Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 Yes, it would be great for Dr. Goldberg to appear on Larry King! I even emailed them when they had McCarthy on the last time. I got no response. Maybe if everyone on this list sent Larry King an email about Dr. Goldberg they would consider having him on as a guest. Strength in numbers usually works. Larry King & My daughter had a ph. consult with Dr. G few days ago I`ve mentioned to her would love to see Dr. Goldberg on Larry King to get his message out. He told her he would love to do this & have a debate with other (DAN) ect Dr`s Does anyone know the process how to get this done. Just curious anyones thoughts. Thanks Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 Thats a great thing you did! Actually, in a few months I believe I will contacting our local news stations here in Chicago to discuss my childs recovery and its NOT DAN! :-D - > > Yes, it would be great for Dr. Goldberg to appear on Larry King! I even emailed them when they had McCarthy on the last time. I got no response. Maybe if everyone on this list sent Larry King an email about Dr. Goldberg they would consider having him on as a guest. Strength in numbers usually works. > > > Larry King & > > > > > > > My daughter had a ph. consult with Dr. G few days ago I`ve mentioned to her would love to see Dr. Goldberg on Larry King to get his message out. > He told her he would love to do this & have a debate with other (DAN) ect Dr`s > Does anyone know the process how to get this done. Just curious anyones thoughts. > Thanks > Carole > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 Please let us know when we can see the coverage! That's awesome! Kristy From: [mailto: ] On Behalf Of jlhank80 Sent: Thursday, August 20, 2009 8:05 PM Subject: Re: Larry King & Thats a great thing you did! Actually, in a few months I believe I will contacting our local news stations here in Chicago to discuss my childs recovery and its NOT DAN! :-D - --- In <mailto:%40> , gvizjazz@... wrote: > > Yes, it would be great for Dr. Goldberg to appear on Larry King! I even emailed them when they had McCarthy on the last time. I got no response. Maybe if everyone on this list sent Larry King an email about Dr. Goldberg they would consider having him on as a guest. Strength in numbers usually works. > > > Larry King & > > > > > > > My daughter had a ph. consult with Dr. G few days ago I`ve mentioned to her would love to see Dr. Goldberg on Larry King to get his message out. > He told her he would love to do this & have a debate with other (DAN) ect Dr`s > Does anyone know the process how to get this done. Just curious anyones thoughts. > Thanks > Carole > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 What about creating websites showing videos of our children before regressing, during their worst days and after they improved? We could also include lab test results, EEGs, brain SPECT scan results and anything else that shows how they were very sick. We have to proof to the world that all these children are medically ill. And showing videos and the lab tests and research information could be a great way to do this. Then we can take Dr. Goldberg to see Mr. Larry King or even Oprah! JR From: jlhank80@... Date: Fri, 21 Aug 2009 03:04:51 +0000 Subject: Re: Larry King & Thats a great thing you did! Actually, in a few months I believe I will contacting our local news stations here in Chicago to discuss my childs recovery and its NOT DAN! :-D - > > Yes, it would be great for Dr. Goldberg to appear on Larry King! I even emailed them when they had McCarthy on the last time. I got no response. Maybe if everyone on this list sent Larry King an email about Dr. Goldberg they would consider having him on as a guest. Strength in numbers usually works. > > > Larry King & > > > > > > > My daughter had a ph. consult with Dr. G few days ago I`ve mentioned to her would love to see Dr. Goldberg on Larry King to get his message out. > He told her he would love to do this & have a debate with other (DAN) ect Dr`s > Does anyone know the process how to get this done. Just curious anyones thoughts. > Thanks > Carole > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 Great idea! Delacroix El 21/08/2009, a las 10:30, <jrodrig6605@...