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efforts on behalf of Dr. Goldberg

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Posted
Posted

Hello all, yes I accidentally posted this note to the site, but the message to

all would have been the same. Dr. Goldberg says he needs parent support and if

anyone?is interested in getting the word out it would be greatly appreciated. I

am just another parent who is willing to do whatever it takes to help DR.

Goldberg finally cure our kids of this illness that is, most definitely, an

epidemic!

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Posted
Posted

I am so glad someone brought this up, I have wanted to for sometime now. My

daughter is not a patient of Dr. G but a pt. of Dr and the NNY clinic.

But my daughter appears to be recovering from autism, but still delayed. She no

longer stims, plays with others, doesnt tantrum, etc. Before less than a

year ago she was moderately autistic. Today she does not fit the autism dx.

When I tell people about (and trust me I do ALL of the time) and that

autism is really a disease process in our kids,this is what I have encountered:

-Parents dont believe that its right to treat autism this way, they believe in

" neurodiversity " and autism is not a disease, its genetic.

-they are so distrustful of the medical community so they wont see a dr without

the name DAN stamped on them or they are endorsed by Mccarthy

-they believe its heavy metals/and or metabolic origin and not the immune system

-or they say " thats nice " and they dont want to do what it takes to get their

kid better

-I have also had people be SO disrespectful and arguementative and put Dr. G

down because of rumors they had heard. one person even accused me of " spying "

and lying about my daughter and that Dr. G " plants " people on lists to talk

about . I am not kidding.

I am SO discouraged. I want kids to get better but my efforts are fruitless. I

thought if people saw with their own eyes that my daughter is better they would

listen to me, but they dont.

I would love to hear from others what they have done. I figure I dont care who

says wait about . I got my daughter back!!!!!

And even if I help one person all that persecution is worth it.

-

>

> Hello all, yes I accidentally posted this note to the site, but the message to

all would have been the same. Dr. Goldberg says he needs parent support and if

anyone?is interested in getting the word out it would be greatly appreciated. I

am just another parent who is willing to do whatever it takes to help DR.

Goldberg finally cure our kids of this illness that is, most definitely, an

epidemic!

>

>

>

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Posted
Posted

I just had a thought as I read this.I've seen Larry King do some interviews

on autism and he seems very fair in who he interviews and what they say. He

seems to present different stories to truly help for better understanding. I

wonder if someone(s) from the 'camp' could get on his show?

K

From: [mailto: ] On Behalf Of

Sent: Wednesday, June 24, 2009 8:59 AM

Subject: Re: efforts on behalf of Dr. Goldberg

I am so glad someone brought this up, I have wanted to for sometime now. My

daughter is not a patient of Dr. G but a pt. of Dr and the NNY

clinic. But my daughter appears to be recovering from autism, but still

delayed. She no longer stims, plays with others, doesnt tantrum, etc. Before

less than a year ago she was moderately autistic. Today she does not

fit the autism dx.

When I tell people about (and trust me I do ALL of the time) and that

autism is really a disease process in our kids,this is what I have

encountered:

-Parents dont believe that its right to treat autism this way, they believe

in " neurodiversity " and autism is not a disease, its genetic.

-they are so distrustful of the medical community so they wont see a dr

without the name DAN stamped on them or they are endorsed by Mccarthy

-they believe its heavy metals/and or metabolic origin and not the immune

system

-or they say " thats nice " and they dont want to do what it takes to get

their kid better

-I have also had people be SO disrespectful and arguementative and put Dr. G

down because of rumors they had heard. one person even accused me of

" spying " and lying about my daughter and that Dr. G " plants " people on lists

to talk about . I am not kidding.

I am SO discouraged. I want kids to get better but my efforts are fruitless.

I thought if people saw with their own eyes that my daughter is better they

would listen to me, but they dont.

I would love to hear from others what they have done. I figure I dont care

who says wait about . I got my daughter back!!!!!

And even if I help one person all that persecution is worth it.

-

--- In <mailto:%40> , gvizjazz@...

wrote:

>

> Hello all, yes I accidentally posted this note to the site, but the

message to all would have been the same. Dr. Goldberg says he needs parent

support and if anyone?is interested in getting the word out it would be

greatly appreciated. I am just another parent who is willing to do whatever

it takes to help DR. Goldberg finally cure our kids of this illness that is,

most definitely, an epidemic!

>

>

>

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Posted
Posted

,

Do you mind my asking how old your daughter is? My son is 4 1/2 and is what

I would call higher moderate but not mild and we have been with Dr. G over a

year. We are so discouraged because he is not talking spontaneously and has

no interest in his peers and we have done everything we can think of to

facilitate both areas. We are not giving up on Dr. G but it is so helpful to

hear success stories to affirm that we are on the right track.

I too encourage every one about the NIDs protocol and even got three

families to fly cross country to give it a try. They have all given up on

Dr. G by the way . But since our son is not coming out of the autism dx like

we had hoped it is hard to convince folks.

Martha

On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@...> wrote:

>

>

> I am so glad someone brought this up, I have wanted to for sometime now. My

> daughter is not a patient of Dr. G but a pt. of Dr and the NNY

> clinic. But my daughter appears to be recovering from autism, but still

> delayed. She no longer stims, plays with others, doesnt tantrum, etc. Before

> less than a year ago she was moderately autistic. Today she does not

> fit the autism dx.

>

> When I tell people about (and trust me I do ALL of the time) and that

> autism is really a disease process in our kids,this is what I have

> encountered:

> -Parents dont believe that its right to treat autism this way, they believe

> in " neurodiversity " and autism is not a disease, its genetic.

> -they are so distrustful of the medical community so they wont see a dr

> without the name DAN stamped on them or they are endorsed by Mccarthy

> -they believe its heavy metals/and or metabolic origin and not the immune

> system

> -or they say " thats nice " and they dont want to do what it takes to get

> their kid better

> -I have also had people be SO disrespectful and arguementative and put Dr.

> G down because of rumors they had heard. one person even accused me of

> " spying " and lying about my daughter and that Dr. G " plants " people on lists

> to talk about . I am not kidding.

>

> I am SO discouraged. I want kids to get better but my efforts are

> fruitless. I thought if people saw with their own eyes that my daughter is

> better they would listen to me, but they dont.

>

> I would love to hear from others what they have done. I figure I dont care

> who says wait about . I got my daughter back!!!!!

> And even if I help one person all that persecution is worth it.

>

> -

>

>

> >

> > Hello all, yes I accidentally posted this note to the site, but the

> message to all would have been the same. Dr. Goldberg says he needs parent

> support and if anyone?is interested in getting the word out it would be

> greatly appreciated. I am just another parent who is willing to do whatever

> it takes to help DR. Goldberg finally cure our kids of this illness that is,

> most definitely, an epidemic!

> >

> >

> >

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Posted
Posted

Martha,

My son is 7 and has been with Dr. G for 3.5 years. He is MUCH healthier than

he was when we started. He is talking, but expressive language is still a

big challenge for him. Six months ago we started private speech and OT and

he has made HUGE gains because, IMHO, the therapists at the new place are

just 'different'. They are more innovative and somehow more in tune with him

than many of the others he has worked with. We have done private ST in the

past, and some SLPs are better with him than others.

His receptive language is MUCH, MUCH better since being on the protocol,

especially in the last 6 months.

He still struggles with his peers, although he is well loved by his

classmates. I know he notices them (I see him watching them), but he is

still 'shy'. He is fortunate to have a twin sister who is his best friend,

and they play really well together, but often end up playing what/how he

wants because IMHO - he can express himself with what he is comfortable

with so the play tends to follow that. He still struggles with

communication, so it's still hard for him to have friends (plus, he's so

busy with therapies that it makes it difficult to schedule regular

playdates). Next fall, he and my husband will participate in a group like

Boy Scouts, and I'm hoping that that will really help develop some

friendships (for both of them! My husband works all the time!).

What I'm saying is that perhaps just because your child's language and

social skills are not 100% 'typical' that it does not mean that he is not

coming out of autism/illness.

You don't mention if you are supplementing the protocol/medical treatment

with therapies that are necessary to help your son catch up to his peers.

Kristy

From: [mailto: ] On Behalf Of Martha

Wood

Sent: Wednesday, June 24, 2009 9:11 AM

Subject: Re: Re: efforts on behalf of Dr. Goldberg

,

Do you mind my asking how old your daughter is? My son is 4 1/2 and is what

I would call higher moderate but not mild and we have been with Dr. G over a

year. We are so discouraged because he is not talking spontaneously and has

no interest in his peers and we have done everything we can think of to

facilitate both areas. We are not giving up on Dr. G but it is so helpful to

hear success stories to affirm that we are on the right track.

I too encourage every one about the NIDs protocol and even got three

families to fly cross country to give it a try. They have all given up on

Dr. G by the way . But since our son is not coming out of the autism dx like

we had hoped it is hard to convince folks.

Martha

On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@...

<mailto:jlhank80%40> > wrote:

>

>

> I am so glad someone brought this up, I have wanted to for sometime now.

My

> daughter is not a patient of Dr. G but a pt. of Dr and the NNY

> clinic. But my daughter appears to be recovering from autism, but still

> delayed. She no longer stims, plays with others, doesnt tantrum, etc.

Before

> less than a year ago she was moderately autistic. Today she does not

> fit the autism dx.

>

> When I tell people about (and trust me I do ALL of the time) and that

> autism is really a disease process in our kids,this is what I have

> encountered:

> -Parents dont believe that its right to treat autism this way, they

believe

> in " neurodiversity " and autism is not a disease, its genetic.

> -they are so distrustful of the medical community so they wont see a dr

> without the name DAN stamped on them or they are endorsed by

Mccarthy

> -they believe its heavy metals/and or metabolic origin and not the immune

> system

> -or they say " thats nice " and they dont want to do what it takes to get

> their kid better

> -I have also had people be SO disrespectful and arguementative and put Dr.

> G down because of rumors they had heard. one person even accused me of

> " spying " and lying about my daughter and that Dr. G " plants " people on

lists

> to talk about . I am not kidding.

>

> I am SO discouraged. I want kids to get better but my efforts are

> fruitless. I thought if people saw with their own eyes that my daughter is

> better they would listen to me, but they dont.

>

> I would love to hear from others what they have done. I figure I dont care

> who says wait about . I got my daughter back!!!!!

> And even if I help one person all that persecution is worth it.

>

> -

>

>

> >

> > Hello all, yes I accidentally posted this note to the site, but the

> message to all would have been the same. Dr. Goldberg says he needs parent

> support and if anyone?is interested in getting the word out it would be

> greatly appreciated. I am just another parent who is willing to do

whatever

> it takes to help DR. Goldberg finally cure our kids of this illness that

is,

> most definitely, an epidemic!

> >

> >

> >

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Posted
Posted

I have three boys on Dr. G's protocol. One with Asperger's, one with

mild/moderate autism and one with ADHD-type symptoms. My son with autism has

been with Dr. G for 18 months. Although we haven't seen a tremendous growth in

expressive language, we've seen incredible gains in his overall health. Before

Dr. G, he had a neurological condition called cyclical vomiting syndrome,

migraines and absence seizures. Four months into the protocol, the cyclical

vomiting went away. This was after two years of monthly vomiting episodes along

with migraines. He went from 4-5 migraines per month to one and his most recent

migraine was two months ago. 

