that was why

my ASO was high. 10 years????

That just seems wrong to me. We are just ignoring it now because the doctor

thinks its irrelevant. I think it is relevant. What do you guys think???

Thanks!

[Guest guest]

Thank you everyone for your input, I think you are right...I think maybe I need

the Protocol! I see that doctors today are told to ignore things in the

blood work because they see them all of the time, and they don't know what to do

about them. It seems like doctors are the only ones who understand that

these high viral/bacterial titers are really something to watch for!

By the way, I don't know what my ASO was, or my ESR (which was also high)

because they don't tell me. When I went to the office and said I think I have

vasculitis, they laughed and asked if I got my diagnosis from the internet.

They told me I was wrong and that it was an infection.

Then I went to a dermatologist and they did a biopsy. It is vasculitis! I was

the one who was right!!!

I am experiencing everything I experienced when I said my daughter was sick, but

got written by her doctors and therapists off as paranoid and in denial. Why do

we think its normal for kids with ASD to be sick? Have bowel issues? Its not!

Doesn't it just make ya so mad????

Okay I am off my soap box now...

-

[Guest guest]

Hi, .

You are so right! It's funny that once you're kid has the " A " word diagnosis,

every ailment that befalls them is related to that diagnosis. I can't tell you

how many times we heard from doctors " What do you expect; he has autism. " And

what the heck does that have to do with vomiting? Fortunately, it's not all

doctors, but it's enough. IMHO, you may want to find another doctor. How

condescending of the office staff? We are very blessed to have Dr. G and our

primary care physician. They really listen to us. Our primary doc told my

husband one time, " never trust a doctor 100%. They're human and fallible. "

I hope you're feeling better soon.

All the best,

Robyn

From: <jlhank80@...>

Subject: Re: Elevated ASO - off topic

Date: Sunday, May 31, 2009, 8:49 AM

Thank you everyone for your input, I think you are right...I think maybe I

need the Protocol! I see that doctors today are told to ignore things in

the blood work because they see them all of the time, and they don't know what

to do about them. It seems like doctors are the only ones who understand

that these high viral/bacterial titers are really something to watch for!

By the way, I don't know what my ASO was, or my ESR (which was also high)

because they don't tell me. When I went to the office and said I think I have

vasculitis, they laughed and asked if I got my diagnosis from the internet.

They told me I was wrong and that it was an infection.

Then I went to a dermatologist and they did a biopsy. It is vasculitis! I was

the one who was right!!!

I am experiencing everything I experienced when I said my daughter was sick, but

got written by her doctors and therapists off as paranoid and in denial. Why do

we think its normal for kids with ASD to be sick? Have bowel issues? Its not!

Doesn't it just make ya so mad????

Okay I am off my soap box now...

-

[Guest guest]

One other suggestion . . . get copies of all your labs. I do that now so that I

can track things myself. If I'm uncomfortable with a test that is continually

out of reference range (why do they have the reference range, if they simply

ignore it?), I seek a second opinion.

All the best,

Robyn

-

[Guest guest]

In children this is called PANDAS. Unfortunately I don't know what

it's called in adults but it's the same thing. Here's some info:

http://ajp.psychiatryonline.org/cgi/content/full/159/2/320

http://serendip.brynmawr.edu/exchange/node/1769

http://www.sciencedirect.com/science?_ob=ArticleURL & _udi=B6T2X-4VC14T2-1 & _user=1\

0 & _rdoc=1 & _fmt= & _orig=search & _sort=d & view=c & _acct=C000050221 & _version=1 & _urlVers\

ion=0 & _userid=10 & md5=50e86db23835e66a2ed1c2cc88f8c8cd

You can google for more. " adult pandas swedo " will bring up plenty of

results.

Cheryl

~http://www.gryffins-tail.blogspot.com

~@midian42~

On May 30, 2009, at 1:07 PM, wrote:

>

>

> Hi listmates, I have a quick question, would like to hear about your

> opinions based on the point of view. Recently I developed a

> hypersensitivity vasculitis (its my immune system attacking my blood

> vessels for those who don't know...) from a simple cold I caught.

> (Gee I wonder where my daughter's immune dysfunction came from?? Hee

> hee)

>

> The doctor checked my ASO and it was high. She asked me if I had

> strep recently and I told her I had it 10 years ago. She then

> proceded to say that that was why my ASO was high. 10 years????

>

> That just seems wrong to me. We are just ignoring it now because the

> doctor thinks its irrelevant. I think it is relevant. What do you

> guys think???

>

> Thanks!

>

>

>

>

[Guest guest]

Thank you! I didn't know if adults could get the equivalent of PANDAS. I will

look these up. Thank you again!

-

>

> >

> >

> > Hi listmates, I have a quick question, would like to hear about your

> > opinions based on the point of view. Recently I developed a

> > hypersensitivity vasculitis (its my immune system attacking my blood

> > vessels for those who don't know...) from a simple cold I caught.

> > (Gee I wonder where my daughter's immune dysfunction came from?? Hee

> > hee)

> >

> > The doctor checked my ASO and it was high. She asked me if I had

> > strep recently and I told her I had it 10 years ago. She then

> > proceded to say that that was why my ASO was high. 10 years????

> >

> > That just seems wrong to me. We are just ignoring it now because the

> > doctor thinks its irrelevant. I think it is relevant. What do you

> > guys think???

> >

> > Thanks!

> >

> >

> >

> >

>

>

>

>

[Guest guest]

> Strep throat isn't the only way we get strep, either.  We can have it as ear

nose or throat infections, and maybe even gastro. 

Just wanted to point out - strep can also go to the brain. It is a condition

called PANDAS. Not sure what the acronym stands for, but it can cause some

problem behaviours as well.

Lana

[Guest guest]

I do.  I had strep the first time in over 10 years sitting in Dr G's office for

our first visit in 2001, but I never thought to mention how sick I was.  How

different things might have been had I just said something.

It took 6 months to get set off into full blown pandas because it was initially

being treated, just not sufficiently.  However, my first outright pandas onset

occured when I was 8 or 9 years old ... I think I was 8 when the chronic strep

started.  So even if it is reactivating in adulthood, it is pandas since it was

a pediatric onset, but I wasn't diagnosed since 30 years ago pandas was not

believed.  It can wax and wane throughout life and get retriggered long after

you've recovered from most of the symptoms, but if you catch strep early and

make sure it absolutely goes away (monitoring aso), I think you can prevent

relapses to some extent.

hth-

________________________________

From: <jlhank80@...>

Sent: Sunday, May 31, 2009 10:29:24 PM

Subject: Re: Elevated ASO - off topic

Thank you! I didn't know if adults could get the equivalent of PANDAS. I will

look these up. Thank you again!

-

>

> >

> >

> > Hi listmates, I have a quick question, would like to hear about your

> > opinions based on the point of view. Recently I developed a

> > hypersensitivity vasculitis (its my immune system attacking my blood

> > vessels for those who don't know...) from a simple cold I caught.

> > (Gee I wonder where my daughter's immune dysfunction came from?? Hee

> > hee)

> >

> > The doctor checked my ASO and it was high. She asked me if I had

> > strep recently and I told her I had it 10 years ago. She then

> > proceded to say that that was why my ASO was high. 10 years????

> >

> > That just seems wrong to me. We are just ignoring it now because the

> > doctor thinks its irrelevant. I think it is relevant. What do you

> > guys think???

> >

> > Thanks!

> >

> >

> >

> >

>

>

>

>