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RE: Which states have the best services for kids with autism?

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I am in south Florida and it is awful here. I have been lied to at IEPs.

teachers and admin people have propagated incidents to support poor placement.

Teachers aids have give my son foods and treats for multiple years and have

denied it only to continue the process. The one positive school; experience I

have known was a friend in Mass outside of Boston.

Bill

From: jlhank80 <jlhank80@...>

Subject: Which states have the best services for kids with autism?

Date: Thursday, September 10, 2009, 10:38 AM

 

Hi listmates! I am wondering if anyone knows how I can find

out which states have the best services for kids with autism. We currently live

outside of Chicago, and IL is one of the worst places, I have heard (and

experienced! )

We are contemplating moving...we were looking at AZ for instance. and also the

east coast. Our daughter is doing great on the protocol but she needs some help

catching up to her peers!

Thanks in advance!

:)

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Hello Bill and -Florida also has the problem of a long wait list for

something very important when your child turns 21-the Medicaid Waiver. The

Medicaid Waiver is the source of funding for services at the adult level in

every state. New York is good as my son got on the waiver after only a few

months wait. California also has great services and I don't think there's a wait

list. There is a site called state of the states for disabilities. You might

want to check it out for more info.

Which states have the best services for kids with autism?

Date: Thursday, September 10, 2009, 10:38 AM

?

Hi listmates! I am wondering if anyone knows how I can find out which states

have the best services for kids with autism. We currently live outside of

Chicago, and IL is one of the worst places, I have heard (and experienced! )

We are contemplating moving...we were looking at AZ for instance. and also the

east coast. Our daughter is doing great on the protocol but she needs some help

catching up to her peers!

Thanks in advance!

:)

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We're in CA and the recent budget crisis and ensuing cuts mean most of the

services our kids got have been cut or removed all together ;-(

Kristy

From: [mailto: ] On Behalf Of

gvizjazz@...

Sent: Thursday, September 10, 2009 5:46 PM

Subject: Re: Which states have the best services for kids with

autism?

Hello Bill and -Florida also has the problem of a long wait list for

something very important when your child turns 21-the Medicaid Waiver. The

Medicaid Waiver is the source of funding for services at the adult level in

every state. New York is good as my son got on the waiver after only a few

months wait. California also has great services and I don't think there's a

wait list. There is a site called state of the states for disabilities. You

might want to check it out for more info.

Which states have the best services for kids with autism?

<mailto:%40>

Date: Thursday, September 10, 2009, 10:38 AM

?

Hi listmates! I am wondering if anyone knows how I can find out which states

have the best services for kids with autism. We currently live outside of

Chicago, and IL is one of the worst places, I have heard (and experienced! )

We are contemplating moving...we were looking at AZ for instance. and also

the east coast. Our daughter is doing great on the protocol but she needs

some help catching up to her peers!

Thanks in advance!

:)

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Share on other sites

I am in California, and we are still getting aides for our children and respite

from the Regional Center, but we have to fight for everything. Some school

districts are better than others and some Regional Centers are better than

others. Where you live in California can make all the difference.

 

Carol

From: jlhank80 <jlhank80 (DOT) com <mailto:jlhank80% 40> >

Subject: Which states have the best services for kids with autism?

groups (DOT) com <mailto:% 40groups. com>

Date: Thursday, September 10, 2009, 10:38 AM

?

Hi listmates! I am wondering if anyone knows how I can find out which states

have the best services for kids with autism. We currently live outside of

Chicago, and IL is one of the worst places, I have heard (and experienced! )

We are contemplating moving...we were looking at AZ for instance. and also

the east coast. Our daughter is doing great on the protocol but she needs

some help catching up to her peers!

Thanks in advance!

:)

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Share on other sites

Kristy-That's awful! Here in New York we also have a budget crisis that has

affected adult services. My son's first adult program was delayed opening by 6

months because of a budget freeze last year. The plans to build additional sites

for adult programs have been scrapped as well as plans for group homes. Some

adult programs have no openings with wait lists. The economic crisis has had a

negative impact on services all over the country. Does anyone know if there is a

wait list for the California Medicaid waiver?

