TENEX

[Guest guest]

Hi All:

Does any one knows about TENEX? what is it used for? side effects?

Thanks

[Guest guest]

My 7 y.o. son, too, has been on Tenex for ~3 years for impulse control and

IT WORKS wonders for him. He missed a couple doses and was unbuckling

himself from his car seat to stick his head out the window on the freeway!

Yikes!

The only side effect we've experienced was when his dose was too high. He

was very whiny and tired.

I found out the hard way that young kids can actually tolerate a somewhat

high dose the morning I accidentally gave him 4 times his regular dose. I

freaked because it's a heart medication and rushed him to the ER, but he was

totally fine and actually had one of his best days ever. They told me that

some kids actually get that high of a dose on a regular basis.

Kristy

From: [mailto: ] On Behalf Of Robyn

& Greg Coggins

Sent: Tuesday, June 30, 2009 11:00 PM

Subject: Re: TENEX

Tenex (guanfacine) is an antihypertensive. It is commonly used to treat high

blood pressure, but has been approved to treat ADHD. It helps with

impulsivity and hyperactivity. My son has been on it for two years now and

it really helps.

HTH,

Robyn

p.s. Although there are listed side effects on RX List and WebMD, Noah

hasn't experienced anything major.

From: vanessagamarrac1 <vanessagamarrac1@...

<mailto:vanessagamarrac1%40> >

Subject: TENEX

<mailto:%40>

Date: Tuesday, June 30, 2009, 10:24 PM

Hi All:

Does any one knows about TENEX? what is it used for? side effects?

Thanks

[Guest guest]

My 9 year old son has been taking Tenex for nearly a year. ?It has really helped

with his hyperactive ?energy level - which we think is anxiety based. ?It has

definitely taken the edge off without making him groggy or foggy. ?We have not

experienced any noticeable side effects. ?We started on the Tenex after trying

several ?common stimulants without any positive effect, we had to work our way

through a few trials before our Dr. was willing to try the Tenex, It has been

only one of two meds. that have made a difference for our son.

Good Luck -

CR

TENEX

Hi All:

Does any one knows about TENEX? what is it used for? side effects?

Thanks

[Guest guest]

My son was on it for 1.5 years with no results. It made him tired so

we had to lower the morning dose.

Cheryl

~http://www.gryffins-tail.blogspot.com

~@midian42~

On Jun 30, 2009, at 10:24 PM, vanessagamarrac1 wrote:

>

>

> Hi All:

> Does any one knows about TENEX? what is it used for? side effects?

> Thanks

>

>

>

>

[Guest guest]

Do you think that as long that the kids get better they will suspend this

medicine?

Thanks for your info.

>

> From: vanessagamarrac1 <vanessagamarrac1@...

> <mailto:vanessagamarrac1%40> >

> Subject: TENEX

> <mailto:%40>

> Date: Tuesday, June 30, 2009, 10:24 PM

>

> Hi All:

>

> Does any one knows about TENEX? what is it used for? side effects?

>

> Thanks

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

My son had to stop Tenex because of the irritability. He was on it for

more than a year.

Gaylen

In a message dated 3/22/2010 12:41:12 A.M. Central Daylight Time,

neidhardtashley@... writes:

We started Tenex on my son. We started with 1/8 th tab twice per day then

increased to 1/4 tab per Dr G. is much more irritable. He seems fine

until we want him to do something. I want to know if this passes?

[Guest guest]

My son's were white pills. We always wash the dye off anyway.

In a message dated 3/22/2010 11:02:14 A.M. Central Daylight Time,

knardini@... writes:

Did you get the white or pink tabs? If your son is really sensitive, maybe

the red dye is the problem? Also, my son gets 1/2 tab in the am and 1/4 in

the pm.maybe your son needs less than 1/4 twice/day?

Kristy Nardini

TazziniTM Stainless Steel Bottles

www.tazzini.www.

_kristy@..._ (mailto:kristy@...)

Phone: 858.243.1929

Fax: 858.724.1418

P Please consider the environment before printing this email.

From: _@..._ (mailto: )

[mailto:_@..._ (mailto: ) ] On Behalf Of

_Googahly@..._ (mailto:Googahly@...)

Sent: Monday, March 22, 2010 7:47 AM

_@..._ (mailto: )

Subject: Re: Tenex

My son had to stop Tenex because of the irritability. He was on it for

more than a year.

Gaylen

In a message dated 3/22/2010 12:41:12 A.M. Central Daylight Time,

_neidhardtashley@neidhardt_ (mailto:neidhardtashley@...)

