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hello pat, WELCOME to this ra group..... i'm sincerly sorry for all ur health

problems.girl i thought i took tons of meds but i think i've been BEAT. good

luck to u sweetie. god bless,melynda gamez

[ ] Re: Supplements

Pat,

Welcome to the group. I am so sorry that you have had so many

problems.

Oh Honey, I read that list and wondered, " How on earth does she keep

up with it? " I don't think I could keep all of those meds striaght.

God Bless,

Shirley

--- In , pat shomion <pat_rose_city@...>

wrote:

>

> Hi-  My name is Pat and I live in Minnesota in the twincities.  I

have been lurking for quite awhile.   I love  reading each post so I

have them all deliverd.   I have had Arthritis since 86 and started

on anti imflamitory drugs til I could get to the specialist.   Back

then I was started out on Methotrexate pills.  I don't remeber  how

many or anything but do rember that when  the specialist I was

seeing left .  I asked My doctor for a refereal to another. 

>    I went to see this doctor he was older and I didn't feel

comfortable with what he was telling Me.  I remeber seeing him but

also remeber talking with his nurse and not being able to convice

the nurse I needed to see the doctor on the phone.  I rember not

trusting her to know what I needed and she telling Me the doctor did

not need to see Me. So I told My doctor and  I ended doing some

reasearch on where I could go.  The doctor I had before was good but

I would be seeing him out of My insurance coverage so I looked at

the other doctor in that office  and asked for a referral to him.  I

have been very pleased with his services thru the years I have been

seeing him since I went back to that office.  

>    I am on enbrel for My second time .  I was on it for 6 months a

number of years ago when I was on medicade for 6 months cause of the

amount of medical bills I was facing.  I was also off of it while

having pneumonia last fall and had to wait until I was well before

startring back on it.  I have had a very good experience with it and

hope it continues  It was good the first time I was on it and

continuesd to work and have had the best health I have had in awhile.

>    While on methoxrxate I had a number of Medical problems and was

on and off it for many years. and went from pills to injections but

could not afford to go on enbrel until medicare covered drugs and I

had additional finacial help from foundations which My doctor helped

Me find and get on. 

>   I have a number of Medical Problems  so My case tends to get

complicated .  I have rehemitoid psyorathic arthritis, gout, high

blood pressure, diabetes.   I also have lost hairfrom

Methotrexate  which is thin and baby fine to begin with.  I have had

a stroke and at one point had  congestive heart faliure and  had

very low hemaglobin  at least twice.   I have been in the hosital

for all these things as well as have been   in for 2 or 3 other

times  for infections that caused to My kidneys to shut down.

>    I will give you My entire list of Meds and vitamins that I take:

> ebrel50mg. SR CLK

> novolog 10units+sliding scale 2 times daily

> novolin 20 units 2 times daily

> asprin 325mg 1 daily

> amitriptylin 25mg 1 at bedtime

> carbamazepin (tegretol)200mg 2 daily

> lisinopril 20mg 1 daily   

> furosemide 40mg  1 daily

> metoprolol 50mg 1 daily

> allopurinol 300mg 1 daily

> keroconazole shampoo as needed

> indomrthacin 50mg up to 3 a day as needed for gout (not using

right now)

> prop-n/apap100/650pink qua 1 every 6 hours as needed for pain 

(not using right  now )

> nystatin powder as need up to 3 times daily

> fish oil 100mg 1 daily

> folic acid 400mcg 1 daily (even though not on methotrxate)

> cranberry triple strength concentrate w/c 1 daily

> b6 100mg 1 daily

> c 500mg 1 daily

> chromium picolinate 200mcg 2 daily

>  I know it a long list but It seems to work for Me.  I use to take

E but decided that fish oil was better and replaced it.

>         Thanks,

>  

>                               Pat

>

>

>

------------------------------------

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Shirley

Thanks for your reply back. I really appreciate it.

I am so blessed to have my two kids in my life. Everyone talks about what I have

taught my Braxton, but it is he who is the teacher..He walks, talks a bit,

dresses himself, uses the microwave, finally bathes himself, now if I can get

him to use toilet more :)

My hubby had a liver check and everything was good. His meld score (determines

the sickness of the liver) has improved. There has been no talk of transplant

and he goes in every 6 months for a work up.

