Schooling

[Guest guest]

Try hitting the websites of the area Universities. Most sites will

post the entrance requirements (pre-reqs) for the various degree

programs . I don't know what the tuition rates are in your state, but

here in Washington--the PharmD is a 5 year program and I've been told

the university charges graduate tuition from the moment you are

accepted into the program. You can save a chunk of change by

completing your first two years at a community college!

Good Luck,

Dora

> To Become a Pharmacist, what are the requirements, as far as where

> and what school to go to or what classes to get? What classes would

I

> be getting at a Community College. Thank you

[Guest guest]

I have twin 6 year old daughters. One of them, , has severe

apraxia. They both finished regular kindegarten. did above

grade level work in math, and she is where she needs to be for

reading and writing.

did great in the regular kindegarten. She has a very good

attention span, and her receptive language skills are very good.

She follow instructions very well, and doesn't need a lot of help

with doing art work, math, etc.

She was pulled out for OT, ST, and reading. She liked being with

the regular kids. The kindegarten used a phonics program called Zoo

Phonics. It is great. All of the sounds have an animal associated

with them. They also have hand motions with each sound. If

couldn't say a sound, she would do the hand motion.

Her class also had a lot of music. I thought 's biggest

accomplishment was when she was in the kindegarten play. She was a

sign holder and said in front of the whole school and then

parents " Meanwhile still much further down the road " and " Our play

has reached the end " . It was a lot for her to say, and she

practiced it for a month. I thought she might get scared in front

of everyone, but she said her lines!

She's made lots of friends, and her teachers thought she did great.

She's going to be in a regular first grade class with pull outs for

next year.

If your child has good receptive language skills, and can follow

instructions then I would put them in a regular kindegarten class.

If they need lots of help to accomplish things, then I wouldn't put

them in a regular kindegarten.

I hope this helps.

Suzi

> Hi, My name is Lynn and my daughter has apraxia and was

diagnosed by the age of 3. She has been going to the special school

in the Early childhood classes and is getting speech everyday and OT

on time a week. This fall she is old enough for kindergarten and she

will be going to the " regular school in the morning and the special

school in the afternoon, where she will get her ST and OT.

> My question is am I doing the right thing in putting her

in " regular school " ? I am more frightned then she is. She started a

program we have here is called Jump start to Kindergarten, its at

the " regualar school " . She had the first session and the teacher

said she had no problem understanding her and she did fine. On

Monday she starts the second session which is a repeat of the first,

but she will also be getting summer speech. Kaylin picked up new

words by being in this summer school. More words than she has ever

had in such a short time, I am sure it is because she is around more

children that talk. She went from a class of 8 to a class of 22.

> Kaylin also liked to go.

> Do any of your children go to the regular school? I know alot of

you probaly don't have access to a special needs school. I am torn

and don't know what to do.

> Also my next nightmare and keeping me awake at night is how is

she going to learn to read??

> Sorry I got so windy,

> Please let me know what you think.

> Lynn

>

>

>

[Guest guest]

Hi Lynn!

How old is your daughter now? You may have another option you have

not thought of yet -waiting one more year to start and having her

preschool program paid for by your school district for one more

year -it's what we did -and in the long run we are saving them money

because Tanner, in spite of the fact his speech is still not

perfect, is now mainstreamed and doing great. There is much on this

in the archives -as well as your question about learning to read

(Tanner who is apraxic was one of the top students in his

kindergarten class -and loves reading simple books like Dr. Seuss

etc. -and with the Cat In the Hat movie coming out now!!)

In general -I feel strongly about putting your child into the least restrictive

environment -even if a " special " Kindergarten is available. As I said to

Tanner's IEP team -we are talking about kindergarten here -not a rocket science

class -if a child isn't given a chance to make it in a mainstream Kindergarten

-than what grade do you propose is best to start them in the mainstream?!

Speech ability is no indication of intelligence -schools for the deaf are aware

of this. I so love and miss Kanter who was the Executive Director of,

and the life behind -the Summit Speech School - who passed away the other day of

cancer.