<mailto:neidhardtasmailto:neidhamai> writes:

We started Tenex on my son. We started with 1/8 th tab twice per day then

increased to 1/4 tab per Dr G. is much more irritable. He seems

fine

until we want him to do something. I want to know if this passes?

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Guest guest]

Terri,

Yes, Dr. Goldberg says it is an ³old trick² that pediatricians use sometimes

instead of using a stimulant.

He has one of my boys on it (it didn¹t seem to help the other one, but then

he wasn¹t hyper).

The son who is on it takes Tenex and a very small dose of Adderall.

The Tenex seems to help my son focus... but when we go too high in the

dosing, he gets grumpy... there¹s a fine balance in his dosing.

Caroline G.

From: Terri <andersonterri@...>

Reply-< >

Date: Tue, 23 Mar 2010 20:35:58 -0700 (PDT)

< >

Subject: Re: Re: Violence

One of my son's biggest challenges remains hyperactivity. 

When I hear about something that has helped hyperactivity~ I am very

interested! 

Is this part of Dr. G's protocol?

[Guest guest]

Just a thought,but if you get a homeopathic version in a low potency,it

seems to help with side effects,worked for us when using minocycline to

treat lymes,were afraid we would have to stop due to the violent headaches

but it did counteract these effects,worth a shot

On Wed, Mar 24, 2010 at 1:25 PM, Caroline Glover <sfglover@...> wrote:

>

>

> Terri,

>

> Yes, Dr. Goldberg says it is an ³old trick² that pediatricians use

> sometimes

> instead of using a stimulant.

>

> He has one of my boys on it (it didn¹t seem to help the other one, but then

> he wasn¹t hyper).

>

> The son who is on it takes Tenex and a very small dose of Adderall.

>

> The Tenex seems to help my son focus... but when we go too high in the

> dosing, he gets grumpy... there¹s a fine balance in his dosing.

>

> Caroline G.

>

> From: Terri <andersonterri@... <andersonterri%40ymail.com>>

> Reply-< <%40>>

> Date: Tue, 23 Mar 2010 20:35:58 -0700 (PDT)

> < <%40>>

> Subject: Re: Re: Violence

>

> One of my son's biggest challenges remains hyperactivity.

>

> When I hear about something that has helped hyperactivity~ I am very

> interested!

>

> Is this part of Dr. G's protocol?

>

>

>

[Guest guest]

Hey Caroline,

I'm getting interested in a tiny dose of Adderall for both of my boys, at least

for a trial.  I gave 1/4 of a caffeine tablet to my oldest in combo w/Tenex

recently and he had a much better day at school for 2 days in a row.  Then I

thought I'd try the tiny dose of caffeine on his brother too, and he said he

decided he'd pay attention at school today for his tests.  

I tend to be nervous about side effects of stimulants ... they make me climb the

walls, but I couldn't live w/out caffeine.

With a tiny dose, do you see rebounds after it wears off?  If you give it in

the morning, do you have afternoon crashes or irritability?  Does it interfere

w/sleep? (One already has sleep troubles from Effexor and there aren't many

things worth that lol.)

Thanks,

________________________________

From: Caroline Glover <sfglover@...>

Sent: Wed, March 24, 2010 8:25:01 AM

Subject: Re: Re: Tenex

 

Terri,

Yes, Dr. Goldberg says it is an ³old trick² that pediatricians use sometimes

instead of using a stimulant.

He has one of my boys on it (it didn¹t seem to help the other one, but then

he wasn¹t hyper).

The son who is on it takes Tenex and a very small dose of Adderall.

The Tenex seems to help my son focus... but when we go too high in the

dosing, he gets grumpy... there¹s a fine balance in his dosing.

Caroline G.

From: Terri <andersonterri@ ymail.com>

Reply-<groups (DOT) com>

Date: Tue, 23 Mar 2010 20:35:58 -0700 (PDT)

<groups (DOT) com>

Subject: Re: Re: Violence

One of my son's biggest challenges remains hyperactivity. 

When I hear about something that has helped hyperactivity~ I am very

interested! 

Is this part of Dr. G's protocol?

[Guest guest]

,

My son is about 51 pounds and here are his doses of Tenex and Adderall.

TENEX 1 mg tab- 1/2 am 1/4 pm

ADDERALL (5mg 1/2 am + 1/2 pm)

Since we¹re doing Adderall morning and night, I don¹t think he should crash.

He¹s pretty steady on it. The Tenex is what makes him irritable. Maybe if

we went higher on the Adderall he would be irritable, but that¹s as high as

Dr. G wants to go.

He falls asleep almost as soon as his head hits the pillow, so no problems

there.

Before Adderall, he was always hurting himself (by accident), running into

the corners of walls and chairs. His mind was just racing too fast. He

almost never does that anymore.

