Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 I don't think that autism is something you can cure. Because as soon as he dicides he no longer wants to do the vitiamns or treaments she is doing for him. He may go back to how he was. You can help a child deal with the side affects per say, but you can never take austim out of the child. From: Jerri Gann <njgann@...> Subject: McCarthy book " " < > Date: Tuesday, May 19, 2009, 9:53 AM Just a question I'll throw out there. It seems everyone I know is telling me to buy the McCarthy book. I usually explain (I don't know why I do this) that I've pretty much done the same research she has. And the response I get is, " Well, she has cured her son. " So my question is, Has she really cured her son? I don't watch a lot of TV and I know there has been a lot on lately that people have called and said be sure to watch and I get so busy I haven't seen any of it. I would believe you guys more than the TV anyway. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 I am glad for some of the attention that she is bringing to the issue, but here is where I differ: Most kids who are treated appropriately have to take a long, hard, road before they get " cured. " I don't think she pays enough attention to that fact and it can be discouraging to parents who have worked for years with all the ups and downs to hear her go on TV and make it seem so easy (however unintentionally). It is not. Also, if her son is cured now, he probably was less on the spectrum to begin with. From what I can recall, I think she cured her kid in 1 1/2 to 2 years? I believe her heart is in the right place, but I am not in agreement with the message. Also, all the public seems to see on TV or in magazines who are not affected by this issue is the extremes with autism, or those with soley savant skills. The result is that these images give the impression that like our kids don't have hope to begin with and can't recover. On the other hand, in my opinion, she gives the impression that recovery is a lot easier than it truly is. If we can only find a well-known person in the middle, we would all be doing a lot better for our kids. Please don't let other criticize you or your efforts. Also, this is just my opinion, but if you are not already, I would steer clear of those DAN doctors. If you are seeing Dr. G., I would follow most of his advice. He is the best thing that happened to my son. From: Jerri Gann <njgann@...> Subject: McCarthy book " " < > Date: Tuesday, May 19, 2009, 12:53 PM Just a question I'll throw out there. It seems everyone I know is telling me to buy the McCarthy book. I usually explain (I don't know why I do this) that I've pretty much done the same research she has. And the response I get is, " Well, she has cured her son. " So my question is, Has she really cured her son? I don't watch a lot of TV and I know there has been a lot on lately that people have called and said be sure to watch and I get so busy I haven't seen any of it. I would believe you guys more than the TV anyway. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 In my opinion. Her son is doing much better and I am happy that he is. Now, cured? that depends on what cure means to her. If you ask Dr. Goldberg he will say that her son is not completely cured or recovered. says that her son still has seizure activity which means that he still suffers from brain inflammation. If he has brain inflammation he still has immune dysfunction, therefore he cannot be completely cured/recovered. Thanks, JR From: njgann@... Date: Tue, 19 May 2009 09:53:24 -0700 Subject: McCarthy book Just a question I'll throw out there. It seems everyone I know is telling me to buy the McCarthy book. I usually explain (I don't know why I do this) that I've pretty much done the same research she has. And the response I get is, " Well, she has cured her son. " So my question is, Has she really cured her son? I don't watch a lot of TV and I know there has been a lot on lately that people have called and said be sure to watch and I get so busy I haven't seen any of it. I would believe you guys more than the TV anyway. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 As you say JR, it depends on the definition of 'recovered' you are using. For some, that means (behaviorally) indistinguishable from peers. Maybe Evan has reached that point? So, it's possible he is not cured of illness, but he acts/behaves/looks like a typical kid. Kristy From: [mailto: ] On Behalf Of Sent: Tuesday, May 19, 2009 10:36 AM nids Subject: RE: McCarthy book In my opinion. Her son is doing much better and I am happy that he is. Now, cured? that depends on what cure means to her. If you ask Dr. Goldberg he will say that her son is not completely cured or recovered. says that her son still has seizure activity which means that he still suffers from brain inflammation. If he has brain inflammation he still has immune dysfunction, therefore he cannot be completely cured/recovered. Thanks, JR <mailto:%40> From: njgann@... <mailto:njgann%40sti.net> Date: Tue, 19 May 2009 09:53:24 -0700 Subject: McCarthy book Just a question I'll throw out there. It seems everyone I know is telling me to buy the McCarthy book. I usually explain (I don't know why I do this) that I've pretty much done the same research she has. And the response I get is, " Well, she has cured her son. " So my question is, Has she really cured her son? I don't watch a lot of TV and I know there has been a lot on lately that people have called and said be sure to watch and I get so busy I haven't seen any of it. I would believe you guys more than the TV anyway. