Guest guest Posted March 26, 2002 Report Share Posted March 26, 2002 Hi, .<br>I just wanted to welcome you, and let you know of another site where you'll find another message board and tons of support from a great group of people. I myself have had 4 surgeries on my lumbar spine, and am on the mend now. Anyway, here is the site:<br><a href=http://www.spinedisorders.org/index.html target=new>http://www.spinedisorders.org/index.html</a><br>I hope to see you there.<br>Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Hi , Good to see you here - I am JulesA on AiA. Have you done anything else different in the last few weeks that you can think of ,I know we spoke about washing powders etc., or has he been eating anything different ? I'm not really knowledgeable enough to give much advice but there are many who can. Have you looked at Dana's site ? http://www.danasview.net/index.htm there are also lots of files in the files section of this list which might help. Hope someone gets back to you soon. Julea ) The first step towards success is taken when you refuse to be a captive of the environment in which you first found yourself. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Hi , Good to see you here - I am JulesA on AiA. Have you done anything else different in the last few weeks that you can think of ,I know we spoke about washing powders etc., or has he been eating anything different ? I'm not really knowledgeable enough to give much advice but there are many who can. Have you looked at Dana's site ? http://www.danasview.net/index.htm there are also lots of files in the files section of this list which might help. Hope someone gets back to you soon. Julea ) The first step towards success is taken when you refuse to be a captive of the environment in which you first found yourself. > Hi everyone, > > Well I say I am new here but I was a member about a year ago but left and now > I am hoping to be accepted bac as I am not aplling on disappearing unless > people would prefer me to go. I have just found the last few years very hard as > I am sure other have. > > My son Mikey will be five now in a couple of weeks. He has been on and off a > GFCF diet and enzymes for about three years now with varying results. We > have finally decided to try him with a GFCF diet and also enzymes. > > My question is I have Pepitzyde, HM Zyme and No Fenol enzymes. What do I > use? How many? And is it OK to give in a rice dessert. > > So far I have been giving Mikey 1/2 a capsule of each twice a day in a > dessert together with the GFCF diet. No improvement at all for over three weeks > now. He is soya free as well. He has been getting a very red tongue, could the > enzymes be burning him? > > I am tearing my hair out now because I am not sure which way to go from here. > Any advice would be greatly appreciated. > > Best wishes > Thank you > Michele > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 > have finally decided to try him with a GFCF diet and also enzymes. > > My question is I have Pepitzyde, HM Zyme and No Fenol enzymes. What do I > use? How many? The Peptizyde would be for cross contamination and infractions of g/c, plus soy and other proteins. You can start with any of the three, because they address different foods. I would start at 1/2 capsule and work up to 1 capsule per meal if required. >>And is it OK to give in a rice dessert. Yes, but they will begin to digest the food, so be sure he eats it quickly. > > So far I have been giving Mikey 1/2 a capsule of each twice a day in a > dessert together with the GFCF diet. No improvement at all for over three weeks > now. He is soya free as well. He has been getting a very red tongue, could the > enzymes be burning him? Give them 3x per day, to see if it is the 3rd meal which is causing him problems. He also might not tolerate certain foods and/or supplements, even with enzymes. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2003 Report Share Posted August 30, 2003 Give them every time the child snacks or eats or drinks. Use a straw to avoid the red lips and tongue. I'd stick to 1/2 cap until you've adjusted to using them with every meal, drink and snack. My son has to drink his enzymes mixed with water or juice through a straw prior to eating anything. Good luck. We too are GFCF and using enzymes. Use the enzymes appropriate to the food/drink, you don't want to waste them. HI NEW HERE Hi everyone, Well I say I am new here but I was a member about a year ago but left and now I am hoping to be accepted bac as I am not aplling on disappearing unless people would prefer me to go. I have just found the last few years very hard as I am sure other have. My son Mikey will be five now in a couple of weeks. He has been on and off a GFCF diet and enzymes for about three years now with varying results. We have finally decided to try him with a GFCF diet and also enzymes. My question is I have Pepitzyde, HM Zyme and No Fenol enzymes. What do I use? How many? And is it OK to give in a rice dessert. So far I have been giving Mikey 1/2 a capsule of each twice a day in a dessert together with the GFCF diet. No improvement at all for over three weeks now. He is soya free as well. He has been getting a very red tongue, could the enzymes be burning him? I am tearing my hair out now because I am not sure which way to go from here. Any advice would be greatly appreciated. Best wishes Thank you Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2003 Report Share Posted August 30, 2003 That's what we did, gave the enzymes every single time food went in. Are you giving the right enzymes for the right food, like asked? Also, 's book (and in this group she's also mentioned it) discusses somewhere that some kids who don't benefit from the gfcf diet do really well with the Specific Carbohydrate Diet. Have you tried that or other diets? Is there a tough yeast or bacterial problem? How about viral? Just trying to brainstorm why it seems diet/enzymes aren't working for your son... > Give them every time the child snacks or eats or drinks. Use a straw to avoid the red lips and tongue. I'd stick to 1/2 cap until you've adjusted to using them with every meal, drink and snack. My son has to drink his enzymes mixed with water or juice through a straw prior to eating anything. Good luck. We too are GFCF and using enzymes. Use the enzymes appropriate to the food/drink, you don't want to waste them. > HI NEW HERE > > > Hi everyone, > > Well I say I am new here but I was a member about a year ago but left and now > I am hoping to be accepted bac as I am not aplling on disappearing unless > people would prefer me to go. I have just found the last few years very hard as > I am sure other have. > > My son Mikey will be five now in a couple of weeks. He has been on and off a > GFCF diet and enzymes for about three years now with varying results. We > have finally decided to try him with a GFCF diet and also enzymes. > > My question is I have Pepitzyde, HM Zyme and No Fenol enzymes. What do I > use? How many? And is it OK to give in a rice dessert. > > So far I have been giving Mikey 1/2 a capsule of each twice a day in a > dessert together with the GFCF diet. No improvement at all for over three weeks > now. He is soya free as well. He has been getting a very red tongue, could the > enzymes be burning him? > > I am tearing my hair out now because I am not sure which way to go from here. > Any advice would be greatly appreciated. > > Best wishes > Thank you > Michele > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Greetings Well you have come to the right place for help. Did you look at the section for those who are new? " A great place to start.. " I suggest that all of you new folks do that. It helps so much the information in there, these folks are great at telling their stories!!! I am type 2 and I am getting better as the time goes on as long as I do not go crazy and have a huge chesse burger and a non beer beer..(yeast you know!!! What kind of cream did you get by the way??? Well again welcome to you and all the new people. FYI: We get on the average 4 people new a day!!! Remember your posts are moderated for a while and then free of that restriction. Good health to all and the means to maintain it. nieema --- djlopez7914 <djlopez7914@...> wrote: HI > I HAVE BEEN SUFFERING FROM THIS FOR SOMETIME AND IM > GOING CRAZY (THE > ITCHING DRIVES ME CRAZY AT NIGHT)...I HAVE BEEN TO > THE DOCTOR AND > ALL I WAS TOLD ITS JUST A COMMON YEAST INFECTION > HERES SOME CREAM TO > CURE IT....I HAD TO SURF THE NET AND I FINALLY FOUND > SOME WEBSITES > ABOUT CANDIDA AND I WAS READING ALL THE SYMPTOMS AND > I HAVE LIKE THE > MAJORITY OF THE SYMPTOMS....I AM A DIABETIC AND I > GUESS THAT MAKES > IT WORST?....CAN SOMEONE PLEASE TELL ME HOW I CAN > GET STARTED TO RID > MY SELF OF THIS?....IS THERE A CURE?....IS THIS > REALLY SERIOUS IF IT > GOES UNTREATED?... > ===== I hope this message finds you and yours in the best of Health and Spirit. Our Health is Our Responsibility http://www.a-healing-village.com nieema Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 