> escribió: What about creating websites showing videos of our children before regressing, during their worst days and after they improved? We could also include lab test results, EEGs, brain SPECT scan results and anything else that shows how they were very sick. We have to proof to the world that all these children are medically ill. And showing videos and the lab tests and research information could be a great way to do this. Then we can take Dr. Goldberg to see Mr. Larry King or even Oprah! JR From: jlhank80@... Date: Fri, 21 Aug 2009 03:04:51 +0000 Subject: Re: Larry King & Thats a great thing you did! Actually, in a few months I believe I will contacting our local news stations here in Chicago to discuss my childs recovery and its NOT DAN! :-D - > > Yes, it would be great for Dr. Goldberg to appear on Larry King! I even emailed them when they had McCarthy on the last time. I got no response. Maybe if everyone on this list sent Larry King an email about Dr. Goldberg they would consider having him on as a guest. Strength in numbers usually works. > > > Larry King & > > > > > > > My daughter had a ph. consult with Dr. G few days ago I`ve mentioned to her would love to see Dr. Goldberg on Larry King to get his message out. > He told her he would love to do this & have a debate with other (DAN) ect Dr`s > Does anyone know the process how to get this done. Just curious anyones thoughts. > Thanks > Carole > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 Love it and count me in! I would just love to show the world the pics and photos of my son when he was a pasty-white, haunted looking toddler with deep dark circles around his eyes and the vivacious, HAPPY 7 year old he is today. Kristy Sent from my Verizon Wireless BlackBerry Larry King & > > > > > > > My daughter had a ph. consult with Dr. G few days ago I`ve mentioned to her would love to see Dr. Goldberg on Larry King to get his message out. > He told her he would love to do this & have a debate with other (DAN) ect Dr`s > Does anyone know the process how to get this done. Just curious anyones thoughts. > Thanks > Carole > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 -Thanks! You have a recovered child also? How old is he/she and congratulations! I am trying everything I can to get Dr. Goldberg's message heard that our kids have an illness that can be cured. My son has not recovered, but is doing much better. The immune modulators are what's needed for my son and others to fully recover. Gayle Larry King & > > > > > > > My daughter had a ph. consult with Dr. G few days ago I`ve mentioned to her would love to see Dr. Goldberg on Larry King to get his message out. > He told her he would love to do this & have a debate with other (DAN) ect Dr`s > Does anyone know the process how to get this done. Just curious anyones thoughts. > Thanks > Carole > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 Any videos for youtube of kids doing well would be great! We can all work together and with all our efforts we can get Dr. Goldberg the recognition both he and our kids need so much! Gayle Larry King & > > > > > > > My daughter had a ph. consult with Dr. G few days ago I`ve mentioned to her would love to see Dr. Goldberg on Larry King to get his message out. > He told her he would love to do this & have a debate with other (DAN) ect Dr`s > Does anyone know the process how to get this done. Just curious anyones thoughts. > Thanks > Carole > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 If we do email Larry King, or Oprah for that matter, we should coordinate the effort, so that the emails don't get " lost " in the many submissions they get every day. Maybe send them in the same hour on the same day, etc. I think that would be great! All the best, Robyn From: gvizjazz@... <gvizjazz@...> Subject: Re: Re: Larry King & Date: Friday, August 21, 2009, 11:58 AM Â Any videos for youtube of kids doing well would be great! We can all work together and with all our efforts we can get Dr. Goldberg the recognition both he and our kids need so much! Gayle Larry King & > > > > > > > My daughter had a ph. consult with Dr. G few days ago I`ve mentioned to her would love to see Dr. Goldberg on Larry King to get his message out. > He told her he would love to do this & have a debate with other (DAN) ect Dr`s > Does anyone know the process how to get this done. Just curious anyones thoughts. > Thanks > Carole > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 I have been locating videos for the past several weeks so I can upload them into youtube. By the way I send Dr. Goldberg a 1 minute video of my son prior to the monthly phone consult. JR From: rngcoggs@... Date: Fri, 21 Aug 2009 13:03:19 -0700 Subject: Re: Re: Larry King & If we do email Larry King, or Oprah for that matter, we should coordinate the effort, so that the emails don't get " lost " in the many submissions they get every day. Maybe send them in the same hour on the same day, etc. I think that would be great! All the best, Robyn From: gvizjazz@... <gvizjazz@...> Subject: Re: Re: Larry King & Date: Friday, August 21, 2009, 11:58 AM Any videos for youtube of kids doing well would be great! We can all work together and with all our efforts we can get Dr. Goldberg the recognition both he and our kids need so much! Gayle Larry King & > > > > > > > My daughter had a ph. consult with Dr. G few days ago I`ve mentioned to her would love to see Dr. Goldberg on Larry King to get his message out. > He told her he would love to do this & have a debate with other (DAN) ect Dr`s > Does anyone know the process how to get this done. Just curious anyones thoughts. > Thanks > Carole > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 Would any of you discuss what specific treatments worked?  ________________________________ From: <jrodrig6605@...> nids Sent: Friday, August 21, 2009 4:47:51 PM Subject: RE: Re: Larry King &  I have been locating videos for the past several weeks so I can upload them into youtube. By the way I send Dr. Goldberg a 1 minute video of my son prior to the monthly phone consult. JR groups (DOT) com From: rngcoggssbcglobal (DOT) net Date: Fri, 21 Aug 2009 13:03:19 -0700 Subject: Re: Re: Larry King & If we do email Larry King, or Oprah for that matter, we should coordinate the effort, so that the emails don't get " lost " in the many submissions they get every day. Maybe send them in the same hour on the same day, etc. I think that would be great! All the best, Robyn From: gvizjazzaol (DOT) com <gvizjazzaol (DOT) com> Subject: Re: Re: Larry King & groups (DOT) com Date: Friday, August 21, 2009, 11:58 AM Any videos for youtube of kids doing well would be great! We can all work together and with all our efforts we can get Dr. Goldberg the recognition both he and our kids need so much! Gayle Larry King & > > > > > > > My daughter had a ph. consult with Dr. G few days ago I`ve mentioned to her would love to see Dr. Goldberg on Larry King to get his message out. > He told her he would love to do this & have a debate with other (DAN) ect Dr`s > Does anyone know the process how to get this done. Just curious anyones thoughts. > Thanks > Carole > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2009 Report Share Posted August 22, 2009 Gayle, my child does not fit the diagnosis for autism except for the fact that she does have a language delay, she is developmentally behind because she was so sick for awhile. But, she doesnt have rituals anymore, no more stims or sensory issues, she plays with other children, and above all shes happy! She turned 4 in June and we have been with Dr. for almost a year. Right now I would still like to wait to call the news because I think she needs a little bit more " catch up " time. And I think there are some more allergy issues I need to work out but that is a long story. My child is totally different now than she was a year ago, but if I pull any of her treatments she doesn't " regress " but her autistic behaviors return, like stimming and tantrumming. How old is your child? How long have you been doing ? What problems are you still seeing? I have to say that once we started treating my daughters allergies (and not with antihistamines) she REALLY got better. Although Valtrex was huge for her too! I hate to be so controversial, but people out there need to give a good look. I can't tell you how many people I know that see DAN docs and their kids are worse and they are now broke! There is so much of a focus on supplements and parents are so discouraged after they try DAN they don't even believe it when you tell them will get their kids better! I feel so saddened and discouraged by this. I tell everyone I know about and my daughter...I have even boldly approached other moms with kids who have autism when I go to the store. (I seem to see at least one child with autism everytime I go out!!!) Thats why I think it would be great if we made an effort all together to let people know that our kids are getting better. Sorry...went off on a tangent there. I am so passionate about this. - > > > > Yes, it would be great for Dr. Goldberg to appear on Larry King! I even emailed them when they had McCarthy on the last time. I got no response. Maybe if everyone on this list sent Larry King an email about Dr. Goldberg they would consider having him on as a guest. Strength in numbers usually works. > > > > > > Larry King & > > > > > > > > > > > > > > My daughter had a ph. consult with Dr. G few days ago I`ve mentioned to her would love to see Dr. Goldberg on Larry King to get his message out. > > He told her he would love to do this & have a debate with other (DAN) ect Dr`s > > Does anyone know the process how to get this done. Just curious anyones thoughts. > > Thanks > > Carole > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2009 Report Share Posted August 22, 2009 I don't like to compare kids, but I have been with groups of kids on the spectrum and I can see that my son is doing much better than many of the DAN kids. Their families are just as passionate about DAN (and GFCF). It breaks my heart, too! I was with one mom and her son - he was WRITHING on the floor in pain, and she insists that they've tried everything and he is just severe and will always be that way. That really killed (kills) me to think that they haven't tried and when I suggested it, the mom was really, really upset with me ;-( Kristy From: [mailto: ] On Behalf Of jlhank80 Sent: Saturday, August 22, 2009 6:21 AM Subject: Re: Larry King & Gayle, my child does not fit the diagnosis for autism except for the fact that she does have a language delay, she is developmentally behind because she was so sick for awhile. But, she doesnt have rituals anymore, no more stims