Gayle

Which states have the best services for kids with autism?

<mailto:%40>

Date: Thursday, September 10, 2009, 10:38 AM

?

Hi listmates! I am wondering if anyone knows how I can find out which states

have the best services for kids with autism. We currently live outside of

Chicago, and IL is one of the worst places, I have heard (and experienced! )

We are contemplating moving...we were looking at AZ for instance. and also

the east coast. Our daughter is doing great on the protocol but she needs

some help catching up to her peers!

Thanks in advance!

:)

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The waiting list in Florida for mediaid mini waver was seven years in 2001. I do

not know how long it is now!

From: jlhank80 <jlhank80 (DOT) com <mailto:jlhank80% 40> >

Subject: Which states have the best services for kids with autism?

groups (DOT) com <mailto:% 40groups. com>

Date: Thursday, September 10, 2009, 10:38 AM

?

Hi listmates! I am wondering if anyone knows how I can find out which states

have the best services for kids with autism. We currently live outside of

Chicago, and IL is one of the worst places, I have heard (and experienced! )

We are contemplating moving...we were looking at AZ for instance. and also

the east coast. Our daughter is doing great on the protocol but she needs

some help catching up to her peers!

Thanks in advance!

:)

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Bill-WOW!!! The wait must be twice as long by 2009! This is indeed a crisis!?How

many years do you have before it will affect your child?

Which states have the best services for kids with autism?

groups (DOT) com <mailto:% 40groups. com>

Date: Thursday, September 10, 2009, 10:38 AM

?

Hi listmates! I am wondering if anyone knows how I can find out which states

have the best services for kids with autism. We currently live outside of

Chicago, and IL is one of the worst places, I have heard (and experienced! )

We are contemplating moving...we were looking at AZ for instance. and also

the east coast. Our daughter is doing great on the protocol but she needs

some help catching up to her peers!

Thanks in advance!

:)

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Share on other sites

Connor is 11. We got the mini waiver at 8 after  5yrs by being loud and

annoying. I used the short dollars for behavioral support but it took 2 years to

get an effective team in place. We  have spent summers and after school home

schooling on our own. This Summer I taught fractions, Reading comp and A program

from his speech teacher that enforced the w questions. For us it is all about

academics. I have him in general ed for the first time. He is behind grade level

but has been accepted into his primary classes. (They can't toss him he is

reading, writing calculating math through fractions and decimals) We have had

several incidents during the first three weeks but he is navigating the

schedule, doing home work one-on-one and getting by. School bus alone each way.

Aftercare next week.

This is a kid that has been in an EXCLUSION CLASS for six years. Never change

classrooms(year to year), same teacher and aids, same classmates. Yes it is

unbelievably hard on him and me but he is transitioning to the real world, One

of his six teachers had a son that was allergic to yellow die. I was in the IEP

when she told me. I asked how the allergy affected her son and she said it made

him violent and aggressive - FIRST TIME EVER I MEET AN EDUCATOR THAT HAD A CLUE.

WOW!!!

Going to be a tough couple of months but Connor is experiencing real kids in a

real world for the first time. I pray I can make it stick!!!!!

From: jlhank80 <jlhank80 (DOT) com <mailto:jlhank80% 40> >

Subject: Which states have the best services for kids with autism?

groups (DOT) com <mailto:% 40groups. com>

Date: Thursday, September 10, 2009, 10:38 AM

?

Hi listmates! I am wondering if anyone knows how I can find out which states

have the best services for kids with autism. We currently live outside of

Chicago, and IL is one of the worst places, I have heard (and experienced! )

We are contemplating moving...we were looking at AZ for instance. and also

the east coast. Our daughter is doing great on the protocol but she needs

some help catching up to her peers!

Thanks in advance!