With his Crohns, they said he would have to medically retire by age 30 and here

he is 58 and on same job for 38 years. God is so good.

As for the fish oil sticking together, I keep in fridge and seems to help.

Hope all of you are in good spirits.

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> >

> > Hi-  My name is Pat and I live in Minnesota in the

twincities.  I

> have been lurking for quite awhile.   I love  reading each

post so I

> have them all deliverd.   I have had Arthritis since 86 and started

> on anti imflamitory drugs til I could get to the specialist.   Back

> then I was started out on Methotrexate pills.  I don't remeber 

how

> many or anything but do rember that when  the specialist I was

> seeing left .  I asked My doctor for a refereal to another. 

> >    I went to see this doctor he was older and I didn't feel

> comfortable with what he was telling Me.  I remeber seeing him but

> also remeber talking with his nurse and not being able to

convice

> the nurse I needed to see the doctor on the phone.  I rember not

> trusting her to know what I needed and she telling Me the doctor did

> not need to see Me. So I told My doctor and  I ended doing

some

> reasearch on where I could go.  The doctor I had before was good

but

> I would be seeing him out of My insurance coverage so I looked at

> the other doctor in that office  and asked for a referral to

him.  I

> have been very pleased with his services thru the years I have been

> seeing him since I went back to that office.  

> >    I am on enbrel for My second time .  I was on it for 6

months a

> number of years ago when I was on medicade for 6 months cause of the

> amount of medical bills I was facing.  I was also off of it while

> having pneumonia last fall and had to wait until I was well before

> startring back on it.  I have had a very good experience with it

and

> hope it continues  It was good the first time I was on it and

> continuesd to work and have had the best health I have had in awhile.

> >    While on methoxrxate I had a number of Medical problems and

was

> on and off it for many years. and went from pills to injections but

> could not afford to go on enbrel until medicare covered drugs and I

> had additional finacial help from foundations which My doctor helped

> Me find and get on. 

> >   I have a number of Medical Problems  so My case tends to get

> complicated .  I have rehemitoid psyorathic arthritis, gout, high

> blood pressure, diabetes.   I also have lost hairfrom

> Methotrexate  which is thin and baby fine to begin with.  I have

had

> a stroke and at one point had  congestive heart faliure and  had

> very low hemaglobin  at least twice.   I have been in the

hosital

> for all these things as well as have been   in for 2 or 3 other

> times  for infections that caused to My kidneys to shut down.

> >    I will give you My entire list of Meds and vitamins that I

take:

> > ebrel50mg. SR CLK

> > novolog 10units+sliding scale 2 times daily

> > novolin 20 units 2 times daily

> > asprin 325mg 1 daily

> > amitriptylin 25mg 1 at bedtime

> > carbamazepin (tegretol)200mg 2 daily

> > lisinopril 20mg 1 daily   

> > furosemide 40mg  1 daily

> > metoprolol 50mg 1 daily

> > allopurinol 300mg 1 daily

> > keroconazole shampoo as needed

> > indomrthacin 50mg up to 3 a day as needed for gout (not using

> right now)

> > prop-n/apap100/650pink qua 1 every 6 hours as needed for pain 

> (not using right  now )

> > nystatin powder as need up to 3 times daily

> > fish oil 100mg 1 daily

> > folic acid 400mcg 1 daily (even though not on methotrxate)

> > cranberry triple strength concentrate w/c 1 daily

> > b6 100mg 1 daily

> > c 500mg 1 daily

> > chromium picolinate 200mcg 2 daily

> >  I know it a long list but It seems to work for Me.  I use to

take

> E but decided that fish oil was better and replaced it.

> >         Thanks,

> >  

> >                               Pat

> >

> >

> >

>

>

>

> ------------------------------------

>

>

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  • 7 months later...
Guest guest

We got the okay for fish oils and probiotics. You need to bring in the bottle

and show him what it is and why you want to give it. It has to be a clean

product that is high quality.

>

> He does suggest a few very sparingly and targeted to each specific child.

> He had my son on a protein supplement for awhile, as well as beneficial

> bacteria. While he strongly discourages most supplements, he was ok with a

> few that my son was already on when we started the program.

> Gaylen

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