RE: Famvir,diflucan,SSRI & no gains!!?

[Guest guest]

What diet interventions have you done, if any?

Kristy

Sent from my Verizon Wireless BlackBerry

Famvir,diflucan,SSRI & no gains!!?

Dear group,

How long do most people wait on protocol to see improvements??? We've been

on this protocol for about 7mths with no gains at all!!! It's been nothing but

frustrating for us!

We started on famvir(7mths) & nizoral for about 1mth, then switched to

diflucan(almost 2mths) & recently started zoloft..we tried for almost a month,

it made my son worse! We then switched to celexa about 10 days now. There's no

positive on any of these drugs. My son is irritable most of the time, doesn't

want to do academics, doesn't want to play, doesn't want to go to

restaurants(it's been lots of screaming going out to eat) and his skin is

severly dry with lots of itching every morning. We've been watching the diet

very closely. So i'm not sure if the meds are not for my son in general???

We're very frustrated and wanted to hear if anyone had the same experience?

Appreciate your help!

God bless

[Guest guest]

Hi Kristy,

We're currently following the diet(no whole grain, less carb...)

Dr.G. also said to not serve any carb for dinner, so I give him veggies & meats

only.

He eats cornflakes or rice crispies & sausage for breakfast.  Once in a while we

do pancakes.  thank you for writing.

From: Kristy Nardini <knardini@...>

Subject: Re: Famvir,diflucan,SSRI & no gains!!?

Date: Sunday, August 30, 2009, 9:27 PM

 

What diet interventions have you done, if any?

Kristy

Sent from my Verizon Wireless BlackBerry

Famvir,diflucan, SSRI & no gains!!?

Dear group,

How long do most people wait on protocol to see improvements? ?? We've been

on this protocol for about 7mths with no gains at all!!! It's been nothing but

frustrating for us!

We started on famvir(7mths) & nizoral for about 1mth, then switched to

diflucan(almost 2mths) & recently started zoloft..we tried for almost a month,

it made my son worse! We then switched to celexa about 10 days now. There's no

positive on any of these drugs. My son is irritable most of the time, doesn't

want to do academics, doesn't want to play, doesn't want to go to restaurants(

it's been lots of screaming going out to eat) and his skin is severly dry with

lots of itching every morning. We've been watching the diet very closely. So i'm

not sure if the meds are not for my son in general??? We're very frustrated and

wanted to hear if anyone had the same experience? Appreciate your help!

God bless

[Guest guest]

My son has never been able to tolerate Diflucan in any form -- even

compounded. It always made him regress and get very fussy. If that is the

only

anti-fungal Dr. G has recommended, perhaps you could ask him to try

another. My son's EOS counts used to always rise with high yeast. We spent a

lot

of time with Dr. G focusing on the diet causing this and my son lost a lot

of weight during that period. Later, we saw a clear pattern of rising EOS

counts with yeast. However, this was after we stopped working with Dr. G

and began working with an immunologist.

My son also used to have very bad excema when he ate certain foods. One

of the worst was lamb for him, though I'm sure that would vary from person

to person. I get skin rashes from too much sugar, or when I eat wheat.

Gaylen

In a message dated 8/30/2009 10:49:45 P.M. Central Daylight Time,

bekeleelizabeth@... writes:

,

We get the diflucan(dye free) from a compounding pharmacy.

My son's skin looks terrible at this point. He always has the dark

circles under his eyes, somedays a little better & somedays worse. Lately his

face has been lightly discolored?? He's scratched his neck and arms so much,

he looks so unhealthy! I feel the meds are the problems??? just can't

tell which one?

Dr.G. had been focusing on my son's diet due to his EOS jump from 4-8(very

high) But I think it's environmental rather than food?? His lab tests

always show very low NK cells(~2.4) wbc is always low etc. So not so good!

Here're the foods my son eat currently: chicken, beef, lamb, turkey,

brocclie, cauliflower, potatoes, tomatoes, spinach, kale, collard green,

onion(sometimes) lettuce, celery, greenbeans, white bread(only for lunch

sandwich) cornflakes, rice crispies, pear, pot.chips,white rice(very limited),

salmon(sometimes)Here're the foods my son eat currently: chicken, beef, lamb

I appreciate your help .

From: <_thecolemans4@thecolema_

(mailto:thecolemans4@...) >

Subject: Re: Famvir,diflucan,Subje & no gains!!?