or sensory issues, she plays with other children, and above all shes happy! She turned 4 in June and we have been with Dr. for almost a year. Right now I would still like to wait to call the news because I think she needs a little bit more " catch up " time. And I think there are some more allergy issues I need to work out but that is a long story. My child is totally different now than she was a year ago, but if I pull any of her treatments she doesn't " regress " but her autistic behaviors return, like stimming and tantrumming. How old is your child? How long have you been doing ? What problems are you still seeing? I have to say that once we started treating my daughters allergies (and not with antihistamines) she REALLY got better. Although Valtrex was huge for her too! I hate to be so controversial, but people out there need to give a good look. I can't tell you how many people I know that see DAN docs and their kids are worse and they are now broke! There is so much of a focus on supplements and parents are so discouraged after they try DAN they don't even believe it when you tell them will get their kids better! I feel so saddened and discouraged by this. I tell everyone I know about and my daughter...I have even boldly approached other moms with kids who have autism when I go to the store. (I seem to see at least one child with autism everytime I go out!!!) Thats why I think it would be great if we made an effort all together to let people know that our kids are getting better. Sorry...went off on a tangent there. I am so passionate about this. - --- In <mailto:%40> , gvizjazz@... wrote: > > > -Thanks! You have a recovered child also? How old is he/she and congratulations! I am trying everything I can to get Dr. Goldberg's message heard that our kids have an illness that can be cured. My son has not recovered, but is doing much better. The immune modulators are what's needed for my son and others to fully recover. > > Gayle > > > > > Larry King & > > > > > > > > > > > > > > My daughter had a ph. consult with Dr. G few days ago I`ve mentioned to her would love to see Dr. Goldberg on Larry King to get his message out. > > He told her he would love to do this & have a debate with other (DAN) ect Dr`s > > Does anyone know the process how to get this done. Just curious anyones thoughts. > > Thanks > > Carole > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2009 Report Share Posted August 22, 2009 Hi -my son is 22 and he is doing so much better than he was many years ago. He was nonverbal and really into his own world. After many years on the nids protocol and intensive education programs he is verbal and communicative. He is a wiz with technology, plays the piano, and has a sense of humor. However, he still has an autism picture and he needs the next level of meds, the immune modulators, to get him fully recovered. I too am very passionate about our kids and would love to see Dr. Goldberg finally get to speak on Larry King or Oprah. Our kids have an illness, and not a developmental disability. Gayle Re: Larry King & Recent Activity 5 New Members Visit Your Group Biz Resources Y! Small Business Articles, tools, forms, and more. Weight Management Challenge Join others who are losing pounds. Auto Enthusiast Zone Auto Enthusiast Zone Discover auto groups .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2009 Report Share Posted August 22, 2009 Kristy, I can very much relate to where you are coming from...I have experienced that myself, watching someone elses child doing so poorly and they dont want to hear about . I have to have a thicker skin about it I guess. It just makes me feel sick inside to know these kids need medical help, they are suffering! But there is so much prejudice out there...all people ever hear about is DAN. - > > > > > > Yes, it would be great for Dr. Goldberg to appear on Larry King! I even > emailed them when they had McCarthy on the last time. I got no > response. Maybe if everyone on this list sent Larry King an email about Dr. > Goldberg they would consider having him on as a guest. Strength in numbers > usually works. > > > > > > > > > Larry King & > > > > > > > > > > > > > > > > > > > > > My daughter had a ph. consult with Dr. G few days ago I`ve mentioned to > her would love to see Dr. Goldberg on Larry King to get his message out. > > > He told her he would love to do this & have a debate with other (DAN) > ect Dr`s > > > Does anyone know the process how to get this done. Just curious anyones > thoughts. > > > Thanks > > > Carole > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2009 Report Share Posted August 22, 2009 Gayle, I love to hear you say the good things about your son, he sounds very special and gifted. At what age did you start the protocol with him? Is there anyway I can email you off list, I would appreciate your experienced input about a few things, since you have been doing this for some time! Thanks, > > > Hi -my son is 22 and he is doing so much better than he was many