 

I really believe that his body has to heal and repair itself before we see any

significant improvement in expressive language. I've heard many parents say that

this is the last area where their children improve. I've seen my son's cognition

improve along with his receptive language. This past year he learned to read

using a phonics program, which I was told would probably not happen.

 

As Dr. G has told me more than once, he didn't get this way overnight. It took

time and it will take time to heal him. We're in it for the long haul.

 

All the best,

 

Robyn

>

>

> I am so glad someone brought this up, I have wanted to for sometime now.

My

> daughter is not a patient of Dr. G but a pt. of Dr and the NNY

> clinic. But my daughter appears to be recovering from autism, but still

> delayed. She no longer stims, plays with others, doesnt tantrum, etc.

Before

> less than a year ago she was moderately autistic. Today she does not

> fit the autism dx.

>

> When I tell people about (and trust me I do ALL of the time) and that

> autism is really a disease process in our kids,this is what I have

> encountered:

> -Parents dont believe that its right to treat autism this way, they

believe

> in " neurodiversity " and autism is not a disease, its genetic.

> -they are so distrustful of the medical community so they wont see a dr

> without the name DAN stamped on them or they are endorsed by

Mccarthy

> -they believe its heavy metals/and or metabolic origin and not the immune

> system

> -or they say " thats nice " and they dont want to do what it takes to get

> their kid better

> -I have also had people be SO disrespectful and arguementative and put Dr.

> G down because of rumors they had heard. one person even accused me of

> " spying " and lying about my daughter and that Dr. G " plants " people on

lists

> to talk about . I am not kidding.

>

> I am SO discouraged. I want kids to get better but my efforts are

> fruitless. I thought if people saw with their own eyes that my daughter is

> better they would listen to me, but they dont.

>

> I would love to hear from others what they have done. I figure I dont care

> who says wait about . I got my daughter back!!!!!

> And even if I help one person all that persecution is worth it.

>

> -

>

>

> >

> > Hello all, yes I accidentally posted this note to the site, but the

> message to all would have been the same. Dr. Goldberg says he needs parent

> support and if anyone?is interested in getting the word out it would be

> greatly appreciated. I am just another parent who is willing to do

whatever

> it takes to help DR. Goldberg finally cure our kids of this illness that

is,

> most definitely, an epidemic!

> >

> >

> >

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Posted
Posted

Kristy,

Thank you so much for your quick reply. This is an encouragement to me.

We have supplemented our son with private speech, OT, and ABA (right now

about 15 hours a week) since he was 2 1/2. He also gets music therapy, OT,

speech and aba at school. MT and speech are good at school thankfully. We

have him lined up with regular playdates at least once a week with typical

peers and he has two older brother who are NT. We have also done language

classes at the local university and social skills classes. Actually we have

overdone the therapies in the past year and are now backing off a bit to

give him more down time and time to be a kid. We *are* seeing progress but

it is much slower than we anticipated. For example he used to run to his

room and hide when friends came over but now he can at least be in the same

room although we have to make him stay. He is a smart kid and has such

potential if we can just get past the two big ones: language and social.

I have dropped everything to help this child and would do so for any of my

boys. I just hope and pray this all pays off and we can be one of

the success stories.

Thanks again for your kind feedback.

Martha

On Wed, Jun 24, 2009 at 11:40 AM, Kristy Nardini <knardini@...>wrote:

>

>

> Martha,

>

> My son is 7 and has been with Dr. G for 3.5 years. He is MUCH healthier

> than

> he was when we started. He is talking, but expressive language is still a

> big challenge for him. Six months ago we started private speech and OT and

> he has made HUGE gains because, IMHO, the therapists at the new place are

> just 'different'. They are more innovative and somehow more in tune with

> him

> than many of the others he has worked with. We have done private ST in the

> past, and some SLPs are better with him than others.

>

> His receptive language is MUCH, MUCH better since being on the protocol,

> especially in the last 6 months.

>

> He still struggles with his peers, although he is well loved by his

> classmates. I know he notices them (I see him watching them), but he is

> still 'shy'. He is fortunate to have a twin sister who is his best friend,

> and they play really well together, but often end up playing what/how he

> wants because IMHO - he can express himself with what he is comfortable

> with so the play tends to follow that. He still struggles with

> communication, so it's still hard for him to have friends (plus, he's so

> busy with therapies that it makes it difficult to schedule regular

> playdates). Next fall, he and my husband will participate in a group like

> Boy Scouts, and I'm hoping that that will really help develop some

> friendships (for both of them! My husband works all the time!).

>

> What I'm saying is that perhaps just because your child's language and

> social skills are not 100% 'typical' that it does not mean that he is not

> coming out of autism/illness.

>

> You don't mention if you are supplementing the protocol/medical treatment

> with therapies that are necessary to help your son catch up to his peers.

>

> Kristy

>

> From: <%40> [mailto:

> <%40>] On Behalf Of Martha

> Wood

> Sent: Wednesday, June 24, 2009 9:11 AM

> <%40>

> Subject: Re: Re: efforts on behalf of Dr. Goldberg

>

>

> ,

> Do you mind my asking how old your daughter is? My son is 4 1/2 and is what

> I would call higher moderate but not mild and we have been with Dr. G over

> a

> year. We are so discouraged because he is not talking spontaneously and has

> no interest in his peers and we have done everything we can think of to

> facilitate both areas. We are not giving up on Dr. G but it is so helpful

> to

> hear success stories to affirm that we are on the right track.

> I too encourage every one about the NIDs protocol and even got three

> families to fly cross country to give it a try. They have all given up on

> Dr. G by the way . But since our son is not coming out of the autism dx

> like

> we had hoped it is hard to convince folks.

> Martha

>

> On Wed, Jun 24, 2009 at 10:59 AM,

<jlhank80@...<jlhank80%40>

> <mailto:jlhank80%40 <jlhank80%2540>> > wrote:

>

> >

> >

> > I am so glad someone brought this up, I have wanted to for sometime now.

> My

> > daughter is not a patient of Dr. G but a pt. of Dr and the NNY

> > clinic. But my daughter appears to be recovering from autism, but still

> > delayed. She no longer stims, plays with others, doesnt tantrum, etc.

> Before

> > less than a year ago she was moderately autistic. Today she does not

> > fit the autism dx.

> >

> > When I tell people about (and trust me I do ALL of the time) and

> that

> > autism is really a disease process in our kids,this is what I have

> > encountered:

> > -Parents dont believe that its right to treat autism this way, they

> believe

> > in " neurodiversity " and autism is not a disease, its genetic.

> > -they are so distrustful of the medical community so they wont see a dr

> > without the name DAN stamped on them or they are endorsed by

> Mccarthy

> > -they believe its heavy metals/and or metabolic origin and not the immune

> > system

> > -or they say " thats nice " and they dont want to do what it takes to get

> > their kid better

> > -I have also had people be SO disrespectful and arguementative and put

> Dr.

> > G down because of rumors they had heard. one person even accused me of

> > " spying " and lying about my daughter and that Dr. G " plants " people on

> lists

> > to talk about . I am not kidding.

> >

> > I am SO discouraged. I want kids to get better but my efforts are

> > fruitless. I thought if people saw with their own eyes that my daughter

> is

> > better they would listen to me, but they dont.

> >

> > I would love to hear from others what they have done. I figure I dont

> care

> > who says wait about . I got my daughter back!!!!!

> > And even if I help one person all that persecution is worth it.

> >

> > -

> >

> >

> > >

> > > Hello all, yes I accidentally posted this note to the site, but the

> > message to all would have been the same. Dr. Goldberg says he needs

> parent

> > support and if anyone?is interested in getting the word out it would be

> > greatly appreciated. I am just another parent who is willing to do

> whatever

> > it takes to help DR. Goldberg finally cure our kids of this illness that

> is,

> > most definitely, an epidemic!

> > >

> > >

> > >

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Posted
Posted

Hi Kristy-I have thought the same thing about trying to get DR. Goldberg on the

Larry King show! When he had McCarthy on recently I even emailed them with

a question about having another doctor on with a different point of view. I

never even heard back from them! I still think we should try to pursue it. I

also thought about Oprah Winfrey as she has had shows on autism as well.

Gayle

Re: efforts on behalf of Dr. Goldberg

I am so glad someone brought this up, I have wanted to for sometime now. My

daughter is not a patient of Dr. G but a pt. of Dr and the NNY

clinic. But my daughter appears to be recovering from autism, but still

delayed. She no longer stims, plays with others, doesnt tantrum, etc. Before

less than a year ago she was moderately autistic. Today she does not

fit the autism dx.

When I tell people about (and trust me I do ALL of the time) and that

autism is really a disease process in our kids,this is what I have

encountered:

-Parents dont believe that its right to treat autism this way, they believe

in " neurodiversity " and autism is not a disease, its genetic.

-they are so distrustful of the medical community so they wont see a dr

without the name DAN stamped on them or they are endorsed by Mccarthy

-they believe its heavy metals/and or metabolic origin and not the immune

system

-or they say " thats nice " and they dont want to do what it takes to get

their kid better

-I have also had people be SO disrespectful and arguementative and put Dr. G

down because of rumors they had heard. one person even accused me of

" spying " and lying about my daughter and that Dr. G " plants " people on lists

to talk about . I am not kidding.

I am SO discouraged. I want kids to get better but my efforts are fruitless.

I thought if people saw with their own eyes that my daughter is better they

would listen to me, but they dont.

I would love to hear from others what they have done. I figure I dont care

who says wait about . I got my daughter back!!!!!

And even if I help one person all that persecution is worth it.

-

--- In <mailto:%40> , gvizjazz@...

wrote:

>

> Hello all, yes I accidentally posted this note to the site, but the

message to all would have been the same. Dr. Goldberg says he needs parent

support and if anyone?is interested in getting the word out it would be

greatly appreciated. I am just another parent who is willing to do whatever

it takes to help DR. Goldberg finally cure our kids of this illness that is,

most definitely, an epidemic!

>

>

>

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Posted
Posted

Hi,

My son has been on the protocol for the past 13 months. His improvements

are nothing short from extraordinary, to the point that his only problems are

mild speech delays and very minimum attention deficit, but we are hoping that

will get better very soon. 2 1/2 years ago my son had severe autism.

We follow the protocol very strictly, but there are a few things we do on

top of it. We use Ibuprofen therapy (to reduce inflammation), transdermal

glutathione, Low Dose Naltrexone and gamma globulin shots. I strongly believe

that the anti-inflammatory drugs are VERY important for our children since they

have autoimmune dysfunctions (autoimmune disorders). One of the most important

drugs to treat autoimmune disorders are anti-inflammatory drugs, so what our

children have is no different. If there is one treatment that has done wonders

in my son is the Ibuprofen. Dr. Goldberg has given me a hard time telling me to

be careful with it because it can cause stomach bleeding, but I take it very

seriously and ALWAYS give it to my son with plenty of food and liquid on his

stomach. So far my son hasn't had any problems with it.