We recently increased his Tenex and I think he is grumpier but better

focused. I think we¹ll need to go back down... I don¹t want him to feel

unhappy.

We¹re preparing to start him on Immunovir, and I¹m praying it helps him like

it appears to have helped his brother. It¹s the biggest improvement we¹ve

seen in years. Improved levels of anxiety, decreased obsessions... and best

of all, I can see his sweet personality more. It¹s like it was being

overridden by the obsessions, etc.

HTH,

Caroline

[Guest guest]

Caroline,

I am curious to know how you knew to start adderall. I have been thinking of

asking Dr. G about this for months now but am just not sure if our son needs

it. He is 5 and has been with Dr. G for almost 2 years. We were hoping he

would be " recovered " by now, but we are headed to special ed next fall for

kindergarten. (Breaks my heart since I still see his potential and view

special ed as a place where he is likely to fall through the cracks because

he has no behavior problems)

Anyway . . . he is already on tenex and his spect scan revealed red all over

the frontal lobes and small/moderate amounts of green on the temporal lobes.

Dr. G says that our son will likely grow out of the autism diagnosis and

into ADD. His main issue is focus, language and lack of social skills

(however not at all averse to his peers).

When our son is focused he is " on " . . . but that is the trouble . . . he

is not consistently focused.

Thanks for your help.

Martha

On Wed, Mar 24, 2010 at 1:06 PM, Caroline Glover <sfglover@...> wrote:

>

>

> ,

>

> My son is about 51 pounds and here are his doses of Tenex and Adderall.

>

> TENEX 1 mg tab- 1/2 am 1/4 pm

>

> ADDERALL (5mg 1/2 am + 1/2 pm)

>

> Since we¹re doing Adderall morning and night, I don¹t think he should

> crash.

> He¹s pretty steady on it. The Tenex is what makes him irritable. Maybe if

> we went higher on the Adderall he would be irritable, but that¹s as high as

> Dr. G wants to go.

>

> He falls asleep almost as soon as his head hits the pillow, so no problems

> there.

>

> Before Adderall, he was always hurting himself (by accident), running into

> the corners of walls and chairs. His mind was just racing too fast. He

> almost never does that anymore.

>

> We recently increased his Tenex and I think he is grumpier but better

> focused. I think we¹ll need to go back down... I don¹t want him to feel

> unhappy.

>

> We¹re preparing to start him on Immunovir, and I¹m praying it helps him

> like

> it appears to have helped his brother. It¹s the biggest improvement we¹ve

> seen in years. Improved levels of anxiety, decreased obsessions... and best

> of all, I can see his sweet personality more. It¹s like it was being

> overridden by the obsessions, etc.

>

> HTH,

> Caroline

>

>

[Guest guest]

Thank you.

Twice now my son came home from school saying his brain was working much better

- from the Tenex and caffeine.  He does not seem to be ADD, but I guess he must

be...

________________________________

From: Caroline Glover <sfglover@...>

Sent: Wed, March 24, 2010 1:06:06 PM

Subject: Re: Re: Tenex

 

,

My son is about 51 pounds and here are his doses of Tenex and Adderall.

TENEX 1 mg tab- 1/2 am 1/4 pm

ADDERALL (5mg 1/2 am + 1/2 pm)

Since we¹re doing Adderall morning and night, I don¹t think he should crash.

He¹s pretty steady on it. The Tenex is what makes him irritable. Maybe if

we went higher on the Adderall he would be irritable, but that¹s as high as

Dr. G wants to go.

He falls asleep almost as soon as his head hits the pillow, so no problems

there.

Before Adderall, he was always hurting himself (by accident), running into

the corners of walls and chairs. His mind was just racing too fast. He

almost never does that anymore.

We recently increased his Tenex and I think he is grumpier but better

focused. I think we¹ll need to go back down... I don¹t want him to feel

unhappy.

We¹re preparing to start him on Immunovir, and I¹m praying it helps him like

it appears to have helped his brother. It¹s the biggest improvement we¹ve

seen in years. Improved levels of anxiety, decreased obsessions.. . and best

of all, I can see his sweet personality more. It¹s like it was being

overridden by the obsessions, etc.

HTH,

Caroline

[Guest guest]

Martha,

My son started K with the exact same challenges as your son, yet he was fully

included in a typical classroom. I'm so grateful for it, too! I had read " You're

Going to Love This Kid " about inclusion and took it to the IEP preparing for K.