_@..._ (mailto: )

Date: Sunday, August 30, 2009, 11:00 PM

With the dry skin and itching, it makes me wonder if you may be on the

diflucan w/the pink dye or the generic with the very faint pink tint ... those

make my son extremely irritable and also affects his skin.

It's pretty unusual to not be seeing gains by this point. That's why so

many comments questioning diet. Would you mind posting your current foods?

There are, though, occasionally children that take longer to respond ...

but you do usually see something. Any diet or environmental allergy issues

can set kids back and mask improvements.

Problems with the SSRIs are common, and various trials are necessary, and

it's a lot harder on a few kids, but it is an important med for several

reasons, so we try hard to find the right ones. But getting there can

sometimes wreck your world for a while.

Hope you can find an answer soon. How does your child 'look'? Do you see

dark circles under the eyes? What kinds of lab results in that initial

work-up? Just trying to get a 'feel' for what your child's pattern is like.

____________ _________ _________ __

From: bekeleelizabeth <bekeleelizabeth>

groups (DOT) com

Sent: Sunday, August 30, 2009 8:07:19 PM

Subject: Famvir,diflucan, SSRI & no gains!!?

Dear group,

How long do most people wait on protocol to see improvements? ??

We've been on this protocol for about 7mths with no gains at all!!! It's been

nothing but frustrating for us!

We started on famvir(7mths) & nizoral for about 1mth, then switched to

diflucan(almost 2mths) & recently started zoloft..we tried for almost a month,

it made my son worse! We then switched to celexa about 10 days now.

There's no positive on any of these drugs. My son is irritable most of the

time,

doesn't want to do academics, doesn't want to play, doesn't want to go to

restaurants( it's been lots of screaming going out to eat) and his skin is

severly dry with lots of itching every morning. We've been watching the diet

very closely. So i'm not sure if the meds are not for my son in general???

We're very frustrated and wanted to hear if anyone had the same

experience? Appreciate your help!

God bless

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Guest guest]

Cornflakes, rice crispies and sausage all have preservatives and/or nitrites

(unless you serve the kinds from health food stores that don't, but those

cereals are usually whole-grain and/or organic), which really set my son

off. We only buy meat that is hormone & antibiotic free.my little guy is

very sensitive to any kind of additives. I wonder if your son is the same?

He also cannot have any food coloring/dyes.

This list recently had some discussion about environmental allergies. Maybe

your son is affected by those?

Just some thoughts.

Kristy

From: [mailto: ] On Behalf Of

Bekele

Sent: Sunday, August 30, 2009 6:53 PM

Subject: Re: Famvir,diflucan,SSRI & no gains!!?

Hi Kristy,

We're currently following the diet(no whole grain, less carb...)

Dr.G. also said to not serve any carb for dinner, so I give him veggies &

meats only.

He eats cornflakes or rice crispies & sausage for breakfast. Once in a

while we do pancakes. thank you for writing.

From: Kristy Nardini <knardini@...

<mailto:knardini%40roadrunner.com> >

Subject: Re: Famvir,diflucan,SSRI & no gains!!?

<mailto:%40>

Date: Sunday, August 30, 2009, 9:27 PM

What diet interventions have you done, if any?

Kristy

Sent from my Verizon Wireless BlackBerry

Famvir,diflucan, SSRI & no gains!!?

Dear group,

How long do most people wait on protocol to see improvements? ?? We've

been on this protocol for about 7mths with no gains at all!!! It's been

nothing but frustrating for us!

We started on famvir(7mths) & nizoral for about 1mth, then switched to

diflucan(almost 2mths) & recently started zoloft..we tried for almost a

month, it made my son worse! We then switched to celexa about 10 days now.

There's no positive on any of these drugs. My son is irritable most of the

time, doesn't want to do academics, doesn't want to play, doesn't want to go

to restaurants( it's been lots of screaming going out to eat) and his skin

is severly dry with lots of itching every morning. We've been watching the

diet very closely. So i'm not sure if the meds are not for my son in

general??? We're very frustrated and wanted to hear if anyone had the same

experience? Appreciate your help!

God bless

[Guest guest]

With the dry skin and itching, it makes me wonder if you may be on the diflucan

w/the pink dye or the generic with the very faint pink tint ... those make my

son extremely irritable and also affects his skin.