Autoimmune disorder treatment

http://www.faqs.org/health/Sick-V1/Autoimmune-Disorders.html

" Treatments differ for each type of autoimmune disorder. However, there is one

treatment that is common to many forms of autoimmune disorders. That treatment

is the use of drugs to reduce the inflammation, swelling, and pain that

accompanies most autoimmune disorders. Inflammation occurs when antibodies

attack and irritate tissues. Some common drugs, such as aspirin and ibuprofen

(pronounced i-byoo-PRO-fuhn), help reduce inflammation and pain. "

The transdermal glutathione is to increase glutathione levels in the body which

is VERY important for the immune system and to effectively detoxify the body.

Children with autism cannot synthesize glutathione correctly due to leaky guts.

The Low Dose Naltrexone is also used to treat autoimmune disorders and it even

helps heal the GI tract. http://en.wikipedia.org/wiki/Low_dose_naltrexone. Dr.

Goldberg doesn't approve the Low Dose Naltrexone, but since it is completely

safe and it doesn't interact with any of the protocol medication we use it

on our son.

One more thing that I give Dr. Goldberg very much credit is about noticing that

my son is hypogammaglobulinemic (has low IGG levels). He prescribed gamma

globulin shots and it has also worked wonderfully in my son's immune system.

The latest lab test showed every single parameter in the immune panel in within

normal range which it reflects in his behavior and speech improvements. We have

been running immune panel lab tests for the past 2+ years when we used to see a

DAN doctor and now with Dr. Goldberg and this is the first time that his immune

system looks this good.

I do not understand why if all these children with autism have immune

dysfunction proven by lab tests why people keep saying that it is genetic.

People also keep talking about heavy metals, but the metals accumulate because

the damaged digestive system (due to inflammation caused by their immune

disorders) cannot absorb the substances needed to create glutathione

http://en.wikipedia.org/wiki/Glutathione which is what detoxify our bodies.

It is so frustrating how much time is being wasted in all these non sense ideas

that will not help any child, when there are so many concrete facts and similar

problems that can be easily diagnosed in every single child with autism.

JR

From: knardini@...

Date: Wed, 24 Jun 2009 09:40:48 -0700

Subject: RE: Re: efforts on behalf of Dr. Goldberg

Martha,

My son is 7 and has been with Dr. G for 3.5 years. He is MUCH healthier than

he was when we started. He is talking, but expressive language is still a

big challenge for him. Six months ago we started private speech and OT and

he has made HUGE gains because, IMHO, the therapists at the new place are

just 'different'. They are more innovative and somehow more in tune with him

than many of the others he has worked with. We have done private ST in the

past, and some SLPs are better with him than others.

His receptive language is MUCH, MUCH better since being on the protocol,

especially in the last 6 months.

He still struggles with his peers, although he is well loved by his

classmates. I know he notices them (I see him watching them), but he is

still 'shy'. He is fortunate to have a twin sister who is his best friend,

and they play really well together, but often end up playing what/how he

wants because IMHO - he can express himself with what he is comfortable

with so the play tends to follow that. He still struggles with

communication, so it's still hard for him to have friends (plus, he's so

busy with therapies that it makes it difficult to schedule regular

playdates). Next fall, he and my husband will participate in a group like

Boy Scouts, and I'm hoping that that will really help develop some

friendships (for both of them! My husband works all the time!).

What I'm saying is that perhaps just because your child's language and

social skills are not 100% 'typical' that it does not mean that he is not

coming out of autism/illness.

You don't mention if you are supplementing the protocol/medical treatment

with therapies that are necessary to help your son catch up to his peers.

Kristy

From: [mailto: ] On Behalf Of Martha

Wood

Sent: Wednesday, June 24, 2009 9:11 AM

Subject: Re: Re: efforts on behalf of Dr. Goldberg

,

Do you mind my asking how old your daughter is? My son is 4 1/2 and is what

I would call higher moderate but not mild and we have been with Dr. G over a

year. We are so discouraged because he is not talking spontaneously and has

no interest in his peers and we have done everything we can think of to

facilitate both areas. We are not giving up on Dr. G but it is so helpful to

hear success stories to affirm that we are on the right track.

I too encourage every one about the NIDs protocol and even got three

families to fly cross country to give it a try. They have all given up on

Dr. G by the way . But since our son is not coming out of the autism dx like

we had hoped it is hard to convince folks.

Martha

On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@...

<mailto:jlhank80%40> > wrote:

>

>

> I am so glad someone brought this up, I have wanted to for sometime now.

My

> daughter is not a patient of Dr. G but a pt. of Dr and the NNY

> clinic. But my daughter appears to be recovering from autism, but still

> delayed. She no longer stims, plays with others, doesnt tantrum, etc.

Before

> less than a year ago she was moderately autistic. Today she does not

> fit the autism dx.

>

> When I tell people about (and trust me I do ALL of the time) and that

> autism is really a disease process in our kids,this is what I have

> encountered:

> -Parents dont believe that its right to treat autism this way, they

believe

> in " neurodiversity " and autism is not a disease, its genetic.

> -they are so distrustful of the medical community so they wont see a dr

> without the name DAN stamped on them or they are endorsed by

Mccarthy

> -they believe its heavy metals/and or metabolic origin and not the immune

> system

> -or they say " thats nice " and they dont want to do what it takes to get

> their kid better

> -I have also had people be SO disrespectful and arguementative and put Dr.

> G down because of rumors they had heard. one person even accused me of

> " spying " and lying about my daughter and that Dr. G " plants " people on

lists

> to talk about . I am not kidding.

>

> I am SO discouraged. I want kids to get better but my efforts are

> fruitless. I thought if people saw with their own eyes that my daughter is

> better they would listen to me, but they dont.

>

> I would love to hear from others what they have done. I figure I dont care

> who says wait about . I got my daughter back!!!!!

> And even if I help one person all that persecution is worth it.

>

> -

>

>

> >

> > Hello all, yes I accidentally posted this note to the site, but the

> message to all would have been the same. Dr. Goldberg says he needs parent

> support and if anyone?is interested in getting the word out it would be

> greatly appreciated. I am just another parent who is willing to do

whatever

> it takes to help DR. Goldberg finally cure our kids of this illness that

is,

> most definitely, an epidemic!

> >

> >

> >

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Posted
Posted

There are two parts to the genetics equation. The DNA (pt 1) and the

proteins that protect the DNA (pt 2). The way I understand it, our

children's proteins have interacted with the environment to expose the DNA

that makes them susceptible to . Google epigenetics and/or Dr. Bruce

Lipton.

Kristy

From: [mailto: ] On Behalf Of

Sent: Wednesday, June 24, 2009 11:14 AM

nids

Subject: RE: Re: efforts on behalf of Dr. Goldberg

Hi,

My son has been on the protocol for the past 13 months. His

improvements are nothing short from extraordinary, to the point that his

only problems are mild speech delays and very minimum attention deficit, but

we are hoping that will get better very soon. 2 1/2 years ago my son had

severe autism.

We follow the protocol very strictly, but there are a few things we do

on top of it. We use Ibuprofen therapy (to reduce inflammation), transdermal

glutathione, Low Dose Naltrexone and gamma globulin shots. I strongly

believe that the anti-inflammatory drugs are VERY important for our children

since they have autoimmune dysfunctions (autoimmune disorders). One of the

most important drugs to treat autoimmune disorders are anti-inflammatory

drugs, so what our children have is no different. If there is one treatment

that has done wonders in my son is the Ibuprofen. Dr. Goldberg has given me

a hard time telling me to be careful with it because it can cause stomach

bleeding, but I take it very seriously and ALWAYS give it to my son with

plenty of food and liquid on his stomach. So far my son hasn't had any

problems with it.

Autoimmune disorder treatment

http://www.faqs.org/health/Sick-V1/Autoimmune-Disorders.html

" Treatments differ for each type of autoimmune disorder. However, there is

one treatment that is common to many forms of autoimmune disorders. That

treatment is the use of drugs to reduce the inflammation, swelling, and pain

that accompanies most autoimmune disorders. Inflammation occurs when

antibodies attack and irritate tissues. Some common drugs, such as aspirin

and ibuprofen (pronounced i-byoo-PRO-fuhn), help reduce inflammation and

pain. "

The transdermal glutathione is to increase glutathione levels in the body

which is VERY important for the immune system and to effectively detoxify

the body. Children with autism cannot synthesize glutathione correctly due

to leaky guts. The Low Dose Naltrexone is also used to treat autoimmune

disorders and it even helps heal the GI tract.

http://en.wikipedia.org/wiki/Low_dose_naltrexone. Dr. Goldberg doesn't

approve the Low Dose Naltrexone, but since it is completely safe and it

doesn't interact with any of the protocol medication we use it on our

son.

One more thing that I give Dr. Goldberg very much credit is about noticing

that my son is hypogammaglobulinemic (has low IGG levels). He prescribed

gamma globulin shots and it has also worked wonderfully in my son's immune

system. The latest lab test showed every single parameter in the immune

panel in within normal range which it reflects in his behavior and speech

improvements. We have been running immune panel lab tests for the past 2+

years when we used to see a DAN doctor and now with Dr. Goldberg and this is

the first time that his immune system looks this good.

I do not understand why if all these children with autism have immune

dysfunction proven by lab tests why people keep saying that it is genetic.

People also keep talking about heavy metals, but the metals accumulate

because the damaged digestive system (due to inflammation caused by their

immune disorders) cannot absorb the substances needed to create glutathione

http://en.wikipedia.org/wiki/Glutathione which is what detoxify our bodies.

It is so frustrating how much time is being wasted in all these non sense

ideas that will not help any child, when there are so many concrete facts

and similar problems that can be easily diagnosed in every single child with

autism.

JR

<mailto:%40>

From: knardini@... <mailto:knardini%40roadrunner.com>

Date: Wed, 24 Jun 2009 09:40:48 -0700

Subject: RE: Re: efforts on behalf of Dr. Goldberg

Martha,

My son is 7 and has been with Dr. G for 3.5 years. He is MUCH healthier than

he was when we started. He is talking, but expressive language is still a

big challenge for him. Six months ago we started private speech and OT and

he has made HUGE gains because, IMHO, the therapists at the new place are

just 'different'. They are more innovative and somehow more in tune with him

than many of the others he has worked with. We have done private ST in the

past, and some SLPs are better with him than others.

His receptive language is MUCH, MUCH better since being on the protocol,

especially in the last 6 months.

He still struggles with his peers, although he is well loved by his

classmates. I know he notices them (I see him watching them), but he is

still 'shy'. He is fortunate to have a twin sister who is his best friend,

and they play really well together, but often end up playing what/how he

wants because IMHO - he can express himself with what he is comfortable

with so the play tends to follow that. He still struggles with

communication, so it's still hard for him to have friends (plus, he's so

busy with therapies that it makes it difficult to schedule regular

playdates). Next fall, he and my husband will participate in a group like

Boy Scouts, and I'm hoping that that will really help develop some

friendships (for both of them! My husband works all the time!).

What I'm saying is that perhaps just because your child's language and

social skills are not 100% 'typical' that it does not mean that he is not

coming out of autism/illness.

You don't mention if you are supplementing the protocol/medical treatment

with therapies that are necessary to help your son catch up to his peers.