In a message dated 11/5/04 8:01:21 AM Eastern Standard Time, artfulcah@... writes: > Is that why it feels like I'm being totally ignored? I've asked > several questions over a 4 day period and had not one response. A couple of > times I tried visiting " chat " rooms and this has felt just the same. Or am I > invisible? > :) :) ? > Carol Hi, Carol. I just read this group occasionally, but today I do see all of your posts. So they do show up If you go to the group's website at and search for a post from me about a month ago (it includes the word " lithiasis " ) then you'll see what I discovered on my own when I researched whether liver stones exist. (Searching at involves repeated pressing of the " Next " key.) But be careful of any advice that you read on an internet discussion group, naturally. This one specifically is not a scientific group. One person in particular goes around topic to topic, saying that his understanding of science is far above the rest of the world (everyone else is always " misinformed " ), yet he continually gives out faulty info garnered from pop websites and books. You can find threads where he is proven wrong again and again, and then immediately people will ask him for more advice. The group owner(s) should thank people for exposing his nonsense, but instead discourages that. So go figure. I'd think the list should be more about getting to the truth than about everybody just getting along. As regards liver flushes, it sounds zany but I've read reports from people that say it does make them feel better. OTOH, there are some now on the yeast-L list who report bad or neutral results. My guess is that the cholesterol stones might be formed from the flushing process itself - and to my knowledge no one knows factually where they reside before being expelled. The whole thing would and should require lots of reading. Be wary of self-styled gurus and their cheerleaders, which I think you would do anyway. Good luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 <<Remember your posts are moderated for a while and then free of that restriction.>> Is that why it feels like I'm being totally ignored? I've asked several questions over a 4 day period and had not one response. A couple of times I tried visiting " chat " rooms and this has felt just the same. Or am I invisible? :) :) ? Carol nieema <nieema0@...> wrote: Greetings Well you have come to the right place for help. Did you look at the section for those who are new? " A great place to start.. " I suggest that all of you new folks do that. It helps so much the information in there, these folks are great at telling their stories!!! I am type 2 and I am getting better as the time goes on as long as I do not go crazy and have a huge chesse burger and a non beer beer..(yeast you know!!! What kind of cream did you get by the way??? Well again welcome to you and all the new people. FYI: We get on the average 4 people new a day!!! Remember your posts are moderated for a while and then free of that restriction. Good health to all and the means to maintain it. nieema --- djlopez7914 wrote: HI > I HAVE BEEN SUFFERING FROM THIS FOR SOMETIME AND IM > GOING CRAZY (THE > ITCHING DRIVES ME CRAZY AT NIGHT)...I HAVE BEEN TO > THE DOCTOR AND > ALL I WAS TOLD ITS JUST A COMMON YEAST INFECTION > HERES SOME CREAM TO > CURE IT....I HAD TO SURF THE NET AND I FINALLY FOUND > SOME WEBSITES > ABOUT CANDIDA AND I WAS READING ALL THE SYMPTOMS AND > I HAVE LIKE THE > MAJORITY OF THE SYMPTOMS....I AM A DIABETIC AND I > GUESS THAT MAKES > IT WORST?....CAN SOMEONE PLEASE TELL ME HOW I CAN > GET STARTED TO RID > MY SELF OF THIS?....IS THERE A CURE?....IS THIS > REALLY SERIOUS IF IT > GOES UNTREATED?... > ===== I hope this message finds you and yours in the best of Health and Spirit. Our Health is Our Responsibility http://www.a-healing-village.com nieema Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Carol, You are definitely not invisible. I think it just gets a little frustrating to type the same sort of replies over and over again. I know that I will occasionally see a welcome message pop up when someone identifies themself as new. They are instructed to look at the archives and the " new members " information to get started. That is what I would advise for you. It could just be that people have answered the same question as your many times before. They don't want to type it over again. This group is very supportive and kind. Please check out the archives and stick around. Rhonda Re: HI NEW HERE <<Remember your posts are moderated for a while and then free of that restriction.