The principal told me " We NEVER provide an aide " (which I knew was bull because

my friend had just finished her daughter's IEP before mine and told me they got

an aide), so I felt strong and pulled out " You're going to... " and read the

paragraph that says, " The law says... " and it goes on to explain that our kids

are entitled to the least restrictive environment with the proper supports so

they can be successful. The school psych didn’t even let me finish reading the

paragraph and said he would get an aide.

I had also read " The Elephant in the Playroom " which is anecdotal stories of

kids with special needs, and it seemed to me that the kids who fared the best

were those who were fully included from an early age. If you feel special ed is

right for your son, there is nothing at all wrong with it. But, if you feel his

best interests are fully included, then insist on it, but also make sure

everything he will need for success is a part of his IEP. For my son, that

included sensory breaks, a behavior specialist " on call " , OT, ST, etc. etc. He

is in 2nd now and needing fewer and fewer supports, but he still needs them to

be successful. The best part is that he is thriving in this environment. Many of

the parents don't even realize he has special needs.

Kristy Nardini

Tazzini Stainless Steel Bottles

www.tazzini.com

kristy@...

Phone: 858.243.1929

Fax: 858.724.1418

Re: Re: Tenex

Caroline,

I am curious to know how you knew to start adderall. I have been thinking of

asking Dr. G about this for months now but am just not sure if our son needs

it. He is 5 and has been with Dr. G for almost 2 years. We were hoping he

would be " recovered " by now, but we are headed to special ed next fall for

kindergarten. (Breaks my heart since I still see his potential and view

special ed as a place where he is likely to fall through the cracks because

he has no behavior problems)

Anyway . . . he is already on tenex and his spect scan revealed red all over

the frontal lobes and small/moderate amounts of green on the temporal lobes.

Dr. G says that our son will likely grow out of the autism diagnosis and

into ADD. His main issue is focus, language and lack of social skills

(however not at all averse to his peers).

When our son is focused he is " on " . . . but that is the trouble . . . he

is not consistently focused.

Thanks for your help.

Martha

On Wed, Mar 24, 2010 at 1:06 PM, Caroline Glover <sfglover@...> wrote:

>

>

> ,

>

> My son is about 51 pounds and here are his doses of Tenex and Adderall.

>

> TENEX 1 mg tab- 1/2 am 1/4 pm

>

> ADDERALL (5mg 1/2 am + 1/2 pm)

>

> Since we¹re doing Adderall morning and night, I don¹t think he should

> crash.

> He¹s pretty steady on it. The Tenex is what makes him irritable. Maybe if

> we went higher on the Adderall he would be irritable, but that¹s as high as

> Dr. G wants to go.

>

> He falls asleep almost as soon as his head hits the pillow, so no problems

> there.

>

> Before Adderall, he was always hurting himself (by accident), running into

> the corners of walls and chairs. His mind was just racing too fast. He

> almost never does that anymore.

>

> We recently increased his Tenex and I think he is grumpier but better

> focused. I think we¹ll need to go back down... I don¹t want him to feel

> unhappy.

>

> We¹re preparing to start him on Immunovir, and I¹m praying it helps him

> like

> it appears to have helped his brother. It¹s the biggest improvement we¹ve

> seen in years. Improved levels of anxiety, decreased obsessions... and best

> of all, I can see his sweet personality more. It¹s like it was being

> overridden by the obsessions, etc.

>

> HTH,

> Caroline

>

>

[Guest guest]

Martha,

I just knew that he was not focused. His schoolwork was suffering and he

kept hurting himself (accidentally). We talked to Dr. G about it and

decided to try Adderall. If I remember correctly, it helped almost

immediately .

Dr. G feels that a low dose is safe or he would never have let us try it.

Maybe you could do a trial of it... if you don't like it you can discontinue

it. Then you'll know for sure.

I think it has been quite helpful to my son.

We had a great experience with the special ed people doing their best to

keep my son in the regular classes. He was always in a regular classroom

but was taken out for certain things. We ended up having him repeat 2nd

grade because he needed time developmentally to catch up (he was young for

his grade anyway). He has improved enough now that he is in the regular

class full time and in third grade just brought home...

B+ in Reading

A in English

A+ in Speliing

C+ in Social Studies

A+ in Math

A- in Science

E in Handwriting

S in Citizenship

He has come such a long way... I can't believe it. He still isn't where we

would like to see him, but far, far improved over a few years ago. In some

areas in kindergarten he was utterly lost.

His teacher says he has moved from parallel play at school to a more age

appropriate play, which is great news.