It's pretty unusual to not be seeing gains by this point.  That's why so many

comments questioning diet.  Would you mind posting your current foods?  There

are, though, occasionally children that take longer to respond ... but you do

usually see something.  Any diet or environmental allergy issues can set kids

back and mask improvements. 

Problems with the SSRIs are common, and various trials are necessary, and it's a

lot harder on a few kids, but it is an important med for several reasons, so we

try hard to find the right ones.  But getting there can sometimes wreck your

world for a while.

Hope you can find an answer soon.  How does your child 'look'?  Do you see dark

circles under the eyes?  What kinds of lab results in that initial work-up? 

Just trying to get a 'feel' for what your child's pattern is like.

________________________________

From: bekeleelizabeth <bekeleelizabeth@...>

Sent: Sunday, August 30, 2009 8:07:19 PM

Subject: Famvir,diflucan,SSRI & no gains!!?

 

Dear group,

How long do most people wait on protocol to see improvements? ?? We've been

on this protocol for about 7mths with no gains at all!!! It's been nothing but

frustrating for us!

We started on famvir(7mths) & nizoral for about 1mth, then switched to

diflucan(almost 2mths) & recently started zoloft..we tried for almost a month,

it made my son worse! We then switched to celexa about 10 days now. There's no

positive on any of these drugs. My son is irritable most of the time, doesn't

want to do academics, doesn't want to play, doesn't want to go to restaurants(

it's been lots of screaming going out to eat) and his skin is severly dry with

lots of itching every morning. We've been watching the diet very closely. So i'm

not sure if the meds are not for my son in general??? We're very frustrated and

wanted to hear if anyone had the same experience? Appreciate your help!

God bless

[Guest guest]

Yeh...it's almost like what do i feed this child? I'm not happy giving him

kelloge's cornflakes, rice crispies which are the recomended brand by Dr.G.  The

sausages are preservative free, i get them from whole foods.  We've always been

additive free/dye free until we started .   It was explained to me that the

harm from high fructose corn syrup is much less than the whole grains or the

healthy cereals....

 

I do suspect especially the cornflakes, but we don't really have any other

choices.  Dr.G. doesn't want him to have breads in the morning.  My son is a big

eater, & trying to give him sausage only for morning is not enough at all.  I'll

have to come up with something...

 

yes, my son did have many environmental allergies on previous tests & I know he

still reacts during ragweed season.  We did do the p/n treatment when my son was

younger & it did help for the time. 

 

What do you give your son for breakfast, if you don't do the cereals?? 

Thank you so much for all your help & thoughts!

From: Kristy Nardini <knardini@roadrunner .com

<mailto:knardini% 40roadrunner. com> >

Subject: Re: Famvir,diflucan, SSRI & no gains!!?

groups (DOT) com <mailto:% 40groups. com>

Date: Sunday, August 30, 2009, 9:27 PM

What diet interventions have you done, if any?

Kristy

Sent from my Verizon Wireless BlackBerry

Famvir,diflucan, SSRI & no gains!!?

Dear group,

How long do most people wait on protocol to see improvements? ?? We've

been on this protocol for about 7mths with no gains at all!!! It's been

nothing but frustrating for us!

We started on famvir(7mths) & nizoral for about 1mth, then switched to

diflucan(almost 2mths) & recently started zoloft..we tried for almost a

month, it made my son worse! We then switched to celexa about 10 days now.

There's no positive on any of these drugs. My son is irritable most of the

time, doesn't want to do academics, doesn't want to play, doesn't want to go

to restaurants( it's been lots of screaming going out to eat) and his skin

is severly dry with lots of itching every morning. We've been watching the

diet very closely. So i'm not sure if the meds are not for my son in

general??? We're very frustrated and wanted to hear if anyone had the same

experience? Appreciate your help!

God bless

[Guest guest]

,

How does your son's lab tests look? Have Dr. Goldberg order a sedimentation

rate lab (inflammation level test) test for your son? How does the immune panel

results look? What about his viral titers?

The reason I ask is because your son only by you mentioning about his skin being

severely dry with lots of itching it looks like your son has ezcema. Ezcema is

cause by inflammation of the skin. The same inflammation that is affecting the

skin is most likely causing inflammation in his digestive system causing the

food allergies and of course affecting the brain.