I don't know how I'll ever be able to think of the Summit Speech School without

thinking of , in awe of her -and can not imagine that school without that

amazing lady running it. No wonder members here are having trouble getting

their hearing apraxic children into that school today - apparently wasn't

there to help bring our children a voice anymore -she was too sick. Please

quote her to whoever tells you that your child isn't able to attend this school

if they are not deaf -her message should carry on even though she is no longer

with us. " Our hope and our goal is to mainstream these children into their

local kindergartens " Kanter -Executive Director Summit Speech School.

" children with apraxia appear to benefit from the same therapies as their

hearing impaired peers " http://www.cherab.org/news/insideedition.html

I'll post

more about reading later -here is a post about kindergarten (and get

some sleep -it'll be OK!)

From: " kiddietalk " <kiddietalk@...>

Date: Sun Apr 6, 2003 11:11 pm

Subject: Re: kindergarten

Hi Jeanne!

Kindergarten at 5 or 6 for a child with a speech impairment?...It's

a tough question which will bring various answers -and no research

yet to know which is " right " Until there is - really only you (the

parents) together with your child's (private) SLP, MD and preschool

teachers guidance and advice have the answer. In cases like this as

cliché as it sounds - " follow your heart " (or your gut) In other

words -if I say " wait a year " does that make you feel better

inside? Or if I say " start him at five " does that? Based on your

email I'm suspecting you would rather wait.

I do believe all of us with children are given that gift of deep

down knowing what is best -follow that! Oh and about The Late

Talker book -awhile back I asked for a list for those that run local

support groups/nonprofits for speech to have an advance copy sent to

them -and

you were one of the people that replied. We have to

thank St 's Press for sending you (and others) an advance copy

of the book to help raise awareness about it!

Back to your question, I'm sure others will give their opinions too -

there are many in the archives if you check as well. Here is just

one of my recent reposts on this I hope helps! -

From: " kiddietalk <kiddietalk@...> " <kiddietalk@...>

Date: Mon Jan 6, 2003 11:54 pm

Subject: Re: To send to Kdg or not?

Hi Heidi!

There is no set rule of whether it's best to start your child at

five or six for Kindergarten. There is an important point about this

that many

others didn't point out yet.

Check with other parents in your town if this is your first child to

find out what age most other parents in your town start their

children in Kindergarten. I started my son Dakota at five years old

for Kindergarten in the Warren/Berkeley Heights/Basking Ridge area

of NJ

where we used to live -and he was one of the two five year olds in

the class. Most parents in our upper middle class town didn't start

their children until six for competitive sports and academics

reasons -so starting my " suspected ADHD late talker " five year old

Dakota in Kindergarten we saw as a mistake -and one we could never

fix.

Dakota was too bright to be left back once he started -socially he

was not as mature as his classmates however -but he became friends

with his class mates regardless -so repeating is something Dakota

didn't want.

What I didn't at all like was that each day

the teachers had to keep yelling over and over " Dakota... " fill in

the blank

- " do

this or do that or sit down or be quiet or pay attention " etc.

So not starting Tanner in Kindergarten at five was not even a

thought when we lived in NJ. Why put a double whammy on the kid and

start him at five when most of his classmates will be six -and in

some cases -already reading and writing!! Funny story is that

Tanner's case manager at Tanner's five year old IEP meeting said " In

our town we like to start five year olds in Kindergarten " I

actually laughed when she said that (couldn't help it) and said " Our

town? I live in this town and was a Kindergarten classroom mom for

Dakota who I started at five year olds and he and Molly ___ were

just about the only two five year olds in the entire Kindergarten

class -so suggesting to start special needs speech impaired apraxic

children at five when all the quote unquote normal kids don't start

till six is not the best idea to say the least! "

Needless to say -our town paid for Tanner to continue in his " out of

district " placement at the Summit Speech School in New Providence NJ

till six. We withheld testing which I was advised we could do -

since he would have " tested out of the program " So in fact your

town could pay for in district or out of district preschool

placement from five to six years old if you and the child study team

agree that will be best to wait till six. Keep in mind that apraxic

children take a bit longer at times to do what comes naturally to

other children -and in time they can perhaps blend in with others

with no damage to self esteem from teasing etc. I heard that in NJ

a child doesn't legally have to begin Kindergarten till seven -not

sure but anyone could check that out for their state/area. So don't

rule out

paid

preschool after five years old as an option...if that is what is

appropriate for your child.