Caroline

> From: Martha Wood <marthawood70@...>

> Reply-< >

> Date: Wed, 24 Mar 2010 13:24:43 -0500

> < >

> Subject: Re: Re: Tenex

>

> Caroline,

> I am curious to know how you knew to start adderall. I have been thinking of

> asking Dr. G about this for months now but am just not sure if our son needs

> it. He is 5 and has been with Dr. G for almost 2 years. We were hoping he

> would be " recovered " by now, but we are headed to special ed next fall for

> kindergarten. (Breaks my heart since I still see his potential and view

> special ed as a place where he is likely to fall through the cracks because

> he has no behavior problems)

>

> Anyway . . . he is already on tenex and his spect scan revealed red all over

> the frontal lobes and small/moderate amounts of green on the temporal lobes.

> Dr. G says that our son will likely grow out of the autism diagnosis and

> into ADD. His main issue is focus, language and lack of social skills

> (however not at all averse to his peers).

>

> When our son is focused he is " on " . . . but that is the trouble . . . he

> is not consistently focused.

>

> Thanks for your help.

> Martha

[Guest guest]

Thanks~ I will add to the list of questions I have for Dr. G at my next update.

________________________________

From: Caroline Glover <sfglover@...>

Sent: Wed, March 24, 2010 8:25:01 AM

Subject: Re: Re: Tenex

 

Terri,

Yes, Dr. Goldberg says it is an ³old trick² that pediatricians use sometimes

instead of using a stimulant.

He has one of my boys on it (it didn¹t seem to help the other one, but then

he wasn¹t hyper).

The son who is on it takes Tenex and a very small dose of Adderall.

The Tenex seems to help my son focus... but when we go too high in the

dosing, he gets grumpy... there¹s a fine balance in his dosing.

Caroline G.

From: Terri <andersonterri@ ymail.com>

Reply-<groups (DOT) com>

Date: Tue, 23 Mar 2010 20:35:58 -0700 (PDT)

<groups (DOT) com>

Subject: Re: Re: Violence

One of my son's biggest challenges remains hyperactivity. 

When I hear about something that has helped hyperactivity~ I am very

interested! 

Is this part of Dr. G's protocol?

[Guest guest]

The tenex definitely helped my son to focus and be less jumpy and " stimmy. "

However, as he's getting bigger I think we need to adjust the dose. Question- do

you give him the Tenex in the morning, at night or both (in divided doses)?

From: Terri <andersonterri@...>

Subject: Re: Re: Tenex

Date: Thursday, March 25, 2010, 4:43 PM

 

Thanks~ I will add to the list of questions I have for Dr. G at my next update.

____________ _________ _________ __

From: Caroline Glover <sfglovermac (DOT) com>

groups (DOT) com

Sent: Wed, March 24, 2010 8:25:01 AM

Subject: Re: Re: Tenex

 

Terri,

Yes, Dr. Goldberg says it is an ³old trick² that pediatricians use sometimes

instead of using a stimulant.

He has one of my boys on it (it didn¹t seem to help the other one, but then

he wasn¹t hyper).

The son who is on it takes Tenex and a very small dose of Adderall.

The Tenex seems to help my son focus... but when we go too high in the

dosing, he gets grumpy... there¹s a fine balance in his dosing.

Caroline G.

From: Terri <andersonterri@ ymail.com>

Reply-<groups (DOT) com>

Date: Tue, 23 Mar 2010 20:35:58 -0700 (PDT)

<groups (DOT) com>

Subject: Re: Re: Violence

One of my son's biggest challenges remains hyperactivity. 

When I hear about something that has helped hyperactivity~ I am very

interested! 

Is this part of Dr. G's protocol?

[Guest guest]

The biggest thing to help my son be less jumpy and stimmy has been Imunovir.

Everything on the protocol has helped, but Imunovir has really been “the big

gun†for him.

Kristy Nardini

TazziniTM Stainless Steel Bottles

www.tazzini.com

kristy@...

Phone: 858.243.1929

Fax: 858.724.1418

P Please consider the environment before printing this email.

From: [mailto: ] On Behalf Of Briffa

SeventySeven

Sent: Thursday, March 25, 2010 2:04 PM

Subject: Re: Re: Tenex

The tenex definitely helped my son to focus and be less jumpy and " stimmy. "

However, as he's getting bigger I think we need to adjust the dose. Question- do

you give him the Tenex in the morning, at night or both (in divided doses)?

From: Terri <andersonterri@... <mailto:andersonterri%40ymail.com>

>

Subject: Re: Re: Tenex

<mailto:%40>

Date: Thursday, March 25, 2010, 4:43 PM

Thanks~ I will add to the list of questions I have for Dr. G at my next update.

____________ _________ _________ __

From: Caroline Glover <sfglovermac (DOT) com>

groups (DOT) com

Sent: Wed, March 24, 2010 8:25:01 AM

Subject: Re: Re: Tenex

Terri,

Yes, Dr. Goldberg says it is an ³old trick² that pediatricians use sometimes

instead of using a stimulant.

