Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Hi, Just wanted to respond that our son is on the diet and we'll probably keep him on it as long as we can. He's only 27 months, and I know we'll face obstacles when he becomes school-age, but for us, the diet's worth it. In fact, the whole family is on it and our future children will probably be on it, too - at least when they're at home. It's just easier that way. We started Noah on the diet when he was 19 months. We took out gluten, casein, and soy. He started sleeping through the night (12 hours vs. the 6 he used to sleep). He came out of a fog (he used to wake up at 4:30 am and stare out the window until 3:00pm). He started making eye contact and he no longer acted like he was deaf. I'd say about 50% of his autistic traits improved. We still don't have language; we still don't have much receptive language; he still stims; he still spaces out at least once a day. But it was worth it. Infractions: if he has a little bit of soy, and we're talking a tiny spray of Pam to cook an egg, he'll be up for 3 days. Gluten will case his " midnight giggle sessions " to return, and he'll start crawling again and drag his head across the floor and space out for 4 days. We've had two casein infractions: one caused a 6 hour crying session and the other caused head butting the floor within 15 minutes and another long crying session. He's getting tested for yeast on Thursday and we're trying to restrict sugar. It's hard and it's unfair, but for us, it's worth it. Obviously, we're not having to deal with school issues yet - we're praying for some miracle cure before then! haha Best of luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Hi, Just wanted to respond that our son is on the diet and we'll probably keep him on it as long as we can. He's only 27 months, and I know we'll face obstacles when he becomes school-age, but for us, the diet's worth it. In fact, the whole family is on it and our future children will probably be on it, too - at least when they're at home. It's just easier that way. We started Noah on the diet when he was 19 months. We took out gluten, casein, and soy. He started sleeping through the night (12 hours vs. the 6 he used to sleep). He came out of a fog (he used to wake up at 4:30 am and stare out the window until 3:00pm). He started making eye contact and he no longer acted like he was deaf. I'd say about 50% of his autistic traits improved. We still don't have language; we still don't have much receptive language; he still stims; he still spaces out at least once a day. But it was worth it. Infractions: if he has a little bit of soy, and we're talking a tiny spray of Pam to cook an egg, he'll be up for 3 days. Gluten will case his " midnight giggle sessions " to return, and he'll start crawling again and drag his head across the floor and space out for 4 days. We've had two casein infractions: one caused a 6 hour crying session and the other caused head butting the floor within 15 minutes and another long crying session. He's getting tested for yeast on Thursday and we're trying to restrict sugar. It's hard and it's unfair, but for us, it's worth it. Obviously, we're not having to deal with school issues yet - we're praying for some miracle cure before then! haha Best of luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 We have been on this diet for over 4 years. Our improvement was dramatic (in play and language). We knew within a couple of weeks that it was working. We have taken it further and are also soy free and mostly corn free and dye free. Our son did have the yucky bowel movements prior to this diet. > Has anyone actually tried the gluten free/casein free diet which is supposed to be helpful for autism? Please share your experience. What results did you see? How long did it take to see them? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 Can someone please tell me how you would go about starting this kind of diet/change of eating? How do you do this with other children in the house without ADHD or AS or PDD? How long should it take to see a difference? Also does anyone use vitamins and supplements instead of prescription meds fron the doc? Sorry so many questions, but my AS/ADHD son Noah is almost 5 and on Adderall(20mg) and the side effects (sleeping issues, no appetite, tics etc...) are driving us NUTS!! Thanks for any and ALL advice! Sheri ( ) Re: GF/CF diet We have been on this diet for over 4 years. Our improvement was dramatic (in play and language). We knew within a couple of weeks that it was working. We have taken it further and are also soy free and mostly corn free and dye free. Our son did have the yucky bowel movements prior to this diet. > Has anyone actually tried the gluten free/casein free diet which is supposed to be helpful for autism? Please share your experience. What results did you see? How long did it take to see them? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 There is a tremendous support group at for this, and tons of internet sites as well. We downloaded a document that told us by product what was gluten and casein free and went shopping with it. Our home is gluten free because of contamination issues, and we keep dairy in the fridge in the form of cheese and 1/2-1/2. It took us 2 weeks. Most support groups will ask that you give it a month to three months of totally following it before throwing in the towel. A lot of times after people go back to gluten they see the difference and switch back to the diet again. For some people the changes are so subtle that it takes getting it again to see the glassy eyes and repetitive behaviors to come back in full force. We do not use prescription meds at this time. We do use vitamins, but the kids don't get it every day. We have liquid calcium we put in apple juice, and we get calcium fortified oj. We also eat a lot of dark lettuce and broccoli. I heard some really good results on kids with ADHD on this diet, especially if you also go dye free (red 40 causes my kids to run around like a chicken with its head cut off) and cut down the sugar (use fructose instead, in the form of raw honey if you can get it). > Can someone please tell me how you would go about starting this kind of diet/change of eating? How do you do this with other children in the house without ADHD or AS or PDD? How long should it take to see a difference? Also does anyone use vitamins and supplements instead of prescription meds fron the doc? Sorry so many questions, but my AS/ADHD son Noah is almost 5 and on Adderall (20mg) and the side effects (sleeping issues, no appetite, tics etc...) are driving us NUTS!! Thanks for any and ALL advice! Sheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 Hi, this diet sounds very interesting but I know I could never be consistant with it. Did anyone try it for at least 3 months and didn't see any results. If its all positive results maybe I will try it out. Is this diet expensive? do I have to do a lot of special cooking? would we see any weight changes? more/less/no weight changes? How hard was it for anyone who tried it? did the children like it and ate the same as before they started this diet? LJL <laura6307@...> wrote:There is a tremendous support group at for this, and tons of internet sites as well. We downloaded a document that told us by product what was gluten and casein free and went shopping with it. Our home is gluten free because of contamination issues, and we keep dairy in the fridge in the form of cheese and 1/2-1/2. It took us 2 weeks. Most support groups will ask that you give it a month to three months of totally following it before throwing in the towel. A lot of times after people go back to gluten they see the difference and switch back to the diet again. For some people the changes are so subtle that it takes getting it again to see the glassy eyes and repetitive behaviors to come back in full force. We do not use prescription meds at this time. We do use vitamins, but the kids don't get it every day. We have liquid calcium we put in apple juice, and we get calcium fortified oj. We also eat a lot of dark lettuce and broccoli. I heard some really good results on kids with ADHD on this diet, especially if you also go dye free (red 40 causes my kids to run around like a chicken with its head cut off) and cut down the sugar (use fructose instead, in the form of raw honey if you can get it). > Can someone please tell me how you would go about starting this kind of diet/change of eating? How do you do this with other children in the house without ADHD or AS or PDD? How long should it take to see a difference? Also does anyone use vitamins and supplements instead of prescription meds fron the doc? Sorry so many questions, but my AS/ADHD son Noah is almost 5 and on Adderall (20mg) and the side effects (sleeping issues, no appetite, tics etc...) are driving us NUTS!! Thanks for any and ALL advice! Sheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Sheri wrote: Sorry so many questions, but my AS/ADHD son Noah is almost 5 and on Adderall(20mg) and the side effects (sleeping issues, no appetite, tics etc. ..) are driving us NUTS!! Sheri, I would direct medication concerns with the MD who prescribed them and don;t settle on the side effects. My son has no problems with his meds. The beginning was trial and error. There should never be an adverse change in the child's behavior if the medication is appropriate. This should be with any medication for any medical reason unless you are told differently ( such as chemo). The diets are difficult to follow (for all family members), expensive and there are NO substitutes. We could not do it for all of the above reasons plus... At my DS age (12) he's on his own at school/Dad's