Guest guest Posted August 8, 2009 Report Share Posted August 8, 2009 Have you thought about the onset of puberty as one of the possible causes of your son's increased outbursts? I have a 10 year old and I can already tell things are slowly moving in that direction. Diet is also a huge thing with us. All three of my boys can be sent into a emotional tailspin with dietary infractions, especially my oldest who has Asperger's. I wasn't a stickler for the diet until I saw how his EOS would spike. HTH, Robyn From: jinyang061629 <yanglou@...> Subject: Re: Feeling discouraged over reggression and behavioral issues over the summer Date: Friday, August 7, 2009, 9:59 PM I have been in your shoes too. First, fifth grade and 6th grade was very hard for my son too, I remember he had a lot of incident in school, his teaches called me up all the time about fights in school: some one hit him, he hit some one. I remember all those F for his grade because he just does not remember do things. He often come home and tell me " you do not know how hard he had " . He was not happy, and not very well. I think in part, it is the age. (My daught now is going to 6 grade, this past year was not easy too, she is as NT as one can be) I remember around grade 7 (about 12), he all of suddent care a lot more about his grade, geting into a lot less trouble. So part of it, is the age thing. I know some of his friends who are not autistic, went through very rough 5th and 6 grade too. But as soon as they hit 12, things does getting a lot better, you will see it. But age aside, I had same issue with him as you do now. He just not functioning as well as I like. It is good that you ask the question earlier, and see if there are some thing else you can do. In fall of 2007, at a Boy scout camping trip, I saw was not able to communicate, and not able to work with others. Although we were making progress, but he was in 8th grade, there was not way he can be independent in 4 years in that spead. I can tell you I was very discouraged and desperate. Like others have said on the list before, we parents have to searching for the way to bring our kids out. sometimes, there are more then one way to do it. Jin > > > My son is 11 years old and been treating with Dr. Golderg since he was 3 > years old. (Although we have seen lots of improvement in his condition > he was completed non verbal when he went on his 1st visit to Dr. > Goldgerg) He progress seems to have leveled off over the past few years > and he seems never quite 100% and he has shown some major regression > this summer. Only wanting to watch DVDs playing the same parts over and > over. Lots of hitting and even some biting when he becomes upset and I > place him in time out. Time outs are what I ussually use although they > are not always sucessful but I do not know what else to try. > > Although his blood work is usually pretty good his allergies are often > up and I have to be honest in saying that I have never really kept my > son on the Diet strictly as he is a picky eater and mainly eats lots of > Carbs. Could his diet be that big of an issue? > > When I read all the sucess stories about other kids I think maybe I > should doing some other treatmetns along with Dr Goldberg's. I have > always considered ABA but Dr. Goldberg is so against it. Would ABA work > on my son who is 11 and how much and how long would he need it? My son > in a lifeskills class and will be in the 5th grade this year. I am > terrified about the idea of my son in a Junior High School setting. He > does attend social studies and then some large group classes with the > typical kids at school. > > Is anyone else in my same shoes are did everyone elses kids improve much > faster and more completely? I am trying to keep the faith but his > progress has become soooo slow. Any suggetions or ideas would be > greatly appreciated. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2009 Report Share Posted August 8, 2009 I agree with Robin, going through puberty is when we had to change all the meds-SSRI, antifungals, antivirals. SSRIs were a bigger factor. You have less control over their diet in high school because of the cafeteria choices. Even normal kids have to learn restraint and that you can't always eat everything that looks good . I saw a change around age 12 and by age 15 things really flip flopped. If you can keep up academically, the social strides are tremendous but you have to be " casually vigilant " because the meds that worked for years needed to be changed. Re: Feeling discouraged over reggression and behavioral issues over the summer Date: Friday, August 7, 2009, 9:59 PM I have been in your shoes too. First, fifth grade and 6th grade was very hard for my son too, I remember he had a lot of incident in school, his teaches called me up all the time about fights in school: some one hit him, he hit some one. I remember all those F for his grade because he just does not remember do things. He often come home and tell me " you do not know how hard he had " . He was not happy, and not very well. I think in part, it is the age. (My daught now is going to 6 grade, this past year was not