Here in Florida things are different -so I'm not sure what I would

have done here. Most parents appear to start their children at

five. Tanner is now one of the older children in his class being a

six year old -in addition he loves school and is one of the top

children in the class. Would that have been the case if I started

him at five? Who knows. Quite a few of the children that I heard in

Tanner's

(mainstream) class now have some

type of speech challenge -Tanner's speech challenges are not at all

a problem in comparison. His speech is much better this year than

last -and he has no teasing or self esteem issues either which we

could have had if I started him at five perhaps. Who is to say

since that isn't what happened.

I'm now happy I started Dakota at five -and happy I started Tanner

at six in Kindergarten.

Check your options and don't jump based on what any one person

recommends. Each of our children are individuals -so even what we

do for one of our children may or may not work for the next. A

child with a mild to moderate impairment may thrive at an earlier

age -and perhaps those with more severe impairments may do better if

given a bit more time to bloom. That could be a rule of thumb and

then go from there. One other thing -social learning is way too

downplayed in our society. Academics is very important and you have

your whole life to learn as much as possible -and never stop

learning. But who is to say which learning is more important for

development? You only are a child once -and play is how we learn

how to get along with others in life, and find joy. There has been

research posted on this here more than once how children taught

heavy academics

later do better down the road.

PS -Dakota also had torticollis but since most don't know what that

is I just say " torn neck muscles " It's been resolved now for years

since he was in therapy for that and other stuff since birth -how is

doing with therapy for the torticollis?

=====

[Guest guest]

Hi Lynn

I was able to receive Early Intervention Services via classroom learning only

2days a week. I sent my son to a " regular " preschool the other two mornings. I

think it was a blessing for him to be in BOTH environments. He learned from

BOTH situations. And I think being in a " regular " preschool gave him a jump

start. He gained confidence in playing and working with other children, which ,

of course all of our children will be required to do at some point. This fall,

he will be in the Early Intervention class ONLY, and I'm honestly afraid he will

fall back socially.

~Karyn

[ ] schooling

Hi, My name is Lynn and my daughter has apraxia and was diagnosed by the

age of 3. She has been going to the special school in the Early childhood

classes and is getting speech everyday and OT on time a week. This fall she is

old enough for kindergarten and she will be going to the " regular school in the

morning and the special school in the afternoon, where she will get her ST and

OT.

My question is am I doing the right thing in putting her in " regular school " ?

I am more frightned then she is. She started a program we have here is called

Jump start to Kindergarten, its at the " regualar school " . She had the first

session and the teacher said she had no problem understanding her and she did

fine. On Monday she starts the second session which is a repeat of the first,

but she will also be getting summer speech. Kaylin picked up new words by being

in this summer school. More words than she has ever had in such a short time, I

am sure it is because she is around more children that talk. She went from a

class of 8 to a class of 22.

Kaylin also liked to go.

Do any of your children go to the regular school? I know alot of you probaly

don't have access to a special needs school. I am torn and don't know what to

do.

Also my next nightmare and keeping me awake at night is how is she going to

learn to read??

Sorry I got so windy,

Please let me know what you think.

Lynn

[Guest guest]

Lucky you! School districts are not required to pay for services if you choose

to wait to send your child to school. Early intervention is only required to

provide a minimum (not sure of the term they use for this) but it equals out to

about 8 hours of speech per year...or roughly one hour a month. Here in Oregon

where we struggle to keep schools open, parents are often stuck paying for

services themselves if they choose to wait another year for Kindergarten.

[ ] Re: schooling

Hi Lynn!

How old is your daughter now? You may have another option you have

not thought of yet -waiting one more year to start and having her

preschool program paid for by your school district for one more

year -it's what we did -and in the long run we are saving them money

because Tanner, in spite of the fact his speech is still not

perfect, is now mainstreamed and doing great. There is much on this

in the archives -as well as your question about learning to read

(Tanner who is apraxic was one of the top students in his

kindergarten class -and loves reading simple books like Dr. Seuss

etc. -and with the Cat In the Hat movie coming out now!!)...