house/ friends/ school dances with food choices. So... age is a big factor My DD has a friend that has severe peanut allergies and she brings her own birthday cake and snacks to the parties including school parties, bowling parties, etc... Her Mom will not allow sleep overs until she is sure the family understands and takes seriously her DD allergies and makes sure someone knows how to use an epipen. This child understand clearly the consequences if she doesn't follow her special diet. Your child will not have an immediate severe reaction so they may sneak; many adults will feel bad and give them the cakes, cookies, chips etc. that the other kids have. With the GF/CF diet it is my understanding that you would need to follow the same proto-call(bring your child's food) for it to work. Any slip-ups will be the reason why it didn't work. Anyone on " the boards " will tell you that. Good Luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 We have tried concerta, dexamphetamine, adderall, dexamphetamine xr and he is now on adderall xr. It has been an 8 month battle with trying all of these. The adderall works ok, but our pediatrician and his behavior psycologist both say there will always be side effects. I had to push for help from them since he was 2. We have seen LOTS of docs and etc. He takes 1 mg of clonadine to help with sleep. The Melatonin and Benadryl we tried first didn't even phase him. Even now it takes longer than the average 1 hr to get him to sleep on the clonadine. I am at my wits end. We also have such a problem with him obsessing over things. The psycologist said at the young age of almost 5 (oct.28th) it cannot be labeled " OC " it's just a " behavior issue. " I have no idea what to do! He will not take no for an answer. Right now it's pumpkins, he had the same obsession last year, we already have 80 or so! Does anyone have the same issues with obsessions at almost 5? Just the thought of putting him on another med or more than one at a time scares me! HELP!! Sheri Re: ( ) Re: GF/CF diet Sheri wrote: Sorry so many questions, but my AS/ADHD son Noah is almost 5 and on Adderall(20mg) and the side effects (sleeping issues, no appetite, tics etc. .) are driving us NUTS!! Sheri, I would direct medication concerns with the MD who prescribed them and don;t settle on the side effects. My son has no problems with his meds. The beginning was trial and error. There should never be an adverse change in the child's behavior if the medication is appropriate. This should be with any medication for any medical reason unless you are told differently ( such as chemo). The diets are difficult to follow (for all family members), expensive and there are NO substitutes. We could not do it for all of the above reasons plus... At my DS age (12) he's on his own at school/Dad's house/ friends/ school dances with food choices. So... age is a big factor My DD has a friend that has severe peanut allergies and she brings her own birthday cake and snacks to the parties including school parties, bowling parties, etc... Her Mom will not allow sleep overs until she is sure the family understands and takes seriously her DD allergies and makes sure someone knows how to use an epipen. This child understand clearly the consequences if she doesn't follow her special diet. Your child will not have an immediate severe reaction so they may sneak; many adults will feel bad and give them the cakes, cookies, chips etc. that the other kids have. With the GF/CF diet it is my understanding that you would need to follow the same proto-call(bring your child's food) for it to work. Any slip-ups will be the reason why it didn't work. Anyone on " the boards " will tell you that. Good Luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Hi , you also answered my questions too. I also thought that if I started this diet. " In school, at friends, and parties " , there would be lots of slips up, sneaking food, Yes, many adults will feel bad and give it to them anyway. just like when we say, I'm dieting to lose weight, a Friend would offer all the things you can't have. it won't work for us. But sounds great for the people that can and are doing the diet. Good Luck to Them. . <embroidery4@...