>> Is that why it feels like I'm being totally ignored? I've asked several questions over a 4 day period and had not one response. A couple of times I tried visiting " chat " rooms and this has felt just the same. Or am I invisible? :) :) ? Carol nieema <nieema0@...> wrote: Greetings Well you have come to the right place for help. Did you look at the section for those who are new? " A great place to start.. " I suggest that all of you new folks do that. It helps so much the information in there, these folks are great at telling their stories!!! I am type 2 and I am getting better as the time goes on as long as I do not go crazy and have a huge chesse burger and a non beer beer..(yeast you know!!! What kind of cream did you get by the way??? Well again welcome to you and all the new people. FYI: We get on the average 4 people new a day!!! Remember your posts are moderated for a while and then free of that restriction. Good health to all and the means to maintain it. nieema --- djlopez7914 wrote: HI > I HAVE BEEN SUFFERING FROM THIS FOR SOMETIME AND IM > GOING CRAZY (THE > ITCHING DRIVES ME CRAZY AT NIGHT)...I HAVE BEEN TO > THE DOCTOR AND > ALL I WAS TOLD ITS JUST A COMMON YEAST INFECTION > HERES SOME CREAM TO > CURE IT....I HAD TO SURF THE NET AND I FINALLY FOUND > SOME WEBSITES > ABOUT CANDIDA AND I WAS READING ALL THE SYMPTOMS AND > I HAVE LIKE THE > MAJORITY OF THE SYMPTOMS....I AM A DIABETIC AND I > GUESS THAT MAKES > IT WORST?....CAN SOMEONE PLEASE TELL ME HOW I CAN > GET STARTED TO RID > MY SELF OF THIS?....IS THERE A CURE?....IS THIS > REALLY SERIOUS IF IT > GOES UNTREATED?... > ===== I hope this message finds you and yours in the best of Health and Spirit. Our Health is Our Responsibility http://www.a-healing-village.com nieema Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 Hi Carol, For sure no one is ignoring you... we just get so much email sometimes that it's hard to sort through all of them. If you're asking a new question but inside an email that's a reply to someone else's mail, it's best to put in a new subject line (not everyone is reading every single mail). Do you mind repeating your questions again? I think in one of the emails you asked about the liver flush.. the idea is that gallstones accumulate in the liver and cause all sorts of problems because the liver isn't function as well as it should. The procedure calls for drinking epsom salts (to cleanse the bowels) and a mixture of olive oil/grapefruit juice (to push the stones out). Once you clean out the stones in the liver, then your health may improve considerably. If you look at the files there is a book you can download (only for the next couple of days), or go to www.curezone.com and click on the Liver flush link - there is lots of information there on how to do, what to expect, etc. You can also post messages there. Regards, asli > <<Remember your posts are moderated for a while and then free of that restriction.>> > > Is that why it feels like I'm being totally ignored? I've asked several questions over a 4 day period and had not one response. A couple of times I tried visiting " chat " rooms and this has felt just the same. Or am I invisible? > :) :) ? > Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Dear , Welcome to our group! You'll be very happy you found us. > > Hi, > New to group.Looks pretty good with so much information. > Battling CFS and fibromyalgia. Is their anything I should know not to > eat. How long does this diet take to get a handle on candida. Do many > people see results. Seems overwhelming, so much to read. > has so many groups, just fell in here. ==>All of the information can be overwhelming for sure. Take your time, it's your future that is at stake and education is the first step to regaining your health. Read my main article first " How to Successfully Overcome Candida " and after that take one step at a time - don't rush - starting on the diet and supplements correctly and gradually is key! Hugs, Bee > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 Hi karen welcome to the group. It sounds like you are really on top of things and are catching everything very early. Are you from the UK? If so I think that there is a Plagiocephaly UK group which may be of more assitance to you. I am not positive about this but maybe someone else here will be able to confirm this. Good luck at your appointment, let us know how things go. Haylee mom to Andre 21 months/tort/doc band #1 22/11/05 doc band #2 coming soon & Lesly 