Re: For Martha about Speech and Social Skills

[Guest guest]

Martha,

Have you seen any improvements in your son that aren't related to speech? Or

has he been stagnant for awhile. I must say my daughter's speech is still

abnormal (reversing pronouns/syntax irregularity) but her interaction, behavior,

communication, eye contact, social skills are much much better. I would say in

a normal range for a 3 year old even though she just turned 4.

My point is, if your child isn't getting better in any area, and its been

awhile, something needs to be done. A big sign for me that we need to do

something else was that my daughter was still stimming a lot. And she was

unhappy and totally unreasonable to deal with. Thankfully that is gone now.

-

>

> Martha,

>

> I think it is great that you tried to help these other families. You can

> lead them to water but you can't make them drink. You have to be stubborn

> and never give up. Most people are looking for that magic pill that will

> instantly cure their child. I'm here to tell you there is no magic fix. I

> know because I looked everywhere for it. Even if you could wave a magic

> wand and make our kids bodies better, it takes years to develop speech and

> social skills.

>

>

>

> Think about " normal " kids and how long it takes to develop real

> conversational speech. At least three years. Think about when you were

> learning Spanish or French in school, how long did it take for you to learn

> to speak? And didn't you understand what was being said before you could

> speak?

>

>

>

> Remember our kids lack the signs that give us the reinforcement to keep

> talking to them because we assume they are not understanding because they

> don't look at us. But they are learning. The hardest thing to do was to

> keep talking to a kid who did not respond. Just keep working at it. Your

> son may not show you he is learning but I guarantee he is.

>

>

>

> The social is the last to come. My son 20 and recovered did not have true

> friendships I didn't facilitate until last year when he went off to college.

> Now he is leaving to meet a bunch of kids for a surf weekend and traveling

> up North for a birthday celebration for one of his college buddies. Just

> don't give up on them and don't assume they are not understanding what you

> say when they act like they don't.

>

> Marcia

>

>

>

> Martha said:

>

> ,

> Do you mind my asking how old your daughter is? My son is 4 1/2 and is what

> I would call higher moderate but not mild and we have been with Dr. G over a

> year. We are so discouraged because he is not talking spontaneously and has

> no interest in his peers and we have done everything we can think of to

> facilitate both areas. We are not giving up on Dr. G but it is so helpful

> to

> hear success stories to affirm that we are on the right track.

> I too encourage every one about the NIDs protocol and even got three

> families to fly cross country to give it a try. They have all given up on

> Dr. G by the way . But since our son is not coming out of the autism dx like

> we had hoped it is hard to convince folks.

> Martha

>

>

>

>

>

>

[Guest guest]

,

Yes we have made progress with eye contact and a little bit in speech but

not like we had expected or hoped. The stimming behaviors have actually

worsened in the last month with a recurrence of some we haven't seen in over

9 months. Because the gap widens the older he gets he seems actually more

autistic now when compared to typical peers.

We just had a phone consult and are making some changes with medicines. Dr.

Goldberg tells us not to worry about forcing the playdates and that it will

come in time. I am not sure I totally agree, though.

Your counsel is good. I think we are on the right track. Only time will tell

for sure though.

Martha

On Fri, Jun 26, 2009 at 1:42 PM, <jlhank80@...> wrote:

>

>

> Martha,

>

> Have you seen any improvements in your son that aren't related to speech?

> Or has he been stagnant for awhile. I must say my daughter's speech is still

> abnormal (reversing pronouns/syntax irregularity) but her interaction,

> behavior, communication, eye contact, social skills are much much better. I

> would say in a normal range for a 3 year old even though she just turned 4.

>

> My point is, if your child isn't getting better in any area, and its been

> awhile, something needs to be done. A big sign for me that we need to do

> something else was that my daughter was still stimming a lot. And she was

> unhappy and totally unreasonable to deal with. Thankfully that is gone now.

>

> -

>

>

>

> >

> > Martha,

> >

> > I think it is great that you tried to help these other families. You can

> > lead them to water but you can't make them drink. You have to be stubborn

> > and never give up. Most people are looking for that magic pill that will

> > instantly cure their child. I'm here to tell you there is no magic fix. I

> > know because I looked everywhere for it. Even if you could wave a magic

> > wand and make our kids bodies better, it takes years to develop speech

> and

> > social skills.

> >

> >

> >

> > Think about " normal " kids and how long it takes to develop real

> > conversational speech. At least three years. Think about when you were

> > learning Spanish or French in school, how long did it take for you to

> learn

> > to speak? And didn't you understand what was being said before you could

> > speak?

> >

> >

> >

> > Remember our kids lack the signs that give us the reinforcement to keep

> > talking to them because we assume they are not understanding because they

> > don't look at us. But they are learning. The hardest thing to do was to

> > keep talking to a kid who did not respond. Just keep working at it. Your

> > son may not show you he is learning but I guarantee he is.