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 Who says you can never take autism out of the child?? Who says it can never be cured? I don't think anyone knows enough about it (yet) to claim that. Kristy From: [mailto: ] On Behalf Of Cristina Sent: Tuesday, May 19, 2009 10:03 AM Subject: Re: McCarthy book I don't think that autism is something you can cure. Because as soon as he dicides he no longer wants to do the vitiamns or treaments she is doing for him. He may go back to how he was. You can help a child deal with the side affects per say, but you can never take austim out of the child. --- On Tue, 5/19/09, Jerri Gann <njgann@... <mailto:njgann%40sti.net> > wrote: From: Jerri Gann <njgann@... <mailto:njgann%40sti.net> > Subject: McCarthy book " " < <mailto:%40> > Date: Tuesday, May 19, 2009, 9:53 AM Just a question I'll throw out there. It seems everyone I know is telling me to buy the McCarthy book. I usually explain (I don't know why I do this) that I've pretty much done the same research she has. And the response I get is, " Well, she has cured her son. " So my question is, Has she really cured her son? I don't watch a lot of TV and I know there has been a lot on lately that people have called and said be sure to watch and I get so busy I haven't seen any of it. I would believe you guys more than the TV anyway. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 maybe they are talking about her new book,healing and preventing autism,where she discusses with jerry kartzinel her DAN bio medical treatments,to be honest we are on the road of treatments with our son for 3 years and progress is slow,but i found this book written in lay mans language and very good,she admitts her son still has a way to go,but from where i am standing he has done fantastic.this book is worth a read On Tue, May 19, 2009 at 5:53 PM, Jerri Gann <njgann@...> wrote: > > > Just a question I'll throw out there. It seems everyone I know is > telling me to buy the McCarthy book. I usually explain (I don't > know why I do this) that I've pretty much done the same research she > has. And the response I get is, " Well, she has cured her son. " So my > question is, Has she really cured her son? I don't watch a lot of TV and > I know there has been a lot on lately that people have called and said > be sure to watch and I get so busy I haven't seen any of it. I would > believe you guys more than the TV anyway. > > -- Cotter 5 Pollerton Manor Carlow 059 9134964 087 2637921 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 I agree - too little is known and there are too many " autisms " - it is a spectrum. Â I have always wondered about her son's diagnosis - I have not met anyone else who's child was rushed to the hospital and nearly died. Â I somehow think his situation was very " vaccine " related. Â Our son has an abnormal EEG but has never had a major seizure. Has anyone else had a similar experience to McCarthy's? CR McCarthy book " " < <mailto:%40> > Date: Tuesday, May 19, 2009, 9:53 AM Just a question I'll throw out there. It seems everyone I know is telling me to buy the McCarthy book. I usually explain (I don't know why I do this) that I've pretty much done the same research she has. And the response I get is, " Well, she has cured her son. " So my question is, Has she really cured her son? I don't watch a lot of TV and I know there has been a lot on lately that people have called and said be sure to watch and I get so busy I haven't seen any of it. I would believe you guys more than the TV anyway. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 > > Autism is nothing but a set of symptoms. It is defined and diagnosed by the > presenting symptoms. Take away the symptoms = no autism. There is nothing else > to it. > > natasa > > > > Who says you can never take autism out of the child?? Who says it can never > be cured? I don't think anyone knows enough about it (yet) to claim that. > > Kristy > > From: <mailto:%40> > [mailto: <mailto:%40> ] On Behalf Of > Cristina > Sent: Tuesday, May 19, 2009 10:03 AM > <mailto:%40> > Subject: Re: McCarthy book > > > I don't think that autism is something you can cure. Because as soon as he > dicides he no longer wants to do the vitiamns or treaments she is doing for > him. He may go back to how he was. You can help a child deal with the side > affects per say, but you can never take austim out of the child. > > > > From: Jerri Gann <njgann@... <mailto:njgann%40sti.net> > <mailto:njgann%40sti.net> > > Subject: McCarthy book > " " < <mailto:%40> > <mailto:%40> > > Date: Tuesday, May 19, 2009, 9:53 AM > > Just a question I'll throw out there. It seems everyone I know is > telling me to buy the McCarthy book. I usually explain (I don't > know why I do this) that I've pretty much done the same research she > has. And the response I get is, " Well, she has cured her son. " So my > question is, Has she really cured her son? I don't watch a lot of TV and > I know there has been a lot on lately that people have called and said > be sure to watch and I get so busy I haven't seen any of it. I would > believe you guys more than the TV anyway. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 I disgree with you. You can remove the tumor out of someone, but there is always a chance that the cancer will come back. I believe that is doing just that, she has removed it from site, but it doesn't mean that it is still not there.. > > From: Jerri Gann <njgann@... <mailto:njgann% 40sti.net> > <mailto:njgann% 40sti.net> > > Subject: McCarthy book > " " <groups (DOT) com <mailto:% 40groups. com> > <mailto:% 40groups. com> > > Date: Tuesday, May 19, 2009, 9:53 AM > > Just a question I'll throw out there. It seems everyone I know is > telling me to buy the McCarthy book. I usually explain (I don't > know why I do this) that I've pretty much done the same research she > has. And the response I get is, " Well, she has cured her son. " So my > question is, Has she really cured her son? I don't watch a lot of TV and > I know there has been a lot on lately that people have called and said > be sure to watch and I get so busy I haven't seen any of it. I would > believe you guys more than the TV anyway. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 Lynne, I couldn't agree with you more. I'm glad for the attention and also think her heart is in the right place but the she seems to give the impression recovery is easier than it truly is. I know how hard we have worked with my son for the past 10years and we still have a long long way to go.....Candi From: ecapne@... Date: Tue, 19 May 2009 10:16:43 -0700 Subject: Re: McCarthy book I am glad for some of the attention that she is bringing to the issue, but here is where I differ: Most kids who are treated appropriately have to take a long, hard, road before they get " cured. " I don't think she pays enough attention to that fact and it can be discouraging to parents who have worked for years with all the ups and downs to hear her go on TV and make it seem so easy (however unintentionally). It is not. Also, if her son is cured now, he probably was less on the spectrum to begin with. From what I can recall, I think she cured her kid in 1 1/2 to 2 years? I believe her heart is in the right place, but I am not in agreement with the message. Also, all the public seems to see on TV or in magazines who are not affected by this issue is the extremes with autism, or those with soley savant skills. The result is that these images give the impression that like our kids don't have hope to begin with and can't recover. On the other hand, in my opinion, she gives the impression that recovery is a lot easier than it truly is. If we can only find a well-known person in the middle, we would all be doing a lot better for our kids. Please don't let other criticize you or your efforts. Also, this is just my opinion, but if you are not already, I would steer clear of those DAN doctors. If you are seeing Dr. G., I would follow most of his advice. He is the best thing that happened to my son. From: Jerri Gann <njgann@...> Subject: McCarthy book " " < > Date: Tuesday, May 19, 2009, 12:53 PM Just a question I'll throw out there. It seems everyone I know is telling me to buy the McCarthy book. I usually explain (I don't know why I do this) that I've pretty much done the same research she has. And the response I get is, " Well, she has cured her son. " So my question is, Has she really cured her son? I don't watch a lot of TV and I know there has been a lot on lately that people have called and said be sure to watch and I get so busy I haven't seen any of it. I would believe you guys more than the TV anyway. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 We can definitely recover children with autism. But for a child with autism to recover I believe that every bit of inflammation has to be controlled and the immune system needs to be regulated. That is what the protocol addresses. A sick child will not function, think or behave properly. JR From: knardini@... Date: Tue, 19 May 2009 12:09:10 -0700 Subject: RE: McCarthy book Who says you can never take autism out of the child?? Who says it can never be cured? I don't think anyone knows enough about it (yet) to claim that. Kristy From: [mailto: ] On Behalf Of Cristina Sent: Tuesday, May 19, 2009 10:03 AM Subject: Re: McCarthy book I don't think that autism is something you can cure. Because as soon as he dicides he no longer wants to do the vitiamns or treaments she is doing for him. He may go back to how he was. You can help a child deal with the side affects per say, but you can never take austim out of the child. --- On Tue, 5/19/09, Jerri Gann <njgann@... <mailto:njgann%40sti.net> > wrote: From: Jerri Gann <njgann@... <mailto:njgann%40sti.net> > Subject: McCarthy book " " < <mailto:%40> > Date: Tuesday, May 19, 2009, 9:53 AM Just a question I'll throw out there. It seems everyone I know is telling me to buy the McCarthy book. I usually explain (I don't know why I do this) that I've pretty much done the same research she has. And the response I get is, " Well, she has cured her son. " So my question is, Has she really cured her son? I don't watch a lot of TV and I know there has been a lot on lately that people have called and said be sure to watch and I get so busy I haven't seen any of it. I would believe you guys more than the TV anyway. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 That can be said about anything. And removing a tumor and getting it all is exactly that, the cancer is gone for all intents and purposes. Yes it can come back but so can a cold after you've completely gotten rid of one. Besides, autism isn't cancer and I've always disliked analogies to cancer. Cancer can and does kill. Autism, while debilitating and can create dangerous situations, does not. I apologize if it sounded curt - I don't intend it to be that way. I just don't have time to make it sound less so. Cheryl ~ http://www.gryffins-tail.blogspot.com ~ ~@midian42~ On May 19, 2009, at 1:31 PM, Cristina wrote: > > > I disgree with you. You can remove the tumor out of someone, but > there is always a chance that the cancer will come back. I believe > that is doing just that, she has removed it from site, but it > doesn't mean that it is still not there.. > > > > > > From: Jerri Gann <njgann@... <mailto:njgann% 40sti.net> > > <mailto:njgann% 40sti.net> > > > Subject: McCarthy book > > " " <groups (DOT) com <mailto:% 40groups. com> > > <mailto:% 40groups. com> > > > Date: Tuesday, May 19, 2009, 9:53 AM > > > > Just a question I'll throw out there. It seems everyone I know is > > telling me to buy the McCarthy book. I usually explain (I > don't > > know why I do this) that I've pretty much done the same research she > > has. And the response I get is, " Well, she has cured her son. " So my > > question is, Has she really cured her son? I don't watch a lot of > TV and > > I know there has been a lot on lately that people have called and > said > > be sure to watch and I get so busy I haven't seen any of it. I would > > believe you guys more than the TV anyway. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 Well said. Everyday I see less and less autism (really autistic behaviors) in my daughter, thanks to Dr. and Dr. Oberg (her environmental allergist)! - > > > > > > From: Jerri Gann <njgann@... <mailto:njgann% 40sti.net> > > > <mailto:njgann% 40sti.net> > > > > Subject: McCarthy book > > > " " <groups (DOT) com <mailto:% 40groups. com> > > > <mailto:% 40groups. com> > > > > Date: Tuesday, May 19, 2009, 9:53 AM > > > > > > Just a question I'll throw out there. It seems everyone I know is > > > telling me to buy the McCarthy book. I usually explain (I > > don't > > > know why I do this) that I've pretty much done the same research she > > > has. And the response I get is, " Well, she has cured her son. " So my > > > question is, Has she really cured her son? I don't watch a lot of > > TV and > > > I know there has been a lot on lately that people have called and > > said > > > be sure to watch and I get so busy I haven't seen any of it. I would > > > believe you guys more than the TV anyway. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 Yes!!!!! > > From: Jerri Gann <njgann@... <mailto:njgann%40sti.net> > > Subject: McCarthy book > " " < <mailto:%40> > > Date: Tuesday, May 19, 2009, 9:53 AM > > Just a question I'll throw out there. It seems everyone I know is > telling me to buy the McCarthy book. I usually explain (I don't > know why I do this) that I've pretty much done the same research she > has. And the response I get is, " Well, she has cured her son. " So my > question is, Has she really cured her son? I don't watch a lot of TV and > I know there has been a lot on lately that people have called and said > be sure to watch and I get so busy I haven't seen any of it. I would > believe you guys more than the TV anyway. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 I agree with everything Cheryl has said. Unfortunately, though, some kids with autism do die from their seizures or other symptoms ;-( Kristy From: [mailto: ] On Behalf Of Cheryl Lowrance Sent: Tuesday, May 19, 2009 5:24 PM Subject: Re: McCarthy book That can be said about anything. And removing a tumor and getting it all is exactly that, the cancer is gone for all intents and purposes. Yes it can come back but so can a cold after you've completely gotten rid of one. Besides, autism isn't cancer and I've always disliked analogies to cancer. Cancer can and does kill. Autism, while debilitating and can create dangerous situations, does not. I apologize if it sounded curt - I don't intend it to be that way. I just don't have time to make it sound less so. Cheryl ~ http://www.gryffins-tail.blogspot.com ~ ~@midian42~ On May 19, 2009, at 1:31 PM, Cristina wrote: > > > I disgree with you. You can remove the tumor out of someone, but > there is always a chance that the cancer will come back. I believe > that is doing just that, she has removed it from site, but it > doesn't mean that it is still not there.. > > > > > > From: Jerri Gann <njgann@... <mailto:njgann%40sti.net> <mailto:njgann% 40sti.net> > > <mailto:njgann% 40sti.net> > > > Subject: McCarthy book > > " " <groups (DOT) com <mailto:% 40groups. com> > > <mailto:% 40groups. com> > > > Date: Tuesday, May 19, 2009, 9:53 AM > > > > Just a question I'll throw out there. It seems everyone I know is > > telling me to buy the McCarthy book. I usually explain (I > don't > > know why I do this) that I've pretty much done the same research she > > has. And the response I get is, " Well, she has cured her son. " So my > > question is, Has she really cured her son? I don't watch a lot of > TV and > > I know there has been a lot on lately that people have called and > said > > be sure to watch and I get so busy I haven't seen any of it. I would > > believe you guys more than the TV anyway. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 What about when these children grow up and become adults??? People keep talking about children, but don't forget that they grow in a blink of an eye. Sick children left untreated will become sick adults that will live an unhealthy life and who knows what would happen to them. Google for autoimmune disorders and you will find a list of more than one hundred scary and nasty diseases. That scares me to death and I am happy that I am doing all I can to get my little one healthy. I am glad that I met Dr. Goldberg and a handful of doctors that have been willing to listen and help. I wish I never had to learn all these crazyness our children are going through, but this knowledge has turned my son's life 180 degrees for the good. JR From: knardini@... Date: Tue, 19 May 2009 19:16:47 -0700 Subject: RE: McCarthy book I agree with everything Cheryl has said. Unfortunately, though, some kids with autism do die from their seizures or other symptoms ;-( Kristy From: [mailto: ] On Behalf Of Cheryl Lowrance Sent: Tuesday, May 19, 2009 5:24 PM Subject: Re: McCarthy book That can be said about anything. And removing a tumor and getting it all is exactly that, the cancer is gone for all intents and purposes. Yes it can come back but so can a cold after you've completely gotten rid of one. Besides, autism isn't cancer and I've always disliked analogies to cancer. Cancer can and does kill. Autism, while debilitating and can create dangerous situations, does not. I apologize if it sounded curt - I don't intend it to be that way. I just don't have time to make it sound less so. Cheryl ~ http://www.gryffins-tail.blogspot.com ~ ~@midian42~ On May 19, 2009, at 1:31 PM, Cristina wrote: > > > I disgree with you. You can remove the tumor out of someone, but > there is always a chance that the cancer will come back. I believe > that is doing just that, she has removed it from site, but it > doesn't mean that it is still not there.. > > > > > > From: Jerri Gann <njgann@... <mailto:njgann%40sti.net> <mailto:njgann% 40sti.net> > > <mailto:njgann% 40sti.net> > > > Subject: McCarthy book > > " " <groups (DOT) com <mailto:% 40groups. com> > > <mailto:% 40groups. com> > > > Date: Tuesday, May 19, 2009, 9:53 AM > > > > Just a question I'll throw out there. It seems everyone I know is > > telling me to buy the McCarthy book. I usually explain (I > don't > > know why I do this) that I've pretty much done the same research she > > has. And the response I get is, " Well, she has cured her son. " So my > > question is, Has she really cured her son? I don't watch a lot of > TV and > > I know there has been a lot on lately that people have called and > said > > be sure to watch and I get so busy I haven't seen any of it. I would > > believe you guys more than the TV anyway. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 Well said JR! On May 19, 2009, at 7:53 PM, wrote: > > > > What about when these children grow up and become adults??? People > keep talking about children, but don't forget that they grow in a > blink of an eye. Sick children left untreated will become sick > adults that will live an unhealthy life and who knows what would > happen to them. Google for autoimmune disorders and you will find a > list of more than one hundred scary and nasty diseases. That scares > me to death and I am happy that I am doing all I can to get my > little one healthy. I am glad that I met Dr. Goldberg and a handful > of doctors that have been willing to listen and help. I wish I never > had to learn all these crazyness our children are going through, but > this knowledge has turned my son's life 180 degrees for the good. > > JR > > > > From: knardini@... > Date: Tue, 19 May 2009 19:16:47 -0700 > Subject: RE: McCarthy book > > I agree with everything Cheryl has said. > > Unfortunately, though, some kids with autism do die from their > seizures or > other symptoms ;-( > > Kristy > > From: [mailto: ] On Behalf > Of Cheryl > Lowrance > Sent: Tuesday, May 19, 2009 5:24 PM > > Subject: Re: McCarthy book > > That can be said about anything. And removing a tumor and getting it > all is exactly that, the cancer is gone for all intents and > purposes. Yes it can come back but so can a cold after you've > completely gotten rid of one. Besides, autism isn't cancer and I've > always disliked analogies to cancer. Cancer can and does kill. > Autism, while debilitating and can create dangerous situations, does > not. > > I apologize if it sounded curt - I don't intend it to be that way. I > just don't have time to make it sound less so. > > Cheryl > ~ http://www.gryffins-tail.blogspot.com ~ > ~@midian42~ > > On May 19, 2009, at 1:31 PM, Cristina wrote: > > > > > > > I disgree with you. You can remove the tumor out of someone, but > > there is always a chance that the cancer will come back. I believe > > that is doing just that, she has removed it from site, but it > > doesn't mean that it is still not there.. > > > > > > > > > > From: Jerri Gann <njgann@... <mailto:njgann%40sti.net> > <mailto:njgann% 