21 months > > Hi all im karen, mummy to 4, Tori - Lee is 5 months old and has been > having therapy for torti collis since she was about 5 weeks old, her > head shape now is really noticeable and her eye and ear are out of > line, i am researching about helmets/ starbands and also trying to get > it funded, she has an appointment tomorow with the ped. I have a lot > of info to take with me and her therapist is also coming with me to > back me up as she feels the band would really help Tori - Lee. > Has anybody had them funded from the nhs and if so what area do you > live in, we are in halton,cheshire > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 The link to the UK group is http://www.plagiocephaly.org.uk Jen (22 mo), tort resolved, Hanger Band Grad (4 years) > > > > Hi all im karen, mummy to 4, Tori - Lee is 5 months old and has been > > having therapy for torti collis since she was about 5 weeks old, her > > head shape now is really noticeable and her eye and ear are out of > > line, i am researching about helmets/ starbands and also trying to > get > > it funded, she has an appointment tomorow with the ped. I have a lot > > of info to take with me and her therapist is also coming with me to > > back me up as she feels the band would really help Tori - Lee. > > Has anybody had them funded from the nhs and if so what area do you > > live in, we are in halton,cheshire > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 > - Are there any negative long-term side effects of using enzymes? I am unaware of negative *long term* effects. I know that if the child does not tolerate the enzyme, usually removing it will eliminate any problems. > - Is excessive sweating, especially when sleeping, a sign of mercury > poisoning or something else? It is a sign that the body is attempting to detox from something it encountered during the day that it did not tolerate [foods, environmental issues, etc]. Mercury toxicity can cause this. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2008 Report Share Posted February 12, 2008 Hi Lolly, Someone here recently recommended using an amber-colored jar to store the LDN. I guess even the light that reaches it in the refrigerator can degrade it. My understanding is to stick with the 1.5 dose until you're sleeping well (maybe a month), and then work up to either 3 or 4.5 mg. Hopefully you will have some improvement in your eye disease promptly. And who knows, it may help your body convert the T4 better. Best, B., Graves' disease and cold-stage thyroid eye disease ________________________________ From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of lollyjolly58 Sent: Tuesday, February 12, 2008 6:16 PM low dose naltrexone Subject: [low dose naltrexone] Hi new here Hi all, I am new to this site, I have been reading up on LDN and ordered some a couple of weeks ago from River Pharmacy in Canada. They arrived sooner than I expected, shipping arrival date was between 16th-23rd Feb they arrived on the 11th I live in the UK. I have Graves Disease with Thyroid Eye Disease. I had a Total Thyroidectomy last year, but since then have had a rollercoaster ride,at one point they thought I just wasn't absorbing Levothyroxine my current dose is 200mcg's. I wanted to try LDN to see if it would help with the eye disease as that have flared up since my surgery. I've been having some help,by other graves disease suffers regarding LDN. My question is... I was reading about River Pharmacy's,the Tablets I received (looks like mine came from India), generic name is Revia 50mgs X30 tabs, I opened one to see if it is, how you described them on one of the posts here,tablet is light orange colour, scored,round no writing on it at all, expiry date 2010. Came in 10 tab blister packets with Nordic and Naltrexone Hydrochloride,there were no inserts with it or leaflets explaining the medication, although I know to make up my own with distilled water, I will be doing only 25mg's at a time have a pill cutter and keeping it refrigerated starting on 1.5mg's the first week, increasing to 2.5mgs's the second and going up to 3mg's, not sure if I should be going any higher than this,so any input wtll be appreciated. I haven't started them yet as I am waiting on lab results,Thyroid, Liver panel, and full blood count I had labs on Monday, plus I have a stinking cold. Thank you Lolly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 Hi , I already have some amber coloured pots ready for storage, glass ones have a synringe and dropper, just have to get some distilled water. Yes