Re: What recovered from autism means?

[Guest guest]

JR-

I have seen that exact situation myself where people say their child is

recovered and they are not! I know a specific " rescue angel " from Generation

rescue who has been chelating her daughter for years(years!), and her daughter

still has learning disabilities and sensory issues, and more. Yet she is

considered recovered? By the way she was also doing the diet, antifungal,

antiviral, too. So which intervention was it???

These people are using loose terms for recovered if you ask me. Parents see

their child's symptoms improve but they are quick to say recovered.

In my opinion, it should be that your child can't be diagnosed with autism

anymore according to the DSM or you can take the ATEC and objectively score your

child's behaviors/symptoms and you can have a numerical figure of how severe

your child's symptoms are. For instance, when I took the ATEC in January, my

daughter scored a 50. In June she scored a 12. The Lower score is a better

one. I think using this checklist is a nice way to currently assess children as

they get better over time.

I think a better answer, too, is that there needs to be a diagnosis of autism

that is not dependent on an observance of behaviors. What if we could to a

SPECT scan or EEG? That way it is OBJECTIVE. That would be awesome!!! That is

what is missing, we have all of these parents around here saying " my kid

recovered " and frankly I would have to disagree with them.

I love these discussions! I am so obsessed about autism and I think there are

going to be some good things to come. I think that kids are going to get better

as people wake up and we can have discussions. I just wish the whole autism

community could be more united instead of vs. DAN.

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> Hi all,

> People everywhere talk about how different treatments can help children

recover from autism. I have even seen many people say that their children are

recovered. When I see their children and compared them to my son, my son is

doing much better and I don't consider my son recovered yet. So I'm confused...

I really want to know what " recovered " really means. I would really like people

to be able to measure improvements by using the same metrics " measuring stick " .

>

> For me the meaning of recovered is being able to be independent in life,

> happy, have friends, be successful in school, be able to find a job and keep

it(not be an expense to this country), be a confident person and most important

be 100% healthy.

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> In your opinion, what recovered means to you?

>

> JR

>

[Guest guest]

congrats on the great ATEC score. do you mind sharing what you did from

jan to june to get such a great improvement.Caroline

[Guest guest]

Caroline,

I think it was a combined cumulative effect of my daughter being on Valtrex,

Diflucan. Then we addressed her allergies with a relatively unknown treatment

called Provocation/Neutralization. We also eliminated foods that were

triggering her immune system, (Besides GF/CF) like nuts of any kind, certain

fruits, preservatives, colors, etc. Each child is different. We worked with

the doctor and they incorporated the care of a doctor of environmental

medicine along with (this was recommended by our doc as she was not

responding to antihistamines). The core thing is that we are cooling down the

immune system. That is our goal.

Each piece of the puzzle was very important for my daughter. By the way she has

not had any ABA in that whole time.

I dont want to bog you down with details but if you want to know more I am happy

to share what worked for my daughter

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> congrats on the great ATEC score. do you mind sharing what you did from

jan to june to get such a great improvement.Caroline

>

[Guest guest]

I cannot recommend this p/n treatment enough. My child is a different kid

today. It is used for ADHD but I think it will move more into our autism kids

as a treatment.

My child is so happy again (she was abnormally defiant), she sits still and her

stims are gone (although valtrex was a big one for her with her cognitive/social

growth, too) Her eye contact is amazing. She asks me questions (just starting

too...)

What kind of problems are you having? My child did not tolerate antihistamines,

though some kids do fine on them. My daughter had dark under eye circles, toe

walking, couldnt be potty trained, spacey, angry, tantrums, all of these things

you wouldnt think would be allergy but they were for my daughter. The P/N

treatment took care of her allergies without antihistamines (which are only one

cytokine in the inflammatory cascade anyway.)

Hope this helps!

> >

> > congrats on the great ATEC score. do you mind sharing what you did

from jan to june to get such a great improvement. Caroline

> >

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