40sti.net> > > > <mailto:njgann% 40sti.net> > > > > Subject: McCarthy book > > > " " <groups (DOT) com <mailto:% 40groups. > com> > > > <mailto:% 40groups. com> > > > > Date: Tuesday, May 19, 2009, 9:53 AM > > > > > > Just a question I'll throw out there. It seems everyone I know is > > > telling me to buy the McCarthy book. I usually explain (I > > don't > > > know why I do this) that I've pretty much done the same research > she > > > has. And the response I get is, " Well, she has cured her son. " > So my > > > question is, Has she really cured her son? I don't watch a lot of > > TV and > > > I know there has been a lot on lately that people have called and > > said > > > be sure to watch and I get so busy I haven't seen any of it. I > would > > > believe you guys more than the TV anyway. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 Kristy, Yes, that is true... my son (before he was a patient of Dr. G) was in status epilepticus once, which can kill. We were very lucky. 20% of status epilepticus cases die. Caroline G. From: Kristy Nardini <knardini@...> Reply-< > Date: Tue, 19 May 2009 19:16:47 -0700 < > Subject: RE: McCarthy book Unfortunately, though, some kids with autism do die from their seizures or other symptoms ;-( Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 Caroline, My son developed siezures at 6 months of age. How old was your son when his started and are they stopped now? How did you educate him duroing this time and how is he doing today? Any info would be greatly appreciated. Sheryl Sent via BlackBerry by AT & T RE: McCarthy book Unfortunately, though, some kids with autism do die from their seizures or other symptoms ;-( Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2009 Report Share Posted May 21, 2009 Sheryl, Our son¹s seizures started when he was 3 years old ... he was having 3 different seizure types identified via 3-day video EEG and they thought maybe even a fourth. I think the treatments were a large part of beginning to get our son back. We knew to take him to Dr G. for help because we already had one child under Dr. Goldberg¹s care. One point to note....we thought that Valtrex might have exacerbated his seizures, so Dr. G switched him to Famvir and never wanted to go back to Valtrex for this particular child (now he's on Zovirax and doing well). After months and months of therapy with little to no progress, when started the antivirals, he made a huge leap cognitively in one week. It was dramatic (and this was even though the Valtrex may have been exacerbating his seizures). By the way, Lennox-Gastaut Syndrome (a severe classification of epilepsy) is associated with autistic symptoms. This is what we were told our son might have... when we told Dr. G this, he was un-phased in his hopes to help our child, told us that children weren't supposed to disintegrate and charged right on. We have gone from not being able to leave the house for fear of his getting sick (any illness made his seizures go from horrific to worse), to a child attending regular classes... (but the social skills need work!). This is a child who at age three lost his ability to speak and was so severely affected that we were told by a speech therapist that he presented like a stroke victim. This coming October he will have been 4 years without seizures and although the EEG sill does not look " normal " , he has come a long, long way. The seizures started when he was three, it took two years to get them under control (he was 5 when they stopped), and now he is 8. He is still on Lamictal... but even the neurologist now thinks that he may outgrow the need to stay on Lamictal. During the time he was the sickest, he was preschool age and since he was ³homebound², the school system sent preschool teachers to our house. By the time he reached kindergarten age, he was able to go into a regular kindergarten classroom with some support. If I had it to do again, though, I would have kept him at home another year before sending him. He was young for his grade anyway... I should have listened to my heart instead of the preschool teachers because this past year we ended up holding him back to repeat second grade. He was doing well (he was ahead of the class in most things) but his reading comprehension wasn¹t where we wanted it to be for him to enter third grade. Now he¹s ready. When he was sick at home I read to him constantly, and when he was 4, I taught him to read using a combination of ³Hooked on Phonics² and Leapfrog ³Letter Factory² videos which teach the letter sounds. He could read aloud at the 6th grade level when he started kindergarten (but his comprehension wasn¹t so great). We bought him a Leapster and the ³Mr. Pencil² cartridge for it and it worked miracles for his fine motor skills. He couldn¹t even draw a straight line at first and now he¹s better at it than I am. His handwriting now is gorgeous. When his speech first started to come back, he was completely echolalic, but that gradually went away. I remember when he couldn¹t speak at all, he would wiggle his eyebrows up and down for ³yes². When he began to speak Again, he was very frustrated because he couldn¹t get the words to come out right and he would just scream sometimes. This is a very disjointed letter... sorry... I¹ve got to pack a kid to go spend a night in a cave with his class tomorrow so am rushing through things! If you have any questions, I¹ll be happy to try to answer them. Caroline From: <ssaturnino@...