:)

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Bill-That's fantastic!! He will probably do so well that he won't even need the

waiver by the time he turns 21! How did you set up the home academics? I always

like to hear how other parents are faring with home schooling. I am hoping to

keep his academics going at home forever!

Gayle

Which states have the best services for kids with autism?

groups (DOT) com <mailto:% 40groups. com>

Date: Thursday, September 10, 2009, 10:38 AM

?

Hi listmates! I am wondering if anyone knows how I can find out which states

have the best services for kids with autism. We currently live outside of

Chicago, and IL is one of the worst places, I have heard (and experienced! )

We are contemplating moving...we were looking at AZ for instance. and also

the east coast. Our daughter is doing great on the protocol but she needs

some help catching up to her peers!

Thanks in advance!

:)

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Share on other sites

I had them put a set of text books for home on the IEP. He and I went through

the review pages at the end of each chapter for early chapters his class is past

and if he new the work we went on. If he could not do the work we went back and

worked through the chapter. That worked for math. For language based work I

asked the speech teacher for the corrected work sheets for his language level.

We worked through the w, questions using diagrams, maps and picture pages until

he understood the system and the nature of the w questions. Now I am working

through lower elementary school reading work books from the teacher store (ABC

store). Science and history are difficult but he has been attracted to

experiments on the web. So I have started with low grade school experiments

related to his class work. magnets and such.

Bill

From: jlhank80 <jlhank80 (DOT) com <mailto:jlhank80% 40> >

Subject: Which states have the best services for kids with autism?

groups (DOT) com <mailto:% 40groups. com>

Date: Thursday, September 10, 2009, 10:38 AM

?

Hi listmates! I am wondering if anyone knows how I can find out which states

have the best services for kids with autism. We currently live outside of

Chicago, and IL is one of the worst places, I have heard (and experienced! )

We are contemplating moving...we were looking at AZ for instance. and also

the east coast. Our daughter is doing great on the protocol but she needs

some help catching up to her peers!

Thanks in advance!

:)

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Share on other sites

We, too, still get an aide (through the school district, not regional

center) and respite (through RC). My son's RDI program was cut, but we are

fighting with several other families to keep it.

Kristy

From: [mailto: ] On Behalf Of Carol

Acevedo

Sent: Thursday, September 10, 2009 9:24 PM

Subject: RE: Which states have the best services for kids with

autism?

I am in California, and we are still getting aides for our children and

respite from the Regional Center, but we have to fight for everything. Some

school districts are better than others and some Regional Centers are better

than others. Where you live in California can make all the difference.

Carol

From: jlhank80 <jlhank80 (DOT) com <mailto:jlhank80% 40> >

Subject: Which states have the best services for kids with autism?

groups (DOT) com <mailto:% 40groups. com>

Date: Thursday, September 10, 2009, 10:38 AM

?

Hi listmates! I am wondering if anyone knows how I can find out which states

have the best services for kids with autism. We currently live outside of

Chicago, and IL is one of the worst places, I have heard (and experienced! )

We are contemplating moving...we were looking at AZ for instance. and also

the east coast. Our daughter is doing great on the protocol but she needs

some help catching up to her peers!

Thanks in advance!

:)

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Share on other sites

I've heard over and over again that certain counties in NY are the best. Also,

Wisconsin has a good waiver, but it takes about a year to get on it, but then

cover 35+ hours of intensive ABA therapies from a private practice of your

choice are covered for several years.

>

> Hi listmates! I am wondering if anyone knows how I can find out which states

have the best services for kids with autism. We currently live outside of

Chicago, and IL is one of the worst places, I have heard (and experienced!)

> We are contemplating moving...we were looking at AZ for instance. and also

the east coast. Our daughter is doing great on the protocol but she needs some

help catching up to her peers!

>

> Thanks in advance!

> :)

>

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Share on other sites

Carol-Could you tell me where in California are the best services? Which

Regional Centers provide the?best access to services? Thanks!

Which states have the best services for kids with autism?

groups (DOT) com <mailto:% 40groups. com>

Date: Thursday, September 10, 2009, 10:38 AM

?