I will do as you advice and stay on 1.5mgs for a month and then increase. I don't sleep that well anyway so it won't be anything new. Thank you for all your help aswell I hope it helps my eyes too and my levels. Best Wishes Lolly > > Hi Lolly, > > Someone here recently recommended using an amber-colored jar to store the > LDN. I guess even the light that reaches it in the refrigerator can degrade > it. > > My understanding is to stick with the 1.5 dose until you're sleeping well > (maybe a month), and then work up to either 3 or 4.5 mg. Hopefully you will > have some improvement in your eye disease promptly. And who knows, it may > help your body convert the T4 better. > > Best, > B., Graves' disease and cold-stage thyroid eye disease > ________________________________ > > From: low dose naltrexone > [mailto:low dose naltrexone ] On Behalf Of lollyjolly58 > Sent: Tuesday, February 12, 2008 6:16 PM > low dose naltrexone > Subject: [low dose naltrexone] Hi new here > > Hi all, > > I am new to this site, I have been reading up on LDN and ordered some > a > couple of weeks ago from River Pharmacy in Canada. > They arrived sooner than I expected, shipping arrival date was > between 16th-23rd Feb they arrived on the 11th > I live in the UK. > I have Graves Disease with Thyroid Eye Disease. > I had a Total Thyroidectomy last year, but since then have had a > rollercoaster ride,at one point they thought I just wasn't absorbing > Levothyroxine my current dose is 200mcg's. > > I wanted to try LDN to see if it would help with the eye disease as > that have flared up since my surgery. > I've been having some help,by other graves disease suffers regarding > LDN. > My question is... > I was reading about River Pharmacy's,the Tablets I > received (looks like mine came from India), generic name is Revia > 50mgs X30 tabs, I opened one to see if it is, how you described them > on one of the posts here,tablet is light orange colour, scored,round > no writing on it at all, expiry date 2010. > Came in 10 tab blister packets > with Nordic and Naltrexone Hydrochloride,there were no inserts with > it or leaflets explaining the medication, although I know to make up > my own with distilled water, I will be doing only 25mg's at a time > have a pill cutter and keeping it refrigerated starting on 1.5mg's > the first week, increasing to 2.5mgs's the second and going up to > 3mg's, not sure if I should be going any higher than this,so any > input wtll be appreciated. > I haven't started them yet as I am waiting on lab results,Thyroid, > Liver panel, and full blood count I had labs on Monday, plus I have a > stinking cold. > > Thank you > > Lolly > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 If you tolerate 3.0mgs without problems, you can try 4.5mgs. This is the optimal adult dosage. If you experience problems, then drop back down. See how you feel. Simple. Art -- > > Hi all, > > I am new to this site, I have been reading up on LDN and ordered some > a > couple of weeks ago from River Pharmacy in Canada. > They arrived sooner than I expected, shipping arrival date was > between 16th-23rd Feb they arrived on the 11th > I live in the UK. > I have Graves Disease with Thyroid Eye Disease. > I had a Total Thyroidectomy last year, but since then have had a > rollercoaster ride,at one point they thought I just wasn't absorbing > Levothyroxine my current dose is 200mcg's. > > I wanted to try LDN to see if it would help with the eye disease as > that have flared up since my surgery. > I've been having some help,by other graves disease suffers regarding > LDN. > My question is... > I was reading about River Pharmacy's,the Tablets I > received (looks like mine came from India), generic name is Revia > 50mgs X30 tabs, I opened one to see if it is, how you described them > on one of the posts here,tablet is light orange colour, scored,round > no writing on it at all, expiry date 2010. > Came in 10 tab blister packets > with Nordic and Naltrexone Hydrochloride,there were no inserts with > it or leaflets explaining the medication, although I know to make up > my own with distilled water, I will be doing only 25mg's at a time > have a pill cutter and keeping it refrigerated starting on 1.5mg's > the first week, increasing to 2.5mgs's the second and going up to > 3mg's, not sure if I should be going any higher than this,so any > input wtll be appreciated. > I haven't started them yet as I am waiting on lab results,Thyroid, > Liver panel, and full blood count I had labs on Monday, plus I have a > stinking cold. > > Thank