Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 Yeah, if I was 149, I'd consider myself skinny! By the way, Susie, we also have another Suzie with a Z. De Faith is the ability to not panic. -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of Kathy brunowSent: Saturday, June 11, 2005 5:22 PMHepatitis CSupportGroupForDummies Subject: Re: Hi, I'm new... You consider 149 overweight!!! Dang girl your just fine at that weight..Argh!! I'm a moose... Oh I am Kathy B in Milwaukee.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 Thank you, Allan, for your email. I appreciate it. Because I quit going to the doctor after my liver biopsy, I don't know where I'm at in this. I know I will have to be honest with my family sometime - but, I'm not there yet. With everyone's help, I hope to someday. Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 This could work out..But you might have to beat him up first.. But no seriously..Keep your door locked and set down some rules..I speck as the mother of daughters who "go shopping" in my pantry!!I starting getting a bag of stuff (food, light bulbs etc..)ready before they got here.. They where sooo shocked..They stopped..Still get the grands quite a bit..But at least I am getting some kind of warning first now!! A day or a few hours helps..Kathy Boo...ps he sounds like a real winner.. boo -- Re: Hi, I'm new... Kathy B - I'll probably end up telling him worse than that. He and his 6 yr old daughter are moving next door soon. We only have them now every other weekend for his ex-wife's supervised visit's. His mouth is going to get him in trouble. Susie Letter by Undeniable Designs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 Hi Suzie with a z - I'm happy to meet you . I love your and Kathy B's sense of humor and am looking forward to a lot more of it. I'm so glad I found you. I'll be out of town until Thursday night and will miss you guy's. My brother is an insensitive clod - I always wanted to trade 3 sorry brother's for one good sister. But, he has his good point's, too. Anyway, nice to meet you. Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2005 Report Share Posted June 18, 2005 Suzie - I won't try to steal your sister's. My family would drive them crazy anyway. I enjoyed reading about your brother's religion - I learned a lot I never knew. My relationship with my brother's was never an easy one. I don't know how two such wonderful people as my parent's could have such lousy children, but that's the way it goes sometime's. We lost my oldest brother over a year ago to Hepatitis C. He died at the VA hospital in Dallas and I don't even want to talk about that terrible hospital. It was recently given the worst rating of any hospital in the country. With good reason, I believe. He is the main reason I can't yet tell my family about my own diagnosis. The support here is great. Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2006 Report Share Posted June 5, 2006 > > I'm new to your group, it looks great, I look forward to meeting you > all through our mails and to post interesting topics from time to > time, > blessings, > > Hi , Welcome to the board! Feel free to jump in any time. We're a warm and fuzzy bunch around here ) -Jef Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2006 Report Share Posted October 29, 2006 > > Hi Everyone, I'm new to this group. I have PLS and I've been hearing some good positives about LDN. I'm going to my neurologist on Monday and hope he'll agree to let me try it. Any information from the group, such as dosage, availability, etc. would really be helpful. I now take baclofen (30 mg a day) and don't feel that it does much. If I increase the dosage, it makes me too drowsy. I'm ready for a new direction. > Cira in Phoenix, Az. > ============ Not sure how much these files will help someone with PLS get LDN, the one about how to talk to your doc should help. Ask that your fist script be in 1.5mg capsules so you can start slow and gadually increase your dose. Files for newbies to present to your doc for LDN prescription. http://gazorpa.com/DoctorFolder.html How To Talk to Your Doctor About LDN http://gazorpa.com/PatientGuide.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2006 Report Share Posted October 29, 2006 Hi Cira, I have PLS too, as do a few others on here and I definitely recommend trying LDN. Give it at least 9 months even if you don't feel it is working, though if that happens let us know as there are a number of reasons why it may not work eg. getting it from a non-recommended pharmacy, problems with filler, candida etc.. People on here are very good at trying to help others for whom it doesn't seem to be working. If you haven't already done so then absolutely the next thing to do is fully read and try to digest the information on www.low dose naltrexone.org (not .com)! That should give you the info you need. Having said that I'll give you a bit of a head start (some may not agree with all I say but they are welcome to add their own perspective). Basically the optimum dose is 4.5mg per day IF you can handle it without ongoing insomnia or stiffness (some people experience one or both for a few days as the body gets used to the LDN but it usually disappears after a few days or week or two). However, some people (apparently men more than women) can't tolerate 4.5mg so should aim for 3.0mg at least as supposedly the minimum recommended to stop disease progression. It is a good idea to get your first lot of LDN made up as 1.5mg capsules until you know whether you can take 4.5mg or not, because taking 2 capsules gives you 3.0mg per day (the dosage most people start with) and then you can step up to 3 capsules (4.5mg) if 3.0mg is OK. In a " Chinese whispers " scenario some people then began starting with only 1 capsule (1.5mg). The jury is out on that one as some people think it is a good way to let the body slowly acclimatize, whereas others wonder whether starting at 1.5mg is a good idea as it seems some people who do that can't even handle the jump up to 3.0mg. It's almost as though with some people once the body gets used to any amount of LDN it can't handle an increase in dosage. That is purely an observation, not a fact! Good luck! :-) PS Have you joined PLS-FRIENDS? ciracole@... wrote: > Hi Everyone, I'm new to this group. I have PLS and I've been hearing > some good positives about LDN. I'm going to my neurologist on Monday > and hope he'll agree to let me try it. Any information from the > group, such as dosage, availability, etc. would really be helpful. I > now take baclofen (30 mg a day) and don't feel that it does much. If > I increase the dosage, it makes me too drowsy. I'm ready for a new > direction. > Cira in Phoenix, Az. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2009 Report Share Posted July 8, 2009 Hello, my name is and I am looking for some friends who are dealing with pdd in their child or similar. My son is 10 and will be getting assessed/evaluated this year. He's an amazing person and I can't wait to know more about him this summer. He was a late talker, has sensory issues and creative social ideas sometimes (kwim?) He is an amazing pianist and friend...beautiful son. We have 4 sons and live in Washington State. We're homeschoolers. I am curious if any one here has had allergy testing done for their special needs child? I wonder could you offer us any advice for helping your child cope with the needles? The lady on the phone didn't have a clue to what I was talking about, and maybe to her a small prick with a needle in 'just the surface' of the skin isn't a big deal to her, but... I told her it could go either way and to please make a note. I am so glad I am having him assessed this year, just so I can talk with doctors and dentists, family better. Ok, sort of long. Thank you for having me. shan Quote Link to comment Share on other sites More sharing options...
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