I would ask Dr. Goldberg about using Ibuprofen or anything that can help relief

the inflammation. I know Dr. Goldberg is not opposed to low dose Ibuprofen if

it helps and it might help in your son's case.

Remember that was causes all these problems in our children is inflammation. To

get our children better we have to treat the root cause of the problem which you

are doing with the Famvir, Diflucan and the SSRIs, but it helps to find other

ways to force the inflammation down which the Ibuprofen will definitely help

with it.

I know many people always tell me about the dangers, but in my son's case and I

have told Dr. Goldberg many times it has been was has giving us the biggest

improvements.

http://en.wikipedia.org/wiki/Eczema

Eczema is a disease in a form of dermatitis,[2] or inflammation of the

epidermis.[3] The term eczema is broadly applied to a range of persistent skin

conditions. These include dryness and recurring skin rashes that are

characterized by one or more of these symptoms: redness, skin edema (swelling),

itching and dryness, crusting, flaking, blistering, cracking, oozing, or

bleeding.

Thanks,

JR

From: bekeleelizabeth@...

Date: Mon, 31 Aug 2009 01:07:19 +0000

Subject: Famvir,diflucan,SSRI & no gains!!?

Dear group,

How long do most people wait on protocol to see improvements??? We've been

on this protocol for about 7mths with no gains at all!!! It's been nothing but

frustrating for us!

We started on famvir(7mths) & nizoral for about 1mth, then switched to

diflucan(almost 2mths) & recently started zoloft..we tried for almost a month,

it made my son worse! We then switched to celexa about 10 days now. There's no

positive on any of these drugs. My son is irritable most of the time, doesn't

want to do academics, doesn't want to play, doesn't want to go to

restaurants(it's been lots of screaming going out to eat) and his skin is

severly dry with lots of itching every morning. We've been watching the diet

very closely. So i'm not sure if the meds are not for my son in general??? We're

very frustrated and wanted to hear if anyone had the same experience? Appreciate

your help!

God bless

[Guest guest]

,

We get the diflucan(dye free) from a compounding pharmacy. 

 

My son's skin looks terrible at this point.  He always has the dark circles

under his eyes, somedays a little better & somedays worse.  Lately his face has

been lightly discolored??  He's scratched his neck and arms so much, he looks so

unhealthy!  I feel the meds are the problems??? just can't tell which one?

 

Dr.G. had been focusing on my son's diet due to his EOS jump from 4-8(very

high)  But I think it's environmental rather than food??  His lab tests always

show very low NK cells(~2.4)  wbc is always low etc. So not so good!

 

Here're the foods my son eat currently: chicken, beef, lamb, turkey, brocclie,

cauliflower, potatoes, tomatoes, spinach, kale, collard green, onion(sometimes)

lettuce, celery, greenbeans, white bread(only for lunch sandwich) cornflakes,

rice crispies, pear, pot.chips,white rice(very limited), salmon(sometimes), goat

milk for cereals, goat yoghurt(once or twice a week)

 

I appreciate your help .

From: <thecolemans4@...>

Subject: Re: Famvir,diflucan,SSRI & no gains!!?

Date: Sunday, August 30, 2009, 11:00 PM

 

With the dry skin and itching, it makes me wonder if you may be on the diflucan

w/the pink dye or the generic with the very faint pink tint ... those make my

son extremely irritable and also affects his skin.

It's pretty unusual to not be seeing gains by this point.  That's why so many

comments questioning diet.  Would you mind posting your current foods?  There

are, though, occasionally children that take longer to respond ... but you do

usually see something.  Any diet or environmental allergy issues can set kids

back and mask improvements. 

Problems with the SSRIs are common, and various trials are necessary, and it's a

lot harder on a few kids, but it is an important med for several reasons, so we

try hard to find the right ones.  But getting there can sometimes wreck your

world for a while.

Hope you can find an answer soon.  How does your child 'look'?  Do you see dark

circles under the eyes?  What kinds of lab results in that initial work-up? 

Just trying to get a 'feel' for what your child's pattern is like.

____________ _________ _________ __

From: bekeleelizabeth <bekeleelizabeth>

groups (DOT) com

Sent: Sunday, August 30, 2009 8:07:19 PM

Subject: Famvir,diflucan, SSRI & no gains!!?

