Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 From hdsa.org: " Huntington's Disease: a devastating, hereditary, degenerative brain disorder for which there is, at present, no cure and only one FDA-approved treatment (Xenazine) for a symptom of HD.. HD slowly diminishes the affected individual's ability to walk, talk and reason. Eventually, the person with HD becomes totally dependent upon others for his or her care. Huntington's Disease profoundly affects the lives of entire families -- emotionally, socially and economically. Named for Dr. Huntington, who first described this hereditary disorder in 1872, HD is now recognized as one of the more common genetic disorders. More than a quarter of a million Americans have HD or are " at risk " of inheriting the disease from an affected parent. HD affects as many people as Hemophilia, Cystic Fibrosis or muscular dystrophy. " One of my best friends has this--that's why I know about it. The folksinger Woodie Guthrie also had it. It is not the same as ALS or Lou Gehrig's, which is also terrible. Khaya > > > > > > Hi Barbara, > > > > > > >>>>>>when you mentioned that gal who was in the e.r. and sent to the psych > > > ward i got sick to my stomach. it brought back memories of last april when > > > they classified me as a psych patient with the benzo drug. in my delirium > > > i guess i was talking a lot about my health history, some of which was lyme > > > and the rife machine that they documented i treated my liver with. i'm > > > sure i meant lyme, not liver, but who knows. so, if she went to the psych > > > ward for lyme, and i talked about lyme and rife, they must have thought i > > > was nuts also. the e.r. dr. told my husband he didn't know what was wrong > > > with me and walked off. hmmm. <<<<<< > > > > > > Sadly, this is the first time I have heard of a Lymie being admitted to the > > > psych ward all because they claimed to live with chronic Lyme. I am sorry > > > to hear of your classification also... Makes me wonder why they prescribe > > > these drugs to begin with.. ... I learned that ERs know little to nothing about > > > Lyme. > > > > > > -- > > > Take care, > > > Jim > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 Who knows may be this freind would benefit from MMS or Silver the way we do ? who knows what is behing this genetically desease may be a nasty bugg trigger it ? If it were me I would try it wouldnot hurt me to decrease my load of viruses bacterias and fungus taking MMS hourly by day and a bottle of silver at night .. KIndly Marie To: Lyme_and_Rife Sent: Thursday, April 26, 2012 9:31 PMSubject: Re: OT: Huntington's Disease (was: Psych Ward) From hdsa.org:"Huntington's Disease: a devastating, hereditary, degenerative brain disorder for which there is, at present, no cure and only one FDA-approved treatment (Xenazine) for a symptom of HD.. HD slowly diminishes the affected individual's ability to walk, talk and reason. Eventually, the person with HD becomes totally dependent upon others for his or her care. Huntington's Disease profoundly affects the lives of entire families -- emotionally, socially and economically.Named for Dr. Huntington, who first described this hereditary disorder in 1872, HD is now recognized as one of the more common genetic disorders. More than a quarter of a million Americans have HD or are "at risk" of inheriting the disease from an affected parent. HD affects as many people as Hemophilia, Cystic Fibrosis or muscular dystrophy."One of my best friends has this--that's why I know about it. The folksinger Woodie Guthrie also had it. It is not the same as ALS or Lou Gehrig's, which is also terrible.Khaya > > >> > > Hi Barbara,> > > > > > >>>>>>when you mentioned that gal who was in the e.r. and sent to the psych> > > ward i got sick to my stomach. it brought back memories of last april when> > > they classified me as a psych patient with the benzo drug. in my delirium> > > i guess i was talking a lot about my health history, some of which was lyme> > > and the rife machine that they documented i treated my liver with. i'm> > > sure i meant lyme, not liver, but who knows. so, if she went to the psych> > > ward for lyme, and i talked about lyme and rife, they must have thought i> > > was nuts also. the e.r. dr. told my husband he didn't know what was wrong> > > with me and walked off. hmmm. <<<<<<> > > > > > Sadly, this is the first time I have heard of a Lymie being admitted to the> > > psych ward all because they claimed to live with chronic Lyme. I am sorry> > > to hear of your classification also... Makes me wonder why they prescribe> > > these drugs to begin with.. ... I learned that ERs know little to nothing about> > > Lyme.> > > > > > -- > > > Take care,> > > Jim> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 Thanks Marie, She did visit Dr. B, who's a very well-known holistic doctor. He treated her for a UTI and prescribed B-12 injections, but over a couple of months they haven't seemed to help her. I think at this point she's too depressed to be motivated--it's all up to her husband. But it's worth mentioning to him. I know he's heard of CS ... Khaya > > > > What is this desease about ? > > Since I have been battling the odd I question laway the so called uncurable bdesease what ever geneticall it is supposed to be or not > > ALS i supposed to be genetical bu tit is infectious we know tha there > > KIndly Marie > > > > ________________________________ > > From: khaya.davidson <khaya-davidson@> > > To: Lyme_and_Rife > > Sent: Thursday, April 26, 2012 7:41 AM > > Subject: Re: OT: Psych Ward (was: How Lymies see themselves) > > > > And this is not unique to Lymies, either! I have a friend with Huntington's Disease. Her mother and sister both died in institutions! She was able to improve her symptoms for many years with a vegan diet, and is lucky enough to have a devoted husband, but she finally had to stop driving and does very little now. There is still no known cure for Huntington's Disease, but they do have a reliable test, since it is genetic. And they have a very well-organized Association which lobbies for medical support and research, and holds workshops for caregivers, etc. But a diagnosis of Huntingtons is pretty much hopeless. > > Khaya > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 Sorry for the stupid asking did she tryed several colonics in a raw every day for 4 days to see what happen if detox could help somewhat ? Kindly Marie To: Lyme_and_Rife Sent: Thursday, April 26, 2012 10:20 PMSubject: Re: OT: Huntington's Disease (was: Psych Ward) Thanks Marie,She did visit Dr. B, who's a very well-known holistic doctor. He treated her for a UTI and prescribed B-12 injections, but over a couple of months they haven't seemed to help her. I think at this point she's too depressed to be motivated--it's all up to her husband. But it's worth mentioning to him. I know he's heard of CS ...Khaya > >> > What is this desease about ?> > Since I have been battling the odd I question laway the so called uncurable bdesease what ever geneticall it is supposed to be or not > > ALS i supposed to be genetical bu tit is infectious we know tha there > > KIndly Marie> > > > ________________________________> > From: khaya.davidson <khaya-davidson@>> > To: Lyme_and_Rife > > Sent: Thursday, April 26, 2012 7:41 AM> > Subject: Re: OT: Psych Ward (was: How Lymies see themselves)> > > > And this is not unique to Lymies, either! I have a friend with Huntington's Disease. Her mother and sister both died in institutions! She was able to improve her symptoms for many years with a vegan diet, and is lucky enough to have a devoted husband, but she finally had to stop driving and does very little now. There is still no known cure for Huntington's Disease, but they do have a reliable test, since it is genetic. And they have a very well-organized Association which lobbies for medical support and research, and holds workshops for caregivers, etc. But a diagnosis of Huntingtons is pretty much hopeless.> > Khaya> > Quote Link to comment Share on other sites More sharing options...
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