years ago. He was nonverbal and really into his own world. After many years on the nids protocol and intensive education programs he is verbal and communicative. He is a wiz with technology, plays the piano, and has a sense of humor. However, he still has an autism picture and he needs the next level of meds, the immune modulators, to get him fully recovered. I too am very passionate about our kids and would love to see Dr. Goldberg finally get to speak on Larry King or Oprah. Our kids have an illness, and not a developmental disability. > > Gayle > > > Re: Larry King & > > > > > > > > > > Recent Activity > > > > 5 > > New Members > > > Visit Your Group > > > > > Biz Resources > > Y! Small Business > > Articles, tools, > > forms, and more. > > > > > > Weight Management Challenge > Join others who > are losing pounds. > > > > > > Auto Enthusiast Zone > > Auto Enthusiast Zone > > Discover auto groups > > > > > > . > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 Hi -Thankyou for your kind words! You can email me at gvizjazz@...! Re: Larry King & > > > > > > > > > > Recent Activity > > > > 5 > > New Members > > > Visit Your Group > > > > > Biz Resources > > Y! Small Business > > Articles, tools, > > forms, and more. > > > > > > Weight Management Challenge > Join others who > are losing pounds. > > > > > > Auto Enthusiast Zone > > Auto Enthusiast Zone > > Discover auto groups > > > > > > . > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 > > > Hi -my son is 22 and he is doing so much better than he was many years ago. He was nonverbal and really into his own world. After many years on the nids protocol and intensive education programs he is verbal and communicative. He is a wiz with technology, plays the piano, and has a sense of humor. However, he still has an autism picture and he needs the next level of meds, the immune modulators, to get him fully recovered. I too am very passionate about our kids and would love to see Dr. Goldberg finally get to speak on Larry King or Oprah. Our kids have an illness, and not a developmental disability. > > Gayle > > > Re: Larry King & > > > > > > > > > > Recent Activity > > > > 5 > > New Members > > > Visit Your Group > > > > > Biz Resources > > Y! Small Business > > Articles, tools, > > forms, and more. > > > > > > Weight Management Challenge > Join others who > are losing pounds. > > > > > > Auto Enthusiast Zone > > Auto Enthusiast Zone > > Discover auto groups > > > > > > . > I`ve been gone for the past wk. I posted this about getting Dr. G. on Larry King wks. ago. I don`t know why my poat take so long to get on. I have already E-Mailed Larry King when I sent this to group got NO RESPONSE so I agree WE SHOULD ALL E-Mail his producers at the same time. He told my daughter he wants to debate a (DAN)or someone who doesn`t agree ect on his theory on treating our children I so much agree these families doing DAN & all our children need to know about Dr. Goldberg`s treatment. Although it will take my grandson a long time we do see progress. We were with DAN Dr. for 3 wasted yrs. of this little boys life. Seeing him so sick was devastating. We feel we are on the right path. A massive Swarm of E-Mails may do the trick. Thanks Carole > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 Hi all, Below are a few videos that of my son before we started the protocol and today. I think I have mentioned in previous posts about all the behaviors my son had prior the protocol. My son has/had the same medical problems your children have. When he was first diagnosed we were told he would be disabled and nobody gave us any hope. I remember a neurologist telling us " The only proven treatmetn is ABA, but it is so expensive that you and your wife might end up divorsed " . My son never wanted to play with other children and you can see how much and how proper he plays now with his younger brother. He still has speech delays and some developmental delays, but lately since the labs started to come back more normal, he seems to start becoming a little sponge like typical children should be. Now, I don't even think he looks or acts weird any longer. The only thing that makes him odviously different from typical children is his speeach. He amazes us everyday, Dr. Goldberg has asked me many times if my son is looking more like a typical child. I didn't understand what he meant in the past, but I am starting to understand him now. Today it was my son's first day in kindergarten and I went to watch him and he was better behaved and more interactive than many of the other children. We still have a lot of work ahead of us, but we feel we are going in the right direction. I just hope that many of you out there with recovered children have the courage to post videos of your children just like I did. It is not easy, but I just want other people to be able to get their children better. We all know that what is happening to so many children is not fair and something has to be done about it. Thanks, JR 2007 - spinning