easy too, she is as NT as one can be) I remember around grade 7 (about 12), he all of suddent care a lot more about his grade, geting into a lot less trouble. So part of it, is the age thing. I know some of his friends who are not autistic, went through very rough 5th and 6 grade too. But as soon as they hit 12, things does getting a lot better, you will see it. But age aside, I had same issue with him as you do now. He just not functioning as well as I like. It is good that you ask the question earlier, and see if there are some thing else you can do. In fall of 2007, at a Boy scout camping trip, I saw was not able to communicate, and not able to work with others. Although we were making progress, but he was in 8th grade, there was not way he can be independent in 4 years in that spead. I can tell you I was very discouraged and desperate. Like others have said on the list before, we parents have to searching for the way to bring our kids out. sometimes, there are more then one way to do it. Jin > > > My son is 11 years old and been treating with Dr. Golderg since he was 3 > years old. (Although we have seen lots of improvement in his condition > he was completed non verbal when he went on his 1st visit to Dr. > Goldgerg) He progress seems to have leveled off over the past few years > and he seems never quite 100% and he has shown some major regression > this summer. Only wanting to watch DVDs playing the same parts over and > over. Lots of hitting and even some biting when he becomes upset and I > place him in time out. Time outs are what I ussually use although they > are not always sucessful but I do not know what else to try. > > Although his blood work is usually pretty good his allergies are often > up and I have to be honest in saying that I have never really kept my > son on the Diet strictly as he is a picky eater and mainly eats lots of > Carbs. Could his diet be that big of an issue? > > When I read all the sucess stories about other kids I think maybe I > should doing some other treatmetns along with Dr Goldberg's. I have > always considered ABA but Dr. Goldberg is so against it. Would ABA work > on my son who is 11 and how much and how long would he need it? My son > in a lifeskills class and will be in the 5th grade this year. I am > terrified about the idea of my son in a Junior High School setting. He > does attend social studies and then some large group classes with the > typical kids at school. > > Is anyone else in my same shoes are did everyone elses kids improve much > faster and more completely? I am trying to keep the faith but his > progress has become soooo slow. Any suggetions or ideas would be > greatly appreciated. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2009 Report Share Posted August 8, 2009 Isn't it challenging enough to have a teen? Will we be able to just deal with that, or will we have to deal with , too? Our son is 7, on the protocol 3.5 years. Kristy Sent from my Verizon Wireless BlackBerry Re: Re: Feeling discouraged over reggression and behavioral issues over the summer I agree with Robin, going through puberty is when we had to change all the meds-SSRI, antifungals, antivirals. SSRIs were a bigger factor. You have less control over their diet in high school because of the cafeteria choices. Even normal kids have to learn restraint and that you can't always eat everything that looks good . I saw a change around age 12 and by age 15 things really flip flopped. If you can keep up academically, the social strides are tremendous but you have to be " casually vigilant " because the meds that worked for years needed to be changed. Re: Feeling discouraged over reggression and behavioral issues over the summer Date: Friday, August 7, 2009, 9:59 PM I have been in your shoes too. First, fifth grade and 6th grade was very hard for my son too, I remember he had a lot of incident in school, his teaches called me up all the time about fights in school: some one hit him, he hit some one. I remember all those F for his grade because he just does not remember do things. He often come home and tell me " you do not know how hard he had " . He was not happy, and not very well. I think in part, it is the age. (My daught now is going to 6 grade, this past year was not easy too, she is as NT as one can be) I remember around grade 7 (about 12), he all of suddent care a lot more about his grade, geting into a lot less trouble. So part of it, is the age thing. I know some of his friends who are not autistic, went through very rough 5th and 6 grade too. But as soon as they hit 12, things does getting a lot better, you will see it. But age aside, I had same issue with him as you do now. He just not functioning as well as I like. It is good that you ask the question earlier, and see if there are some thing else you can do. In fall of 2007, at a Boy scout camping trip, I saw was not able to communicate, and not able to work with others. Although we were making progress, but he was in 8th grade, there was not way he can be independent in 4 years in that spead. I can tell you I was very discouraged and desperate. Like others have said on the list