He has one of my boys on it (it didn¹t seem to help the other one, but then

he wasn¹t hyper).

The son who is on it takes Tenex and a very small dose of Adderall.

The Tenex seems to help my son focus... but when we go too high in the

dosing, he gets grumpy... there¹s a fine balance in his dosing.

Caroline G.

From: Terri <andersonterri@ ymail.com>

Reply-<groups (DOT) com>

Date: Tue, 23 Mar 2010 20:35:58 -0700 (PDT)

<groups (DOT) com>

Subject: Re: Re: Violence

One of my son's biggest challenges remains hyperactivity.

When I hear about something that has helped hyperactivity~ I am very

interested!

Is this part of Dr. G's protocol?

[Guest guest]

Kristy,

Thank you for your kind response. I have read Elephant in the Playroom. (A

great book.) But I will look into the other book you mentioned.

Our son will get to go into a typical K for 1-2 hours each day with a

shadow and I am thankful for that, but also hope the typical K teacher will

take ownership of our son, and not let the shadow do all the work. We will

see . . .

Thank you again. I have yet to find a child like our son, so it

is especially encouraging to hear from someone like you who has a similar

child.

Martha

On Wed, Mar 24, 2010 at 7:25 PM, Kristy Nardini <knardini@...>wrote:

>

>

> Martha,

>

> My son started K with the exact same challenges as your son, yet he was

> fully included in a typical classroom. I'm so grateful for it, too! I had

> read " You're Going to Love This Kid " about inclusion and took it to the IEP

> preparing for K. The principal told me " We NEVER provide an aide " (which I

> knew was bull because my friend had just finished her daughter's IEP before

> mine and told me they got an aide), so I felt strong and pulled out " You're

> going to... " and read the paragraph that says, " The law says... " and it goes

> on to explain that our kids are entitled to the least restrictive

> environment with the proper supports so they can be successful. The school

> psych didn’t even let me finish reading the paragraph and said he would get

> an aide.

>

> I had also read " The Elephant in the Playroom " which is anecdotal stories

> of kids with special needs, and it seemed to me that the kids who fared the

> best were those who were fully included from an early age. If you feel

> special ed is right for your son, there is nothing at all wrong with it.

> But, if you feel his best interests are fully included, then insist on it,

> but also make sure everything he will need for success is a part of his IEP.

> For my son, that included sensory breaks, a behavior specialist " on call " ,

> OT, ST, etc. etc. He is in 2nd now and needing fewer and fewer supports, but

> he still needs them to be successful. The best part is that he is thriving

> in this environment. Many of the parents don't even realize he has special

> needs.

>

> Kristy Nardini

> Tazzini Stainless Steel Bottles

> www.tazzini.com

> kristy@... <kristy%40tazzini.com>

> Phone: 858.243.1929

> Fax: 858.724.1418

>

>

> Re: Re: Tenex

>

> Caroline,

> I am curious to know how you knew to start adderall. I have been thinking

> of

> asking Dr. G about this for months now but am just not sure if our son

> needs

> it. He is 5 and has been with Dr. G for almost 2 years. We were hoping he

> would be " recovered " by now, but we are headed to special ed next fall for

> kindergarten. (Breaks my heart since I still see his potential and view

> special ed as a place where he is likely to fall through the cracks because

> he has no behavior problems)

>

> Anyway . . . he is already on tenex and his spect scan revealed red all

> over

> the frontal lobes and small/moderate amounts of green on the temporal

> lobes.

> Dr. G says that our son will likely grow out of the autism diagnosis and

> into ADD. His main issue is focus, language and lack of social skills

> (however not at all averse to his peers).

>

> When our son is focused he is " on " . . . but that is the trouble . . . he

> is not consistently focused.

>

> Thanks for your help.

> Martha

> On Wed, Mar 24, 2010 at 1:06 PM, Caroline Glover

<sfglover@...<sfglover%40mac.com>>

> wrote:

>

> >

> >

> > ,

> >

> > My son is about 51 pounds and here are his doses of Tenex and Adderall.

> >

> > TENEX 1 mg tab- 1/2 am 1/4 pm

> >

> > ADDERALL (5mg 1/2 am + 1/2 pm)

> >

> > Since we¹re doing Adderall morning and night, I don¹t think he should

> > crash.

> > He¹s pretty steady on it. The Tenex is what makes him irritable. Maybe if

> > we went higher on the Adderall he would be irritable, but that¹s as high

> as

> > Dr. G wants to go.