legos http://www.youtube.com/watch?v=C80XQ9e-YlE 2008 - shaking his head http://www.youtube.com/watch?v=o2CMdjYzZHU August 23, 2009 and his brother riding their bikes August 23, 2009 and his brother playing with his brother before going to sleep > > > > Yes, it would be great for Dr. Goldberg to appear on Larry King! I even emailed them when they had McCarthy on the last time. I got no response. Maybe if everyone on this list sent Larry King an email about Dr. Goldberg they would consider having him on as a guest. Strength in numbers usually works. > > > > > > Larry King & > > > > > > > > > > > > > > My daughter had a ph. consult with Dr. G few days ago I`ve mentioned to her would love to see Dr. Goldberg on Larry King to get his message out. > > He told her he would love to do this & have a debate with other (DAN) ect Dr`s > > Does anyone know the process how to get this done. Just curious anyones thoughts. > > Thanks > > Carole > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 I think a debate on any forum is a healthy start Larry King or otherwise! But surely it would be sensible to understand from Dr G's case load over several years now what the success rate is from his treatment protocol (having established what success means!) and failure rate (parents here have posted about disappointing progress) versus DAN. I want to understand what actually makes Dr G's treatment the definitive approach for all our children over and above everyone else's particularly DAN (since that is the opposition always mentioned). I have been in a position so many times now of having to place my trust in people to do the best job for my boys that I regard it as reasonable to have access to supporting evidence for particular views expressed. In a message dated 25/08/2009 06:23:46 GMT Daylight Time, chocolatiluv@... writes: To Jr. So happy your precious little boy is doing well He is adoreable. I posted this about Larry King a wk. ago I`ve been gone just seen everyone agrees. I did E-Mail Larry K.`s producer no response (not surprised) Dr. G. says he wants a debate with another Dr. (DAN) his treatment, theory vs. theirs. I read someone mentioned A MASSIVE E-MAIL on the same day. A great idea!!! Lets do this PICK A DAY!! . We need to get this out for families to see what can help their children. Like many of you I know many doing DAN, HBOT ect this is frightening. We lost 3 yrs.doing this treatment. Now feeling so much better we are on the right path. We know this will not happen overnite but he is getting better. Thanks Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 We need to start showing strong evidence on how sick our children are and how it correlates to " autism " . We have been collecting dozens of lab tests, brain SPECT scans, EEGs and videos that prove my son's autoimmune disorder/dysfunction and inflammation. Now, his immune system is so much healthier and it shows in his improvements. I am sure I am not the only one with this kind of strong evidence. All of us have to act like one to help other people, it is not easy and it might require some exposure, but we should not stay with our arms crossed. The big guns will not listen to us, " they haven't done it for the past decade " if we don't act together showing evidence that people can't just argue. Dr. Goldberg keeps saying " parents need to act together and spread the right message " . That is what we are trying to get started over here. JR From: knardini@... Date: Mon, 24 Aug 2009 23:17:37 -0700 Subject: RE: Re: Larry King & I would. My son is not yet recovered, but he's healthy, bright, happy, alert, social, etc. Sorry.I'm not ready to randomly post his videos on YouTube or to the Internet. I will only share our story with the " big guns " , i.e. Oprah or Larry King, for example, and ONLY in the context that my son has a medical illness. I don't know that my son is ready yet for a show on recovery, but he will be. Kristy From: [mailto: ] On Behalf Of Sent: Friday, August 21, 2009 3:45 PM Subject: Re: Re: Larry King & Would any of you discuss what specific treatments worked? ________________________________ From: <jrodrig6605@... <mailto:jrodrig6605%40hotmail.com> > nids <mailto:nids%40> Sent: Friday, August 21, 2009 4:47:51 PM Subject: RE: Re: Larry King & I have been locating videos for the past several weeks so I can upload them into youtube. By the way I send Dr. Goldberg a 1 minute video of my son prior to the monthly phone consult. JR groups (DOT) com From: rngcoggssbcglobal (DOT) net Date: Fri, 21 Aug 2009 13:03:19 -0700 Subject: Re: Re: Larry King & If we do email Larry King, or Oprah for that matter, we should coordinate the effort, so that the emails don't get " lost " in the many submissions they get every day. Maybe send them in the same hour on the same day, etc. I think that would be great! All the best, Robyn From: gvizjazzaol (DOT) com <gvizjazzaol (DOT) com> Subject: Re: Re: Larry King & groups (DOT) com Date: Friday, August 21, 2009, 11:58 AM Any videos