[Guest guest]

Lynn, My daughter Meghan ( now 13) was in an integrated preschool and

kindergarten (5 out of 19 were special needs kids) In first through 5th

grade she was in a typical classroom with an inclusion specialist( a teacher

just for her that worked one on one with her within the typical classroom.)

That worked fine till the 5th grade where the work load was getting tough

for her with her language disablity. She has learned to read and spells

great. In fact sometimes when we do not understand the word she is trying

to say she SPELLS it. : ) For 6th grade she did attend a separate

classroom with 9 other special needs kids. I feel she is probably the

highest functioning child in the classroom and while socially it is not the

most ideal situation, academically it was the right decision. The teacher

is wonderful( a speech therapist) and she does get individual speech therapy

3X a week besides the constant work in the classroom. Hope this info helps.

Sincerely, Joyce Cerulo

[ ] schooling

> Hi, My name is Lynn and my daughter has apraxia and was diagnosed by

the age of 3. She has been going to the special school in the Early

childhood classes and is getting speech everyday and OT on time a week. This

fall she is old enough for kindergarten and she will be going to the

" regular school in the morning and the special school in the afternoon,

where she will get her ST and OT.

> My question is am I doing the right thing in putting her in " regular

school " ? I am more frightned then she is. She started a program we have here

is called Jump start to Kindergarten, its at the " regualar school " . She had

the first session and the teacher said she had no problem understanding her

and she did fine. On Monday she starts the second session which is a repeat

of the first, but she will also be getting summer speech. Kaylin picked up

new words by being in this summer school. More words than she has ever had

in such a short time, I am sure it is because she is around more children

that talk. She went from a class of 8 to a class of 22.

> Kaylin also liked to go.

> Do any of your children go to the regular school? I know alot of you

probaly don't have access to a special needs school. I am torn and don't

know what to do.

> Also my next nightmare and keeping me awake at night is how is she going

to learn to read??

> Sorry I got so windy,

> Please let me know what you think.

> Lynn

>

>

>

[Guest guest]

Hi Tammy,

The key thing is not deciding this yourself -or like anything you

want for your child in regards to education and legal matters -then

you are correct -it will not be paid for. It needs to be agreed

upon, like anything you advocate for -by the child's entire IEP

team, including you and your spouse. In my son Tanner's case we

advocated -The Summit Speech School assisted us in agreeing that the

most appropriate placement for Tanner was to remain in the Summit

Speech School until the age of six.

Tanner wasn't the only child I know who is apraxic and didn't start

kindergarten until six and who had the early intervention continue

to be paid for by the district, I know quite a few. In the town I

used to live in -most didn't start their " normal " children in

kindergarten until six for academic and athletic reasons -so

starting Tanner at five would have been cruel -there was no argument.

So luck is always nice to have on your side -but had nothing to do

with why the school paid to let Tanner stay in preschool for another

year. Remaining in the out of district preschool he was in until 6

years old (Summit Speech School in New Providence, NJ) was agreed by

the IEP team (including Tanner's parents) the most appropriate

placement for Tanner, and the Summit Speech School went up to six -

and in fact most of the children stayed there until six (of course

most of them being hearing impaired -but still) We were also

advised by the IEP team that we could waive any testing, because

Tanner may test out of the program -so we waived the testing.

I don't have time to go through all my notes on the law on this -but

in a quick search online -here is one link I found.

" The Department intends to facilitate the smooth transition of

preschool children from early intervention programs to district

programs, while respecting parental choices. This will require MAWA

agencies and school districts to be cooperative and flexible in

order to accommodate implementation of this procedure. This BEC

explains that MAWA agencies are annually responsible for

identifying, by February 1, all children who are approaching the age

for kindergarten or first grade in their districts of residence;

notifying families of children approaching kindergarten age that

their children may remain in early intervention for another year;...

