Re: New here and very optimistic

[Guest guest]

I live in the south and took my son to see Dr. G.  We are a family of 5 (soon to

be 6) and it was very inconvenient.  However, I feel like it was well

worth the time and $$.   

My son began the  diet 6 months prior to the visit. 

I know of someone that only is able to take her child to Dr. G every other year

and Dr. G stills serves her child.    

There are some airlines that will allow for parents and their special needs

children to fly for free.  I know of someone who received free tickets last

month.   

My insurance is paying for most of it.  However, my insurance has denied paying

for his phone consults and I have appealed.  I know a mom who appealed for the

phone consults and her insurance is paying for most now.     

From: jcjc1644 <fourcornells@...>

Subject: New here and very optimistic

Date: Saturday, June 6, 2009, 9:06 AM

Hi everyone!

My name is and I have a soon-to-be 6yo son with PDD-NOS. He was dx with

autism right after his 2nd birthday. He has made great strides and has done well

with biomed but there are some issues with him that are so confusing. A friend,

knowing the issues with my son, started talking about immune issues creating the

autism and referred me to Dr Goldbergs site. I am very excited about this

protocol and I'm tryng to read anything I can get my hands on. I read some of Dr

Goldberg's presentations last night and was astonished at how it seemed to fit

my son. Most importantly, it made sense!

***Some questions about treatment***

1) Do you have to see Dr Goldberg to implement this protocol. I saw a list in

the files section called " Good Doctors " , are these doctors who will simply do

the labwork or are they physicians who will do the testing AND implement the

protocol?

2)We live in the NE about 20 minutes from Philadelphia. Can anyone recommend a

doctor in the PA, NJ, MD area that they've had good success with?

3)Will insurance cover this treatment?

***His history***

As a baby he had chronic ear infections, URIs, and was hospitalized twice due to

asthma (the first time was at 4mts). Although he was constantly on antibiotics

he met all of of his milestones.

He started regressing developmentally at 12 months when he got his varicella

vax. It's interesting because after receiving this shot he immediately started

to to develop a URI that progressed into bronchiolitis and put him in the

hospital for a week. He was never the same after that, he maintained a runny

nose and became very hyperactive.

His gut issues and big regression started at 15mt when he got the MMR, Hib,

DTaP, and flu shot while sick with a cold. Developed chronic acidic, yellow

diarrhea, chronic, reflux along with the typicial ASD behaviors.

Recent testing has shown oxidative stress, low IgM levels, oxalate issues, yeast

issues

****Treatment History****

GFCF diet- had great gains in attention, eye contact, speech, and sensory

issues. Helped moderately with diarrhea and reflux, this needed further medical

treatment.

Currently implement GFCF/LOD with LOD

Biomed treatment to date- probiotics, digestive enzymes, antibiotic treatment

for clostridia, rx antifugals for yeast. Both were great medical interventions.

Saw great gains.

Given all the soft signs for viral issues we did valtrex. This was most exciting

intervention to date. He did amazing! Pretend play started, started playing with

other kids, there was a huge increase in energy and stamina, focus improved. It

was amazing...for 3 months and then he tanked. Regression happened with the

return of bowel issues.

***Current status****

Has been on rx antifungals for 1yr. We are rotating but he seems to be

developing resistance. Rx medication seems to only keep it at bay because if he

stops yeast returns. We've done diflucan, ketokonazole, and are currently doing

Lamisil. Each time we rotate we have a huge die off, then leaps in

developmentment, followed a few months later by decline.

****My concerns****

uncontrollable yeast

extremely sensitive system- I cannot even give him a regular multivitamin or

calcium supplement without a negative behavioral impact. DAN was not a match for

him when it came to this. He could never do the supplements, with the exception

of probiotics. He has made the most progress with pharmacuetical drugs.

Changes in level of functioning- ***these changes are profound***

These are usually brought on by illness and allergies

Chronic environmental allergies/ allergy induced asthma

Tends to get sick easily and then has hard time fighting the illness.