for youtube of kids doing well would be great! We can all work together and with all our efforts we can get Dr. Goldberg the recognition both he and our kids need so much! Gayle Larry King & > > > > > > > My daughter had a ph. consult with Dr. G few days ago I`ve mentioned to her would love to see Dr. Goldberg on Larry King to get his message out. > He told her he would love to do this & have a debate with other (DAN) ect Dr`s > Does anyone know the process how to get this done. Just curious anyones thoughts. > Thanks > Carole > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 Hi , You have to follow and understand the protocol. I think this information is posted in www.nids.net. Hope this helps, JR From: stacy171@... Date: Fri, 21 Aug 2009 15:44:31 -0700 Subject: Re: Re: Larry King & Would any of you discuss what specific treatments worked? ________________________________ From: <jrodrig6605@...> nids Sent: Friday, August 21, 2009 4:47:51 PM Subject: RE: Re: Larry King & I have been locating videos for the past several weeks so I can upload them into youtube. By the way I send Dr. Goldberg a 1 minute video of my son prior to the monthly phone consult. JR groups (DOT) com From: rngcoggssbcglobal (DOT) net Date: Fri, 21 Aug 2009 13:03:19 -0700 Subject: Re: Re: Larry King & If we do email Larry King, or Oprah for that matter, we should coordinate the effort, so that the emails don't get " lost " in the many submissions they get every day. Maybe send them in the same hour on the same day, etc. I think that would be great! All the best, Robyn From: gvizjazzaol (DOT) com <gvizjazzaol (DOT) com> Subject: Re: Re: Larry King & groups (DOT) com Date: Friday, August 21, 2009, 11:58 AM Any videos for youtube of kids doing well would be great! We can all work together and with all our efforts we can get Dr. Goldberg the recognition both he and our kids need so much! Gayle Larry King & > > > > > > > My daughter had a ph. consult with Dr. G few days ago I`ve mentioned to her would love to see Dr. Goldberg on Larry King to get his message out. > He told her he would love to do this & have a debate with other (DAN) ect Dr`s > Does anyone know the process how to get this done. Just curious anyones thoughts. > Thanks > Carole > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 I've only seen recommended testing, not a protocol on the site. Perhaps someone knows where to find it on the site (maybe I overlooked it)? Do the same things work for different kids? Is there a list of treatments and their success rates? Sorry for all of the questions! ________________________________ From: <jrodrig6605@...> nids Sent: Tuesday, August 25, 2009 11:37:25 AM Subject: RE: Re: Larry King &  Hi , You have to follow and understand the protocol. I think this information is posted in www.nids.net. Hope this helps, JR groups (DOT) com From: stacy171 (DOT) com Date: Fri, 21 Aug 2009 15:44:31 -0700 Subject: Re: Re: Larry King & Would any of you discuss what specific treatments worked? ____________ _________ _________ __ From: <jrodrig6605@ hotmail.com> nidsgroups (DOT) com Sent: Friday, August 21, 2009 4:47:51 PM Subject: RE: Re: Larry King & I have been locating videos for the past several weeks so I can upload them into youtube. By the way I send Dr. Goldberg a 1 minute video of my son prior to the monthly phone consult. JR groups (DOT) com From: rngcoggssbcglobal (DOT) net Date: Fri, 21 Aug 2009 13:03:19 -0700 Subject: Re: Re: Larry King & If we do email Larry King, or Oprah for that matter, we should coordinate the effort, so that the emails don't get " lost " in the many submissions they get every day. Maybe send them in the same hour on the same day, etc. I think that would be great! All the best, Robyn From: gvizjazzaol (DOT) com <gvizjazzaol (DOT) com> Subject: Re: Re: Larry King & groups (DOT) com Date: Friday, August 21, 2009, 11:58 AM Any videos for youtube of kids doing well would be great! We can all work together and with all our efforts we can get Dr. Goldberg the recognition both he and our kids need so much! Gayle Larry King & > > > > > > > My daughter had a ph. consult with Dr. G few days ago I`ve mentioned to her would love to see Dr. Goldberg on Larry King to get his message out. > He told her he would love to do this & have a debate with other (DAN) ect Dr`s > Does anyone know the process how to get this done. Just curious anyones thoughts. > Thanks > Carole > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 I support what you are saying. I do not support randomly putting videos on YouTube. YouTube, as far as I can tell, does not have the space to describe and what our families have been through, and the recovery that is possible for our kids. Kristy From: [mailto: ] On Behalf Of Sent: Tuesday, August 25, 2009 6:56 AM nids Subject: RE: Re: Larry King & We need to start showing strong evidence on how sick our children are and how it correlates to " autism " . We have been collecting dozens of lab tests, brain SPECT scans, EEGs and