Kristy

From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

Martha

Wood

Sent: Wednesday, June 24, 2009 9:11 AM

<mailto:%40>

Subject: Re: Re: efforts on behalf of Dr. Goldberg

,

Do you mind my asking how old your daughter is? My son is 4 1/2 and is what

I would call higher moderate but not mild and we have been with Dr. G over a

year. We are so discouraged because he is not talking spontaneously and has

no interest in his peers and we have done everything we can think of to

facilitate both areas. We are not giving up on Dr. G but it is so helpful to

hear success stories to affirm that we are on the right track.

I too encourage every one about the NIDs protocol and even got three

families to fly cross country to give it a try. They have all given up on

Dr. G by the way . But since our son is not coming out of the autism dx like

we had hoped it is hard to convince folks.

Martha

On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@...

<mailto:jlhank80%40>

<mailto:jlhank80%40> > wrote:

>

>

> I am so glad someone brought this up, I have wanted to for sometime now.

My

> daughter is not a patient of Dr. G but a pt. of Dr and the NNY

> clinic. But my daughter appears to be recovering from autism, but still

> delayed. She no longer stims, plays with others, doesnt tantrum, etc.

Before

> less than a year ago she was moderately autistic. Today she does not

> fit the autism dx.

>

> When I tell people about (and trust me I do ALL of the time) and that

> autism is really a disease process in our kids,this is what I have

> encountered:

> -Parents dont believe that its right to treat autism this way, they

believe

> in " neurodiversity " and autism is not a disease, its genetic.

> -they are so distrustful of the medical community so they wont see a dr

> without the name DAN stamped on them or they are endorsed by

Mccarthy

> -they believe its heavy metals/and or metabolic origin and not the immune

> system

> -or they say " thats nice " and they dont want to do what it takes to get

> their kid better

> -I have also had people be SO disrespectful and arguementative and put Dr.

> G down because of rumors they had heard. one person even accused me of

> " spying " and lying about my daughter and that Dr. G " plants " people on

lists

> to talk about . I am not kidding.

>

> I am SO discouraged. I want kids to get better but my efforts are

> fruitless. I thought if people saw with their own eyes that my daughter is

> better they would listen to me, but they dont.

>

> I would love to hear from others what they have done. I figure I dont care

> who says wait about . I got my daughter back!!!!!

> And even if I help one person all that persecution is worth it.

>

> -

>

>

> >

> > Hello all, yes I accidentally posted this note to the site, but the

> message to all would have been the same. Dr. Goldberg says he needs parent

> support and if anyone?is interested in getting the word out it would be

> greatly appreciated. I am just another parent who is willing to do

whatever

> it takes to help DR. Goldberg finally cure our kids of this illness that

is,

> most definitely, an epidemic!

> >

> >

> >

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Posted
Posted

I'm new to the list

I first heard of Dr.G through a videoconference that was posted in one of

the other lists I follow. The whole concept of

definitely rings true. We have been in this journey with my son who is 3yo,

and has mild PDD but severe dyspraxia (non-verbal, poor balance, poor

coordination, little body awareness, etc). Having suffered myself from

migraines for many years I can recognize the symptoms of brain inflamation

in my son. I also know that his inmune system is in overdrive as we have

confirmed enterocolitis with scopes and biopsias (this is an abherrant

inmune reaction that compromises the gut, particularly the small vowels

where proper digestion takes place).

My first reaction after knowing about this perspective was to call Dr.Gs

office. They told he doesn't colaborate with other doctors (we are in NY so

I was trying to see if there was someone else we could go closer to home ...

off couse we are swamped with medical bills like everybody else). Still, I

was willing to consider taking the trip, however I'm still waiting to get

the intake package and this was like 4 weeks ago! So far, the farther I

went was to get a prescription from our dan dr to do the viral panel (HHV6,

etc) and should have results in a few days.

We have witnessed a significant regression in the past two months (nothing

to be attributed to diet or digestive flora), mostly in cognitive skills,

receptive language, and fine motor. We are definitely looking for different

perspectives.

Any suggestion?

Thanks,

B

2009/6/24 Kristy Nardini <knardini@...>

>

>

> There are two parts to the genetics equation. The DNA (pt 1) and the

> proteins that protect the DNA (pt 2). The way I understand it, our

> children's proteins have interacted with the environment to expose the DNA

> that makes them susceptible to . Google epigenetics and/or Dr. Bruce

> Lipton.

>

> Kristy

>

> From: <%40> [mailto:

> <%40>] On Behalf Of

>

> Sent: Wednesday, June 24, 2009 11:14 AM

> nids <nids%40>

> Subject: RE: Re: efforts on behalf of Dr. Goldberg

>

>

> Hi,

> My son has been on the protocol for the past 13 months. His

> improvements are nothing short from extraordinary, to the point that his

> only problems are mild speech delays and very minimum attention deficit,

> but

> we are hoping that will get better very soon. 2 1/2 years ago my son had

> severe autism.

>

> We follow the protocol very strictly, but there are a few things we do

> on top of it. We use Ibuprofen therapy (to reduce inflammation),

> transdermal

> glutathione, Low Dose Naltrexone and gamma globulin shots. I strongly

> believe that the anti-inflammatory drugs are VERY important for our

> children

> since they have autoimmune dysfunctions (autoimmune disorders). One of the

> most important drugs to treat autoimmune disorders are anti-inflammatory

> drugs, so what our children have is no different. If there is one treatment

> that has done wonders in my son is the Ibuprofen. Dr. Goldberg has given me

> a hard time telling me to be careful with it because it can cause stomach

> bleeding, but I take it very seriously and ALWAYS give it to my son with

> plenty of food and liquid on his stomach. So far my son hasn't had any

> problems with it.

>

> Autoimmune disorder treatment

> http://www.faqs.org/health/Sick-V1/Autoimmune-Disorders.html

> " Treatments differ for each type of autoimmune disorder. However, there is

> one treatment that is common to many forms of autoimmune disorders. That

> treatment is the use of drugs to reduce the inflammation, swelling, and

> pain

> that accompanies most autoimmune disorders. Inflammation occurs when

> antibodies attack and irritate tissues. Some common drugs, such as aspirin

> and ibuprofen (pronounced i-byoo-PRO-fuhn), help reduce inflammation and

> pain. "

>

> The transdermal glutathione is to increase glutathione levels in the body

> which is VERY important for the immune system and to effectively detoxify

> the body. Children with autism cannot synthesize glutathione correctly due

> to leaky guts. The Low Dose Naltrexone is also used to treat autoimmune

> disorders and it even helps heal the GI tract.

> http://en.wikipedia.org/wiki/Low_dose_naltrexone. Dr. Goldberg doesn't

> approve the Low Dose Naltrexone, but since it is completely safe and it

> doesn't interact with any of the protocol medication we use it on our

> son.

>

> One more thing that I give Dr. Goldberg very much credit is about noticing

> that my son is hypogammaglobulinemic (has low IGG levels). He prescribed

> gamma globulin shots and it has also worked wonderfully in my son's immune

> system. The latest lab test showed every single parameter in the immune

> panel in within normal range which it reflects in his behavior and speech

> improvements. We have been running immune panel lab tests for the past 2+

> years when we used to see a DAN doctor and now with Dr. Goldberg and this

> is

> the first time that his immune system looks this good.

>

> I do not understand why if all these children with autism have immune

> dysfunction proven by lab tests why people keep saying that it is genetic.

> People also keep talking about heavy metals, but the metals accumulate

> because the damaged digestive system (due to inflammation caused by their

> immune disorders) cannot absorb the substances needed to create glutathione

> http://en.wikipedia.org/wiki/Glutathione which is what detoxify our

> bodies.

>

> It is so frustrating how much time is being wasted in all these non sense

> ideas that will not help any child, when there are so many concrete facts

> and similar problems that can be easily diagnosed in every single child

> with

> autism.

>

> JR

>

> <%40> <mailto:

> %40 <%2540>>

> From: knardini@... <knardini%40roadrunner.com> <mailto:

> knardini%40roadrunner.com <knardini%2540roadrunner.com>>

> Date: Wed, 24 Jun 2009 09:40:48 -0700

> Subject: RE: Re: efforts on behalf of Dr. Goldberg

>

> Martha,

>

> My son is 7 and has been with Dr. G for 3.5 years. He is MUCH healthier

> than

> he was when we started. He is talking, but expressive language is still a

> big challenge for him. Six months ago we started private speech and OT and

> he has made HUGE gains because, IMHO, the therapists at the new place are

> just 'different'. They are more innovative and somehow more in tune with

> him

> than many of the others he has worked with. We have done private ST in the

> past, and some SLPs are better with him than others.

>

> His receptive language is MUCH, MUCH better since being on the protocol,

> especially in the last 6 months.

>

> He still struggles with his peers, although he is well loved by his

> classmates. I know he notices them (I see him watching them), but he is

> still 'shy'. He is fortunate to have a twin sister who is his best friend,

> and they play really well together, but often end up playing what/how he

> wants because IMHO - he can express himself with what he is comfortable

> with so the play tends to follow that. He still struggles with

> communication, so it's still hard for him to have friends (plus, he's so

> busy with therapies that it makes it difficult to schedule regular

> playdates). Next fall, he and my husband will participate in a group like

> Boy Scouts, and I'm hoping that that will really help develop some

> friendships (for both of them! My husband works all the time!).

>

> What I'm saying is that perhaps just because your child's language and

> social skills are not 100% 'typical' that it does not mean that he is not

> coming out of autism/illness.

>

> You don't mention if you are supplementing the protocol/medical treatment

> with therapies that are necessary to help your son catch up to his peers.

>

> Kristy

>

> From: <%40> <mailto:

> %40 <%2540>>

> [mailto: <%40> <mailto:

> %40 <%2540>> ] On Behalf Of

> Martha

> Wood

> Sent: Wednesday, June 24, 2009 9:11 AM

> <%40> <mailto:

> %40 <%2540>>

> Subject: Re: Re: efforts on behalf of Dr. Goldberg

>

> ,

> Do you mind my asking how old your daughter is? My son is 4 1/2 and is what

> I would call higher moderate but not mild and we have been with Dr. G over

> a

> year. We are so discouraged because he is not talking spontaneously and has

> no interest in his peers and we have done everything we can think of to

> facilitate both areas. We are not giving up on Dr. G but it is so helpful

> to

> hear success stories to affirm that we are on the right track.

> I too encourage every one about the NIDs protocol and even got three

> families to fly cross country to give it a try. They have all given up on

> Dr. G by the way . But since our son is not coming out of the autism dx

> like

> we had hoped it is hard to convince folks.

> Martha

>

> On Wed, Jun 24, 2009 at 10:59 AM,

<jlhank80@...<jlhank80%40>

> <mailto:jlhank80%40 <jlhank80%2540>>

> <mailto:jlhank80%40 <jlhank80%2540>> > wrote:

>

> >

> >

> > I am so glad someone brought this up, I have wanted to for sometime now.

> My

> > daughter is not a patient of Dr. G but a pt. of Dr and the NNY

> > clinic. But my daughter appears to be recovering from autism, but still

> > delayed. She no longer stims, plays with others, doesnt tantrum, etc.

> Before

> > less than a year ago she was moderately autistic. Today she does not

> > fit the autism dx.

> >

> > When I tell people about (and trust me I do ALL of the time) and

> that

> > autism is really a disease process in our kids,this is what I have

> > encountered:

> > -Parents dont believe that its right to treat autism this way, they

> believe

> > in " neurodiversity " and autism is not a disease, its genetic.