> Reply-< > Date: Wed, 20 May 2009 16:27:21 +0000 < > Subject: Re: McCarthy book Caroline, My son developed siezures at 6 months of age. How old was your son when his started and are they stopped now? How did you educate him duroing this time and how is he doing today? Any info would be greatly appreciated. Sheryl Sent via BlackBerry by AT & T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2009 Report Share Posted May 21, 2009 'Because as soon as he dicides he no longer wants to do the vitiamns or treaments she is doing for him. He ''may'' go back to how he was' 'You can help a child deal with the side affects per say, but you can never take austim out of the child'. Are the above statements based on your personal view or established by scientific fact? In a message dated 19/05/2009 19:15:33 GMT Daylight Time, cristina5211@... writes: I don't think that autism is something you can cure. Because as soon as he dicides he no longer wants to do the vitiamns or treaments she is doing for him. He may go back to how he was. You can help a child deal with the side affects per say, but you can never take austim out of the child. From: Jerri Gann <_njgann@..._ (mailto:njgann@...) > Subject: McCarthy book " " <_@..._ (mailto: ) > Date: Tuesday, May 19, 2009, 9:53 AM Just a question I'll throw out there. It seems everyone I know is telling me to buy the McCarthy book. I usually explain (I don't know why I do this) that I've pretty much done the same research she has. And the response I get is, " Well, she has cured her son. " So my question is, Has she really cured her son? I don't watch a lot of TV and I know there has been a lot on lately that people have called and said be sure to watch and I get so busy I haven't seen any of it. I would believe you guys more than the TV anyway. [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2009 Report Share Posted May 21, 2009 Just got my computer back. Whew! what a lot to catch up on. One thing I noticed from the same people that are trying to encourage me (get 's book, watch this program) is that they are all speaking totally against vaccinations. What I say and what I believe is, yes, vaccinations are a big problem but they cross the line when they say it is THE problem and this makes it hard for people like Dr G to get anywhere because the anti-vaccination people are getting all the media attention. Well, hopefully we have a case of the tortoise and the hare. Dr G is consistently moving toward the same goal and hopefully he will win the race for all of us. > > > > Lynne, > > I couldn't agree with you more. I'm glad for the attention and also > think her heart is in the right place but the she seems to give the > impression recovery is easier than it truly is. I know how hard we > have worked with my son for the past 10years and we still have a long > long way to go.....Candi > > > <mailto:%40> > From: ecapne@... <mailto:ecapne%40> > Date: Tue, 19 May 2009 10:16:43 -0700 > Subject: Re: McCarthy book > > I am glad for some of the attention that she is bringing to the issue, > but here is where I differ: Most kids who are treated appropriately > have to take a long, hard, road before they get " cured. " I don't think > she pays enough attention to that fact and it can be discouraging to > parents who have worked for years with all the ups and downs to hear > her go on TV and make it seem so easy (however unintentionally). It is > not. > > Also, if her son is cured now, he probably was less on the spectrum to > begin with. From what I can recall, I think she cured her kid in 1 1/2 > to 2 years? I believe her heart is in the right place, but I am not in > agreement with the message. Also, all the public seems to see on TV or > in magazines who are not affected by this issue is the extremes with > autism, or those with soley savant skills. The result is that these > images give the impression that like our kids don't have hope to begin > with and can't recover. On the other hand, in my opinion, she gives > the impression that recovery is a lot easier than it truly is. If we > can only find a well-known person in the middle, we would all be doing > a lot better for our kids. > > Please don't let other criticize you or your efforts. Also, this is > just my opinion, but if you are not already, I would steer clear of > those DAN doctors. If you are seeing Dr. G., I would follow most of > his advice. He is the best thing that happened to my son. > > > > From: Jerri Gann <njgann@... <mailto:njgann%40sti.net>> > Subject: McCarthy book > " " < <mailto:%40>> > Date: Tuesday, May 19, 2009, 12:53 PM > > Just a question I'll throw out there. It seems everyone I know is > telling me to buy the McCarthy book. I usually explain (I don't > know why I do this) that I've pretty much done the same research she > has. And the response I get is, " Well, she has cured her son. " So my > question is, Has she really cured her son? I don't watch a lot of TV and > I know there has been a lot on lately that people have called and said > be sure to watch and I get so busy I haven't seen any of it. I would > believe you guys more than the TV anyway. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2009 Report Share Posted May 21, 2009 I agree with you 150%! I get sooo frustrated when the focus of what is happening with our children is solely on (mercury in) vaccinations. I think there are a lot of toxins in vaccinations that are contributing to what is making our children sick, as there are in our environment (pollution, for one). When the controversy is solely about mercury/thimerosol, it really dilutes the energy from where it should be directed. I like Dr. Christiane Northrup a lot. Her book " Mother-Daughter Wisdom " has a great section on vaccinations. In it she says a lot of things about vaccinations/immunizations that make a lot of sense. She encourages a modified vaccination schedule, and to question whether or not every vaccination is necessary. Kristy From: [mailto: ] On Behalf Of Jerri Gann Sent: Thursday, May 21, 2009 12:47 PM Subject: Re: McCarthy book Just got my computer back. Whew! what a lot to catch up on. One thing I noticed from the same people that are trying to encourage me (get 's book, watch this program) is that they are all speaking totally against vaccinations. What I say and what I believe is, yes, vaccinations are a big problem but they cross the line when they say it is THE problem and this makes it hard for people like Dr G to get anywhere because the anti-vaccination people are getting all the media attention. Well, hopefully we have a case of the tortoise and the hare. Dr G is consistently moving toward the same goal and hopefully he will win the race for all of us. > > > > Lynne, > > I couldn't agree with you more. I'm glad for the attention and also > think her heart is in the right place but the she seems to give the > impression recovery is easier than it truly is. I know how hard we > have worked with my son for the past 10years and we still have a long > long way to go.....Candi > > > <mailto:%40> <mailto:%40> > From: ecapne@... <mailto:ecapne%40> <mailto:ecapne%40> > Date: Tue, 19 May 2009 10:16:43 -0700 > Subject: Re: McCarthy book > > I am glad for some of the attention that she is bringing to the issue, > but here is where I differ: Most kids who are treated appropriately > have to take a long, hard, road before they get " cured. " I don't think > she pays enough attention to that fact and it can be discouraging to > parents who have worked for years with all the ups and downs to hear > her go on TV and make it seem so easy (however unintentionally). It is > not. > > Also, if her son is cured now, he probably was less on the spectrum to > begin with. From what I can recall, I think she cured her kid in 1 1/2 > to 2 years? I believe her heart is in the right place, but I am not in > agreement with the message. Also, all the public seems to see on TV or > in magazines who are not affected by this issue is the extremes with > autism, or those with soley savant skills. The result is that these > images give the impression that like our kids don't have hope to begin > with and can't recover. On the other hand, in my opinion, she gives > the impression that recovery is a lot easier than it truly is. If we > can only find a well-known person in the middle, we would all be doing > a lot better for our kids. > > Please don't let other criticize you or your efforts. Also, this is > just my opinion, but if you are not already, I would steer clear of > those DAN doctors. If you are seeing Dr. G., I would follow most of > his advice. He is the best thing that happened to my son. > > > > From: Jerri Gann <njgann@... <mailto:njgann%40sti.net> <mailto:njgann%40sti.net>> > Subject: McCarthy book > " " < <mailto:%40> <mailto:%40>> > Date: Tuesday, May 19, 2009, 12:53 PM > > Just a question I'll throw out there. It seems everyone I know is > telling me to buy the McCarthy book. I usually explain (I don't > know why I do this) that I've pretty much done the same research she > has. And the response I get is, " Well, she has cured her son. " So my > question is, Has she really cured her son? I don't watch a lot of TV and > I know there has been a lot on lately that people have called and said > be sure to watch and I get so busy I haven't seen any of it. I would > believe you guys more than the TV anyway. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2009 Report Share Posted May 21, 2009 Dear Caroline, Thank you so much for your message. It had a lot of good info! I laughed when I read that you were getting a child ready for a night in a cave. Don't we mothers do the funniest things? I will look into Leapster and Mr. Pencil for Roff. He LOVED the Letter and Word Factory dvds. He loved them so much, he cracked the dvds carrying them around. That's how he mastered all the letters sounds. He is making great progress learning words and sounding them out. We just have along way to go. Thanks for your encouragement. Don't we all need that?!! Sheryl Sent via BlackBerry by AT & T Re: McCarthy book Caroline, My son developed siezures at 6 months of age. How old was your son when his started and are they stopped now? How did you educate him duroing this time and how is he doing today? Any info would be greatly appreciated. Sheryl Sent via BlackBerry by AT & T Quote Link to comment Share on other sites More sharing options...
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