you > > Lolly > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 > > > > Hi all, > > > > I am new to this site, I have been reading up on LDN and ordered > some > > a > > couple of weeks ago from River Pharmacy in Canada. > > They arrived sooner than I expected, shipping arrival date was > > between 16th-23rd Feb they arrived on the 11th > > I live in the UK. > > I have Graves Disease with Thyroid Eye Disease. > > I had a Total Thyroidectomy last year, but since then have had a > > rollercoaster ride,at one point they thought I just wasn't > absorbing > > Levothyroxine my current dose is 200mcg's. > > > > I wanted to try LDN to see if it would help with the eye disease as > > that have flared up since my surgery. > > I've been having some help,by other graves disease suffers > regarding > > LDN. > > My question is... > > I was reading about River Pharmacy's,the Tablets I > > received (looks like mine came from India), generic name is Revia > > 50mgs X30 tabs, I opened one to see if it is, how you described > them > > on one of the posts here,tablet is light orange colour, > scored,round > > no writing on it at all, expiry date 2010. > > Came in 10 tab blister packets > > with Nordic and Naltrexone Hydrochloride,there were no inserts with > > it or leaflets explaining the medication, although I know to make > up > > my own with distilled water, I will be doing only 25mg's at a time > > have a pill cutter and keeping it refrigerated starting on 1.5mg's > > the first week, increasing to 2.5mgs's the second and going up to > > 3mg's, not sure if I should be going any higher than this,so any > > input wtll be appreciated. > > I haven't started them yet as I am waiting on lab results,Thyroid, > > Liver panel, and full blood count I had labs on Monday, plus I have > a > > stinking cold. > > > > Thank you > > > > Lolly > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 I am at 3 mg and was thinking of raising to 4.5. However last night I had a REALLY scary dream. Has anyone noticed an increase in bad dreams with upping the dosage? > > > > Hi all, > > > > I am new to this site, I have been reading up on LDN and ordered > some > > a > > couple of weeks ago from River Pharmacy in Canada. > > They arrived sooner than I expected, shipping arrival date was > > between 16th-23rd Feb they arrived on the 11th > > I live in the UK. > > I have Graves Disease with Thyroid Eye Disease. > > I had a Total Thyroidectomy last year, but since then have had a > > rollercoaster ride,at one point they thought I just wasn't > absorbing > > Levothyroxine my current dose is 200mcg's. > > > > I wanted to try LDN to see if it would help with the eye disease as > > that have flared up since my surgery. > > I've been having some help,by other graves disease suffers > regarding > > LDN. > > My question is... > > I was reading about River Pharmacy's,the Tablets I > > received (looks like mine came from India), generic name is Revia > > 50mgs X30 tabs, I opened one to see if it is, how you described > them > > on one of the posts here,tablet is light orange colour, > scored,round > > no writing on it at all, expiry date 2010. > > Came in 10 tab blister packets > > with Nordic and Naltrexone Hydrochloride,there were no inserts with > > it or leaflets explaining the medication, although I know to make > up > > my own with distilled water, I will be doing only 25mg's at a time > > have a pill cutter and keeping it refrigerated starting on 1.5mg's > > the first week, increasing to 2.5mgs's the second and going up to > > 3mg's, not sure if I should be going any higher than this,so any > > input wtll be appreciated. > > I haven't started them yet as I am waiting on lab results,Thyroid, > > Liver panel, and full blood count I had labs on Monday, plus I have > a > > stinking cold. > > > > Thank you > > > > Lolly > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 Hi Lolly,I suggest increasing the dosage at a slower rate until you see how LDN affects you. Also, you may need to adjust the dosage of your medication to compensate for the influence of LDN on your system.For more information about LDN, visithttp://tinyurl.com/2boot2Best regards,Dudley Delany dudley_delanyFrom: lollyjolly58 Sent: Tuesday, February 12, 2008 6:15 PM low dose naltrexone Subject: [low dose naltrexone] Hi new here Hi all, I am new to this site, I have been reading up on LDN and ordered some a couple of weeks ago from River Pharmacy in Canada. They arrived sooner than I expected, shipping arrival date was between 16th-23rd Feb they arrived