> > -they are so distrustful of the medical community so they wont see a dr

> > without the name DAN stamped on them or they are endorsed by

> Mccarthy

> > -they believe its heavy metals/and or metabolic origin and not the immune

> > system

> > -or they say " thats nice " and they dont want to do what it takes to get

> > their kid better

> > -I have also had people be SO disrespectful and arguementative and put

> Dr.

> > G down because of rumors they had heard. one person even accused me of

> > " spying " and lying about my daughter and that Dr. G " plants " people on

> lists

> > to talk about . I am not kidding.

> >

> > I am SO discouraged. I want kids to get better but my efforts are

> > fruitless. I thought if people saw with their own eyes that my daughter

> is

> > better they would listen to me, but they dont.

> >

> > I would love to hear from others what they have done. I figure I dont

> care

> > who says wait about . I got my daughter back!!!!!

> > And even if I help one person all that persecution is worth it.

> >

> > -

> >

> >

> > >

> > > Hello all, yes I accidentally posted this note to the site, but the

> > message to all would have been the same. Dr. Goldberg says he needs

> parent

> > support and if anyone?is interested in getting the word out it would be

> > greatly appreciated. I am just another parent who is willing to do

> whatever

> > it takes to help DR. Goldberg finally cure our kids of this illness that

> is,

> > most definitely, an epidemic!

> > >

> > >

> > >

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Share on other sites
Guest guest

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Posted
Posted

,

Thanks for sharing about your son's progress. I am curious about the Ibuprofen

therapy...do you know where your son's inflammation is coming from? While I

agree it helps, it seems like it would be a temporary solution. What are your

plans long term?

Also, what does the naltrexone do? I know it is an opiate antagonist

(inhibitor). How does this help? Immune modulation?

- :)

been on the protocol for the past 13 months. His improvements are nothing

short from extraordinary, to the point that his only problems are mild speech

delays and very minimum attention deficit, but we are hoping that will get

better very soon. 2 1/2 years ago my son had severe autism.

>

> We follow the protocol very strictly, but there are a few things we do on

top of it. We use Ibuprofen therapy (to reduce inflammation), transdermal

glutathione, Low Dose Naltrexone and gamma globulin shots. I strongly believe

that the anti-inflammatory drugs are VERY important for our children since they

have autoimmune dysfunctions (autoimmune disorders). One of the most important

drugs to treat autoimmune disorders are anti-inflammatory drugs, so what our

children have is no different. If there is one treatment that has done wonders

in my son is the Ibuprofen. Dr. Goldberg has given me a hard time telling me to

be careful with it because it can cause stomach bleeding, but I take it very

seriously and ALWAYS give it to my son with plenty of food and liquid on his

stomach. So far my son hasn't had any problems with it.

>

> Autoimmune disorder treatment

> http://www.faqs.org/health/Sick-V1/Autoimmune-Disorders.html

> " Treatments differ for each type of autoimmune disorder. However, there is one

treatment that is common to many forms of autoimmune disorders. That treatment

is the use of drugs to reduce the inflammation, swelling, and pain that

accompanies most autoimmune disorders. Inflammation occurs when antibodies

attack and irritate tissues. Some common drugs, such as aspirin and ibuprofen

(pronounced i-byoo-PRO-fuhn), help reduce inflammation and pain. "

>

>

> The transdermal glutathione is to increase glutathione levels in the body

which is VERY important for the immune system and to effectively detoxify the

body. Children with autism cannot synthesize glutathione correctly due to leaky

guts. The Low Dose Naltrexone is also used to treat autoimmune disorders and it

even helps heal the GI tract. http://en.wikipedia.org/wiki/Low_dose_naltrexone.

Dr. Goldberg doesn't approve the Low Dose Naltrexone, but since it is completely

safe and it doesn't interact with any of the protocol medication we use it

on our son.

>

> One more thing that I give Dr. Goldberg very much credit is about noticing

that my son is hypogammaglobulinemic (has low IGG levels). He prescribed gamma

globulin shots and it has also worked wonderfully in my son's immune system.

The latest lab test showed every single parameter in the immune panel in within

normal range which it reflects in his behavior and speech improvements. We have

been running immune panel lab tests for the past 2+ years when we used to see a

DAN doctor and now with Dr. Goldberg and this is the first time that his immune

system looks this good.

>

> I do not understand why if all these children with autism have immune

dysfunction proven by lab tests why people keep saying that it is genetic.

People also keep talking about heavy metals, but the metals accumulate because

the damaged digestive system (due to inflammation caused by their immune

disorders) cannot absorb the substances needed to create glutathione

http://en.wikipedia.org/wiki/Glutathione which is what detoxify our bodies.

>

>

> It is so frustrating how much time is being wasted in all these non sense

ideas that will not help any child, when there are so many concrete facts and

similar problems that can be easily diagnosed in every single child with autism.

>

> JR

>

>

>

>

>

> From: knardini@...

> Date: Wed, 24 Jun 2009 09:40:48 -0700

> Subject: RE: Re: efforts on behalf of Dr. Goldberg

>

>

>

>

>

>

>

> Martha,

>

> My son is 7 and has been with Dr. G for 3.5 years. He is MUCH healthier than

> he was when we started. He is talking, but expressive language is still a

> big challenge for him. Six months ago we started private speech and OT and

> he has made HUGE gains because, IMHO, the therapists at the new place are

> just 'different'. They are more innovative and somehow more in tune with him

> than many of the others he has worked with. We have done private ST in the

> past, and some SLPs are better with him than others.

>

> His receptive language is MUCH, MUCH better since being on the protocol,

> especially in the last 6 months.

>

> He still struggles with his peers, although he is well loved by his

> classmates. I know he notices them (I see him watching them), but he is

> still 'shy'. He is fortunate to have a twin sister who is his best friend,

> and they play really well together, but often end up playing what/how he

> wants because IMHO - he can express himself with what he is comfortable

> with so the play tends to follow that. He still struggles with

> communication, so it's still hard for him to have friends (plus, he's so

> busy with therapies that it makes it difficult to schedule regular

> playdates). Next fall, he and my husband will participate in a group like

> Boy Scouts, and I'm hoping that that will really help develop some

> friendships (for both of them! My husband works all the time!).

>

> What I'm saying is that perhaps just because your child's language and

> social skills are not 100% 'typical' that it does not mean that he is not

> coming out of autism/illness.

>

> You don't mention if you are supplementing the protocol/medical treatment

> with therapies that are necessary to help your son catch up to his peers.

>

> Kristy

>

> From: [mailto: ] On Behalf Of Martha

> Wood

> Sent: Wednesday, June 24, 2009 9:11 AM

>

> Subject: Re: Re: efforts on behalf of Dr. Goldberg

>

>

> ,

> Do you mind my asking how old your daughter is? My son is 4 1/2 and is what

> I would call higher moderate but not mild and we have been with Dr. G over a

> year. We are so discouraged because he is not talking spontaneously and has

> no interest in his peers and we have done everything we can think of to

> facilitate both areas. We are not giving up on Dr. G but it is so helpful to

> hear success stories to affirm that we are on the right track.

> I too encourage every one about the NIDs protocol and even got three

> families to fly cross country to give it a try. They have all given up on

> Dr. G by the way . But since our son is not coming out of the autism dx like

> we had hoped it is hard to convince folks.

> Martha

>

> On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@...

> <mailto:jlhank80%40> > wrote:

>

> >

> >

> > I am so glad someone brought this up, I have wanted to for sometime now.

> My

> > daughter is not a patient of Dr. G but a pt. of Dr and the NNY

> > clinic. But my daughter appears to be recovering from autism, but still

> > delayed. She no longer stims, plays with others, doesnt tantrum, etc.

> Before

> > less than a year ago she was moderately autistic. Today she does not

> > fit the autism dx.

> >

> > When I tell people about (and trust me I do ALL of the time) and that

> > autism is really a disease process in our kids,this is what I have

> > encountered:

> > -Parents dont believe that its right to treat autism this way, they

> believe

> > in " neurodiversity " and autism is not a disease, its genetic.

> > -they are so distrustful of the medical community so they wont see a dr

> > without the name DAN stamped on them or they are endorsed by

> Mccarthy

> > -they believe its heavy metals/and or metabolic origin and not the immune

> > system

> > -or they say " thats nice " and they dont want to do what it takes to get

> > their kid better

> > -I have also had people be SO disrespectful and arguementative and put Dr.

> > G down because of rumors they had heard. one person even accused me of

> > " spying " and lying about my daughter and that Dr. G " plants " people on

> lists

> > to talk about . I am not kidding.

> >

> > I am SO discouraged. I want kids to get better but my efforts are

> > fruitless. I thought if people saw with their own eyes that my daughter is

> > better they would listen to me, but they dont.

> >

> > I would love to hear from others what they have done. I figure I dont care

> > who says wait about . I got my daughter back!!!!!

> > And even if I help one person all that persecution is worth it.

> >

> > -

> >

> >

> > >

> > > Hello all, yes I accidentally posted this note to the site, but the

> > message to all would have been the same. Dr. Goldberg says he needs parent

> > support and if anyone?is interested in getting the word out it would be

> > greatly appreciated. I am just another parent who is willing to do

> whatever

> > it takes to help DR. Goldberg finally cure our kids of this illness that

> is,

> > most definitely, an epidemic!

> > >

> > >

> > >

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Posted
Posted

,

The inflammation is coming from an autoimmune reaction to the MMR vaccine. The

MMR vaccine is contraindicated to hypogammaglobulinemic people just like my son

due to risks of immune system damage and viral encephalitis.

We are following the protocol and also doing immunoglobulin replacement

therapy (using GamaSTAN). All these is helping regulate the immune system,

which actually is looking almost normal based on the latest immune panel. The

Ibuprofen therapy in my opinion has helped accelerate the immune system recovery

process. I agree that if you only do the Ibuprofen therapy by itself without

addressing any viral infections and immune system dysfunction it would be a

temporary solution and probably it wouldn't make a difference.

You can find detailed information about LDN in the website below.

http://www.low dose naltrexone.org/

JR

From: jlhank80@...

Date: Fri, 26 Jun 2009 13:04:50 +0000

Subject: Re: efforts on behalf of Dr. Goldberg

,

Thanks for sharing about your son's progress. I am curious about the Ibuprofen

therapy...do you know where your son's inflammation is coming from? While I

agree it helps, it seems like it would be a temporary solution. What are your

plans long term?

Also, what does the naltrexone do? I know it is an opiate antagonist

(inhibitor). How does this help? Immune modulation?

- :)

been on the protocol for the past 13 months. His improvements are nothing

short from extraordinary, to the point that his only problems are mild speech

delays and very minimum attention deficit, but we are hoping that will get

better very soon. 2 1/2 years ago my son had severe autism.

>

> We follow the protocol very strictly, but there are a few things we do on

top of it. We use Ibuprofen therapy (to reduce inflammation), transdermal

glutathione, Low Dose Naltrexone and gamma globulin shots. I strongly believe

that the anti-inflammatory drugs are VERY important for our children since they

have autoimmune dysfunctions (autoimmune disorders). One of the most important

drugs to treat autoimmune disorders are anti-inflammatory drugs, so what our

children have is no different. If there is one treatment that has done wonders

in my son is the Ibuprofen. Dr. Goldberg has given me a hard time telling me to

be careful with it because it can cause stomach bleeding, but I take it very

seriously and ALWAYS give it to my son with plenty of food and liquid on his

stomach. So far my son hasn't had any problems with it.