By February 1 of each year, MAWA agencies must identify the children

in their programs who are approaching the age for kindergarten or

first grade in their districts of residence, and must send their

parents a letter explaining the transition process. The letter must

state that a transition meeting will be held by the end of February;

it must explain the parents' options, including, at the parents'

election, the option not to register a child of kindergarten age in

the school district, in which case the MAWA agency is responsible

for providing early intervention services to the child; and it must

state that the school district will attend the transition meeting

unless the parents agree otherwise. The letter must also inform

parents that their children cease to be eligible for early

intervention services when they reach the age for first grade,

regardless of whether the parents actually enroll their children in

the district.

http://www.thearcpa.org/documents/becearlytransition.pdf

The age may vary state to state -I believe in NJ we were not required to begin

Tanner until seven (?) if we chose.

There are many other links out there too. I'll be presenting at the

upcoming Learning Disability Conference Jeannie Buesser just posted -

I'll make sure we cover this there.

=====

[Guest guest]

Interesting I had a similiar decision to make 3 months ago. My son

who just turned 5 was in the Early Childhood pre-school the

last 2 years with great progress. His teacher and SLP indicated that

as a cushion a regular ed session plus a special ed session would be

a great idea for him for kindergarten. I was fine with this since

they also indicated that it would be with children who had similiar

issues. Well the day of the IEP meeting, surprise I am told by the

case manager and learning consultant that No " it is a multi-

handicapped " class with children of varying issues. Again they still

pushed the whole idea for him. They also seem to think that socially

he is not outspoken.

Needless to say I left the meeting very upset b/c 1 I felt like I was

lied to and 2 now I questioned what was most appropriate for him.

Fast forward, we advocated for the regular kindergarten with an

instructional assistant in the class to help the kids who are

classified. The goal being she won't need to intervene very much. He

is also receiving resource room and either speech or OT every day

AFTER school. This also resolved my problem of too many pullouts in

the class. We are also sending him 2X a week to an enrichment program

at a private school.

Sadly the school was very willing to change their minds when we

showed up at an IEP meeting with an advocate (thanks Joya!) Why it

takes an advocate that doesn't even have to open his mouth to work

with the parents is beyond me. I now know that this is a great

program for my son. By putting him in a self-contained class where he

was probably one of the highest functioning, was not going to help

him.

So in answer to your question, by all means send her to regular

kindergarten. It sounds like she is doing great with the program she

is in now. I agree with if we don't try and mainstream them in

kindergarten then it only makes it harder in the later grades.

Good luck.

denise

Mom to 5 with verbal apraxia

> Kaylin also liked to go.

> Do any of your children go to the regular school? I know alot of

you probaly don't have access to a special needs school. I am torn

and don't know what to do.

> Also my next nightmare and keeping me awake at night is how is she

going to learn to read??

> Sorry I got so windy,

> Please let me know what you think.

> Lynn

>

>

>

[Guest guest]

By any chance, do you live in New Jersey? If so, I would love to hear who

your advocate was that attended your IEP meeting. I have called several

advocate services and free and low cost legal services and no one ever calls me

back.

I did contact a special ed attorney but I can't afford their very high fees.

My school district is giving me the worst time and now with everyhing going

on in Trenton with the school budget, there is no funding for any summer

services.

Thanks,

[Guest guest]

Hi!

I put together a file a mile high with information regarding Nino's

disease...meet with the Administartion and teachers, as well as our Dioceses

before school begins. They have waived the " fever policy " for our son, with the

understanding if there is any indication an " infection " is going on and not a

" flare " we will keep him home. In Nino's case, a flare is cleary different than

an infection. Hope this helps.

Lori

summerday148 <summerday148@...> wrote:

We started having problems with this last October and every time

Sami's

fever hit 100 she was sent home from school until she was completely

fever free. She usually does ok during the school day if she is on

tylenol. I was going to talk to the school about giving her tylenol

and letting her stay at school if she feels up to it. I have a feeling

I have a fight on my hands about this.

What does everyone else do? Has anyone else had luck with this? I

just hate for her to miss so much school.