> wrote: Sheri wrote: Sorry so many questions, but my AS/ADHD son Noah is almost 5 and on Adderall(20mg) and the side effects (sleeping issues, no appetite, tics etc. ..) are driving us NUTS!! Sheri, I would direct medication concerns with the MD who prescribed them and don;t settle on the side effects. My son has no problems with his meds. The beginning was trial and error. There should never be an adverse change in the child's behavior if the medication is appropriate. This should be with any medication for any medical reason unless you are told differently ( such as chemo). The diets are difficult to follow (for all family members), expensive and there are NO substitutes. We could not do it for all of the above reasons plus... At my DS age (12) he's on his own at school/Dad's house/ friends/ school dances with food choices. So... age is a big factor My DD has a friend that has severe peanut allergies and she brings her own birthday cake and snacks to the parties including school parties, bowling parties, etc... Her Mom will not allow sleep overs until she is sure the family understands and takes seriously her DD allergies and makes sure someone knows how to use an epipen. This child understand clearly the consequences if she doesn't follow her special diet. Your child will not have an immediate severe reaction so they may sneak; many adults will feel bad and give them the cakes, cookies, chips etc. that the other kids have. With the GF/CF diet it is my understanding that you would need to follow the same proto-call(bring your child's food) for it to work. Any slip-ups will be the reason why it didn't work. Anyone on " the boards " will tell you that. Good Luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 I would say the earlier the diet is started, the easier it is. It also depends on whether your child is apt to throw a food strike should you take away cheese and crackers. Many parents start the diet knowing that they are taking away the only foods their kids eat. I would say consistency is very important. This is not a diet to allow infractions on. When all is done, you want to know that you really, really tried it. There is a chance you will see no improvements. There is also a chance the improvements you notice are not enough to justify the diet. As far as how expensive, it can be very expensive. If you get sucked into all the convenient gluten/casein free products out there, you will find yourself shelling out a lot of money (a gluten free pizza crust can run you $5). If you stick to rice, vegetables, eggs, meat, nuts, and fruit, however, this diet is not expensive. I was lucky in that I started this diet at age 3, and that I had a child with no food sensory issues. We had no trouble with it, and he gained weight on it (however, he had diarrhea which is one of the signs of a gluten problem). My other children are also on this diet as we noticed improvements with their bowel movements, and my husband has celiac disease so the kids might have inherited it. > Hi, this diet sounds very interesting but I know I could never be consistant with it. Did anyone try it for at least 3 months and didn't see any results. If its all positive results maybe I will try it out. Is this diet expensive? do I have to do a lot of special cooking? would we see any weight changes? more/less/no weight changes? How hard was it for anyone who tried it? did the children like it and ate the same as before they started this diet? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 It is hard in that I constantly have to make sure I have the substitutes available. The boys are old enough to take charge of their own diet, thank goodness. My children were malnourished when they got gluten and had diarrhea and so take responsibility for what goes into their bodies now. They are ages 7 and 6. It is my 7 year old that is high functioning autistic. He says he gets foggy headed when he is glutened. He does not like the sensation. > Hi , > you also answered my questions too. I also thought that if I started this diet. " In school, at friends, and parties " , there would be lots of slips up, sneaking food, Yes, many adults will feel bad and give it to them anyway. just like when we say, I'm dieting to lose weight, a Friend would offer all the things you can't have. it won't work for us. But sounds great for the people that can and are doing the diet. Good Luck to Them. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Our son went from trains to rescue heroes to chess to baseball to Survivor to his current one of 'not being last'. He did get the OC diagnosis at Rainbow Babies this past summer. He is 7. year, we already have 80 or so! Does anyone have the same issues with obsessions at almost 5? Just the thought of putting him on another med or more than one at a time scares me! HELP!! Sheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 You can order a test kit from Great Plains Lab. Their website is http://www.greatplainslaboratory.com/home.htm If you go down the list you will see a test kit for gluten/casein peptide test. It's been several years since we did ours, but I believe we had to have our nutritionist sign off on the form that comes with the kit. We paid for the testing out of pocket, but I think it was only around $100. It's been a few years so the price may have changed. You don't pay anything when you order the test kit, you actually pay when you send your sample back in to be tested. Wendie > > Hi Everyone, > I have been doing some research on this diet. (9 years