Re: Autism not linked to GI disorders

August 1, 2009

I rarely feel the need to comment on articles but this one just disturbs me. No

amount of research out there is going to change my mind or the mind of the

thousands of parents who first hand have noticed the difference when making

dietary interventions with their kids. I have two boys. Both had chronic very

light and loose coloured stools start around age 2. Both have Aspergers. Both

stimmed incessantly. Both stopped stimming after they went on a gluten free

casein free diet and both had their bowel movements clear up significantly. They

still have Aspergers. They still have issues. Not all kids respond to diet and /

or other interventions. Not all kids have the GI problems / disorders. But a

significant portion clearly do. The sad thing is, until these big named

hospitals and researchers do their homework properly and start believing what

parents are saying, we will get no where in finding approved treatments etc. for

our children.

Autism not linked to GI disorders.

Mayo Clinic researchers have examined the incidence of constipation,

diarrhea, abdominal bloating/discomfort, reflux or vomiting, and

feeding issues/food selectivity in 124 children with autism and a

larger control group of children without autism. Feeding issues and

constipation were more common among the autistic children, which the

authors concluded might be due to neurobehavioral factors associated

with autism, such as need for routine and insistence on sameness in

the diet. There was no evidence of increased incidence of

malabsorption or inflammation in the digestive tract (as claimed by

doctors who provide " biomedical treatments " for autism). No

significant associations were found between autism case status and

overall incidence of gastrointestinal symptoms or any other

gastrointestinal symptom category. Some medications used to treat

children with autism also can lead to appetite suppression and

constipation. The authors cautioned that children with autism should

not be treated indiscriminately with restrictive diets or dietary

supplements. [ibrahim SH. Incidence of gastrointestinal symptoms in

children with autism: A population-based study. Pediatrics

124:680-686, 2009]

http://pediatrics.aappublications.org/cgi/content/abstract/124/2/680

August 1, 2009

Question that is begging:

Is it the food allergies as a result of immune dysfunction causing the GI

disturbances or is there a real GI disease?

If taking away the food allergens helps clear the GI problem then perhaps

it's more the immune issue than it is a GI disease.

R

_____

From: [mailto: ] On Behalf Of

joeandren@...

Sent: Saturday, August 01, 2009 2:03 PM

Subject: Re: Autism not linked to GI disorders

I rarely feel the need to comment on articles but this one just disturbs me.

No amount of research out there is going to change my mind or the mind of

the thousands of parents who first hand have noticed the difference when

making dietary interventions with their kids. I have two boys. Both had

chronic very light and loose coloured stools start around age 2. Both have

Aspergers. Both stimmed incessantly. Both stopped stimming after they went

on a gluten free casein free diet and both had their bowel movements clear

up significantly. They still have Aspergers. They still have issues. Not all

kids respond to diet and / or other interventions. Not all kids have the GI

problems / disorders. But a significant portion clearly do. The sad thing

is, until these big named hospitals and researchers do their homework

properly and start believing what parents are saying, we will get no where

in finding approved treatments etc. for our children.

Autism not linked to GI disorders.

Mayo Clinic researchers have examined the incidence of constipation,

diarrhea, abdominal bloating/discomfort, reflux or vomiting, and

feeding issues/food selectivity in 124 children with autism and a

larger control group of children without autism. Feeding issues and

constipation were more common among the autistic children, which the

authors concluded might be due to neurobehavioral factors associated

with autism, such as need for routine and insistence on sameness in

the diet. There was no evidence of increased incidence of

malabsorption or inflammation in the digestive tract (as claimed by

doctors who provide " biomedical treatments " for autism). No

significant associations were found between autism case status and

overall incidence of gastrointestinal symptoms or any other

gastrointestinal symptom category. Some medications used to treat

children with autism also can lead to appetite suppression and

constipation. The authors cautioned that children with autism should

not be treated indiscriminately with restrictive diets or dietary

supplements. [ibrahim SH. Incidence of gastrointestinal symptoms in

children with autism: A population-based study. Pediatrics

124:680-686, 2009]

http://pediatrics.

<http://pediatrics.aappublications.org/cgi/content/abstract/124/2/680>

aappublications.org/cgi/content/abstract/124/2/680

August 1, 2009

I truly believe its immune-mediated and not a true GI disorder in our kiddos,

but unfortunately, I have had to remove any food that trigger's my daughters

immune system right now, which includes wheat and dairy, and other things, but

my daughter also started reacting to the foods most arent allergic to, like

rice, corn, potato (our favorite gluten substitutes)

It seems like the only alternative, which we are working on is rotating the

foods and we are also doing an allergy treatment which blocks the bodie's

response to offenders, both environmental and food. Next to the Valtrex, this

made a HUGE difference in our little girl....and we have no more problems with

the bad stools!

Hope I didnt confuse anyone!

Jen

>

> Question that is begging:

>

> Is it the food allergies as a result of immune dysfunction causing the GI

> disturbances or is there a real GI disease?

>

> If taking away the food allergens helps clear the GI problem then perhaps

> it's more the immune issue than it is a GI disease.

>

> R

>

> _____

>

> From: [mailto: ] On Behalf Of

> joeandren@...

> Sent: Saturday, August 01, 2009 2:03 PM

>

> Subject: Re: Autism not linked to GI disorders

>

> I rarely feel the need to comment on articles but this one just disturbs me.

> No amount of research out there is going to change my mind or the mind of

> the thousands of parents who first hand have noticed the difference when

> making dietary interventions with their kids. I have two boys. Both had

> chronic very light and loose coloured stools start around age 2. Both have

> Aspergers. Both stimmed incessantly. Both stopped stimming after they went

> on a gluten free casein free diet and both had their bowel movements clear

> up significantly. They still have Aspergers. They still have issues. Not all

> kids respond to diet and / or other interventions. Not all kids have the GI

> problems / disorders. But a significant portion clearly do. The sad thing

> is, until these big named hospitals and researchers do their homework

> properly and start believing what parents are saying, we will get no where

> in finding approved treatments etc. for our children.

>

> Autism not linked to GI disorders.

>

> Autism not linked to GI disorders.

>

> Mayo Clinic researchers have examined the incidence of constipation,

> diarrhea, abdominal bloating/discomfort, reflux or vomiting, and

> feeding issues/food selectivity in 124 children with autism and a

> larger control group of children without autism. Feeding issues and

> constipation were more common among the autistic children, which the

> authors concluded might be due to neurobehavioral factors associated

> with autism, such as need for routine and insistence on sameness in

> the diet. There was no evidence of increased incidence of

> malabsorption or inflammation in the digestive tract (as claimed by

> doctors who provide " biomedical treatments " for autism). No

> significant associations were found between autism case status and

> overall incidence of gastrointestinal symptoms or any other

> gastrointestinal symptom category. Some medications used to treat

> children with autism also can lead to appetite suppression and

> constipation. The authors cautioned that children with autism should

> not be treated indiscriminately with restrictive diets or dietary

> supplements. [ibrahim SH. Incidence of gastrointestinal symptoms in

> children with autism: A population-based study. Pediatrics

> 124:680-686, 2009]

> http://pediatrics.

> <http://pediatrics.aappublications.org/cgi/content/abstract/124/2/680>

> aappublications.org/cgi/content/abstract/124/2/680

>

August 2, 2009

-what is the allergy treatment that blocks the bodies immune response to

offenders? I have not heard?of it before. Thanks, Gayle