 

Dear group,

How long do most people wait on protocol to see improvements? ?? We've been

on this protocol for about 7mths with no gains at all!!! It's been nothing but

frustrating for us!

We started on famvir(7mths) & nizoral for about 1mth, then switched to

diflucan(almost 2mths) & recently started zoloft..we tried for almost a month,

it made my son worse! We then switched to celexa about 10 days now. There's no

positive on any of these drugs. My son is irritable most of the time, doesn't

want to do academics, doesn't want to play, doesn't want to go to restaurants(

it's been lots of screaming going out to eat) and his skin is severly dry with

lots of itching every morning. We've been watching the diet very closely. So i'm

not sure if the meds are not for my son in general??? We're very frustrated and

wanted to hear if anyone had the same experience? Appreciate your help!

God bless

[Guest guest]

Hi ,

When we started(January) Dr.G. ordered the sedimentation rate & it was very bad

(1) the range being 0-15.  He hasn't ordered it since then.  The last lab

result, which was at the end of July showed very low wbc(2.6) EOS was 4(which

was better than the month before, but still on the high)  His HSV1 was 1.81(very

high)   MCH was slightly high.  CMV when we started was very high(2.1)  I'm

missing one lab result after that & not sure if that went down.

 

Yes, my son has had eczema but during our DAN days it used to go and come & i

could never figure out what helped.  But since we started it just seems

different as far as the severity of the dryness & how itchy it has been.  I've

not seen it get better during these past 7 month.  We've avoided eggs, dairy for

a long time but like you said if the root cause is not attacked it doesn't

matter what we avoid, it'll persist.

 

I'll read about the ibuprofen therapy. i know very little about it.  I've read

your posts in the past about it.

 

Thank you so much for your time & help!

From: <jrodrig6605@...>

Subject: RE: Famvir,diflucan,SSRI & no gains!!?

nids

Date: Sunday, August 30, 2009, 11:23 PM

 

,

How does your son's lab tests look? Have Dr. Goldberg order a sedimentation rate

lab (inflammation level test) test for your son? How does the immune panel

results look? What about his viral titers?

The reason I ask is because your son only by you mentioning about his skin being

severely dry with lots of itching it looks like your son has ezcema. Ezcema is

cause by inflammation of the skin. The same inflammation that is affecting the

skin is most likely causing inflammation in his digestive system causing the

food allergies and of course affecting the brain.

I would ask Dr. Goldberg about using Ibuprofen or anything that can help relief

the inflammation. I know Dr. Goldberg is not opposed to low dose Ibuprofen if it

helps and it might help in your son's case.

Remember that was causes all these problems in our children is inflammation. To

get our children better we have to treat the root cause of the problem which you

are doing with the Famvir, Diflucan and the SSRIs, but it helps to find other

ways to force the inflammation down which the Ibuprofen will definitely help

with it.

I know many people always tell me about the dangers, but in my son's case and I

have told Dr. Goldberg many times it has been was has giving us the biggest

improvements.

http://en.wikipedia .org/wiki/ Eczema

Eczema is a disease in a form of dermatitis,[ 2] or inflammation of the

epidermis.[3] The term eczema is broadly applied to a range of persistent skin

conditions. These include dryness and recurring skin rashes that are

characterized by one or more of these symptoms: redness, skin edema (swelling),

itching and dryness, crusting, flaking, blistering, cracking, oozing, or

bleeding.

Thanks,

JR

groups (DOT) com

From: bekeleelizabeth

Date: Mon, 31 Aug 2009 01:07:19 +0000

Subject: Famvir,diflucan, SSRI & no gains!!?

Dear group,

How long do most people wait on protocol to see improvements? ?? We've been

on this protocol for about 7mths with no gains at all!!! It's been nothing but

frustrating for us!

We started on famvir(7mths) & nizoral for about 1mth, then switched to

diflucan(almost 2mths) & recently started zoloft..we tried for almost a month,

it made my son worse! We then switched to celexa about 10 days now. There's no

positive on any of these drugs. My son is irritable most of the time, doesn't

want to do academics, doesn't want to play, doesn't want to go to restaurants(

it's been lots of screaming going out to eat) and his skin is severly dry with

lots of itching every morning. We've been watching the diet very closely. So i'm

not sure if the meds are not for my son in general??? We're very frustrated and

wanted to hear if anyone had the same experience? Appreciate your help!

