Guest guest Posted June 26, 2009 Report Share Posted June 26, 2009 Kristy-How long has your son been taking immunoglobulin? Have you seen any positive results with it? Have you also tried imunovir? Gayle Re: Re: efforts on behalf of Dr. Goldberg > > > , > Do you mind my asking how old your daughter is? My son is 4 1/2 and is what > I would call higher moderate but not mild and we have been with Dr. G over a > year. We are so discouraged because he is not talking spontaneously and has > no interest in his peers and we have done everything we can think of to > facilitate both areas. We are not giving up on Dr. G but it is so helpful to > hear success stories to affirm that we are on the right track. > I too encourage every one about the NIDs protocol and even got three > families to fly cross country to give it a try. They have all given up on > Dr. G by the way . But since our son is not coming out of the autism dx like > we had hoped it is hard to convince folks. > Martha > > On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@... > <mailto:jlhank80%40> > wrote: > > > > > > > I am so glad someone brought this up, I have wanted to for sometime now. > My > > daughter is not a patient of Dr. G but a pt. of Dr and the NNY > > clinic. But my daughter appears to be recovering from autism, but still > > delayed. She no longer stims, plays with others, doesnt tantrum, etc. > Before > > less than a year ago she was moderately autistic. Today she does not > > fit the autism dx. > > > > When I tell people about (and trust me I do ALL of the time) and that > > autism is really a disease process in our kids,this is what I have > > encountered: > > -Parents dont believe that its right to treat autism this way, they > believe > > in " neurodiversity " and autism is not a disease, its genetic. > > -they are so distrustful of the medical community so they wont see a dr > > without the name DAN stamped on them or they are endorsed by > Mccarthy > > -they believe its heavy metals/and or metabolic origin and not the immune > > system > > -or they say " thats nice " and they dont want to do what it takes to get > > their kid better > > -I have also had people be SO disrespectful and arguementative and put Dr. > > G down because of rumors they had heard. one person even accused me of > > " spying " and lying about my daughter and that Dr. G " plants " people on > lists > > to talk about . I am not kidding. > > > > I am SO discouraged. I want kids to get better but my efforts are > > fruitless. I thought if people saw with their own eyes that my daughter is > > better they would listen to me, but they dont. > > > > I would love to hear from others what they have done. I figure I dont care > > who says wait about . I got my daughter back!!!!! > > And even if I help one person all that persecution is worth it. > > > > - > > > > > > > > > > Hello all, yes I accidentally posted this note to the site, but the > > message to all would have been the same. Dr. Goldberg says he needs parent > > support and if anyone?is interested in getting the word out it would be > > greatly appreciated. I am just another parent who is willing to do > whatever > > it takes to help DR. Goldberg finally cure our kids of this illness that > is, > > most definitely, an epidemic! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2009 Report Share Posted June 26, 2009 Hi Gayle, He has been on Gamastan for over a year (maybe closer to 2?). He is MUCH healthier now. We did notice overall well-being after starting it. Nothing dramatic, but we could just tell he probably felt better. He had a certain amount of that sharpness and alertness Dr. G asks about, but really nothing we could say had definitely changed. Dr. G mentioned trying immunovir at one point, but - knock on wood - his labs have been very, very good so I don't think it is necessary at this time. Kristy From: [mailto: ] On Behalf Of gvizjazz@... Sent: Friday, June 26, 2009 5:38 PM Subject: Re: Re: immunoglobulin Kristy-How long has your son been taking immunoglobulin? Have you seen any positive results with it? Have you also tried imunovir? Gayle Re: Re: efforts on behalf of Dr. Goldberg > > > , > Do you mind my asking how old your daughter is? My son is 4 1/2 and is what > I would call higher moderate but not mild and we have been with Dr. G over a > year. We are so discouraged because he is not talking spontaneously and has > no interest in his peers and we have done everything we can think of to > facilitate both areas. We are not giving up on Dr. G but it is so helpful to > hear success stories to affirm that we are on the right track. > I too encourage every one about the NIDs protocol and even got three > families to fly cross country to give it a try. They have all given up on > Dr. G by the way . But since our son is not coming out of the autism dx like > we had hoped it is hard to convince folks. > Martha > > On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@... > <mailto:jlhank80%40> > wrote: > > > > > > > I am so glad someone brought this up, I have wanted to for sometime now. > My > > daughter is not a patient of Dr. G but a pt. of Dr and the NNY > > clinic. But my daughter appears to be recovering from autism, but still > > delayed. She no longer stims, plays with others, doesnt tantrum, etc. > Before > > less than a year ago she was moderately autistic. Today she does not > > fit the autism dx. > > > > When I tell people about (and trust me I do ALL of the time) and that > > autism is really a disease process in our kids,this is what I have > > encountered: > > -Parents dont believe that its right to treat autism this way, they > believe > > in " neurodiversity " and autism is not a disease, its genetic. > > -they are so distrustful of the medical community so they wont see a dr > > without the name DAN stamped on them or they are endorsed by > Mccarthy > > -they believe its heavy metals/and or metabolic origin and not the immune > > system > > -or they say " thats nice " and they dont want to do what it takes to get > > their kid better > > -I have also had people be SO disrespectful and arguementative and put Dr. > > G down because of rumors they had heard. one person even accused me of > > " spying " and lying about my daughter and that Dr. G " plants " people on > lists > > to talk about . I am not kidding. > > > > I am SO discouraged. I want kids to get better but my efforts are > > fruitless. I thought if people saw with their own eyes that my daughter is > > better they would listen to me, but they dont. > > > > I would love to hear from others what they have done. I figure I dont care > > who says wait about . I got my daughter back!!!!! > > And even if I help one person all that persecution is worth it. > > > > - > > > > > > > > > > Hello all, yes I accidentally posted this note to the site, but the > > message to all would have been the same. Dr. Goldberg says he needs parent > > support and if anyone?is interested in getting the word out it would be > > greatly appreciated. I am just another parent who is willing to do > whatever > > it takes to help DR. Goldberg finally cure our kids of this illness that > is, > > most definitely, an epidemic! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2009 Report Share Posted June 26, 2009 Our son has been on Gamastan for a little over 3 months now. For our son just like Kristy mentioned just felt better, from having very inconsistent good and bad days, to being happy every day. After 2 months on the Gamastan we did the routine lab work that Dr. Goldberg order for all his patients (including the Immune Panel) and the results came back in within the normal range for the first time in over 2 years! Even his Natural Killer Cells went from 4 to 9 percent! I asked Dr. Goldberg if this was a mistake by the lab and he said that probably not. We just did another lab test yesterday, so we will see what the results are in the next few days and we will be able to double check to make sure that the previous results are right or not. Our son did come back low in immunoglobulin in a lab test ordered by Dr. Goldberg 6 months ago. I would ask Dr. Goldberg to run an IGG subclass lab test in your child even if your child's total IGG count was normal. The children might still have an IGG subclass deficiency and still need the Gamastan. IGG subclass deficiency information http://www.immunedisease.com/patients-and-families/about-pi/types-of-pi/igg- subclass-deficiency.html JR From: [mailto: ] On Behalf Of Kristy Nardini Sent: Friday, June 26, 2009 8:27 PM Subject: RE: Re: immunoglobulin Hi Gayle, He has been on Gamastan for over a year (maybe closer to 2?). He is MUCH healthier now. We did notice overall well-being after starting it. Nothing dramatic, but we could just tell he probably felt better. He had a certain amount of that sharpness and alertness Dr. G asks about, but really nothing we could say had definitely changed. Dr. G mentioned trying immunovir at one point, but - knock on wood - his labs have been very, very good so I don't think it is necessary at this time. Kristy From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of gvizjazz@... <mailto:gvizjazz%40aol.com> Sent: Friday, June 26, 2009 5:38 PM <mailto:%40> Subject: Re: Re: immunoglobulin Kristy-How long has your son been taking immunoglobulin? Have you seen any positive results with it? Have you also tried imunovir? Gayle Re: Re: efforts on behalf of Dr. Goldberg > > > , > Do you mind my asking how old your daughter is? My son is 4 1/2 and is what > I would call higher moderate but not mild and we have been with Dr. G over a > year. We are so discouraged because he is not talking spontaneously and has > no interest in his peers and we have done everything we can think of to > facilitate both areas. We are not giving up on Dr. G but it is so helpful to > hear success stories to affirm that we are on the right track. > I too encourage every one about the NIDs protocol and even got three > families to fly cross country to give it a try. They have all given up on > Dr. G by the way . But since our son is not coming out of the autism dx like > we had hoped it is hard to convince folks. > Martha > > On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@... > <mailto:jlhank80%40> > wrote: > > > > > > > I am so glad someone brought this up, I have wanted to for sometime now. > My > > daughter is not a patient of Dr. G but a pt. of Dr and the NNY > > clinic. But my daughter appears to be recovering from autism, but still > > delayed. She no longer stims, plays with others, doesnt tantrum, etc. > Before > > less than a year ago she was moderately autistic. Today she does not > > fit the autism dx. > > > > When I tell people about (and trust me I do ALL of the time) and that > > autism is really a disease process in our kids,this is what I have > > encountered: > > -Parents dont believe that its right to treat autism this way, they > believe > > in " neurodiversity " and autism is not a disease, its genetic. > > -they are so distrustful of the medical community so they wont see a dr > > without the name DAN stamped on them or they are endorsed by > Mccarthy > > -they believe its heavy metals/and or metabolic origin and not the immune > > system > > -or they say " thats nice " and they dont want to do what it takes to get > > their kid better > > -I have also had people be SO disrespectful and arguementative and put Dr. > > G down because of rumors they had heard. one person even accused me of > > " spying " and lying about my daughter and that Dr. G " plants " people on > lists > > to talk about . I am not kidding. > > > > I am SO discouraged. I want kids to get better but my efforts are > > fruitless. I thought if people saw with their own eyes that my daughter is > > better they would listen to me, but they dont. > > > > I would love to hear from others what they have done. I figure I dont care > > who says wait about . I got my daughter back!!!!! > > And even if I help one person all that persecution is worth it. > > > > - > > > > > > > > > > Hello all, yes I accidentally posted this note to the site, but the > > message to all would have been the same. Dr. Goldberg says he needs parent > > support and if anyone?is interested in getting the word out it would be > > greatly appreciated. I am just another parent who is willing to do > whatever > > it takes to help DR. Goldberg finally cure our kids of this illness that > is, > > most definitely, an epidemic! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2009 Report Share Posted June 27, 2009 Hi Kristy-That's great! We have never tried it, though I will ask about it on my next call. How old is your son? We haven't seen anything great yet with imunovir, but if this doesn't help? we may consider Gamastan. Are they shots and how often do you give them? Thanks for your help! Gayle Re: Re: efforts on behalf of Dr. Goldberg > > > , > Do you mind my asking how old your daughter is? My son is 4 1/2 and is what > I would call higher moderate but not mild and we have been with Dr. G over a > year. We are so discouraged because he is not talking spontaneously and has > no interest in his peers and we have done everything we can think of to > facilitate both areas. We are not giving up on Dr. G but it is so helpful to > hear success stories to affirm that we are on the right track. > I too encourage every one about the NIDs protocol and even got three > families to fly cross country to give it a try. They have all given up on > Dr. G by the way . But since our son is not coming out of the autism dx like > we had hoped it is hard to convince folks. > Martha > > On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@... > <mailto:jlhank80%40> > wrote: > > > > > > > I am so glad someone brought this up, I have wanted to for sometime now. > My > > daughter is not a patient of Dr. G but a pt. of Dr and the NNY > > clinic. But my daughter appears to be recovering from autism, but still > > delayed. She no longer stims, plays with others, doesnt tantrum, etc. > Before > > less than a year ago she was moderately autistic. Today she does not > > fit the autism dx. > > > > When I tell people about (and trust me I do ALL of the time) and that > > autism is really a disease process in our kids,this is what I have > > encountered: > > -Parents dont believe that its right to treat autism this way, they > believe > > in " neurodiversity " and autism is not a disease, its genetic. > > -they are so distrustful of the medical community so they wont see a dr > > without the name DAN stamped on them or they are endorsed by > Mccarthy > > -they believe its heavy metals/and or metabolic origin and not the immune > > system > > -or they say " thats nice " and they dont want to do what it takes to get > > their kid better > > -I have also had people be SO disrespectful and arguementative and put Dr. > > G down because of rumors they had heard. one person even accused me of > > " spying " and lying about my daughter and that Dr. G " plants " people on > lists > > to talk about . I am not kidding. > > > > I am SO discouraged. I want kids to get better but my efforts are > > fruitless. I thought if people saw with their own eyes that my daughter is > > better they would listen to me, but they dont. > > > > I would love to hear from others what they have done. I figure I dont care > > who says wait about . I got my daughter back!!!!! > > And even if I help one person all that persecution is worth it. > > > > - > > > > > > > > > > Hello all, yes I accidentally posted this note to the site, but the > > message to all would have been the same. Dr. Goldberg says he needs parent > > support and if anyone?is interested in getting the word out it would be > > greatly appreciated. I am just another parent who is willing to do > whatever > > it takes to help DR. Goldberg finally cure our kids of this illness that > is, > > most definitely, an epidemic! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2009 Report Share Posted June 27, 2009 Hi -just read your post after I emailed the same questions! Thanks for the response. I think Dr. G recently ran an IGG for his blood work and we're waiting for the results. Natural Killer cells going from 4 to 9 is great! Hope we see the same results with imunovir. Gayle Re: Re: efforts on behalf of Dr. Goldberg > > > , > Do you mind my asking how old your daughter is? My son is 4 1/2 and is what > I would call higher moderate but not mild and we have been with Dr. G over a > year. We are so discouraged because he is not talking spontaneously and has > no interest in his peers and we have done everything we can think of to > facilitate both areas. We are not giving up on Dr. G but it is so helpful to > hear success stories to affirm that we are on the right track. > I too encourage every one about the NIDs protocol and even got three > families to fly cross country to give it a try. They have all given up on > Dr. G by the way . But since our son is not coming out of the autism dx like > we had hoped it is hard to convince folks. > Martha > > On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@... > <mailto:jlhank80%40> > wrote: > > > > > > > I am so glad someone brought this up, I have wanted to for sometime now. > My > > daughter is not a patient of Dr. G but a pt. of Dr and the NNY > > clinic. But my daughter appears to be recovering from autism, but still > > delayed. She no longer stims, plays with others, doesnt tantrum, etc. > Before > > less than a year ago she was moderately autistic. Today she does not > > fit the autism dx. > > > > When I tell people about (and trust me I do ALL of the time) and that > > autism is really a disease process in our kids,this is what I have > > encountered: > > -Parents dont believe that its right to treat autism this way, they > believe > > in " neurodiversity " and autism is not a disease, its genetic. > > -they are so distrustful of the medical community so they wont see a dr > > without the name DAN stamped on them or they are endorsed by > Mccarthy > > -they believe its heavy metals/and or metabolic origin and not the immune > > system > > -or they say " thats nice " and they dont want to do what it takes to get > > their kid better > > -I have also had people be SO disrespectful and arguementative and put Dr. > > G down because of rumors they had heard. one person even accused me of > > " spying " and lying about my daughter and that Dr. G " plants " people on > lists > > to talk about . I am not kidding. > > > > I am SO discouraged. I want kids to get better but my efforts are > > fruitless. I thought if people saw with their own eyes that my daughter is > > better they would listen to me, but they dont. > > > > I would love to hear from others what they have done. I figure I dont care > > who says wait about . I got my daughter back!!!!! > > And even if I help one person all that persecution is worth it. > > > > - > > > > > > > > > > Hello all, yes I accidentally posted this note to the site, but the > > message to all would have been the same. Dr. Goldberg says he needs parent > > support and if anyone?is interested in getting the word out it would be > > greatly appreciated. I am just another parent who is willing to do > whatever > > it takes to help DR. Goldberg finally cure our kids of this illness that > is, > > most definitely, an epidemic! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2009 Report Share Posted June 27, 2009 My son is 7 and we give him shots every 3 weeks. We do it after he's been asleep a few hours, and he barely even notices it. Kristy From: [mailto: ] On Behalf Of gvizjazz@... Sent: Saturday, June 27, 2009 9:22 AM Subject: Re: Re: immunoglobulin Hi Kristy-That's great! We have never tried it, though I will ask about it on my next call. How old is your son? We haven't seen anything great yet with imunovir, but if this doesn't help? we may consider Gamastan. Are they shots and how often do you give them? Thanks for your help! Gayle Re: Re: efforts on behalf of Dr. Goldberg > > > , > Do you mind my asking how old your daughter is? My son is 4 1/2 and is what > I would call higher moderate but not mild and we have been with Dr. G over a > year. We are so discouraged because he is not talking spontaneously and has > no interest in his peers and we have done everything we can think of to > facilitate both areas. We are not giving up on Dr. G but it is so helpful to > hear success stories to affirm that we are on the right track. > I too encourage every one about the NIDs protocol and even got three > families to fly cross country to give it a try. They have all given up on > Dr. G by the way . But since our son is not coming out of the autism dx like > we had hoped it is hard to convince folks. > Martha > > On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@... > <mailto:jlhank80%40> > wrote: > > > > > > > I am so glad someone brought this up, I have wanted to for sometime now. > My > > daughter is not a patient of Dr. G but a pt. of Dr and the NNY > > clinic. But my daughter appears to be recovering from autism, but still > > delayed. She no longer stims, plays with others, doesnt tantrum, etc. > Before > > less than a year ago she was moderately autistic. Today she does not > > fit the autism dx. > > > > When I tell people about (and trust me I do ALL of the time) and that > > autism is really a disease process in our kids,this is what I have > > encountered: > > -Parents dont believe that its right to treat autism this way, they > believe > > in " neurodiversity " and autism is not a disease, its genetic. > > -they are so distrustful of the medical community so they wont see a dr > > without the name DAN stamped on them or they are endorsed by > Mccarthy > > -they believe its heavy metals/and or metabolic origin and not the immune > > system > > -or they say " thats nice " and they dont want to do what it takes to get > > their kid better > > -I have also had people be SO disrespectful and arguementative and put Dr. > > G down because of rumors they had heard. one person even accused me of > > " spying " and lying about my daughter and that Dr. G " plants " people on > lists > > to talk about . I am not kidding. > > > > I am SO discouraged. I want kids to get better but my efforts are > > fruitless. I thought if people saw with their own eyes that my daughter is > > better they would listen to me, but they dont. > > > > I would love to hear from others what they have done. I figure I dont care > > who says wait about . I got my daughter back!!!!! > > And even if I help one person all that persecution is worth it. > > > > - > > > > > > > > > > Hello all, yes I accidentally posted this note to the site, but the > > message to all would have been the same. Dr. Goldberg says he needs parent > > support and if anyone?is interested in getting the word out it would be > > greatly appreciated. I am just another parent who is willing to do > whatever > > it takes to help DR. Goldberg finally cure our kids of this illness that > is, > > most definitely, an epidemic! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2009 Report Share Posted June 27, 2009 My son is 5 and weights 48 lbs. We give him 2ml shots every 3 weeks. We pay $10 at our local compounding pharmacy to get the GamaSTAN injected. Money well worth it. JR From: [mailto: ] On Behalf Of Kristy Nardini Sent: Saturday, June 27, 2009 2:44 PM Subject: RE: Re: immunoglobulin My son is 7 and we give him shots every 3 weeks. We do it after he's been asleep a few hours, and he barely even notices it. Kristy From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of gvizjazz@... <mailto:gvizjazz%40aol.com> Sent: Saturday, June 27, 2009 9:22 AM <mailto:%40> Subject: Re: Re: immunoglobulin Hi Kristy-That's great! We have never tried it, though I will ask about it on my next call. How old is your son? We haven't seen anything great yet with imunovir, but if this doesn't help? we may consider Gamastan. Are they shots and how often do you give them? Thanks for your help! Gayle Re: Re: efforts on behalf of Dr. Goldberg > > > , > Do you mind my asking how old your daughter is? My son is 4 1/2 and is what > I would call higher moderate but not mild and we have been with Dr. G over a > year. We are so discouraged because he is not talking spontaneously and has > no interest in his peers and we have done everything we can think of to > facilitate both areas. We are not giving up on Dr. G but it is so helpful to > hear success stories to affirm that we are on the right track. > I too encourage every one about the NIDs protocol and even got three > families to fly cross country to give it a try. They have all given up on > Dr. G by the way . But since our son is not coming out of the autism dx like > we had hoped it is hard to convince folks. > Martha > > On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@... > <mailto:jlhank80%40> > wrote: > > > > > > > I am so glad someone brought this up, I have wanted to for sometime now. > My > > daughter is not a patient of Dr. G but a pt. of Dr and the NNY > > clinic. But my daughter appears to be recovering from autism, but still > > delayed. She no longer stims, plays with others, doesnt tantrum, etc. > Before > > less than a year ago she was moderately autistic. Today she does not > > fit the autism dx. > > > > When I tell people about (and trust me I do ALL of the time) and that > > autism is really a disease process in our kids,this is what I have > > encountered: > > -Parents dont believe that its right to treat autism this way, they > believe > > in " neurodiversity " and autism is not a disease, its genetic. > > -they are so distrustful of the medical community so they wont see a dr > > without the name DAN stamped on them or they are endorsed by > Mccarthy > > -they believe its heavy metals/and or metabolic origin and not the immune > > system > > -or they say " thats nice " and they dont want to do what it takes to get > > their kid better > > -I have also had people be SO disrespectful and arguementative and put Dr. > > G down because of rumors they had heard. one person even accused me of > > " spying " and lying about my daughter and that Dr. G " plants " people on > lists > > to talk about . I am not kidding. > > > > I am SO discouraged. I want kids to get better but my efforts are > > fruitless. I thought if people saw with their own eyes that my daughter is > > better they would listen to me, but they dont. > > > > I would love to hear from others what they have done. I figure I dont care > > who says wait about . I got my daughter back!!!!! > > And even if I help one person all that persecution is worth it. > > > > - > > > > > > > > > > Hello all, yes I accidentally posted this note to the site, but the > > message to all would have been the same. Dr. Goldberg says he needs parent > > support and if anyone?is interested in getting the word out it would be > > greatly appreciated. I am just another parent who is willing to do > whatever > > it takes to help DR. Goldberg finally cure our kids of this illness that > is, > > most definitely, an epidemic! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2009 Report Share Posted June 28, 2009 My son was on it for a year. It did nothing for him. The shots are very painful so continuing something that wasn't working for us didn't make much sense. Cheryl ~http://www.gryffins-tail.blogspot.com ~@midian42~ On Jun 26, 2009, at 5:38 PM, gvizjazz@... wrote: > > > Kristy-How long has your son been taking immunoglobulin? Have you > seen any positive results with it? Have you also tried imunovir? > Gayle > > Re: Re: efforts on behalf of Dr. Goldberg > > > > > > , > > Do you mind my asking how old your daughter is? My son is 4 1/2 > and is what > > I would call higher moderate but not mild and we have been with > Dr. G over a > > year. We are so discouraged because he is not talking > spontaneously and has > > no interest in his peers and we have done everything we can think > of to > > facilitate both areas. We are not giving up on Dr. G but it is so > helpful to > > hear success stories to affirm that we are on the right track. > > I too encourage every one about the NIDs protocol and even got three > > families to fly cross country to give it a try. They have all > given up on > > Dr. G by the way . But since our son is not coming out of the > autism dx like > > we had hoped it is hard to convince folks. > > Martha > > > > On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@... > > <mailto:jlhank80%40> > wrote: > > > > > > > > > > > I am so glad someone brought this up, I have wanted to for > sometime now. > > My > > > daughter is not a patient of Dr. G but a pt. of Dr and > the NNY > > > clinic. But my daughter appears to be recovering from autism, > but still > > > delayed. She no longer stims, plays with others, doesnt tantrum, > etc. > > Before > > > less than a year ago she was moderately autistic. Today she > does not > > > fit the autism dx. > > > > > > When I tell people about (and trust me I do ALL of the > time) and that > > > autism is really a disease process in our kids,this is what I have > > > encountered: > > > -Parents dont believe that its right to treat autism this way, > they > > believe > > > in " neurodiversity " and autism is not a disease, its genetic. > > > -they are so distrustful of the medical community so they wont > see a dr > > > without the name DAN stamped on them or they are endorsed by > > Mccarthy > > > -they believe its heavy metals/and or metabolic origin and not > the immune > > > system > > > -or they say " thats nice " and they dont want to do what it takes > to get > > > their kid better > > > -I have also had people be SO disrespectful and arguementative > and put Dr. > > > G down because of rumors they had heard. one person even accused > me of > > > " spying " and lying about my daughter and that Dr. G " plants " > people on > > lists > > > to talk about . I am not kidding. > > > > > > I am SO discouraged. I want kids to get better but my efforts are > > > fruitless. I thought if people saw with their own eyes that my > daughter is > > > better they would listen to me, but they dont. > > > > > > I would love to hear from others what they have done. I figure I > dont care > > > who says wait about . I got my daughter back!!!!! > > > And even if I help one person all that persecution is worth it. > > > > > > - > > > > > > > > > > > > > > Hello all, yes I accidentally posted this note to the site, > but the > > > message to all would have been the same. Dr. Goldberg says he > needs parent > > > support and if anyone?is interested in getting the word out it > would be > > > greatly appreciated. I am just another parent who is willing to do > > whatever > > > it takes to help DR. Goldberg finally cure our kids of this > illness that > > is, > > > most definitely, an epidemic! > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2009 Report Share Posted June 28, 2009 -how long before you saw any positive changes from the Gamastan? Re: Re: efforts on behalf of Dr. Goldberg > > > , > Do you mind my asking how old your daughter is? My son is 4 1/2 and is what > I would call higher moderate but not mild and we have been with Dr. G over a > year. We are so discouraged because he is not talking spontaneously and has > no interest in his peers and we have done everything we can think of to > facilitate both areas. We are not giving up on Dr. G but it is so helpful to > hear success stories to affirm that we are on the right track. > I too encourage every one about the NIDs protocol and even got three > families to fly cross country to give it a try. They have all given up on > Dr. G by the way . But since our son is not coming out of the autism dx like > we had hoped it is hard to convince folks. > Martha > > On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@... > <mailto:jlhank80%40> > wrote: > > > > > > > I am so glad someone brought this up, I have wanted to for sometime now. > My > > daughter is not a patient of Dr. G but a pt. of Dr and the NNY > > clinic. But my daughter appears to be recovering from autism, but still > > delayed. She no longer stims, plays with others, doesnt tantrum, etc. > Before > > less than a year ago she was moderately autistic. Today she does not > > fit the autism dx. > > > > When I tell people about (and trust me I do ALL of the time) and that > > autism is really a disease process in our kids,this is what I have > > encountered: > > -Parents dont believe that its right to treat autism this way, they > believe > > in " neurodiversity " and autism is not a disease, its genetic. > > -they are so distrustful of the medical community so they wont see a dr > > without the name DAN stamped on them or they are endorsed by > Mccarthy > > -they believe its heavy metals/and or metabolic origin and not the immune > > system > > -or they say " thats nice " and they dont want to do what it takes to get > > their kid better > > -I have also had people be SO disrespectful and arguementative and put Dr. > > G down because of rumors they had heard. one person even accused me of > > " spying " and lying about my daughter and that Dr. G " plants " people on > lists > > to talk about . I am not kidding. > > > > I am SO discouraged. I want kids to get better but my efforts are > > fruitless. I thought if people saw with their own eyes that my daughter is > > better they would listen to me, but they dont. > > > > I would love to hear from others what they have done. I figure I dont care > > who says wait about . I got my daughter back!!!!! > > And even if I help one person all that persecution is worth it. > > > > - > > > > > > > > > > Hello all, yes I accidentally posted this note to the site, but the > > message to all would have been the same. Dr. Goldberg says he needs parent > > support and if anyone?is interested in getting the word out it would be > > greatly appreciated. I am just another parent who is willing to do > whatever > > it takes to help DR. Goldberg finally cure our kids of this illness that > is, > > most definitely, an epidemic! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2009 Report Share Posted June 28, 2009 Cheryl-we had the same experience with the kutapressin shots. We stopped it because it did nothing for him either. I hesitate to try shots again if they aren't necessary or helpful. Gayle Re: Re: efforts on behalf of Dr. Goldberg > > > > > > , > > Do you mind my asking how old your daughter is? My son is 4 1/2 > and is what > > I would call higher moderate but not mild and we have been with > Dr. G over a > > year. We are so discouraged because he is not talking > spontaneously and has > > no interest in his peers and we have done everything we can think > of to > > facilitate both areas. We are not giving up on Dr. G but it is so > helpful to > > hear success stories to affirm that we are on the right track. > > I too encourage every one about the NIDs protocol and even got three > > families to fly cross country to give it a try. They have all > given up on > > Dr. G by the way . But since our son is not coming out of the > autism dx like > > we had hoped it is hard to convince folks. > > Martha > > > > On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@... > > <mailto:jlhank80%40> > wrote: > > > > > > > > > > > I am so glad someone brought this up, I have wanted to for > sometime now. > > My > > > daughter is not a patient of Dr. G but a pt. of Dr and > the NNY > > > clinic. But my daughter appears to be recovering from autism, > but still > > > delayed. She no longer stims, plays with others, doesnt tantrum, > etc. > > Before > > > less than a year ago she was moderately autistic. Today she > does not > > > fit the autism dx. > > > > > > When I tell people about (and trust me I do ALL of the > time) and that > > > autism is really a disease process in our kids,this is what I have > > > encountered: > > > -Parents dont believe that its right to treat autism this way, > they > > believe > > > in " neurodiversity " and autism is not a disease, its genetic. > > > -they are so distrustful of the medical community so they wont > see a dr > > > without the name DAN stamped on them or they are endorsed by > > Mccarthy > > > -they believe its heavy metals/and or metabolic origin and not > the immune > > > system > > > -or they say " thats nice " and they dont want to do what it takes > to get > > > their kid better > > > -I have also had people be SO disrespectful and arguementative > and put Dr. > > > G down because of rumors they had heard. one person even accused > me of > > > " spying " and lying about my daughter and that Dr. G " plants " > people on > > lists > > > to talk about . I am not kidding. > > > > > > I am SO discouraged. I want kids to get better but my efforts are > > > fruitless. I thought if people saw with their own eyes that my > daughter is > > > better they would listen to me, but they dont. > > > > > > I would love to hear from others what they have done. I figure I > dont care > > > who says wait about . I got my daughter back!!!!! > > > And even if I help one person all that persecution is worth it. > > > > > > - > > > > > > > > > > > > > > Hello all, yes I accidentally posted this note to the site, > but the > > > message to all would have been the same. Dr. Goldberg says he > needs parent > > > support and if anyone?is interested in getting the word out it > would be > > > greatly appreciated. I am just another parent who is willing to do > > whatever > > > it takes to help DR. Goldberg finally cure our kids of this > illness that > > is, > > > most definitely, an epidemic! > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2009 Report Share Posted June 28, 2009 Hi , Do you have the name and number of your pharmacy? We order from Friendly Hills (Dr. G's office recommended them) and it costs $240 for 4 doses. Kristy From: [mailto: ] On Behalf Of Sent: Saturday, June 27, 2009 1:23 PM Subject: RE: Re: immunoglobulin My son is 5 and weights 48 lbs. We give him 2ml shots every 3 weeks. We pay $10 at our local compounding pharmacy to get the GamaSTAN injected. Money well worth it. JR From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Kristy Nardini Sent: Saturday, June 27, 2009 2:44 PM <mailto:%40> Subject: RE: Re: immunoglobulin My son is 7 and we give him shots every 3 weeks. We do it after he's been asleep a few hours, and he barely even notices it. Kristy From: <mailto:%40> <mailto:%40> [mailto: <mailto:%40> <mailto:%40> ] On Behalf Of gvizjazz@... <mailto:gvizjazz%40aol.com> <mailto:gvizjazz%40aol.com> Sent: Saturday, June 27, 2009 9:22 AM <mailto:%40> <mailto:%40> Subject: Re: Re: immunoglobulin Hi Kristy-That's great! We have never tried it, though I will ask about it on my next call. How old is your son? We haven't seen anything great yet with imunovir, but if this doesn't help? we may consider Gamastan. Are they shots and how often do you give them? Thanks for your help! Gayle Re: Re: efforts on behalf of Dr. Goldberg > > > , > Do you mind my asking how old your daughter is? My son is 4 1/2 and is what > I would call higher moderate but not mild and we have been with Dr. G over a > year. We are so discouraged because he is not talking spontaneously and has > no interest in his peers and we have done everything we can think of to > facilitate both areas. We are not giving up on Dr. G but it is so helpful to > hear success stories to affirm that we are on the right track. > I too encourage every one about the NIDs protocol and even got three > families to fly cross country to give it a try. They have all given up on > Dr. G by the way . But since our son is not coming out of the autism dx like > we had hoped it is hard to convince folks. > Martha > > On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@... > <mailto:jlhank80%40> > wrote: > > > > > > > I am so glad someone brought this up, I have wanted to for sometime now. > My > > daughter is not a patient of Dr. G but a pt. of Dr and the NNY > > clinic. But my daughter appears to be recovering from autism, but still > > delayed. She no longer stims, plays with others, doesnt tantrum, etc. > Before > > less than a year ago she was moderately autistic. Today she does not > > fit the autism dx. > > > > When I tell people about (and trust me I do ALL of the time) and that > > autism is really a disease