old) was > diagnosed with PDD,NOS 1 year ago. In doing the research, doesn't > have any of the symptoms that I read about. How do I know if this will > be beneficial to him, and where do I find a doctor who can tell me if > he is allergic? > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 You can order a test kit from Great Plains Lab. Their website is http://www.greatplainslaboratory.com/home.htm If you go down the list you will see a test kit for gluten/casein peptide test. It's been several years since we did ours, but I believe we had to have our nutritionist sign off on the form that comes with the kit. We paid for the testing out of pocket, but I think it was only around $100. It's been a few years so the price may have changed. You don't pay anything when you order the test kit, you actually pay when you send your sample back in to be tested. Wendie > > Hi Everyone, > I have been doing some research on this diet. (9 years old) was > diagnosed with PDD,NOS 1 year ago. In doing the research, doesn't > have any of the symptoms that I read about. How do I know if this will > be beneficial to him, and where do I find a doctor who can tell me if > he is allergic? > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 I put my son on this diet by myself because everything I read said trial is the best way to see. If you are concerned about getting enough nutrients to your child you can go to www.mypyramid.gov and set up an account. I teach nutrition and wellness and my mother in law is screaming at my husband that my child is not getting needed vitamins and minerals and I am going to make him retarded. I set up an account and input his foods every day. My husband came to me a few days ago because his mother got to him and he said the diet is working but we are not getting him all his nutrients. I said he is getting more than the RDA of ALL nutrients. He asked how? a quick log in and print out shut him right up - and his mother too. --- godsmercysaidno <godsmercysaidno@...> wrote: > Hi Everyone, > I have been doing some research on this diet. > (9 years old) was > diagnosed with PDD,NOS 1 year ago. In doing the > research, doesn't > have any of the symptoms that I read about. How do I > know if this will > be beneficial to him, and where do I find a doctor > who can tell me if > he is allergic? > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2007 Report Share Posted August 3, 2007 My 5 year old was on it strict for one year while her gut healed. She finally gained some weight and made huge progress in expressive language, socialization, and sensory issues. Then we started enzymes a few months ago and have partially left the diet. She can have moderate amounts of gluten with the enzymes but can only have occassional dairy with double the enzymes. Twice at school she missed a dose and ate non- gfcf foods and regressed severely. But with the enzymes and too much dairy she just loses her self control and gets very rude and demanding. Her teacher notes the huge difference. So after months of playing around with her diet we are sticking to partial gfcf. Jen > > Do any of you have your ASD children on this diet? How hard is it to > follow through with and what are some specifics that I should know > about. I've been hearing and reading a lot about it lately and I'm > wondering if it would be something worth while to try for my son! > > Jackie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2007 Report Share Posted August 3, 2007 THis is exactly what I was wondering if you could go PARTIAL!! My son (AS) is very rude and demanding and gets very angry. Granted that has improved with medication but there are still days that he is out of control. I'm just grasping for anything that can help to settle the imbalance in his body. He does have digestive problems in the fact that he is always constipated and has to take miralax to help with this. Did you go to a special doctor that helped you to find a happy medium with the foods and the enzymes? Jackie On Aug 3, 2007, at 4:31 PM, jennifer_thorson wrote: > My 5 year old was on it strict for one year while her gut healed. She > finally gained some weight and made huge progress in expressive > language, socialization, and sensory issues. Then we started enzymes a > few months ago and have partially left the diet. She can have moderate > amounts of gluten with the enzymes but can only have occassional dairy > with double the enzymes. Twice at school she missed a dose and ate > non- > gfcf foods and regressed severely. But with the enzymes and too much > dairy she just loses her self control and gets very rude and > demanding. Her teacher notes the huge difference. So after months of > playing around with her diet we are sticking to partial gfcf. > > Jen > > >> >> Do any of you have your ASD children on this diet? How hard is it to >> follow through with and what are