Hi listmates! I am wondering if anyone knows how I can find out which states

have the best services for kids with autism. We currently live outside of

Chicago, and IL is one of the worst places, I have heard (and experienced! )

We are contemplating moving...we were looking at AZ for instance. and also

the east coast. Our daughter is doing great on the protocol but she needs

some help catching up to her peers!

Thanks in advance!

:)

Link to comment
Share on other sites

I'm not Carol, but when we lived in South Lake Tahoe, we had ALTA for my

twins early intervention and it was incredible. Now we're in San Diego and I

LOVE our service coordinator, but they really don't have much to offer these

days except respite. We used to get an educational advocate but that was cut

recently. We are currently fighting to keep RDI.

Kristy

From: [mailto: ] On Behalf Of

gvizjazz@...

Sent: Sunday, September 20, 2009 1:01 PM

Subject: Re: Which states have the best services for kids with

autism?

Carol-Could you tell me where in California are the best services? Which

Regional Centers provide the?best access to services? Thanks!

Which states have the best services for kids with autism?

groups (DOT) com <mailto:% 40groups. com>

Date: Thursday, September 10, 2009, 10:38 AM

?

Hi listmates! I am wondering if anyone knows how I can find out which states

have the best services for kids with autism. We currently live outside of

Chicago, and IL is one of the worst places, I have heard (and experienced! )

We are contemplating moving...we were looking at AZ for instance. and also

the east coast. Our daughter is doing great on the protocol but she needs

some help catching up to her peers!

Thanks in advance!

:)

Link to comment
Share on other sites

Hi Kristy-How old are your twins? I really would like to ask someone on the

list what the services are like on the adult level. What day hab/supported

employment services are good and what do they offer adults on the spectrum?

Thanks for your help!

Gayle

Which states have the best services for kids with autism?

groups (DOT) com <mailto:% 40groups. com>

Date: Thursday, September 10, 2009, 10:38 AM

?

Hi listmates! I am wondering if anyone knows how I can find out which states

have the best services for kids with autism. We currently live outside of

Chicago, and IL is one of the worst places, I have heard (and experienced! )

We are contemplating moving...we were looking at AZ for instance. and also

the east coast. Our daughter is doing great on the protocol but she needs

some help catching up to her peers!

Thanks in advance!

:)

Link to comment
Share on other sites

They are 7.

Kristy

From: [mailto: ] On Behalf Of

gvizjazz@...

Sent: Sunday, September 20, 2009 4:33 PM

Subject: Re: Which states have the best services for kids with

autism?

Hi Kristy-How old are your twins? I really would like to ask someone on the

list what the services are like on the adult level. What day

hab/supported employment services are good and what do they offer adults on

the spectrum? Thanks for your help!

Gayle

Which states have the best services for kids with autism?

groups (DOT) com <mailto:% 40groups. com>

Date: Thursday, September 10, 2009, 10:38 AM

?

Hi listmates! I am wondering if anyone knows how I can find out which states

have the best services for kids with autism. We currently live outside of

Chicago, and IL is one of the worst places, I have heard (and experienced! )

We are contemplating moving...we were looking at AZ for instance. and also

the east coast. Our daughter is doing great on the protocol but she needs

some help catching up to her peers!

Thanks in advance!

:)

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Share on other sites

>

> From: jlhank80 <jlhank80 (DOT) com <mailto:jlhank80% 40> >

> Subject: Which states have the best services for kids with autism?

> groups (DOT) com <mailto:% 40groups. com>

> Date: Thursday, September 10, 2009, 10:38 AM

>

> ?

>

> Hi listmates! I am wondering if anyone knows how I can find out which states

> have the best services for kids with autism. We currently live outside of

> Chicago, and IL is one of the worst places, I have heard (and experienced! )

>

> We are contemplating moving...we were looking at AZ for instance. and also

> the east coast. Our daughter is doing great on the protocol but she needs

> some help catching up to her peers!

>

> Thanks in advance!

>

> :)

>

>

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