Thanks,

Trish

---------------------------------

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

[Guest guest]

My pediatrician wrote a letter that is place in my daughters file stating she is

not contagious and should be allowed to remain in school as long as she feels up

to it. Our daughter attends a small catholic school and they are somewhat more

flexible than public school which has been a blessing for us. Your daughter may

need to have a Medical IEP written to get the school to comply. Thanks Christy

mom to 6y/o

>>> summerday148@... 7/17/2006 1:14 PM >>>

We started having problems with this last October and every time Sami's

fever hit 100 she was sent home from school until she was completely

fever free. She usually does ok during the school day if she is on

tylenol. I was going to talk to the school about giving her tylenol

and letting her stay at school if she feels up to it. I have a feeling

I have a fight on my hands about this.

What does everyone else do? Has anyone else had luck with this? I

just hate for her to miss so much school.

Thanks,

Trish

[Guest guest]

A simple letter from your doctor indicating that the child has a Periodic

Fever Disorder and is NOT contagious nor does the child have an infection

should do.

Fran A Bulone

Mom to ph 7 yrs old

Waxhaw, NC

Owner & Moderator Group

<>

[Guest guest]

Our Doctor filled out a form (given from the school) stating our child has

" Fever of Unknown Origin " since is not diagnosed and that he can take

advil/tylenol during school, then we had to fill out forms from the district

nurse that our school nurse could administer it to him after calling me first.

I would often go down myself to make sure his other symptoms (headaches

especially) were ok. Our school nurse is so awesome, she is very sensitive to

me and my son and very caring. I hope your's is too, that makes a big

difference in care verses policy.

CG, Josh 7

Schooling

We started having problems with this last October and every time Sami's

fever hit 100 she was sent home from school until she was completely

fever free. She usually does ok during the school day if she is on

tylenol. I was going to talk to the school about giving her tylenol

and letting her stay at school if she feels up to it. I have a feeling

I have a fight on my hands about this.

What does everyone else do? Has anyone else had luck with this? I

just hate for her to miss so much school.

Thanks,

Trish

[Guest guest]

Our school nurse is a stickler! I argued with her for three months when we

moved here because my older daughter got an immunization 4 days before her 4th

birthday and they required her to be 4. I ended up having to get the

immunization again for her or they were not going to allow her into school. So

after the history I have with her, I'm not looking forward to this battle. I

think I will get started as soon as we get back from Children's next week.

Thanks, it helps knowing that other schools are flexible

& <bgatesjr@...> wrote:

Our Doctor filled out a form (given from the school) stating our child

has " Fever of Unknown Origin " since is not diagnosed and that he can take

advil/tylenol during school, then we had to fill out forms from the district

nurse that our school nurse could administer it to him after calling me first. I

would often go down myself to make sure his other symptoms (headaches

especially) were ok. Our school nurse is so awesome, she is very sensitive to me

and my son and very caring. I hope your's is too, that makes a big difference in

care verses policy.

CG, Josh 7

Schooling

We started having problems with this last October and every time Sami's

fever hit 100 she was sent home from school until she was completely

fever free. She usually does ok during the school day if she is on

tylenol. I was going to talk to the school about giving her tylenol

and letting her stay at school if she feels up to it. I have a feeling

I have a fight on my hands about this.

What does everyone else do? Has anyone else had luck with this? I

just hate for her to miss so much school.

Thanks,

Trish

[Guest guest]

Yes.. there are forms for the medication in public school. However as far as

nurses. this will depend on your school district.

We live outside of Charlotte NC and we have one nurse shared by multiple

schools. therefore depending on the medication, either a school employee in

the front office will administer the approved amount or a parent or

caregiver needs to go into the school.

We were blessed with a wonderful first grade teacher this year who actually

checked ph's temp and gave him a dose of Motrin if needed and would

alternate with Tylenol in 3 hrs.

ph's paperwork was labeled as Periodic Fever Syndrome since we were

never sure of although initial genetic studies were negative. Now that

a mutation was isolated we could change it but there really is no reason too

since the treatment right now remains the same.

You will need to educate the nurses and teachers and principal.. If they

have not dealt with a child with one of the PFSs!!