God bless

[Guest guest]

I just remembered that my son got very irritable a few weeks into Valtrex.

Dr. G switched him to Famvir for several months and he progressed.

Later, Dr. G went back to Valtrex and he was able to handle it well.

Gaylen

[Guest guest]

, I am so sorry about this! Please let me share my experience for you

and shed some light about what may be the possible issue. My daughter did have

some gains on Valtrex but after a few months on all of the drugs her behavior

went crazy. Her body started rejecting the drugs because she developed Multiple

Chemical Sensitivity where her body's immune system was being stimulated and

treating the drugs as if they were invaders. My daughter can't even handle

Advil its so bad right now. Isn't your son the one who benefited so well from

just the diet alone?

I do believe my daughter still has a viral problem, but I had to take her off of

EVERY drug now and work on cooling down her immune system with a treatment we

are doing (recommended by our doctor)

Your son may be sensitive to these drugs and thats why you are seeing no gains.

You are so incredibly patient. Please email me privately if you want to know

more! I wish you all the best. I am so sorry!

-

>

> Dear group,

> How long do most people wait on protocol to see improvements??? We've

been on this protocol for about 7mths with no gains at all!!! It's been nothing

but frustrating for us!

>

> We started on famvir(7mths) & nizoral for about 1mth, then switched to

diflucan(almost 2mths) & recently started zoloft..we tried for almost a month,

it made my son worse! We then switched to celexa about 10 days now. There's no

positive on any of these drugs. My son is irritable most of the time, doesn't

want to do academics, doesn't want to play, doesn't want to go to

restaurants(it's been lots of screaming going out to eat) and his skin is

severly dry with lots of itching every morning. We've been watching the diet

very closely. So i'm not sure if the meds are not for my son in general???

We're very frustrated and wanted to hear if anyone had the same experience?

Appreciate your help!

> God bless

>

>

[Guest guest]

Hi -

We've been on the protocol for 2 & 1/2 years now. We saw the biggest, most

immediate gains with the initial diet changes and with the addition of the SSRI,

4 months in. We saw very little from the antiviral and anti fungals, although

he still does take them. We also saw significant gains when he was on an

antibiotic, so Dr. G added that, as well (EryTab). We've added Immunovir this

spring, and saw additional (although more subtle) gains. 's immune numbers

are still not great, but the Immunovir, plus some more tightening of the carbs

in the diet has helped that along over the summer.

RE: SSRI, we started with Zoloft, which was fine. Then switched to Paxcil,

which was better, until we tried to push up the dose - he did not react well to

that. Now we're on Prozac, which has been the best so far. We also did try

Wellbutrin and Effexor, which were not good meds for (increase anxiety,

less verbal, MUCH more stimmy).

One thing for sure, he cannot have a dyed pill. Everything is white, and our

pharmacy has a standing note in his file to never substitute anything colored

(especially pink).

Hope this helps,

Alaine

[Guest guest]

Dear Group,

I really appreciate everyone's respond! It helps a lot to hear everyone's

experience. We were on nizoral for almost a month but that was bad for my son.

He lost a lot of weight(25%ile for his age) & refused to eat everything. As

soon as we stopped it & changed to diflucan, atleast his appetite came back.

He's still underweight but picked up a little bit.

I thank you all for the thoughts & support!

God bless

>

> Hi -

>

> We've been on the protocol for 2 & 1/2 years now. We saw the biggest, most

immediate gains with the initial diet changes and with the addition of the SSRI,

4 months in. We saw very little from the antiviral and anti fungals, although

he still does take them. We also saw significant gains when he was on an

antibiotic, so Dr. G added that, as well (EryTab). We've added Immunovir this

spring, and saw additional (although more subtle) gains. 's immune numbers

are still not great, but the Immunovir, plus some more tightening of the carbs

in the diet has helped that along over the summer.

>

> RE: SSRI, we started with Zoloft, which was fine. Then switched to Paxcil,

which was better, until we tried to push up the dose - he did not react well to

that. Now we're on Prozac, which has been the best so far. We also did try

Wellbutrin and Effexor, which were not good meds for (increase anxiety,

less verbal, MUCH more stimmy).

>

> One thing for sure, he cannot have a dyed pill. Everything is white, and our

pharmacy has a standing note in his file to never substitute anything colored

(especially pink).

