Re: Another Question regarding Immunovir

[Guest guest]

Our school office manager and nurse are very anal retentive. When I started

washing the blue dye off the valtrex they refused to give it to him because I

had altered it even though I offered to wash the dye off in front of them. I had

to get a letter from Dr G to it past them.(Keep in mind that this " NURSE? " told

me one day that she was so glad I cut Connor's meds in half before I bring them

because she could not see biting his pills in half for him, Florida is truly in

the stonage with school staff) That said I saw the problem coming when I

received the first box of immunovir. It did not come with a little plastic

bottle with a lable. I took a lable off one of the meds I have, scanned the

lable, cleared the text and printed the dosage and med using an old fashioned

type writer. Beleive me it was easier than convincing them to give it to Connor.

You would think they would realize that saving an autistic child was hard enough

without having to deal with thier stupitity. When I deal with the school I

endlessly point out there is a reason these kids are called special needs kids.

Good Luck

Bill

________________________________

From: Lynn Capone <ecapne@...>

Sent: Thursday, May 28, 2009 11:18:15 AM

Subject: Another Question regarding Immunovir

Hi.

I was writing to see if anyone has had any difficulty with having their child's

school give a dose of Immunovir during the day. We are supposed to give my son

one dose at noon and I am not available because of work. I am worried that the

nurse will not do this because it is not approved in the US.

Thanks.

Lynn

[Guest guest]

What a great idea.  I am going to try that.  I hope I get that past the nurse

too, but I am not sure.  When I called to say his medication may be changing and

I would need a new form so that Dr. G could fill out, she sounded all excited. 

" So he's finally coming off that medication! " I told her of course, " No, and

that my son has a constant inflammation of the brain that these meds help. "

Silence.  If my child were a diabetic, no one would question the use of

medication.  The world is truly in the dark ages when it comes to our kids.  It

is easy for them to be judgmental and write off our kids as lost causes because

it is not happening to their kids.  People in general lack empathy and perhaps

intelligence.

 

Thanks again.  Lynn

 

From: Bill klimas <klimas_bill@...>

Subject: Re: Another Question regarding Immunovir

Date: Friday, May 29, 2009, 11:36 AM

Our school office manager and nurse are very anal retentive. When I started

washing the blue dye off the valtrex they refused to give it to him because I

had altered it even though I offered to wash the dye off in front of them. I had

to get a letter from Dr G to it past them.(Keep in mind that this " NURSE? " told

me one day that she was so glad I cut Connor's meds in half before I bring them

because she could not see biting his pills in half for him, Florida is truly in

the stonage with school staff) That said I saw the problem coming when I

received the first box of immunovir. It did not come with a little plastic

bottle with a lable. I took a lable off one of the meds I have, scanned the

lable, cleared the text and printed the dosage and med using an old fashioned

type writer. Beleive me it was easier than convincing them to give it to Connor.

You would think they would realize that saving an autistic child was hard enough

without having to deal with thier stupitity. When I deal with the school I

endlessly point out there is a reason these kids are called special needs kids.

Good Luck

Bill

____________ _________ _________ __

From: Lynn Capone <ecapne (DOT) com>

groups (DOT) com

Sent: Thursday, May 28, 2009 11:18:15 AM

Subject: Another Question regarding Immunovir

Hi.

I was writing to see if anyone has had any difficulty with having their child's

school give a dose of Immunovir during the day. We are supposed to give my son

one dose at noon and I am not available because of work. I am worried that the

nurse will not do this because it is not approved in the US.

Thanks.

Lynn

[Guest guest]

The school's are crazy ..my daughter got in trouble for having chap stick. They

called me at home I was floored. Candi

From: klimas_bill@...

Date: Fri, 29 May 2009 08:36:13 -0700

Subject: Re: Another Question regarding Immunovir

Our school office manager and nurse are very anal retentive. When I started

washing the blue dye off the valtrex they refused to give it to him because I

had altered it even though I offered to wash the dye off in front of them. I had

to get a letter from Dr G to it past them.(Keep in mind that this " NURSE? " told

me one day that she was so glad I cut Connor's meds in half before I bring them

because she could not see biting his pills in half for him, Florida is truly in

the stonage with school staff) That said I saw the problem coming when I

received the first box of immunovir. It did not come with a little plastic

bottle with a lable. I took a lable off one of the meds I have, scanned the

lable, cleared the text and printed the dosage and med using an old fashioned

type writer. Beleive me it was easier than convincing them to give it to Connor.

You would think they would realize that saving an autistic child was hard enough

without having to deal with thier stupitity. When I deal with the school I

endlessly point out there is a reason these kids are called special needs kids.

Good Luck

Bill

________________________________

From: Lynn Capone <ecapne@...>

Sent: Thursday, May 28, 2009 11:18:15 AM

Subject: Another Question regarding Immunovir

Hi.

I was writing to see if anyone has had any difficulty with having their child's

school give a dose of Immunovir during the day. We are supposed to give my son

one dose at noon and I am not available because of work. I am worried that the

nurse will not do this because it is not approved in the US.

Thanks.

Lynn

[Guest guest]

Bill,

How soon did you see results from Immunovir? We just started our 4 year old

on it yesterday. What die off did you experience? I remember reading one of

your e-mails that mentioned that your son hit a plateau on it around 6

months. Does this mean you stopped taking it or do you stay the course and

just know that more progress will come in time?

Also, yesterday we saw a very respected allergist/immunologist locally to

help us with our food allergies and high IGE that has not gone down after

being strict with the diet. After 30 minutes of listening to him

denounce the protocol and tell us that IGE is a useless measure because

it has no indicative or predictive value, we finally determined from skin

tests, that our son is allergic to soy among the things that we already

know. You seem very knowledgeable about the value of the protocol, how

would you respond to the assertion that the IGE is useless? Dr. G tells us

that we can affect the IGE with diet and this doctor totally disagrees. Can

anyone else help on this topic?

Thanks,

Martha

From: [mailto: ] On Behalf Of Bill

klimas

Sent: Friday, May 29, 2009 10:36 AM

Subject: Re: Another Question regarding Immunovir

Our school office manager and nurse are very anal retentive. When I started

washing the blue dye off the valtrex they refused to give it to him because

I had altered it even though I offered to wash the dye off in front of them.

I had to get a letter from Dr G to it past them.(Keep in mind that this

" NURSE? " told me one day that she was so glad I cut Connor's meds in half

before I bring them because she could not see biting his pills in half for

him, Florida is truly in the stonage with school staff) That said I saw the

problem coming when I received the first box of immunovir. It did not come

with a little plastic bottle with a lable. I took a lable off one of the

meds I have, scanned the lable, cleared the text and printed the dosage and

med using an old fashioned type writer. Beleive me it was easier than

convincing them to give it to Connor.

You would think they would realize that saving an autistic child was hard

enough without having to deal with thier stupitity. When I deal with the

school I endlessly point out there is a reason these kids are called special

needs kids.

Good Luck

Bill

________________________________

From: Lynn Capone <ecapne@... <mailto:ecapne%40> >

<mailto:%40>

Sent: Thursday, May 28, 2009 11:18:15 AM

Subject: Another Question regarding Immunovir

Hi.

I was writing to see if anyone has had any difficulty with having their

child's school give a dose of Immunovir during the day. We are supposed to

give my son one dose at noon and I am not available because of work. I am

worried that the nurse will not do this because it is not approved in the

US.

Thanks.

Lynn