>

> Autoimmune disorder treatment

> http://www.faqs.org/health/Sick-V1/Autoimmune-Disorders.html

> " Treatments differ for each type of autoimmune disorder. However, there is one

treatment that is common to many forms of autoimmune disorders. That treatment

is the use of drugs to reduce the inflammation, swelling, and pain that

accompanies most autoimmune disorders. Inflammation occurs when antibodies

attack and irritate tissues. Some common drugs, such as aspirin and ibuprofen

(pronounced i-byoo-PRO-fuhn), help reduce inflammation and pain. "

>

>

> The transdermal glutathione is to increase glutathione levels in the body

which is VERY important for the immune system and to effectively detoxify the

body. Children with autism cannot synthesize glutathione correctly due to leaky

guts. The Low Dose Naltrexone is also used to treat autoimmune disorders and it

even helps heal the GI tract. http://en.wikipedia.org/wiki/Low_dose_naltrexone.

Dr. Goldberg doesn't approve the Low Dose Naltrexone, but since it is completely

safe and it doesn't interact with any of the protocol medication we use it

on our son.

>

> One more thing that I give Dr. Goldberg very much credit is about noticing

that my son is hypogammaglobulinemic (has low IGG levels). He prescribed gamma

globulin shots and it has also worked wonderfully in my son's immune system. The

latest lab test showed every single parameter in the immune panel in within

normal range which it reflects in his behavior and speech improvements. We have

been running immune panel lab tests for the past 2+ years when we used to see a

DAN doctor and now with Dr. Goldberg and this is the first time that his immune

system looks this good.

>

> I do not understand why if all these children with autism have immune

dysfunction proven by lab tests why people keep saying that it is genetic.

People also keep talking about heavy metals, but the metals accumulate because

the damaged digestive system (due to inflammation caused by their immune

disorders) cannot absorb the substances needed to create glutathione

http://en.wikipedia.org/wiki/Glutathione which is what detoxify our bodies.

>

>

> It is so frustrating how much time is being wasted in all these non sense

ideas that will not help any child, when there are so many concrete facts and

similar problems that can be easily diagnosed in every single child with autism.

>

> JR

>

>

>

>

>

> From: knardini@...

> Date: Wed, 24 Jun 2009 09:40:48 -0700

> Subject: RE: Re: efforts on behalf of Dr. Goldberg

>

>

>

>

>

>

>

> Martha,

>

> My son is 7 and has been with Dr. G for 3.5 years. He is MUCH healthier than

> he was when we started. He is talking, but expressive language is still a

> big challenge for him. Six months ago we started private speech and OT and

> he has made HUGE gains because, IMHO, the therapists at the new place are

> just 'different'. They are more innovative and somehow more in tune with him

> than many of the others he has worked with. We have done private ST in the

> past, and some SLPs are better with him than others.

>

> His receptive language is MUCH, MUCH better since being on the protocol,

> especially in the last 6 months.

>

> He still struggles with his peers, although he is well loved by his

> classmates. I know he notices them (I see him watching them), but he is

> still 'shy'. He is fortunate to have a twin sister who is his best friend,

> and they play really well together, but often end up playing what/how he

> wants because IMHO - he can express himself with what he is comfortable

> with so the play tends to follow that. He still struggles with

> communication, so it's still hard for him to have friends (plus, he's so

> busy with therapies that it makes it difficult to schedule regular

> playdates). Next fall, he and my husband will participate in a group like

> Boy Scouts, and I'm hoping that that will really help develop some

> friendships (for both of them! My husband works all the time!).

>

> What I'm saying is that perhaps just because your child's language and

> social skills are not 100% 'typical' that it does not mean that he is not

> coming out of autism/illness.

>

> You don't mention if you are supplementing the protocol/medical treatment

> with therapies that are necessary to help your son catch up to his peers.

>

> Kristy

>

> From: [mailto: ] On Behalf Of Martha

> Wood

> Sent: Wednesday, June 24, 2009 9:11 AM

>

> Subject: Re: Re: efforts on behalf of Dr. Goldberg

>

>

> ,

> Do you mind my asking how old your daughter is? My son is 4 1/2 and is what

> I would call higher moderate but not mild and we have been with Dr. G over a

> year. We are so discouraged because he is not talking spontaneously and has

> no interest in his peers and we have done everything we can think of to

> facilitate both areas. We are not giving up on Dr. G but it is so helpful to

> hear success stories to affirm that we are on the right track.

> I too encourage every one about the NIDs protocol and even got three

> families to fly cross country to give it a try. They have all given up on

> Dr. G by the way . But since our son is not coming out of the autism dx like

> we had hoped it is hard to convince folks.

> Martha

>

> On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@...

> <mailto:jlhank80%40> > wrote:

>

> >

> >

> > I am so glad someone brought this up, I have wanted to for sometime now.

> My

> > daughter is not a patient of Dr. G but a pt. of Dr and the NNY

> > clinic. But my daughter appears to be recovering from autism, but still

> > delayed. She no longer stims, plays with others, doesnt tantrum, etc.

> Before

> > less than a year ago she was moderately autistic. Today she does not

> > fit the autism dx.

> >

> > When I tell people about (and trust me I do ALL of the time) and that

> > autism is really a disease process in our kids,this is what I have

> > encountered:

> > -Parents dont believe that its right to treat autism this way, they

> believe

> > in " neurodiversity " and autism is not a disease, its genetic.

> > -they are so distrustful of the medical community so they wont see a dr

> > without the name DAN stamped on them or they are endorsed by

> Mccarthy

> > -they believe its heavy metals/and or metabolic origin and not the immune

> > system

> > -or they say " thats nice " and they dont want to do what it takes to get

> > their kid better

> > -I have also had people be SO disrespectful and arguementative and put Dr.

> > G down because of rumors they had heard. one person even accused me of

> > " spying " and lying about my daughter and that Dr. G " plants " people on

> lists

> > to talk about . I am not kidding.

> >

> > I am SO discouraged. I want kids to get better but my efforts are

> > fruitless. I thought if people saw with their own eyes that my daughter is

> > better they would listen to me, but they dont.

> >

> > I would love to hear from others what they have done. I figure I dont care

> > who says wait about . I got my daughter back!!!!!

> > And even if I help one person all that persecution is worth it.

> >

> > -

> >

> >

> > >

> > > Hello all, yes I accidentally posted this note to the site, but the

> > message to all would have been the same. Dr. Goldberg says he needs parent

> > support and if anyone?is interested in getting the word out it would be

> > greatly appreciated. I am just another parent who is willing to do

> whatever

> > it takes to help DR. Goldberg finally cure our kids of this illness that

> is,

> > most definitely, an epidemic!

> > >

> > >

> > >

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Posted
Posted

-who is prescribing immunoglobulin-gamastan therapy? We have never tried

this. Is this through a DAN doctor? How is it administered? Intravenously or

shots? Did you notice a big difference right away with it? Any side effects? My

son is using imunovir and we are waiting for the first blood work results to see

if it's helping at all. Thanks!

Re: Re: efforts on behalf of Dr. Goldberg

>

>

> ,

> Do you mind my asking how old your daughter is? My son is 4 1/2 and is what

> I would call higher moderate but not mild and we have been with Dr. G over a

> year. We are so discouraged because he is not talking spontaneously and has

> no interest in his peers and we have done everything we can think of to

> facilitate both areas. We are not giving up on Dr. G but it is so helpful to

> hear success stories to affirm that we are on the right track.

> I too encourage every one about the NIDs protocol and even got three

> families to fly cross country to give it a try. They have all given up on

> Dr. G by the way . But since our son is not coming out of the autism dx like

> we had hoped it is hard to convince folks.

> Martha

>

> On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@...

> <mailto:jlhank80%40> > wrote:

>

> >

> >

> > I am so glad someone brought this up, I have wanted to for sometime now.

> My

> > daughter is not a patient of Dr. G but a pt. of Dr and the NNY

> > clinic. But my daughter appears to be recovering from autism, but still

> > delayed. She no longer stims, plays with others, doesnt tantrum, etc.

> Before

> > less than a year ago she was moderately autistic. Today she does not

> > fit the autism dx.

> >

> > When I tell people about (and trust me I do ALL of the time) and that

> > autism is really a disease process in our kids,this is what I have

> > encountered:

> > -Parents dont believe that its right to treat autism this way, they

> believe

> > in " neurodiversity " and autism is not a disease, its genetic.

> > -they are so distrustful of the medical community so they wont see a dr

> > without the name DAN stamped on them or they are endorsed by

> Mccarthy

> > -they believe its heavy metals/and or metabolic origin and not the immune

> > system

> > -or they say " thats nice " and they dont want to do what it takes to get

> > their kid better

> > -I have also had people be SO disrespectful and arguementative and put Dr.

> > G down because of rumors they had heard. one person even accused me of

> > " spying " and lying about my daughter and that Dr. G " plants " people on

> lists

> > to talk about . I am not kidding.

> >

> > I am SO discouraged. I want kids to get better but my efforts are

> > fruitless. I thought if people saw with their own eyes that my daughter is

> > better they would listen to me, but they dont.

> >

> > I would love to hear from others what they have done. I figure I dont care

> > who says wait about . I got my daughter back!!!!!

> > And even if I help one person all that persecution is worth it.

> >

> > -

> >

> >

> > >

> > > Hello all, yes I accidentally posted this note to the site, but the

> > message to all would have been the same. Dr. Goldberg says he needs parent

> > support and if anyone?is interested in getting the word out it would be

> > greatly appreciated. I am just another parent who is willing to do

> whatever

> > it takes to help DR. Goldberg finally cure our kids of this illness that

> is,

> > most definitely, an epidemic!

> > >

> > >

> > >

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Posted
Posted

Thanks for sharing, that makes sense. My daughter didn't get the MMR, we

stopped her vaccinations at 6 months because we thought we would lose her if she

had another. My daughter is also a kid, but she has a very overreactive

immune system.

I did some reading about LDN and I am not really comfortable with it, but I am

glad it is helping your son.

- :)

> > > >

> > > > Hello all, yes I accidentally posted this note to the site, but the

> > > message to all would have been the same. Dr. Goldberg says he needs parent

> > > support and if anyone?is interested in getting the word out it would be

> > > greatly appreciated. I am just another parent who is willing to do

> > whatever

> > > it takes to help DR. Goldberg finally cure our kids of this illness that

> > is,

> > > most definitely, an epidemic!

> > > >

> > > >

> > > >

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Posted
Posted

Dr G has my son on these injections, once every 3 weeks.

Kristy

Sent from my Verizon Wireless BlackBerry

Re: Re: efforts on behalf of Dr. Goldberg

>

>

> ,

> Do you mind my asking how old your daughter is? My son is 4 1/2 and is what

> I would call higher moderate but not mild and we have been with Dr. G over a

> year. We are so discouraged because he is not talking spontaneously and has

> no interest in his peers and we have done everything we can think of to

> facilitate both areas. We are not giving up on Dr. G but it is so helpful to

> hear success stories to affirm that we are on the right track.