>

> Hope this helps,

>

> Alaine

>

[Guest guest]

,

I haven't commented here for a very long time, but

wanted to give you a response. I have a 18 yr old

daughter who was on the protocal for 4 years. She no longer

has a diagnosis of PDD-NOS, but remains developmentally delayed. She didn't

start the protocal until she was 12 so we lost alot of valuable time..

From your post I have a couple suggestions. First I assume his Gluten titres

were OK or you wouldn't be on wheat at all. There is a rash associated with

dermatitis herpetiformis(Celiac)...I'd make sure of this first..If not this,

then the rash means something. My daughter became allergic to two meds(depakote

and celexa) after 5 years on them. She had a rash with red dots and very

itchy. We had to remove both drugs.

Second, she had low feritin, and improved greatly on iron. Four years into

protocal I talked to local doctor regarding her moderately low b-12. They had

her fast for another b-12 test. It then came back " low " . We treat with basic

b-12 shots. The difference in temperment was tremendous..................

Thirdly, You mentioned " God " so I'll tell you what made the most

difference. It was asking God to lead us in treatments... It took four years

both in and out of the protocal we found our answers. The kids are ALL

different and have different medical issues going on. Keeping knocking and

you'll find his answers.........

Lynn

>

> Dear group,

> How long do most people wait on protocol to see improvements??? We've

been on this protocol for about 7mths with no gains at all!!! It's been nothing

but frustrating for us!

>

> We started on famvir(7mths) & nizoral for about 1mth, then switched to

diflucan(almost 2mths) & recently started zoloft..we tried for almost a month,

it made my son worse! We then switched to celexa about 10 days now. There's no

positive on any of these drugs. My son is irritable most of the time, doesn't

want to do academics, doesn't want to play, doesn't want to go to

restaurants(it's been lots of screaming going out to eat) and his skin is

severly dry with lots of itching every morning. We've been watching the diet

very closely. So i'm not sure if the meds are not for my son in general???

We're very frustrated and wanted to hear if anyone had the same experience?

Appreciate your help!

> God bless

>

>

[Guest guest]

Amen to that!

From: lpukylo <puky@...>

Subject: Re: Famvir,diflucan,SSRI & no gains!!?

Date: Monday, August 31, 2009, 11:30 AM

 

,

I haven't commented here for a very long time, but

wanted to give you a response. I have a 18 yr old

daughter who was on the protocal for 4 years. She no longer

has a diagnosis of PDD-NOS, but remains developmentally delayed. She didn't

start the protocal until she was 12 so we lost alot of valuable time..

From your post I have a couple suggestions. First I assume his Gluten titres

were OK or you wouldn't be on wheat at all. There is a rash associated with

dermatitis herpetiformis( Celiac).. .I'd make sure of this first..If not this,

then the rash means something. My daughter became allergic to two meds(depakote

and celexa) after 5 years on them. She had a rash with red dots and very

itchy. We had to remove both drugs.

Second, she had low feritin, and improved greatly on iron. Four years into

protocal I talked to local doctor regarding her moderately low b-12. They had

her fast for another b-12 test. It then came back " low " . We treat with basic

b-12 shots. The difference in temperment was tremendous.. ......... .......

Thirdly, You mentioned " God " so I'll tell you what made the most

difference. It was asking God to lead us in treatments.. . It took four years

both in and out of the protocal we found our answers. The kids are ALL

different and have different medical issues going on. Keeping knocking and

you'll find his answers..... ....

Lynn

>

> Dear group,

> How long do most people wait on protocol to see improvements? ?? We've

been on this protocol for about 7mths with no gains at all!!! It's been nothing

but frustrating for us!

>

> We started on famvir(7mths) & nizoral for about 1mth, then switched to

diflucan(almost 2mths) & recently started zoloft..we tried for almost a month,

it made my son worse! We then switched to celexa about 10 days now. There's no

positive on any of these drugs. My son is irritable most of the time, doesn't

want to do academics, doesn't want to play, doesn't want to go to restaurants(

it's been lots of screaming going out to eat) and his skin is severly dry with

lots of itching every morning. We've been watching the diet very closely. So

i'm not sure if the meds are not for my son in general??? We're very frustrated

and wanted to hear if anyone had the same experience? Appreciate your help!

> God bless

>

>