> >

> >

> >

> > The social is the last to come. My son 20 and recovered did not have true

> > friendships I didn't facilitate until last year when he went off to

> college.

> > Now he is leaving to meet a bunch of kids for a surf weekend and

> traveling

> > up North for a birthday celebration for one of his college buddies. Just

> > don't give up on them and don't assume they are not understanding what

> you

> > say when they act like they don't.

> >

> > Marcia

> >

> >

> >

> > Martha said:

> >

> > ,

> > Do you mind my asking how old your daughter is? My son is 4 1/2 and is

> what

> > I would call higher moderate but not mild and we have been with Dr. G

> over a

> > year. We are so discouraged because he is not talking spontaneously and

> has

> > no interest in his peers and we have done everything we can think of to

> > facilitate both areas. We are not giving up on Dr. G but it is so helpful

> > to

> > hear success stories to affirm that we are on the right track.

> > I too encourage every one about the NIDs protocol and even got three

> > families to fly cross country to give it a try. They have all given up on

> > Dr. G by the way . But since our son is not coming out of the autism dx

> like

> > we had hoped it is hard to convince folks.

> > Martha

> >

> >

> >

> >

> >

> >

[Guest guest]

Marcia,

Thank you so much for the encouraging note. And believe me I will never

give up on this child. I can rest in the fact that I have done everything

within reason to help our son. I am still expecting recovery but just get

weary and frustrated that it is taking such a long time to see progress.

Your comments about language aquistion are particularly helpful. I hadn't

thought of it like that. I am encouraged to keep talking to him. And you are

right, he understands everything.

Thank you again, Marcia.

Martha

On Fri, Jun 26, 2009 at 1:23 PM, Marcia Hinds <hindssite@...> wrote:

>

>

> Martha,

>

> I think it is great that you tried to help these other families. You can

> lead them to water but you can't make them drink. You have to be stubborn

> and never give up. Most people are looking for that magic pill that will

> instantly cure their child. I'm here to tell you there is no magic fix. I

> know because I looked everywhere for it. Even if you could wave a magic

> wand and make our kids bodies better, it takes years to develop speech and

> social skills.

>

> Think about " normal " kids and how long it takes to develop real

> conversational speech. At least three years. Think about when you were

> learning Spanish or French in school, how long did it take for you to learn

> to speak? And didn't you understand what was being said before you could

> speak?

>

> Remember our kids lack the signs that give us the reinforcement to keep

> talking to them because we assume they are not understanding because they

> don't look at us. But they are learning. The hardest thing to do was to

> keep talking to a kid who did not respond. Just keep working at it. Your

> son may not show you he is learning but I guarantee he is.

>

> The social is the last to come. My son 20 and recovered did not have true

> friendships I didn't facilitate until last year when he went off to

> college.

> Now he is leaving to meet a bunch of kids for a surf weekend and traveling

> up North for a birthday celebration for one of his college buddies. Just

> don't give up on them and don't assume they are not understanding what you

> say when they act like they don't.

>

> Marcia

>

> Martha said:

>

> ,

> Do you mind my asking how old your daughter is? My son is 4 1/2 and is what

> I would call higher moderate but not mild and we have been with Dr. G over

> a

> year. We are so discouraged because he is not talking spontaneously and has

> no interest in his peers and we have done everything we can think of to

> facilitate both areas. We are not giving up on Dr. G but it is so helpful

> to

> hear success stories to affirm that we are on the right track.

> I too encourage every one about the NIDs protocol and even got three

> families to fly cross country to give it a try. They have all given up on

> Dr. G by the way . But since our son is not coming out of the autism dx

> like

> we had hoped it is hard to convince folks.

> Martha

>

>

[Guest guest]

What do you hink helped with your daughters stimming?

We are doing biomed 2 years my son still only has approx 10 words not used in

contex. Visual stims every chance he gets, we have done valtrex chelation, hbot,

mb12 ,diet tons supplements . We have just started imunivor with plan to start

famvir .I fel so depressed at the moment i feel he will never make progress.

caroline

[Guest guest]

Just because you have been doing biomed does not necessarily mean you have been

targeting your son's specific issues in the right way(s). Not all DAN doctors

know what they are doing. Don't give up and don't bounce from one thing to

another. Find a doctor (or team) you feel really good about and stick with that

until your son gets better.

Many (all?) stims are from a 'racing' brain and it could be that all those

interventions have created too much activity in his brain.

Kristy

Sent from my Verizon Wireless BlackBerry

Re: For Martha about Speech and Social Skills

What do you hink helped with your daughters stimming?

We are doing biomed 2 years my son still only has approx 10 words not used in

contex. Visual stims every chance he gets, we have done valtrex chelation, hbot,

mb12 ,diet tons supplements . We have just started imunivor with plan to start

famvir .I fel so depressed at the moment i feel he will never make progress.

caroline