on the 11th I live in the UK. I have Graves Disease with Thyroid Eye Disease. I had a Total Thyroidectomy last year, but since then have had a rollercoaster ride,at one point they thought I just wasn't absorbing Levothyroxine my current dose is 200mcg's. I wanted to try LDN to see if it would help with the eye disease as that have flared up since my surgery. I've been having some help,by other graves disease suffers regarding LDN. My question is... I was reading about River Pharmacy's,the Tablets I received (looks like mine came from India), generic name is Revia 50mgs X30 tabs, I opened one to see if it is, how you described them on one of the posts here,tablet is light orange colour, scored,round no writing on it at all, expiry date 2010. Came in 10 tab blister packets with Nordic and Naltrexone Hydrochloride,there were no inserts with it or leaflets explaining the medication, although I know to make up my own with distilled water, I will be doing only 25mg's at a time have a pill cutter and keeping it refrigerated starting on 1.5mg's the first week, increasing to 2.5mgs's the second and going up to 3mg's, not sure if I should be going any higher than this,so any input wtll be appreciated. I haven't started them yet as I am waiting on lab results,Thyroid, Liver panel, and full blood count I had labs on Monday, plus I have a stinking cold. Thank you Lolly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 Don't know about " bad " dreams, but the imagination is active while sleeping when using LDN. My dreams are quite memorable. Perhaps you were watching one of the presidential candidates on TV right before bed? They alone give me nightmares. Art -- > > I am at 3 mg and was thinking of raising to 4.5. However last night > I had a REALLY scary dream. Has anyone noticed an increase in bad > dreams with upping the dosage? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 HAAH! No actually it was an Andy Griffith rerun on TVLand. > > > > I am at 3 mg and was thinking of raising to 4.5. However last night > > I had a REALLY scary dream. Has anyone noticed an increase in bad > > dreams with upping the dosage? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 Hi Art Are you saying to start with 3.0mg or start at 1.5mg's? Lolly > > > > Hi all, > > > > I am new to this site, I have been reading up on LDN and ordered > some > > a > > couple of weeks ago from River Pharmacy in Canada. > > They arrived sooner than I expected, shipping arrival date was > > between 16th-23rd Feb they arrived on the 11th > > I live in the UK. > > I have Graves Disease with Thyroid Eye Disease. > > I had a Total Thyroidectomy last year, but since then have had a > > rollercoaster ride,at one point they thought I just wasn't > absorbing > > Levothyroxine my current dose is 200mcg's. > > > > I wanted to try LDN to see if it would help with the eye disease as > > that have flared up since my surgery. > > I've been having some help,by other graves disease suffers > regarding > > LDN. > > My question is... > > I was reading about River Pharmacy's,the Tablets I > > received (looks like mine came from India), generic name is Revia > > 50mgs X30 tabs, I opened one to see if it is, how you described > them > > on one of the posts here,tablet is light orange colour, > scored,round > > no writing on it at all, expiry date 2010. > > Came in 10 tab blister packets > > with Nordic and Naltrexone Hydrochloride,there were no inserts with > > it or leaflets explaining the medication, although I know to make > up > > my own with distilled water, I will be doing only 25mg's at a time > > have a pill cutter and keeping it refrigerated starting on 1.5mg's > > the first week, increasing to 2.5mgs's the second and going up to > > 3mg's, not sure if I should be going any higher than this,so any > > input wtll be appreciated. > > I haven't started them yet as I am waiting on lab results,Thyroid, > > Liver panel, and full blood count I had labs on Monday, plus I have > a > > stinking cold. > > > > Thank you > > > > Lolly > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 The advised conservative formula is to start at 1.5mgs, then after one month go up to 3.0mgs and one month later try 4.5mgs, which is the optimal adult dosage. I started at 3.0mgs and went to 4.5 one month later and have been there since April 2005. Art -- > > > Hi Art > Are you saying to start with 3.0mg or start at 1.5mg's? > > Lolly > Quote Link to comment Share on other sites More sharing options...
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