Fran A Bulone

Mom to ph 7 yrs old

Waxhaw, NC

Owner & Moderator Group

<>

[Guest guest]

In a message dated 7/17/2006 2:21:06 P.M. Eastern Standard Time,

summerday148@... writes:

We started having problems with this last October and every time Sami's

fever hit 100 she was sent home from school until she was completely

fever free. She usually does ok during the school day if she is on

tylenol. I was going to talk to the school about giving her tylenol

and letting her stay at school if she feels up to it. I have a feeling

I have a fight on my hands about this.

What does everyone else do? Has anyone else had luck with this? I

just hate for her to miss so much school.

We just started fevering this year so it was all new to me. Nicky would be

sent home with 100 temps-and I would oblige and pick him up and keep him home

the next day--more for his comfort than anything. The last few fevers he had I

was more aware of his condition and confident he wasn't contagious so I

started sending him to school medicated.

This year-in fact soon- I plan on meeting with the principal to discuss the

situation. I will also be getting a letter from our rheumatologist

explaining the situation as well as getting a medication form so he can be given

Tylenol/Motrin during the school day.

If he wakes up with a fever this will all work. If he starts fevering during

the school day I will take him home for that day and send him back to school

the following day once we establish a medication routine.

[Guest guest]

My son school was very cooperative with us. They understood what to look for

when an episode was due. As long as he was ok and not exhausted or in pain they

allowed him to go to school. We used the steriod treatment to help reduce

duration of fevers. I just had a second child diagnosed. She is two. Has any one

else had siblings diagnosed with ?

chelsmommy@... wrote:

In a message dated 7/17/2006 2:21:06 P.M. Eastern Standard Time,

summerday148@... writes:

We started having problems with this last October and every time Sami's

fever hit 100 she was sent home from school until she was completely

fever free. She usually does ok during the school day if she is on

tylenol. I was going to talk to the school about giving her tylenol

and letting her stay at school if she feels up to it. I have a feeling

I have a fight on my hands about this.

What does everyone else do? Has anyone else had luck with this? I

just hate for her to miss so much school.

We just started fevering this year so it was all new to me. Nicky would be

sent home with 100 temps-and I would oblige and pick him up and keep him home

the next day--more for his comfort than anything. The last few fevers he had I

was more aware of his condition and confident he wasn't contagious so I

started sending him to school medicated.

This year-in fact soon- I plan on meeting with the principal to discuss the

situation. I will also be getting a letter from our rheumatologist

explaining the situation as well as getting a medication form so he can be given

Tylenol/Motrin during the school day.

If he wakes up with a fever this will all work. If he starts fevering during

the school day I will take him home for that day and send him back to school

the following day once we establish a medication routine.

[Guest guest]

This was recently re-discussed... if you search back in the archives

you will read a large amount of posts.

You need to get a letter from treating physician that she is NOT

contagious and able to remain in school. You will need to complete a

form (federal law) to administer Motrin and Tylenol. It includes

dose etc. Also in the letter indicate the height of fever to call

you. Most parents want to be called above 102.

The doctors letter should be enough. You should meet with the school

nurse, and bring information regarding Periodic Fever disorders.

If you have time go to the file section and browse. We even have

templates regarding school issues.

Depending on how high your child fevers and if she develops febrile

seizures you may need to do more medical plans such as a 504 plan.

God Bless

Fran

Fran Bulone RN

Mom to ph 7yr

Waxhaw NC

/

[Guest guest]

In a message dated 7/22/2006 9:04:18 P.M. Eastern Standard Time,

fbulone@... writes:

You need to get a letter from treating physician that she is NOT

contagious and able to remain in school. You will need to complete a

form (federal law) to administer Motrin and Tylenol. It includes

dose etc. Also in the letter indicate the height of fever to call

you. Most parents want to be called above 102.

Fran,

Thank you for you info. I did mention in my post that I will be getting the

Dr's letter as well as the medication form for the school. I am going to

search the archives as well and make myself very familiar with everything I

need

to do to ensure our school year runs smoothly.

I found that when Nicky fevered every 16-18 days his fevers actually were up

to 103 and lasted around 36 hours . when he fevers further apart ( 23 days

or so) his fevers are closer to 100-101 and seem to last 24 hours.