> I too encourage every one about the NIDs protocol and even got three

> families to fly cross country to give it a try. They have all given up on

> Dr. G by the way . But since our son is not coming out of the autism dx like

> we had hoped it is hard to convince folks.

> Martha

>

> On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@...

> <mailto:jlhank80%40> > wrote:

>

> >

> >

> > I am so glad someone brought this up, I have wanted to for sometime now.

> My

> > daughter is not a patient of Dr. G but a pt. of Dr and the NNY

> > clinic. But my daughter appears to be recovering from autism, but still

> > delayed. She no longer stims, plays with others, doesnt tantrum, etc.

> Before

> > less than a year ago she was moderately autistic. Today she does not

> > fit the autism dx.

> >

> > When I tell people about (and trust me I do ALL of the time) and that

> > autism is really a disease process in our kids,this is what I have

> > encountered:

> > -Parents dont believe that its right to treat autism this way, they

> believe

> > in " neurodiversity " and autism is not a disease, its genetic.

> > -they are so distrustful of the medical community so they wont see a dr

> > without the name DAN stamped on them or they are endorsed by

> Mccarthy

> > -they believe its heavy metals/and or metabolic origin and not the immune

> > system

> > -or they say " thats nice " and they dont want to do what it takes to get

> > their kid better

> > -I have also had people be SO disrespectful and arguementative and put Dr.

> > G down because of rumors they had heard. one person even accused me of

> > " spying " and lying about my daughter and that Dr. G " plants " people on

> lists

> > to talk about . I am not kidding.

> >

> > I am SO discouraged. I want kids to get better but my efforts are

> > fruitless. I thought if people saw with their own eyes that my daughter is

> > better they would listen to me, but they dont.

> >

> > I would love to hear from others what they have done. I figure I dont care

> > who says wait about . I got my daughter back!!!!!

> > And even if I help one person all that persecution is worth it.

> >

> > -

> >

> >

> > >

> > > Hello all, yes I accidentally posted this note to the site, but the

> > message to all would have been the same. Dr. Goldberg says he needs parent

> > support and if anyone?is interested in getting the word out it would be

> > greatly appreciated. I am just another parent who is willing to do

> whatever

> > it takes to help DR. Goldberg finally cure our kids of this illness that

> is,

> > most definitely, an epidemic!

> > >

> > >

> > >

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Posted
Posted

Same here.

JR

From: [mailto: ] On Behalf Of Kristy

Nardini

Sent: Friday, June 26, 2009 6:31 PM

Subject: Re: Re: efforts on behalf of Dr. Goldberg

Dr G has my son on these injections, once every 3 weeks.

Kristy

Sent from my Verizon Wireless BlackBerry

Re: Re: efforts on behalf of Dr. Goldberg

>

>

> ,

> Do you mind my asking how old your daughter is? My son is 4 1/2 and is

what

> I would call higher moderate but not mild and we have been with Dr. G over

a

> year. We are so discouraged because he is not talking spontaneously and

has

> no interest in his peers and we have done everything we can think of to

> facilitate both areas. We are not giving up on Dr. G but it is so helpful

to

> hear success stories to affirm that we are on the right track.

> I too encourage every one about the NIDs protocol and even got three

> families to fly cross country to give it a try. They have all given up on

> Dr. G by the way . But since our son is not coming out of the autism dx

like

> we had hoped it is hard to convince folks.

> Martha

>

> On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@...

> <mailto:jlhank80%40> > wrote:

>

> >

> >

> > I am so glad someone brought this up, I have wanted to for sometime now.

> My

> > daughter is not a patient of Dr. G but a pt. of Dr and the NNY

> > clinic. But my daughter appears to be recovering from autism, but still

> > delayed. She no longer stims, plays with others, doesnt tantrum, etc.

> Before

> > less than a year ago she was moderately autistic. Today she does

not

> > fit the autism dx.

> >

> > When I tell people about (and trust me I do ALL of the time) and

that

> > autism is really a disease process in our kids,this is what I have

> > encountered:

> > -Parents dont believe that its right to treat autism this way, they

> believe

> > in " neurodiversity " and autism is not a disease, its genetic.

> > -they are so distrustful of the medical community so they wont see a dr

> > without the name DAN stamped on them or they are endorsed by

> Mccarthy

> > -they believe its heavy metals/and or metabolic origin and not the

immune

> > system

> > -or they say " thats nice " and they dont want to do what it takes to get

> > their kid better

> > -I have also had people be SO disrespectful and arguementative and put

Dr.

> > G down because of rumors they had heard. one person even accused me of

> > " spying " and lying about my daughter and that Dr. G " plants " people on

> lists

> > to talk about . I am not kidding.

> >

> > I am SO discouraged. I want kids to get better but my efforts are

> > fruitless. I thought if people saw with their own eyes that my daughter

is

> > better they would listen to me, but they dont.

> >

> > I would love to hear from others what they have done. I figure I dont

care

> > who says wait about . I got my daughter back!!!!!

> > And even if I help one person all that persecution is worth it.

> >

> > -

> >

> >

> > >

> > > Hello all, yes I accidentally posted this note to the site, but the

> > message to all would have been the same. Dr. Goldberg says he needs

parent

> > support and if anyone?is interested in getting the word out it would be

> > greatly appreciated. I am just another parent who is willing to do

> whatever

> > it takes to help DR. Goldberg finally cure our kids of this illness that

> is,

> > most definitely, an epidemic!

> > >

> > >

> > >

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Posted
Posted

Hi -How old is your son? I just reread Kristi's former email and the shots

are given once every three weeks. Are you doing the same dosage? Do you see

great improvement or only slight? Thanks for your input!

Gayle

Re: Re: efforts on behalf of Dr. Goldberg

>

>

> ,

> Do you mind my asking how old your daughter is? My son is 4 1/2 and is

what

> I would call higher moderate but not mild and we have been with Dr. G over

a

> year. We are so discouraged because he is not talking spontaneously and

has

> no interest in his peers and we have done everything we can think of to

> facilitate both areas. We are not giving up on Dr. G but it is so helpful

to

> hear success stories to affirm that we are on the right track.

> I too encourage every one about the NIDs protocol and even got three

> families to fly cross country to give it a try. They have all given up on

> Dr. G by the way . But since our son is not coming out of the autism dx

like

> we had hoped it is hard to convince folks.

> Martha

>

> On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@...

> <mailto:jlhank80%40> > wrote:

>

> >

> >

> > I am so glad someone brought this up, I have wanted to for sometime now.

> My

> > daughter is not a patient of Dr. G but a pt. of Dr and the NNY

> > clinic. But my daughter appears to be recovering from autism, but still

> > delayed. She no longer stims, plays with others, doesnt tantrum, etc.

> Before

> > less than a year ago she was moderately autistic. Today she does

not

> > fit the autism dx.

> >

> > When I tell people about (and trust me I do ALL of the time) and

that

> > autism is really a disease process in our kids,this is what I have

> > encountered:

> > -Parents dont believe that its right to treat autism this way, they

> believe

> > in " neurodiversity " and autism is not a disease, its genetic.

> > -they are so distrustful of the medical community so they wont see a dr

> > without the name DAN stamped on them or they are endorsed by

> Mccarthy

> > -they believe its heavy metals/and or metabolic origin and not the

immune

> > system

> > -or they say " thats nice " and they dont want to do what it takes to get

> > their kid better

> > -I have also had people be SO disrespectful and arguementative and put

Dr.

> > G down because of rumors they had heard. one person even accused me of

> > " spying " and lying about my daughter and that Dr. G " plants " people on

> lists

> > to talk about . I am not kidding.

> >

> > I am SO discouraged. I want kids to get better but my efforts are

> > fruitless. I thought if people saw with their own eyes that my daughter

is

> > better they would listen to me, but they dont.

> >

> > I would love to hear from others what they have done. I figure I dont

care

> > who says wait about . I got my daughter back!!!!!

> > And even if I help one person all that persecution is worth it.

> >

> > -

> >

> >

> > >

> > > Hello all, yes I accidentally posted this note to the site, but the

> > message to all would have been the same. Dr. Goldberg says he needs

parent

> > support and if anyone?is interested in getting the word out it would be

> > greatly appreciated. I am just another parent who is willing to do

> whatever

> > it takes to help DR. Goldberg finally cure our kids of this illness that

> is,

> > most definitely, an epidemic!

> > >

> > >

> > >

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Posted
Posted

Ibuprofen is great for my son as well, but could you please describe the

ibuprofen therapy so I can discuss it with my MD? thanks a lot!

>

> >

> >

> > I am so glad someone brought this up, I have wanted to for sometime now.

> My

> > daughter is not a patient of Dr. G but a pt. of Dr and the NNY

> > clinic. But my daughter appears to be recovering from autism, but still

> > delayed. She no longer stims, plays with others, doesnt tantrum, etc.

> Before

> > less than a year ago she was moderately autistic. Today she does

not

> > fit the autism dx.

> >

> > When I tell people about (and trust me I do ALL of the time) and

that

> > autism is really a disease process in our kids,this is what I have

> > encountered:

> > -Parents dont believe that its right to treat autism this way, they

> believe

> > in " neurodiversity " and autism is not a disease, its genetic.

> > -they are so distrustful of the medical community so they wont see a dr

> > without the name DAN stamped on them or they are endorsed by

> Mccarthy

> > -they believe its heavy metals/and or metabolic origin and not the

immune

> > system

> > -or they say " thats nice " and they dont want to do what it takes to get

> > their kid better

> > -I have also had people be SO disrespectful and arguementative and put

Dr.

> > G down because of rumors they had heard. one person even accused me of

> > " spying " and lying about my daughter and that Dr. G " plants " people on

> lists

> > to talk about . I am not kidding.

> >

> > I am SO discouraged. I want kids to get better but my efforts are

> > fruitless. I thought if people saw with their own eyes that my daughter

is

> > better they would listen to me, but they dont.

> >

> > I would love to hear from others what they have done. I figure I dont

care

> > who says wait about . I got my daughter back!!!!!

> > And even if I help one person all that persecution is worth it.

> >

> > -

> >

> >

> > >

> > > Hello all, yes I accidentally posted this note to the site, but the

> > message to all would have been the same. Dr. Goldberg says he needs

parent

> > support and if anyone?is interested in getting the word out it would be

> > greatly appreciated. I am just another parent who is willing to do

> whatever

> > it takes to help DR. Goldberg finally cure our kids of this illness that

> is,

> > most definitely, an epidemic!

> > >

> > >

> > >

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Posted
Posted

I pulse the Ibuprofen therapy, 10 days on and 20 days off. I calculate the

dose based on what is recommended for fever and pain. For example, if your

child weights 36-47lbs or if he is 4-5 years old he would have to take 7.5ml

or 150ml of Ibuprofen for fever or pain. Now, for inflammation twice the

amount that is recommended for fever and pain is needed. Which for a child

that weights 36-47lbs or that is 4-5 years old it would be 300ml. Now..