before, we parents have to searching for the way to bring our kids out. sometimes, there are more then one way to do it. Jin > > > My son is 11 years old and been treating with Dr. Golderg since he was 3 > years old. (Although we have seen lots of improvement in his condition > he was completed non verbal when he went on his 1st visit to Dr. > Goldgerg) He progress seems to have leveled off over the past few years > and he seems never quite 100% and he has shown some major regression > this summer. Only wanting to watch DVDs playing the same parts over and > over. Lots of hitting and even some biting when he becomes upset and I > place him in time out. Time outs are what I ussually use although they > are not always sucessful but I do not know what else to try. > > Although his blood work is usually pretty good his allergies are often > up and I have to be honest in saying that I have never really kept my > son on the Diet strictly as he is a picky eater and mainly eats lots of > Carbs. Could his diet be that big of an issue? > > When I read all the sucess stories about other kids I think maybe I > should doing some other treatmetns along with Dr Goldberg's. I have > always considered ABA but Dr. Goldberg is so against it. Would ABA work > on my son who is 11 and how much and how long would he need it? My son > in a lifeskills class and will be in the 5th grade this year. I am > terrified about the idea of my son in a Junior High School setting. He > does attend social studies and then some large group classes with the > typical kids at school. > > Is anyone else in my same shoes are did everyone elses kids improve much > faster and more completely? I am trying to keep the faith but his > progress has become soooo slow. Any suggetions or ideas would be > greatly appreciated. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2009 Report Share Posted August 9, 2009 Well, every parent has " teenage issues " in some form You will always have to be casually vigilant according to because there is no cure. You are more managing a state and not curing it. The healthier the kid becomes, the " management " end becomes easier because the young adult is now more cognitively clear. They can also speak for themselves and tell you how they feel. Developmentally, success begets success too. You don't necessarily have more challenges than you have now just different ones Ann Re: Feeling discouraged over reggression and behavioral issues over the summer Date: Friday, August 7, 2009, 9:59 PM I have been in your shoes too. First, fifth grade and 6th grade was very hard for my son too, I remember he had a lot of incident in school, his teaches called me up all the time about fights in school: some one hit him, he hit some one. I remember all those F for his grade because he just does not remember do things. He often come home and tell me " you do not know how hard he had " . He was not happy, and not very well. I think in part, it is the age. (My daught now is going to 6 grade, this past year was not easy too, she is as NT as one can be) I remember around grade 7 (about 12), he all of suddent care a lot more about his grade, geting into a lot less trouble. So part of it, is the age thing. I know some of his friends who are not autistic, went through very rough 5th and 6 grade too. But as soon as they hit 12, things does getting a lot better, you will see it. But age aside, I had same issue with him as you do now. He just not functioning as well as I like. It is good that you ask the question earlier, and see if there are some thing else you can do. In fall of 2007, at a Boy scout camping trip, I saw was not able to communicate, and not able to work with others. Although we were making progress, but he was in 8th grade, there was not way he can be independent in 4 years in that spead. I can tell you I was very discouraged and desperate. Like others have said on the list before, we parents have to searching for the way to bring our kids out. sometimes, there are more then one way to do it. Jin > > > My son is 11 years old and been treating with Dr. Golderg since he was 3 > years old. (Although we have seen lots of improvement in his condition > he was completed non verbal when he went on his 1st visit to Dr. > Goldgerg) He progress seems to have leveled off over the past few years > and he seems never quite 100% and he has shown some major regression > this summer. Only wanting to watch DVDs playing the same parts over and > over. Lots of hitting and even some biting when he becomes upset and I > place him in time out. Time outs are what I ussually use although they > are not always sucessful but I do not know what else to try. > > Although his blood work is usually pretty good his allergies are often > up and I have to be honest in saying that I have never really kept my > son on the Diet strictly as he is a picky eater and mainly eats lots of > Carbs. Could his diet be that big of an issue? > > When I read all the sucess stories about other kids I think maybe I > should doing some other treatmetns along with Dr Goldberg's. I have > always considered ABA but Dr. Goldberg is so against it. Would ABA work > on my son who is 11 and how much and how long would he need it? My son > in a lifeskills class and will be in the 5th grade this year. I am > terrified about the idea of my son in a Junior High School setting. He > does attend social studies and then some large group classes with the > typical kids at school. > > Is anyone else in my same shoes are did everyone elses kids improve much > faster and more completely? I am trying to keep the faith but his > progress has become soooo slow. Any suggetions or ideas would be > greatly appreciated. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2009 Report Share Posted August 9, 2009 My oldest and youngest sons ask when they'll be " done " with the protocol. I've told them that it should get easier as their immune systems get healthier, but in all likelihood, this will be a lifelong, but manageable, illness. is less of a sprint and more of a marathon. It is no different than diabetes, high blood pressure, etc. It can't be cured, but it can be managed. All the best, Robyn From: jinyang061629 <yangloucomcast (DOT) net> Subject: Re: Feeling discouraged over reggression and behavioral issues over the summer groups (DOT) com Date: Friday, August 7, 2009, 9:59 PM I have been in your shoes too. First, fifth grade and 6th grade was very hard for my son too, I remember he had a lot of incident in school, his teaches called me up all the time about fights in school: some one hit him, he hit some one. I remember all those F for his grade because he just does not remember do things. He often come home and tell me " you do not know how hard he had " . He was not happy, and not very well. I think in part, it is the age. (My daught now is going to 6 grade, this past year was not easy too, she is as NT as one can be) I remember around grade 7 (about 12), he all of suddent care a lot more about his grade, geting into a lot less trouble. So part of it, is the age thing. I know some of his friends who are not autistic, went through very rough 5th and 6 grade too. But as soon as they hit 12, things does getting a lot better, you will see it. But age aside, I had same issue with him as you do now. He just not functioning as well as I like. It is good that you ask the question earlier, and see if there are some thing else you can do. In fall of 2007, at a Boy scout camping trip, I saw was not able to communicate, and not able to work with others. Although we were making progress, but he was in 8th grade, there was not way he can be independent in 4 years in that spead. I can tell you I was very discouraged and desperate. Like others have said on the list before, we parents have to searching for the way to bring our kids out. sometimes, there are more then one way to do it. Jin > > > My son is 11 years old and been treating with Dr. Golderg since he was 3 > years old. (Although we have seen lots of improvement in his condition > he was completed non verbal when he went on his 1st visit to Dr. > Goldgerg) He progress seems to have leveled off over the past few years > and he seems never quite 100% and he has shown some major regression > this summer. Only wanting to watch DVDs playing the same parts over and > over. Lots of hitting and even some biting when he becomes upset and I > place him in time out. Time outs are what I ussually use although they > are not always sucessful but I do not know what else to try. > > Although his blood work is usually pretty good his allergies are often > up and I have to be honest in saying that I have never really kept my > son on the Diet strictly as he is a picky eater and mainly eats lots of > Carbs. Could his diet be that big of an issue? > > When I read all the sucess stories about other kids I think maybe I > should doing some other treatmetns along with Dr Goldberg's. I have > always considered ABA but Dr. Goldberg is so against it. Would ABA work > on my son who is 11 and how much and how long would he need it? My son > in a lifeskills class and will be in the 5th grade this year. I am > terrified about the idea of my son in a Junior High School setting. He > does attend social studies and then some large group classes with the > typical kids at school. > > Is anyone else in my same shoes are did everyone elses kids improve much > faster and more completely? I am trying to keep the faith but his > progress has become soooo slow. Any suggetions or ideas would be > greatly appreciated. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2009 Report Share Posted August 9, 2009 Hi , Until a few days ago, I didn't believe my child had made significant gains in the last few years with Dr. G. She is doing well but she is a more " slow and steady " and I never saw the big jumps with med changes that others saw. I watched some old videos yesterday and the difference in her is night and day. It has really given me the boost I need to keep moving forward. This is not to say we haven't had setbacks but, overall, we are better than we were 1 and 2 years ago. Just because the gains aren't huge doesn't mean they aren't there. This summer has been completely unstructured and my kids are watching way more TV than they usually do. Maybe the change is affecting your son in this way. As for the diet, my child isn't affected in big, noticeable ways when she eats something wrong but it is cumulative and we may notice she's unbearable after a month of eating the offending food. Dr. G keeps telling us to get off GFCF and give her regular, processed to within an inch of it's life, white bread. We've tried a few times and after a month or two, she's affected. Every child is different but the biggest jump we ever saw was when we initially went GFCF. It was all my skeptical husband needed to be a believer and our homelife became so much better. Changing his diet will be hard but there is no downside. There aren't any side effects or long term effects. And maybe it won't change anything at all and you can go back to eating high carbs. But maybe it will make a difference. Good luck. And you are not the only parent completely terrified of middle school. My child will be starting 5th grade, too, and I've been having nightmares. Elaine > > > My son is 11 years old and been treating with Dr. Golderg since he was 3 > years old. (Although we have seen lots of improvement in his condition > he was completed non verbal when he went on his 1st visit to Dr. > Goldgerg) He progress seems to have leveled off over the past few years > and he seems never quite 100% and he has shown some major regression > this summer. Only wanting to watch DVDs playing the same parts over and > over. Lots of hitting and even some biting when he becomes upset and I > place him in time out. Time outs are what I ussually use although they > are not always sucessful but I do not know what else to try. > > Although his blood work is usually pretty good his allergies are often > up and I have to be honest in saying that I have never really kept my > son on the Diet strictly as he is a picky eater and mainly eats lots of > Carbs. Could his diet be that big of an issue? > > When I read all the sucess stories about other kids I think maybe I > should doing some other treatmetns along with Dr Goldberg's. I have > always considered ABA but Dr. Goldberg is so against it. Would ABA work > on my son who is 11 and how much and how long would he need it? My son > in a lifeskills class and will be in the 5th grade this year. I am > terrified about the idea of my son in a Junior High School setting. He > does attend social studies and then some large group classes with the > typical kids at school. > > Is anyone else in my same shoes are did everyone elses kids improve much > faster and more completely? I am trying to keep the faith but his > progress has become soooo slow. Any suggetions or ideas would be > greatly appreciated. > _________________________________________________________________ Get free photo software from Windows Live http://www.windowslive.com/online/photos?ocid=PID23393::T:WLMTAGL:ON:WL:en-US:SI\ _PH_software:082009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 Dr G has some hang ups I dont agree with. I think the right ABA program is great for the kids. I would just make sure it is not really robotic but taught in a more natural setting!!!! Re: Feeling discouraged over reggression and behavioral issues over the summer Where do you live? Interesting thing that it happened in the summertime when everything BLOOMS...I am thinking allergies!!!! - > > > My son is 11 years old and been treating with Dr. Golderg since he was 3 > years old. (Although we have seen lots of improvement in his condition > he was completed non verbal when he went on his 1st visit to Dr. > Goldgerg) He progress seems to have leveled off over the past few years > and he seems never quite 100% and he has shown some major regression > this summer. Only wanting to watch DVDs playing the same parts over and > over. Lots of hitting and even some biting when he becomes upset and I > place him in time out. Time outs are what I ussually use although they > are not always sucessful but I do not know what else to try. > > Although his blood work is usually pretty good his allergies are often > up and I have to be honest in saying that I have never really kept my > son on the Diet strictly as he is a picky eater and mainly eats lots of > Carbs. Could his diet be that big of an issue? > > When I read all the sucess stories about other kids I think maybe I > should doing some other treatmetns along with Dr Goldberg's. I have > always considered ABA but Dr. Goldberg is so against it. Would ABA work > on my son who is 11 and how much and how long would he need it? My son > in a lifeskills class and will be in the 5th grade this year. I am > terrified about the idea of my son in a Junior High School setting. He > does attend social studies and then some large group classes with the > typical kids at school. > > Is anyone else in my same shoes are did everyone elses kids improve much > faster and more completely? I am trying to keep the faith but his > progress has become soooo slow. Any suggetions or ideas would be > greatly appreciated. > Quote Link to comment Share on other sites More sharing options...
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