If his fever starts at school will l probably just pick him up no matter

how high or low. He feels miserable in the beginning and It usually takes a

good hour or more for the Tylenol to kick in. I figure he would be much more

comfortable at home during that time. Fortunately the last couple of fevers he

had ( from about May until now) started upon awakening so I have a chance to

control them. One or twice he started at 3pm and the rest start around

10-1030 AM.

Its amazing how predictable they can be with regards to the time of day!

age 9, age 7 ( ), age5

[Guest guest]

In a message dated 7/22/2006 9:02:48 P.M. Eastern Standard Time,

micheleskeller@... writes:

just had a second child diagnosed. She is two. Has any one else had siblings

diagnosed with ?

Fortunately is our only one, but I do worry about his sister. He

was such a healthy kid. His brother had every childhood illness that was going

around school --and Nicky never caught anything- from his brother or from his

class mates. So far, my daughter is just like Nicky. She catches a cold

once or twice a year and that is it. She has never had strep, no stomach

illnesses , no 5ths disease, coxsacckie --nothing. She is so much like Nicky

is,

that I worry she will start fevering too.

age 9, age 7 ( ) , age 5

[Guest guest]

Thanks for your response. I spoke with the principal Friday and she said she

would go to bat for her with the school district. She said that the policy is

that they want them fever free for 24 hours before returning to school. I am

suppose to get a letter on Wednesday from the doctor and we will just go from

there. I also talked to her teacher and she said that she would do whatever she

could to help make it work.

We go back Wednesday to Childrens for all of our test results. I am so

worried, it's all I can think about. I dont know if I want the tests to show

something so we know for sure, or not show something so we just continue to

wonder. I guess we will be one step closer to the diagnosis. I know when

that comes I can no longer tell myself that this could be the last episode. I

still cant believe that this even exists sometimes.

I'm sure you have been there...thanks for your support.

Trish

Fran <fbulone@...> wrote:

This was recently re-discussed... if you search back in the archives

you will read a large amount of posts.

You need to get a letter from treating physician that she is NOT

contagious and able to remain in school. You will need to complete a

form (federal law) to administer Motrin and Tylenol. It includes

dose etc. Also in the letter indicate the height of fever to call

you. Most parents want to be called above 102.

The doctors letter should be enough. You should meet with the school

nurse, and bring information regarding Periodic Fever disorders.

If you have time go to the file section and browse. We even have

templates regarding school issues.

Depending on how high your child fevers and if she develops febrile

seizures you may need to do more medical plans such as a 504 plan.

God Bless

Fran

Fran Bulone RN

Mom to ph 7yr

Waxhaw NC

/

---------------------------------

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[Guest guest]

Sheryl,

Don't stop reaching for the stars or you will never know what your child can

really do. I never would have believed mine would be where he is now. And

most of what I did was to alleviate the guilt I know I would have later if I

hadn't tried everything.

As for schooling, each kid is different. I was a sixth grade teacher and

if you want to call me we can see what we can up with if we put our heads

together. But you know your kid best and remember you know more than any

teacher or expert could. Trust your gut. Us moms don't always get it right

but it is not from lack of trying.

I used to use summers and vacations as our catch up and work time. Most of

our kids are extremely bright if their immune systems aren't getting in the

way. I used to hang out at teacher supply places and looked for appropriate

workbooks. If you do it right our kids love workbooks. Workbooks are very

predictable and usually they excel at this. My own kid used to beg me to go

to the teacher supply store to buy him another Math workbook. Boy did I

have him fooled as to what was fun.

I worked my kid from morning to night and used what he loved like computers

as rewards to keep him going. Hire a tutor or if you are in the area of

Thousand Oaks, I do this part time. They can catch up academically very

quickly if their bodies are working. I once took a kid who was failing

fourth grade Math (kind of hard to do) and worked with him one summer twice

a week for a half hour. Next year he had an " A " in Math. For our kids the

reading comprehension is a bit more difficult with all their language

deficits but it does come. For mine it wasn't really there until about 6th

or 7th grade. So hang in there and keep working, they will surprise you.

Call me if I can help,

Marcia

805 497-8202