TO OLY

[Guest guest]

Well said Sher, I would send you 10 of those little kissers if I could..You are just so very special to us.. I pray God Blesses every step you take.

Love and Prayers, Peggy 9/04 ipf Florida

Leanne...many thanks for heading this group. My day misses something if I don't check the board. When I'm away from home I think of all of you.

We are so lucky to have this forum.

Sher ipf 5-06

to Oly

Dear Oly,

Please have your family check out our website at www.pulmonaryfibrosis.org <http://www.pulmonaryfibrosis.org> . It has a lot of good information. Maybe joining a support group would be helpful. Not only on-line but face to face. So many people have told me that when they talk to other people with the disease that it helps them tremendously. We support each other.

I have to tell everyone that I am so very grateful for each and every one of you. The advice that I've received from this site is invaluable. The love and camraderie that goes around just warms my heart. I know that this disease would be so hard to deal with without your support. So, just want to say THANKS. MUA,.Kiss Kiss and Hugs!

Leanne uip 1/03

gale17444 wrote:

>

> Hi everyone :

>

> I have a question..where can I go to teach my family about this

disease!! Pulmonary fibrosis!! I am the youngest of five, one brother

and three sisters.. Who think they know best for me.. they even want

to argue even with the Doctors!! I suffer from fatigue, Like all of

you, but no.... it's because I am not getting enough exercise, the

health nut!!! sister says I can not explain to her that I just can't

go out and run around the block, if I could I wouldn't be sick! some

other sister wants me to be busy no matter what!! she thinks if you

are busy, you don't have time to be sad!! Sometimes all I want to do

is sleep!!! You can' not imagine how hard it is to be in house that

people think it's not good to sleep so much!! BUT THAT IS WHAT I WANT

RIGHT NOW!!! It won't be forever just for now that I am really really

tired! That happens, then I start getting some of my energy

back..When I go to the doctor, and spend all those hours out.. for a

few days all I want to do is

> sleep..So everyone starts calling so I won't sleep so much..

> Help!! where can I send them?? I send the pulmonary fibrosis site

to each of them, that hasn't helped..I know they are trying to help,

but I am really trying not to loose it!!

> I am going to go postal on them!!! and I really don't want to!! I

get really angry and I lash out, I even lashed out at my father last

Saturday, and he is 83 years old, and he's always trying to help me!

I get really ugly when I get frustrated.. So Please someone what can

I do?? sometimes I get so mad I can't even explain to anyone how I

feel!! my words get lost in my head!! I think I am going crazy!!

what can I do??

>

> Love you all, please send prayers my way..

> Oly

>

>

>

>

> ---------------------------------

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>

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[Guest guest]

Oly.......are you ok today? Please post something to the board so we all know. I couldn't find a phone # for you.

I apologize if perhaps I intimidated you yesterday with wanting to help. I didn't leave you a way out, did I?

It's pretty hard to say, "Thanks, but no thanks" to anyone here on the board. That is unless you are as outspoken as I am.

There are many here on the board who are helpful and knowledgeable under any/all circumstances. I do not want to appear "know it all". I think I've been through it "all" but I sure don't know everything. We all could read your desperation and others would have responded to you as well. I'm always careful about getting too personal on an open forum...thus I extended my email.

Watching for your post!

Sher ipf 5-06

"Don't worry about tomorrow, God is already there"