300ml of Children's Motrin is actually 3 syringes of the medication. Now,

you would have to give this medication 3 times per day (breakfast, lunch and

at dinner), which it would be 9 syringes per day. We tried that at first

and it was too painful for me and my wife to give this much medication to my

son on top of the other medications prescribed by Dr. Goldberg and also

caused diarrhea. What I did was to practically beg my son's pediatrician

(not Dr. Goldberg) and explained why my son needed it and he gave me a

prescription for compounded Ibuprofen that is more concentrated than

Children's Motrin. Now instead of having to give my son 3 syringes for

300ml I only have to give him 1 syringe. It is so much easier this way and

my son didn't develop any more diarrhea. IT IS EXTREMELY IMPORTANT to give

Ibuprofen with plenty of food in the stomach and you need to make sure that

you keep your child well hydrated while he/she is taking the Ibuprofen. We

have been EXTREMELY careful and my son has not experienced any side effects

in the last year and the gains have been huge in every round.

Children's Motrin dosage directions from the Motrin website.

http://www.motrin.com/page.jhtml?id=/motrin/products/1_2_1.inc

<http://www.motrin.com/page.jhtml?id=/motrin/products/1_2_1.inc & sec=directio

ns> & sec=directions

If you start the Ibuprofen therapy and notice that your child develops any

stomach discomfort or pain which it could happen if you child has a leaky

gut or food allergies, stop the medication and try again in a month at a

lower dose. I would also recommend giving large dose probiotics which will

help protect the stomach.

Please be careful, this medication is great, but needs to be used VERY

responsibly.

Thanks,

JR

From: [mailto: ] On Behalf Of

Fernanda

Sent: Saturday, June 27, 2009 1:25 PM

Subject: Re: Re: efforts on behalf of Dr. Goldberg

Ibuprofen is great for my son as well, but could you please describe the

ibuprofen therapy so I can discuss it with my MD? thanks a lot!

>

> >

> >

> > I am so glad someone brought this up, I have wanted to for sometime now.

> My

> > daughter is not a patient of Dr. G but a pt. of Dr and the NNY

> > clinic. But my daughter appears to be recovering from autism, but still

> > delayed. She no longer stims, plays with others, doesnt tantrum, etc.

> Before

> > less than a year ago she was moderately autistic. Today she does

not

> > fit the autism dx.

> >

> > When I tell people about (and trust me I do ALL of the time) and

that

> > autism is really a disease process in our kids,this is what I have

> > encountered:

> > -Parents dont believe that its right to treat autism this way, they

> believe

> > in " neurodiversity " and autism is not a disease, its genetic.

> > -they are so distrustful of the medical community so they wont see a dr

> > without the name DAN stamped on them or they are endorsed by

> Mccarthy

> > -they believe its heavy metals/and or metabolic origin and not the

immune

> > system

> > -or they say " thats nice " and they dont want to do what it takes to get

> > their kid better

> > -I have also had people be SO disrespectful and arguementative and put

Dr.

> > G down because of rumors they had heard. one person even accused me of

> > " spying " and lying about my daughter and that Dr. G " plants " people on

> lists

> > to talk about . I am not kidding.

> >

> > I am SO discouraged. I want kids to get better but my efforts are

> > fruitless. I thought if people saw with their own eyes that my daughter

is

> > better they would listen to me, but they dont.

> >

> > I would love to hear from others what they have done. I figure I dont

care

> > who says wait about . I got my daughter back!!!!!

> > And even if I help one person all that persecution is worth it.

> >

> > -

> >

> >

> > >

> > > Hello all, yes I accidentally posted this note to the site, but the

> > message to all would have been the same. Dr. Goldberg says he needs

parent

> > support and if anyone?is interested in getting the word out it would be

> > greatly appreciated. I am just another parent who is willing to do

> whatever

> > it takes to help DR. Goldberg finally cure our kids of this illness that

> is,

> > most definitely, an epidemic!

> > >

> > >

> > >

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Posted
Posted

I have two 'cautions' on this (not that it's my place at all to caution on

this): my son is allergic to ibuprofen, which is not common, but you might

want to be aware that some kids are. He looked like he had been beaten by a

chain from head to toe after a dose of ibuprofen and it was quite scary

because he also does not do well with Benadryl (it was actually making

things worse) and had to be treated with steroids in the emergency room.

Second, my friend used quite a bit of ibuprofen following a surgery and had

to have part of her stomach removed from damage caused by the ibuprofen.

recommends plenty of food and water and he is right, it is very

important so the stomach and liver are not damaged. Otherwise, I know

nothing about this therapy.

Kristy

From: [mailto: ] On Behalf Of

Sent: Saturday, June 27, 2009 1:46 PM

Subject: RE: Re: efforts on behalf of Dr. Goldberg

I pulse the Ibuprofen therapy, 10 days on and 20 days off. I calculate the

dose based on what is recommended for fever and pain. For example, if your

child weights 36-47lbs or if he is 4-5 years old he would have to take 7.5ml

or 150ml of Ibuprofen for fever or pain. Now, for inflammation twice the

amount that is recommended for fever and pain is needed. Which for a child

that weights 36-47lbs or that is 4-5 years old it would be 300ml. Now..

300ml of Children's Motrin is actually 3 syringes of the medication. Now,

you would have to give this medication 3 times per day (breakfast, lunch and

at dinner), which it would be 9 syringes per day. We tried that at first

and it was too painful for me and my wife to give this much medication to my

son on top of the other medications prescribed by Dr. Goldberg and also

caused diarrhea. What I did was to practically beg my son's pediatrician

(not Dr. Goldberg) and explained why my son needed it and he gave me a

prescription for compounded Ibuprofen that is more concentrated than

Children's Motrin. Now instead of having to give my son 3 syringes for

300ml I only have to give him 1 syringe. It is so much easier this way and

my son didn't develop any more diarrhea. IT IS EXTREMELY IMPORTANT to give

Ibuprofen with plenty of food in the stomach and you need to make sure that

you keep your child well hydrated while he/she is taking the Ibuprofen. We

have been EXTREMELY careful and my son has not experienced any side effects

in the last year and the gains have been huge in every round.

Children's Motrin dosage directions from the Motrin website.

http://www.motrin.com/page.jhtml?id=/motrin/products/1_2_1.inc

<http://www.motrin.com/page.jhtml?id=/motrin/products/1_2_1.inc

<http://www.motrin.com/page.jhtml?id=/motrin/products/1_2_1.inc & sec=directio

> & sec=directio

ns> & sec=directions

If you start the Ibuprofen therapy and notice that your child develops any

stomach discomfort or pain which it could happen if you child has a leaky

gut or food allergies, stop the medication and try again in a month at a

lower dose. I would also recommend giving large dose probiotics which will

help protect the stomach.

Please be careful, this medication is great, but needs to be used VERY

responsibly.

Thanks,

JR

From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

Fernanda

Sent: Saturday, June 27, 2009 1:25 PM

<mailto:%40>

Subject: Re: Re: efforts on behalf of Dr. Goldberg

Ibuprofen is great for my son as well, but could you please describe the

ibuprofen therapy so I can discuss it with my MD? thanks a lot!

>

> >

> >

> > I am so glad someone brought this up, I have wanted to for sometime now.

> My

> > daughter is not a patient of Dr. G but a pt. of Dr and the NNY

> > clinic. But my daughter appears to be recovering from autism, but still

> > delayed. She no longer stims, plays with others, doesnt tantrum, etc.

> Before

> > less than a year ago she was moderately autistic. Today she does

not

> > fit the autism dx.

> >

> > When I tell people about (and trust me I do ALL of the time) and

that

> > autism is really a disease process in our kids,this is what I have

> > encountered:

> > -Parents dont believe that its right to treat autism this way, they

> believe

> > in " neurodiversity " and autism is not a disease, its genetic.

> > -they are so distrustful of the medical community so they wont see a dr

> > without the name DAN stamped on them or they are endorsed by

> Mccarthy

> > -they believe its heavy metals/and or metabolic origin and not the

immune

> > system

> > -or they say " thats nice " and they dont want to do what it takes to get

> > their kid better

> > -I have also had people be SO disrespectful and arguementative and put

Dr.

> > G down because of rumors they had heard. one person even accused me of

> > " spying " and lying about my daughter and that Dr. G " plants " people on

> lists

> > to talk about . I am not kidding.

> >

> > I am SO discouraged. I want kids to get better but my efforts are

> > fruitless. I thought if people saw with their own eyes that my daughter

is

> > better they would listen to me, but they dont.

> >

> > I would love to hear from others what they have done. I figure I dont

care

> > who says wait about . I got my daughter back!!!!!

> > And even if I help one person all that persecution is worth it.

> >

> > -

> >

> >

> > >

> > > Hello all, yes I accidentally posted this note to the site, but the

> > message to all would have been the same. Dr. Goldberg says he needs

parent

> > support and if anyone?is interested in getting the word out it would be

> > greatly appreciated. I am just another parent who is willing to do

> whatever

> > it takes to help DR. Goldberg finally cure our kids of this illness that

> is,

> > most definitely, an epidemic!

> > >

> > >

> > >

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Posted
Posted

I think there is another doctor in NY.  I would google and see what it

pulls.  I know there is a doctor in TX as well.

We were on the DAN! protocol for a year and a half and have now been with

Goldberg for almost 2 years and I will tell you that we have seen more gains and

a much healthier child since being on the protocol.

I have frustrations of wanting to use some of the DAN! in conjunction with

though and G strongly discourages this.

There will be many months where you feel like you are spinning your wheels just

like DAN!

Good Luck!

>

> >

> >

> > I am so glad someone brought this up, I have wanted to for sometime now..

> My

> > daughter is not a patient of Dr. G but a pt. of Dr and the NNY

> > clinic. But my daughter appears to be recovering from autism, but still

> > delayed. She no longer stims, plays with others, doesnt tantrum, etc.

> Before

> > less than a year ago she was moderately autistic. Today she does not

> > fit the autism dx.

> >

> > When I tell people about (and trust me I do ALL of the time) and

> that

> > autism is really a disease process in our kids,this is what I have

> > encountered:

> > -Parents dont believe that its right to treat autism this way, they

> believe

> > in " neurodiversity " and autism is not a disease, its genetic.

> > -they are so distrustful of the medical community so they wont see a dr

> > without the name DAN stamped on them or they are endorsed by

> Mccarthy

> > -they believe its heavy metals/and or metabolic origin and not the immune

> > system

> > -or they say " thats nice " and they dont want to do what it takes to get

> > their kid better

> > -I have also had people be SO disrespectful and arguementative and put

> Dr.

> > G down because of rumors they had heard. one person even accused me of

> > " spying " and lying about my daughter and that Dr. G " plants " people on

> lists

> > to talk about . I am not kidding.

> >

> > I am SO discouraged. I want kids to get better but my efforts are

> > fruitless. I thought if people saw with their own eyes that my daughter

> is

> > better they would listen to me, but they dont.

> >

> > I would love to hear from others what they have done. I figure I dont

> care

> > who says wait about . I got my daughter back!!!!!

> > And even if I help one person all that persecution is worth it.

> >

> > -

> >

> >

> > >

> > > Hello all, yes I accidentally posted this note to the site, but the

> > message to all would have been the same. Dr. Goldberg says he needs

> parent

> > support and if anyone?is interested in getting the word out it would be

> > greatly appreciated. I am just another parent who is willing to do

> whatever

> > it takes to help DR. Goldberg finally cure our kids of this illness that

> is,

> > most definitely, an epidemic!

> > >

> > >

> > >

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