------------ --------- --------- --------- --------- -------

Thanks for hanging in there and reading my post. I know it was long! I just

really want to learn all I can about this so that I can can make the best

decision for my son. While DAN has been good for him, its my belief that it's

not the right fit for him.

I look forward to learning from all of you other parents out there!

[Guest guest]

Go to www.nnyautismcenter.com

See dr. bruce there. go to the website and call the office.

Good Luck,

Jin

>

> Hi everyone!

>

> My name is and I have a soon-to-be 6yo son with PDD-NOS. He was dx

with autism right after his 2nd birthday. He has made great strides and has done

well with biomed but there are some issues with him that are so confusing. A

friend, knowing the issues with my son, started talking about immune issues

creating the autism and referred me to Dr Goldbergs site. I am very excited

about this protocol and I'm tryng to read anything I can get my hands on. I

read some of Dr Goldberg's presentations last night and was astonished at how it

seemed to fit my son. Most importantly, it made sense!

>

> ***Some questions about treatment***

> 1) Do you have to see Dr Goldberg to implement this protocol. I saw a list in

the files section called " Good Doctors " , are these doctors who will simply do

the labwork or are they physicians who will do the testing AND implement the

protocol?

>

> 2)We live in the NE about 20 minutes from Philadelphia. Can anyone recommend

a doctor in the PA, NJ, MD area that they've had good success with?

>

> 3)Will insurance cover this treatment?

>

>

> ***His history***

> As a baby he had chronic ear infections, URIs, and was hospitalized twice due

to asthma (the first time was at 4mts). Although he was constantly on

antibiotics he met all of of his milestones.

>

> He started regressing developmentally at 12 months when he got his varicella

vax. It's interesting because after receiving this shot he immediately started

to to develop a URI that progressed into bronchiolitis and put him in the

hospital for a week. He was never the same after that, he maintained a runny

nose and became very hyperactive.

>

> His gut issues and big regression started at 15mt when he got the MMR, Hib,

DTaP, and flu shot while sick with a cold. Developed chronic acidic, yellow

diarrhea, chronic, reflux along with the typicial ASD behaviors.

>

> Recent testing has shown oxidative stress, low IgM levels, oxalate issues,

yeast issues

>

> ****Treatment History****

> GFCF diet- had great gains in attention, eye contact, speech, and sensory

issues. Helped moderately with diarrhea and reflux, this needed further medical

treatment.

>

> Currently implement GFCF/LOD with LOD

>

> Biomed treatment to date- probiotics, digestive enzymes, antibiotic treatment

for clostridia, rx antifugals for yeast. Both were great medical interventions.

Saw great gains.

>

> Given all the soft signs for viral issues we did valtrex. This was most

exciting intervention to date. He did amazing! Pretend play started, started

playing with other kids, there was a huge increase in energy and stamina, focus

improved. It was amazing...for 3 months and then he tanked. Regression

happened with the return of bowel issues.

>

> ***Current status****

> Has been on rx antifungals for 1yr. We are rotating but he seems to be

developing resistance. Rx medication seems to only keep it at bay because if he

stops yeast returns. We've done diflucan, ketokonazole, and are currently doing

Lamisil. Each time we rotate we have a huge die off, then leaps in

developmentment, followed a few months later by decline.

>

> ****My concerns****

> uncontrollable yeast

>

> extremely sensitive system- I cannot even give him a regular multivitamin or

calcium supplement without a negative behavioral impact. DAN was not a match for

him when it came to this. He could never do the supplements, with the exception

of probiotics. He has made the most progress with pharmacuetical drugs.

>

> Changes in level of functioning- ***these changes are profound***

> These are usually brought on by illness and allergies

>

> Chronic environmental allergies/ allergy induced asthma

>

> Tends to get sick easily and then has hard time fighting the illness.

>

> -------------------------------------------------------

> Thanks for hanging in there and reading my post. I know it was long! I just

really want to learn all I can about this so that I can can make the best

decision for my son. While DAN has been good for him, its my belief that it's

not the right fit for him.

>

> I look forward to learning from all of you other parents out there!

>

>

>