> >

> > He falls asleep almost as soon as his head hits the pillow, so no

> problems

> > there.

> >

> > Before Adderall, he was always hurting himself (by accident), running

> into

> > the corners of walls and chairs. His mind was just racing too fast. He

> > almost never does that anymore.

> >

> > We recently increased his Tenex and I think he is grumpier but better

> > focused. I think we¹ll need to go back down... I don¹t want him to feel

> > unhappy.

> >

> > We¹re preparing to start him on Immunovir, and I¹m praying it helps him

> > like

> > it appears to have helped his brother. It¹s the biggest improvement we¹ve

> > seen in years. Improved levels of anxiety, decreased obsessions... and

> best

> > of all, I can see his sweet personality more. It¹s like it was being

> > overridden by the obsessions, etc.

> >

> > HTH,

> > Caroline

> >

> >

[Guest guest]

Those books sound great. It's so hard to find the right placement for my son -

he has high functioning autism. His verbal ability is " pretty good " . However,

his sensory issues rule his life and he can only process a few words at a time.

Therefore he needs a certain environment that's only found in private schools

around here. However, seven out of the nine kids in his class are nonverbal.

There are classes at his school for kids with Asperger's/high functioning

autism but they're not sure if he's quite ready for that. I asked if it would

be possible for him to spend lunch or gym with that class but they are saying

there's no guarantee. However, you are right about the law - least restrictive

environments with proper supports.

Did anybody find that they're child's stimming behaviors decreased after

certain interventions with the protocol? I had my son's food antibodies

tested my Metametrix labs and it came back moderate allergy to casein and egg

white, and mild to egg yoke. What positive changes did people see when they

removed the foods their child was allergic to?

Thanks,

Bridget

>

> >

> >

> > ,

> >

> > My son is about 51 pounds and here are his doses of Tenex and Adderall.

> >

> > TENEX 1 mg tab- 1/2 am 1/4 pm

> >

> > ADDERALL (5mg 1/2 am + 1/2 pm)

> >

> > Since we¹re doing Adderall morning and night, I don¹t think he should

> > crash.

> > He¹s pretty steady on it. The Tenex is what makes him irritable. Maybe if

> > we went higher on the Adderall he would be irritable, but that¹s as high

> as

> > Dr. G wants to go.

> >

> > He falls asleep almost as soon as his head hits the pillow, so no

> problems

> > there.

> >

> > Before Adderall, he was always hurting himself (by accident), running

> into

> > the corners of walls and chairs. His mind was just racing too fast. He

> > almost never does that anymore.

> >

> > We recently increased his Tenex and I think he is grumpier but better

> > focused. I think we¹ll need to go back down... I don¹t want him to feel

> > unhappy.

> >

> > We¹re preparing to start him on Immunovir, and I¹m praying it helps him

> > like

> > it appears to have helped his brother. It¹s the biggest improvement we¹ve

> > seen in years. Improved levels of anxiety, decreased obsessions... and

> best

> > of all, I can see his sweet personality more. It¹s like it was being

> > overridden by the obsessions, etc.

> >

> > HTH,

> > Caroline

> >

> >

[Guest guest]

We give it twice a day... and if the dose is uneven we give the larger

amount in the morning dose.

Caroline

From: Briffa SeventySeven <briffa77@...>

Reply-< >

Date: Thu, 25 Mar 2010 14:03:45 -0700 (PDT)

< >

Subject: Re: Re: Tenex

The tenex definitely helped my son to focus and be less jumpy and " stimmy. "

However, as he's getting bigger I think we need to adjust the dose.

Question- do you give him the Tenex in the morning, at night or both (in

divided doses)?

[Guest guest]

Dr. G suggested that Immunovir was the next step for us. I

discontinued Tenex as of Tuesday and our son is so much happier.

Without telling his teachers what I did, his teacher, speech

therapist, and OT all told me that was so much happier

and that the anxiety they have seen recently went away.

Unfortunately, he was a little less focused, but happy is a better

place. I may try going back to the 1/8 dosage, but now that I know

it was making him unhappy, I doubt it.

Colleen

[Guest guest]

Hi Colleen,

What dose of Imunovir does your son take? Do you follow a certain protocol such

as week one you give the higher dose, week two the lower dose? When you spoke of

1/8 dosage did you mean the tenex?

Sorry if I sound forward I just want so badly to help my son......

Thanks,

Bridget

From: Colleen Waguespack <colleendesigns@...>

Subject: Re: Tenex

Date: Friday, March 26, 2010, 7:50 AM

 

Dr. G suggested that Immunovir was the next step for us. I

discontinued Tenex as of Tuesday and our son is so much happier.