process in our kids,this is what I have > > encountered: > > -Parents dont believe that its right to treat autism this way, they > believe > > in " neurodiversity " and autism is not a disease, its genetic. > > -they are so distrustful of the medical community so they wont see a dr > > without the name DAN stamped on them or they are endorsed by > Mccarthy > > -they believe its heavy metals/and or metabolic origin and not the immune > > system > > -or they say " thats nice " and they dont want to do what it takes to get > > their kid better > > -I have also had people be SO disrespectful and arguementative and put Dr. > > G down because of rumors they had heard. one person even accused me of > > " spying " and lying about my daughter and that Dr. G " plants " people on > lists > > to talk about . I am not kidding. > > > > I am SO discouraged. I want kids to get better but my efforts are > > fruitless. I thought if people saw with their own eyes that my daughter is > > better they would listen to me, but they dont. > > > > I would love to hear from others what they have done. I figure I dont care > > who says wait about . I got my daughter back!!!!! > > And even if I help one person all that persecution is worth it. > > > > - > > > > > > > > > > Hello all, yes I accidentally posted this note to the site, but the > > message to all would have been the same. Dr. Goldberg says he needs parent > > support and if anyone?is interested in getting the word out it would be > > greatly appreciated. I am just another parent who is willing to do > whatever > > it takes to help DR. Goldberg finally cure our kids of this illness that > is, > > most definitely, an epidemic! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2009 Report Share Posted June 28, 2009 We pay the same amount. JR From: knardini@... Date: Sun, 28 Jun 2009 18:32:05 -0700 Subject: RE: Re: immunoglobulin Hi , Do you have the name and number of your pharmacy? We order from Friendly Hills (Dr. G's office recommended them) and it costs $240 for 4 doses. Kristy From: [mailto: ] On Behalf Of Sent: Saturday, June 27, 2009 1:23 PM Subject: RE: Re: immunoglobulin My son is 5 and weights 48 lbs. We give him 2ml shots every 3 weeks. We pay $10 at our local compounding pharmacy to get the GamaSTAN injected. Money well worth it. JR From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Kristy Nardini Sent: Saturday, June 27, 2009 2:44 PM <mailto:%40> Subject: RE: Re: immunoglobulin My son is 7 and we give him shots every 3 weeks. We do it after he's been asleep a few hours, and he barely even notices it. Kristy From: <mailto:%40> <mailto:%40> [mailto: <mailto:%40> <mailto:%40> ] On Behalf Of gvizjazz@... <mailto:gvizjazz%40aol.com> <mailto:gvizjazz%40aol.com> Sent: Saturday, June 27, 2009 9:22 AM <mailto:%40> <mailto:%40> Subject: Re: Re: immunoglobulin Hi Kristy-That's great! We have never tried it, though I will ask about it on my next call. How old is your son? We haven't seen anything great yet with imunovir, but if this doesn't help? we may consider Gamastan. Are they shots and how often do you give them? Thanks for your help! Gayle Re: Re: efforts on behalf of Dr. Goldberg > > > , > Do you mind my asking how old your daughter is? My son is 4 1/2 and is what > I would call higher moderate but not mild and we have been with Dr. G over a > year. We are so discouraged because he is not talking spontaneously and has > no interest in his peers and we have done everything we can think of to > facilitate both areas. We are not giving up on Dr. G but it is so helpful to > hear success stories to affirm that we are on the right track. > I too encourage every one about the NIDs protocol and even got three > families to fly cross country to give it a try. They have all given up on > Dr. G by the way . But since our son is not coming out of the autism dx like > we had hoped it is hard to convince folks. > Martha > > On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@... > <mailto:jlhank80%40> > wrote: > > > > > > > I am so glad someone brought this up, I have wanted to for sometime now. > My > > daughter is not a patient of Dr. G but a pt. of Dr and the NNY > > clinic. But my daughter appears to be recovering from autism, but still > > delayed. She no longer stims, plays with others, doesnt tantrum, etc. > Before > > less than a year ago she was moderately autistic. Today she does not > > fit the autism dx. > > > > When I tell people about (and trust me I do ALL of the time) and that > > autism is really a disease process in our kids,this is what I have > > encountered: > > -Parents dont believe that its right to treat autism this way, they > believe > > in " neurodiversity " and autism is not a disease, its genetic. > > -they are so distrustful of the medical community so they wont see a dr > > without the name DAN stamped on them or they are endorsed by > Mccarthy > > -they believe its heavy metals/and or metabolic origin and not the immune > > system > > -or they say " thats nice " and they dont want to do what it takes to get > > their kid better > > -I have also had people be SO disrespectful and arguementative and put Dr. > > G down because of rumors they had heard. one person even accused me of > > " spying " and lying about my daughter and that Dr. G " plants " people on > lists > > to talk about . I am not kidding. > > > > I am SO discouraged. I want kids to get better but my efforts are > > fruitless. I thought if people saw with their own eyes that my daughter is > > better they would listen to me, but they dont. > > > > I would love to hear from others what they have done. I figure I dont care > > who says wait about . I got my daughter back!!!!! > > And even if I help one person all that persecution is worth it. > > > > - > > > > > > > > > > Hello all, yes I accidentally posted this note to the site, but the > > message to all would have been the same. Dr. Goldberg says he needs parent > > support and if anyone?is interested in getting the word out it would be > > greatly appreciated. I am just another parent who is willing to do > whatever > > it takes to help DR. Goldberg finally cure our kids of this illness that > is, > > most definitely, an epidemic! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2009 Report Share Posted June 28, 2009 My son experienced improvements in the immune panel lab results almost immediately, also his behavior improved markedly. Maybe it worked this well on my son because he had very low immunoglobulin levels (hypogammaglobulinemia) and probably GamaSTAN is the medication that he needed more than anything else. Make sure you test your child's immunoglobulin levels including IGG subclasses before considering GamaSTAN. I am just thinking that the children to whom the GamaSTAN didn't make any difference never had immunoglobulin deficiencies to begin with. Thanks, JR From: gvizjazz@... Date: Sun, 28 Jun 2009 19:20:11 -0400 Subject: Re: Re: immunoglobulin -how long before you saw any positive changes from the Gamastan? Re: Re: efforts on behalf of Dr. Goldberg > > > , > Do you mind my asking how old your daughter is? My son is 4 1/2 and is what > I would call higher moderate but not mild and we have been with Dr. G over a > year. We are so discouraged because he is not talking spontaneously and has > no interest in his peers and we have done everything we can think of to > facilitate both areas. We are not giving up on Dr. G but it is so helpful to > hear success stories to affirm that we are on the right track. > I too encourage every one about the NIDs protocol and even got three > families to fly cross country to give it a try. They have all given up on > Dr. G by the way . But since our son is not coming out of the autism dx like > we had hoped it is hard to convince folks. > Martha > > On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@... > <mailto:jlhank80%40> > wrote: > > > > > > > I am so glad someone brought this up, I have wanted to for sometime now. > My > > daughter is not a patient of Dr. G but a pt. of Dr and the NNY > > clinic. But my daughter appears to be recovering from autism, but still > > delayed. She no longer stims, plays with others, doesnt tantrum, etc. > Before > > less than a year ago she was moderately autistic. Today she does not > > fit the autism dx. > > > > When I tell people about (and trust me I do ALL of the time) and that > > autism is really a disease process in our kids,this is what I have > > encountered: > > -Parents dont believe that its right to treat autism this way, they > believe > > in " neurodiversity " and autism is not a disease, its genetic. > > -they are so distrustful of the medical community so they wont see a dr > > without the name DAN stamped on them or they are endorsed by > Mccarthy > > -they believe its heavy metals/and or metabolic origin and not the immune > > system > > -or they say " thats nice " and they dont want to do what it takes to get > > their kid better > > -I have also had people be SO disrespectful and arguementative and put Dr. > > G down because of rumors they had heard. one person even accused me of > > " spying " and lying about my daughter and that Dr. G " plants " people on > lists > > to talk about . I am not kidding. > > > > I am SO discouraged. I want kids to get better but my efforts are > > fruitless. I thought if people saw with their own eyes that my daughter is > > better they would listen to me, but they dont. > > > > I would love to hear from others what they have done. I figure I dont care > > who says wait about . I got my daughter back!!!!! > > And even if I help one person all that persecution is worth it. > > > > - > > > > > > > > > > Hello all, yes I accidentally posted this note to the site, but the > > message to all would have been the same. Dr. Goldberg says he needs parent > > support and if anyone?is interested in getting the word out it would be > > greatly appreciated. I am just another parent who is willing to do > whatever > > it takes to help DR. Goldberg finally cure our kids of this illness that > is, > > most definitely, an epidemic! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2009 Report Share Posted June 29, 2009 Thanks for the great info ! Dr. Goldberg just checked his IGG levels, so I will wait and see what the results show. Gayle Re: Re: efforts on behalf of Dr. Goldberg > > > , > Do you mind my asking how old your daughter is? My son is 4 1/2 and is what > I would call higher moderate but not mild and we have been with Dr. G over a > year. We are so discouraged because he is not talking spontaneously and has > no interest in his peers and we have done everything we can think of to > facilitate both areas. We are not giving up on Dr. G but it is so helpful to > hear success stories to affirm that we are on the right track. > I too encourage every one about the NIDs protocol and even got three > families to fly cross country to give it a try. They have all given up on > Dr. G by the way . But since our son is not coming out of the autism dx like > we had hoped it is hard to convince folks. > Martha > > On Wed, Jun 24, 2009 at 10:59 AM, <jlhank80@... > <mailto:jlhank80%40> > wrote: > > > > > > > I am so glad someone brought this up, I have wanted to for sometime now. > My > > daughter is not a patient of Dr. G but a pt. of Dr and the NNY > > clinic. But my daughter appears to be recovering from autism, but still > > delayed. She no longer stims, plays with others, doesnt tantrum, etc. > Before > > less than a year ago she was moderately autistic. Today she does not > > fit the autism dx. > > > > When I tell people about (and trust me I do ALL of the time) and that > > autism is really a disease process in our kids,this is what I have > > encountered: > > -Parents dont believe that its right to treat autism this way, they > believe > > in " neurodiversity " and autism is not a disease, its genetic. > > -they are so distrustful of the medical community so they wont see a dr > > without the name DAN stamped on them or they are endorsed by > Mccarthy > > -they believe its heavy metals/and or metabolic origin and not the immune > > system > > -or they say " thats nice " and they dont want to do what it takes to get > > their kid better > > -I have also had people be SO disrespectful and arguementative and put Dr. > > G down because of rumors they had heard. one person even accused me of > > " spying " and lying about my daughter and that Dr. G " plants " people on > lists > > to talk about . I am not kidding. > > > > I am SO discouraged. I want kids to get better but my efforts are > > fruitless. I thought if people saw with their own eyes that my daughter is > > better they would listen to me, but they dont. > > > > I would love to hear from others what they have done. I figure I dont care > > who says wait about . I got my daughter back!!!!! > > And even if I help one person all that persecution is worth it. > > > > - > > > > > > > > > > Hello all, yes I accidentally posted this note to the site, but the > > message to all would have been the same. Dr. Goldberg says he needs parent > > support and if anyone?is interested in getting the word out it would be > > greatly appreciated. I am just another parent who is willing to do > whatever > > it takes to help DR. Goldberg finally cure our kids of this illness that > is, > > most definitely, an epidemic! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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