Re: Re: How often do kids recover when following the protocol?

[Guest guest]

I know this is confusing. Maybe what I am asking is how many children get

better enough so they can be successful in school and in life like other

typical children. I want to know how many of the children that have been on

the protocol can live independent lives and are happy when they grow

up.

For me the meaning of recovered is being able to be independent in life,

happy, successful in school, be able to find a job (not be an expense to

this country) and be a confident person.

Thanks,

JR

From: [mailto: ] On Behalf Of

thefamily007

Sent: Saturday, July 11, 2009 2:14 PM

Subject: Re: How often do kids recover when following the

protocol?

I don't think there's a definitive answer to this question, , since

recovery is an ongoing process and often takes place over many years. Marcia

Hinds' son is 20, and she says that the " final pieces " have only fallen into

place in the last couple of years. He started with Dr. G when he was 7 years

old.

Parents of recovered patients tend to drop off these message boards as their

lives " normalize, " so they are generally not here to answer our questions

about recovery. I know that as my son improves and moves up (and hopefully,

off!) the spectrum, I find myself with less to worry about, and posting here

less and less often.

I was not in attendance at the conference yesterday, but I understand that

Dr. G brought in several of his " recovered " patients. I wish I could have

been there to talk directly with them!

Donna

>

>

> Hi all,

>

> I think I have a question that is being asked many times, but I have never

read a firm answer to it.

>

>

>

> How often do kids recover when following the protocol?

>

>

>

> Is this something anybody has ever ask Dr. Goldberg? Does he have this

kind of statistics?

>

>

>

> Maybe we can create a database in this group to keep track of

children's recoveries.

>

>

>

> What do you think?

>

>

>

> JR

>

>

>

[Guest guest]

Hi, Donna.

Greg and I and the three boys were there yesterday as " works in progress " and

evidence of the familial connection with this disease process. Greg and I both

have high HHV6 and EBV. In addition, I have a couple of autoimmune diseases.

I was wonderful to talk to and Marcia and the other recovered young adults.

To hear Marcia describle as a child and to speak with him now as an adult

was nothing short of miraculous. These young people were poised, articulate and

very forthright about where they were then and where they are now.

It was awesome and gave us so much hope. We know we're on the right path.

Robyn

From: thefamily007 <donnaaron@...>

Subject: Re: How often do kids recover when following the protocol?

Date: Saturday, July 11, 2009, 12:13 PM

I don't think there's a definitive answer to this question, , since

recovery is an ongoing process and often takes place over many years. Marcia

Hinds' son is 20, and she says that the " final pieces " have only fallen into

place in the last couple of years. He started with Dr. G when he was 7 years

old.

Parents of recovered patients tend to drop off these message boards as their

lives " normalize, " so they are generally not here to answer our questions about

recovery. I know that as my son improves and moves up (and hopefully, off!) the

spectrum, I find myself with less to worry about, and posting here less and less

often.

I was not in attendance at the conference yesterday, but I understand that Dr. G

brought in several of his " recovered " patients. I wish I could have been there

to talk directly with them!

Donna

>

>

> Hi all,

>

> I think I have a question that is being asked many times, but I have never

read a firm answer to it.

>

>

>

> How often do kids recover when following the protocol?

>

>

>

> Is this something anybody has ever ask Dr. Goldberg? Does he have this kind

of statistics?

>

>

>

> Maybe we can create a database in this group to keep track of children's

recoveries.

>

>

>

> What do you think?

>

>

>

> JR

>

>

>

[Guest guest]

Leaving feelings aside in the end it is the science only which will

provide the basis for peer acceptance and

action leading to individualised and appropriate intervention for our

children. Parents continue to move ahead of a medical world generally too slow

(with the exception of the few) to respond to the explosion in

neurodevelopment difficulties currently afflicting children.

In a message dated 15/07/2009 21:34:41 GMT Daylight Time,

elyse-g@... writes:

Dr. Goldberg only presented 3 children at the conference because it was

basicaly a last minute idea. I was blasted on another list for tying to

explain inate immunity, so I told him it didn't matter how much science he

presented because they wouldn't believe him anyway. But if the kids answered

the

questions what could they say? There are recovered children all over the

country leading normal productive lives. I do believe the USAAA is selling

the DVD. This is real recovery education, social, driving real life!

Elyse Goldberg

>

> I too would love to know the answer to this. I have only heard of three

> recovered kids. Surely there are more.

> Anxious to hear feedback.

> Martha

>

> On Tue, Jul 7, 2009 at 2:04 PM, <jrodrig6605@jro>wrote:

>

> >

> >

> >

> > Hi all,

> >

> > I think I have a question that is being asked many times, but I have

never

> > read a firm answer to it.

> >

> > How often do kids recover when following the protocol?

> >

> > Is this something anybody has ever ask Dr. Goldberg? Does he have this

kind

> > of statistics?

> >

> > Maybe we can create a database in this group to keep track of

> > children's recoveries.

> >

> > What do you think?

> >

> > JR

> >

> > [Non-text portions of this message have been removed]

> >

> >

> >

>

>

> [Non-text portions of this message have been removed]

>

[Guest guest]

Hi Elyse-how can we get the dvd from the conference? I would love to see it as I

couldn't be there. I am happy for those who have recovered and it certainly

shows that there is hope for?recovery for our nids children. My son has been

following the nids protocol for a number of years. He also has been in excellent

school programs with speech, OT, socialization therapy, etc. He has made great

strides over the years, going from nonverbal and nonfunctional to conversing and

eye contact. He is a very visual thinker and a whiz with technical skills. He

can play the piano, reads music and loves to paint on canvas. He has not

completely recovered, however, and you can still see him as a high functioning

guy with autism. I would like to reach out to other parents on the list about

the fact that we still need to help Dr. Goldberg " cure " the rest of his nids

patients. We need to get to the next step-the immune modulator agents-to recover

the other patients Dr. Goldberg has worked so hard over the years to help. These

agents are the best hope we others have for a full recovery. How do we get the

attention of groups like Autism Speaks or the new Autism Science Foundation to

listen to Dr. Goldberg's message? Any ideas would be greatly appreciated.

Gayle

Re: How often do kids recover when following the protocol?

Dr. Goldberg only presented 3 children at the conference because it was basicaly

a last minute idea. I was blasted on another list for tying to explain inate

immunity, so I told him it didn't matter how much science he presented because

they wouldn't believe him anyway. But if the kids answered the questions what

could they say? There are recovered children all over the country leading normal

productive lives. I do believe the USAAA is selling the DVD. This is real

recovery education, social, driving real life!

Elyse Goldberg

>

> I too would love to know the answer to this. I have only heard of three

> recovered kids. Surely there are more.

> Anxious to hear feedback.

> Martha

>

> On Tue, Jul 7, 2009 at 2:04 PM, <jrodrig6605@...>wrote:

>

> >

> >

> >

> > Hi all,

> >

> > I think I have a question that is being asked many times, but I have never

> > read a firm answer to it.

> >

> > How often do kids recover when following the protocol?

> >

> > Is this something anybody has ever ask Dr. Goldberg? Does he have this kind

> > of statistics?

> >

> > Maybe we can create a database in this group to keep track of

> > children's recoveries.

> >

> > What do you think?

> >

> > JR

> >

> >