Without telling his teachers what I did, his teacher, speech

therapist, and OT all told me that was so much happier

and that the anxiety they have seen recently went away.

Unfortunately, he was a little less focused, but happy is a better

place. I may try going back to the 1/8 dosage, but now that I know

it was making him unhappy, I doubt it.

Colleen

[Guest guest]

We haven't started Immunovir yet- Dr. G said we'd talk about it at

our next phone consult. I was talking about Tenex. We started at

1/8 tablet twice a day- morning and 2:00. Yesterday when I picked up

from school, his teachers said he could not focus at all

so I'm going to have to go back to trying the 1/8 twice a day Tenex.

Upping the doseage to 1/4 gave him anxiety so I'm going back to 1/8

unless Dr. G has a better suggestion.

Colleen

[Guest guest]

If you want the teacher to take ownership of your son, do what you can to

help her. I have always, since my son's first day of preschool, given his

teacher (and the whole 'team' for that matter) a " Quick Start Guide " to my

son. Email me at knardini@ roadrunner .com (remove spaces) and I will send

you a copy (PLEASE keep it private, it will have a lot of personal info in

it) to see what I do. His teachers have always expressed to me how much they

appreciate this guide. Then, always talk directly with his teacher and not

the aide or anyone else first. Find out if they prefer email, face-face,

phone and try to communicate that way. Try to volunteer as much as possible

in the classroom. Serve on PTA, if you can. Be a part of the school whenever

you can, but as supportive of his teacher as much as you can. Find out her

favorite coffee drink, snack, whatever and bring them in as surprises. I

believe it really does help to make a difference. I have always walked my

twins to their classrooms almost every morning, and often chat with the

teachers about their weekend, their class projects, whatever along the way

and let them know I care about them and that I am part of the " team " . Not

that you wouldn't/don't already to that. Sorry if this is too much...but I

have friends with kids with special needs and I'm stupefied sometimes how

they don't support their child's teacher/the school and expect them to " fix "

their child.

Kristy Nardini

Tazzini Stainless Steel Bottles

www.tazzini.com

kristy@...

Phone: 858.243.1929

Fax: 858.724.1418

Re: Re: Tenex

>

> Caroline,

> I am curious to know how you knew to start adderall. I have been thinking

> of

> asking Dr. G about this for months now but am just not sure if our son

> needs

> it. He is 5 and has been with Dr. G for almost 2 years. We were hoping he

> would be " recovered " by now, but we are headed to special ed next fall for

> kindergarten. (Breaks my heart since I still see his potential and view

> special ed as a place where he is likely to fall through the cracks

because

> he has no behavior problems)

>

> Anyway . . . he is already on tenex and his spect scan revealed red all

> over

> the frontal lobes and small/moderate amounts of green on the temporal

> lobes.

> Dr. G says that our son will likely grow out of the autism diagnosis and

> into ADD. His main issue is focus, language and lack of social skills

> (however not at all averse to his peers).

>

> When our son is focused he is " on " . . . but that is the trouble . . . he

> is not consistently focused.

>

> Thanks for your help.

> Martha

> On Wed, Mar 24, 2010 at 1:06 PM, Caroline Glover

<sfglover@...<sfglover%40mac.com>>

> wrote:

>

> >

> >

> > ,

> >

> > My son is about 51 pounds and here are his doses of Tenex and Adderall.

> >

> > TENEX 1 mg tab- 1/2 am 1/4 pm

> >

> > ADDERALL (5mg 1/2 am + 1/2 pm)

> >

> > Since we¹re doing Adderall morning and night, I don¹t think he should

> > crash.

> > He¹s pretty steady on it. The Tenex is what makes him irritable. Maybe

if

> > we went higher on the Adderall he would be irritable, but that¹s as high

> as

> > Dr. G wants to go.

> >

> > He falls asleep almost as soon as his head hits the pillow, so no

> problems

> > there.

> >

> > Before Adderall, he was always hurting himself (by accident), running

> into

> > the corners of walls and chairs. His mind was just racing too fast. He

> > almost never does that anymore.

> >

> > We recently increased his Tenex and I think he is grumpier but better

> > focused. I think we¹ll need to go back down... I don¹t want him to feel

> > unhappy.

> >

> > We¹re preparing to start him on Immunovir, and I¹m praying it helps him

> > like

> > it appears to have helped his brother. It¹s the biggest improvement

we¹ve

> > seen in years. Improved levels of anxiety, decreased obsessions... and

> best

> > of all, I can see his sweet personality more. It¹s like it was being

> > overridden by the obsessions, etc.

> >

> > HTH,

> > Caroline

> >

> >