some specifics that I should know >> about. I've been hearing and reading a lot about it lately and I'm >> wondering if it would be something worth while to try for my son! >> >> Jackie >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2007 Report Share Posted August 4, 2007 My daughter was also constipated and on Miralax for years. She was in the 5th percentile for weight and ate all the time. She mostly ate pizza, cheese, milk, bread, candy, etc. I read about the diet and thought it would be a cheaper route than other things I read about. I met with a DAN Dr. (Defeat Autism Now) for one session to go over the dietary changes and supplements recommended. I left with a ton of info and didn't go back (very pricey). My daughter's pediatrician did not think the diet worked but was impressed that she was no longer constipated and started to gain weight. She was eating a lot less than before but finally gained weight once she could digest everything. It is important to supplement for the vitamins and minerals missing in the diet. If there is real 'leaky' gut than healing the gut is the number one priority and should require time 100% gfcf. Then foods can be reindroduced with enzymes slowly over time. Jen > >> > >> Do any of you have your ASD children on this diet? How hard is it to > >> follow through with and what are some specifics that I should know > >> about. I've been hearing and reading a lot about it lately and I'm > >> wondering if it would be something worth while to try for my son! > >> > >> Jackie > >> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2007 Report Share Posted August 4, 2007 You'd really want to go strict (generally they say it takes 6-8 months minimum for everything to heal), then see how he reacts if you add back in products. If you won't go strict in the beginning, you won't know if you're getting the full benefits. There are LOTS of GFCF products out on the market these days, even at regular grocery stories. You will want to make some foods, and there is a series of books by The Gluten Free Gourmet that is pretty good (just be careful, some of them use dairy, so you'd have to substitute). If you go to the website for the Celiac organization (www.celiac.org) they have lots of information too. > >> > >> Do any of you have your ASD children on this diet? How hard is it to > >> follow through with and what are some specifics that I should know > >> about. I've been hearing and reading a lot about it lately and I'm > >> wondering if it would be something worth while to try for my son! > >> > >> Jackie > >> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2007 Report Share Posted August 4, 2007 I don't but I do hear that with some it helps and some it doesn't. There are so many contributing factors in life itself that it's hard to see what the diet vs. something else may be causing changes. It's wroth a try. I just know I wouldn't be able to follow through with it. I can't even do that with myself! <hunebear3@...> wrote: Do any of you have your ASD children on this diet? How hard is it to follow through with and what are some specifics that I should know about. I've been hearing and reading a lot about it lately and I'm wondering if it would be something worth while to try for my son!Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2007 Report Share Posted August 5, 2007 Hi Jackie My 8 year old Aspie son has been on the GF/CF diet on and off for the past couple of months. When he is on it i notice that he is less anixous,hyper and does seem to communicate better. Also, he has a very bad gas problem and that is the biggest thing i noticed when he is on the diet his gas goes away. The reason why i say on and off is because i was testing to see if it was the diet that was helping or if it was just that he was changing. I would recommend this diet to anyone who is looking for an alternative to what they are doing now. I am lucky that my son has no issues eating the new foods that he now has to eat. Good luck and email me if you have any questions. Essenfeld <lessen@...> wrote: I don't but I do hear that with some it helps and some it doesn't. There are so many contributing factors in life itself that it's hard to see what the diet vs. something else may be causing changes. It's wroth a try. I just know I wouldn't be able to follow through with it. I can't even do that with myself! <hunebear3comcast (DOT) net> wrote: Do any of you have your ASD children on this diet? How hard is it to follow through with and what are some specifics that I should know about. I've been hearing and reading a lot about it lately and I'm wondering if it would be something worth while to try for my son!Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2007 Report Share Posted August 5, 2007 , THanks so much! I am planning on discussing this with the developmental Ped tomorrow when we go 's appt. She is THE Autism Doctor in town and I " m sure that she will have great opinions either for or against this diet. I am willing to try anything just to see if I can get some results. We had another terrible meltdown on Friday WHILE I was driving and he was throwing stuff and hitting his sisters... all over stinkin webkins trading cards. He then continued to throw the fit for about 30 minutes once we got home. Once it was over he came out all happy and wanted to know who wanted to go ride their bikes! Like nothing had ever happened!! This is the behavior I am wanting to improve... but then again a simple med change could be the answer! We shall see tomorrow! Jackie On Aug 4, 2007, at 7:26 PM, wrote: > Hi Jackie > Â My 8 year old Aspie son has been on the GF/CF diet on and off for > the past couple of months. When he is on it i notice that he is less > anixous,hyper and does seem to communicate better. Also, he has a very > bad gas problem and that is the biggest thing i noticed when he is on > the diet his gas goes away. The reason why i say on and off is because > i was testing to see if it was the diet that was helping or if it was > just that he was changing. I would recommend this diet to anyone who > is looking for an alternative to what they are doing now. I am lucky > that my son has no issues eating the new foods that he now has to eat. > Good luck and email me if you have any questions. <01.gif> > > Essenfeld <lessen@...> wrote:I don't but I do hear > that with some it helps and some it doesn't. There are so many > contributing factors in life itself that it's hard to see what the > diet vs. something else may be causing changes. It's wroth a try. I > just know I wouldn't be able to follow through with it. I can't even > do that with myself! >> >> <hunebear3@...> wrote:Do any of you have >> your ASD children on this diet? How hard is it to >>> follow through with and what are some specifics that I should know >>> about. I've been hearing and reading a lot about it lately and I'm >>> wondering if it would be something worth while to try for my son! >>> >>> Jackie >>> >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2007 Report Share Posted August 7, 2007 Keep in mind that the pediatrician most likely will not recommend the diet. I have only found the DAN Drs. to approve. There are no double blind studies on the diet. At the same time you do not need permission from your doctor to change your child['s diet. Be ready to say you have done research and will get the missing nutrients from other sources (calcium in greens) or multi-vitamin until your child widens his diet. Jen Do any of you have > >> your ASD children on this diet? How hard is it to > >>> follow through with and what are some specifics that I should know > >>> about. I've been hearing and reading a lot about it lately and I'm > >>> wondering if it would be something worth while to try for my son! > >>> > >>> Jackie > >>> > >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2007 Report Share Posted August 8, 2007 Believe it or not.. the doctor didn't shoot the diet down. She did ask that if I was going to make the change to wait until we got the medicine regulated. Which I am fine with for the time being. She's (the doc) is trying to decide whether 's mood swings are caused by Bi-polar so she is trying to get his medicine adjusted correctly first. Jackie On Aug 7, 2007, at 3:18 PM, jennifer_thorson wrote: > Keep in mind that the pediatrician most likely will not recommend the > diet. I have only found the DAN Drs. to approve. There are no > double blind studies on the diet. At the same time you do not need > permission from your doctor to change your child['s diet. Be ready > to say you have done research and will get the missing nutrients from > other sources (calcium in greens) or multi-vitamin until your child > widens his diet. > > Jen > > Do any of you have >>>> your ASD children on this diet? How hard is it to >>>>> follow through with and what are some specifics that I should > know >>>>> about. I've been hearing and reading a lot about it lately and > I'm >>>>> wondering if it would be something worth while to try for my > son! >>>>> >>>>> Jackie >>>>> >>>> >>> >>> >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2007 Report Share Posted August 8, 2007 After the medications are stable, try the diet. Then you can see if the diet is causing improvements. Jen Do any of you have > >>>> your ASD children on this diet? How hard is it to > >>>>> follow through with and what are some specifics that I should > > know > >>>>> about. I've been hearing and reading a lot about it lately and > > I'm > >>>>> wondering if it would be something worth while to try for my > > son! > >>>>> > >>>>> Jackie > >>>>> > >>>> > >>> > >>> > >> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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