videos that prove my son's autoimmune disorder/dysfunction and inflammation. Now, his immune system is so much healthier and it shows in his improvements. I am sure I am not the only one with this kind of strong evidence. All of us have to act like one to help other people, it is not easy and it might require some exposure, but we should not stay with our arms crossed. The big guns will not listen to us, " they haven't done it for the past decade " if we don't act together showing evidence that people can't just argue. Dr. Goldberg keeps saying " parents need to act together and spread the right message " . That is what we are trying to get started over here. JR <mailto:%40> From: knardini@... <mailto:knardini%40roadrunner.com> Date: Mon, 24 Aug 2009 23:17:37 -0700 Subject: RE: Re: Larry King & I would. My son is not yet recovered, but he's healthy, bright, happy, alert, social, etc. Sorry.I'm not ready to randomly post his videos on YouTube or to the Internet. I will only share our story with the " big guns " , i.e. Oprah or Larry King, for example, and ONLY in the context that my son has a medical illness. I don't know that my son is ready yet for a show on recovery, but he will be. Kristy From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Sent: Friday, August 21, 2009 3:45 PM <mailto:%40> Subject: Re: Re: Larry King & Would any of you discuss what specific treatments worked? ________________________________ From: <jrodrig6605@... <mailto:jrodrig6605%40hotmail.com> <mailto:jrodrig6605%40hotmail.com> > nids <mailto:nids%40> <mailto:nids%40> Sent: Friday, August 21, 2009 4:47:51 PM Subject: RE: Re: Larry King & I have been locating videos for the past several weeks so I can upload them into youtube. By the way I send Dr. Goldberg a 1 minute video of my son prior to the monthly phone consult. JR groups (DOT) com From: rngcoggssbcglobal (DOT) net Date: Fri, 21 Aug 2009 13:03:19 -0700 Subject: Re: Re: Larry King & If we do email Larry King, or Oprah for that matter, we should coordinate the effort, so that the emails don't get " lost " in the many submissions they get every day. Maybe send them in the same hour on the same day, etc. I think that would be great! All the best, Robyn From: gvizjazzaol (DOT) com <gvizjazzaol (DOT) com> Subject: Re: Re: Larry King & groups (DOT) com Date: Friday, August 21, 2009, 11:58 AM Any videos for youtube of kids doing well would be great! We can all work together and with all our efforts we can get Dr. Goldberg the recognition both he and our kids need so much! Gayle Larry King & > > > > > > > My daughter had a ph. consult with Dr. G few days ago I`ve mentioned to her would love to see Dr. Goldberg on Larry King to get his message out. > He told her he would love to do this & have a debate with other (DAN) ect Dr`s > Does anyone know the process how to get this done. Just curious anyones thoughts. > Thanks > Carole > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2009 Report Share Posted August 26, 2009 , You are right. There are a few presentation slides in the nids.net website that explains the medical problem very clearly, but it doesn't explain the protocol in as much detail. I have a phone consult tomorrow with Dr. Goldberg and I will mention this to him. JR From: stacy171@... Date: Tue, 25 Aug 2009 09:33:00 -0700 Subject: Re: Re: Larry King & I've only seen recommended testing, not a protocol on the site. Perhaps someone knows where to find it on the site (maybe I overlooked it)? Do the same things work for different kids? Is there a list of treatments and their success rates? Sorry for all of the questions! ________________________________ From: <jrodrig6605@...> nids Sent: Tuesday, August 25, 2009 11:37:25 AM Subject: RE: Re: Larry King & Hi , You have to follow and understand the protocol. I think this information is posted in www.nids.net. Hope this helps, JR groups (DOT) com From: stacy171 (DOT) com Date: Fri, 21 Aug 2009 15:44:31 -0700 Subject: Re: Re: Larry King & Would any of you discuss what specific treatments worked? ____________ _________ _________ __ From: <jrodrig6605@ hotmail.com> nidsgroups (DOT) com Sent: Friday, August 21, 2009 4:47:51 PM Subject: RE: Re: Larry King & I have been locating videos for the past several weeks so I can upload them into youtube. By the way I send Dr. Goldberg a 1 minute video of my son prior to the monthly phone consult. JR groups (DOT) com From: rngcoggssbcglobal (DOT) net Date: Fri, 21 Aug 2009 13:03:19 -0700 Subject: Re: Re: Larry King & If we do email Larry King, or Oprah for that matter, we should coordinate the effort, so that the emails don't get " lost " in the many submissions they get every day. Maybe send them in the same hour on the same day, etc. I think that would be great! All the best, Robyn From: gvizjazzaol (DOT) com <gvizjazzaol (DOT) com> Subject: Re: Re: Larry King & groups (DOT) com Date: Friday, August 21, 2009, 11:58 AM Any videos for youtube of kids doing well would be great! We can all work together and with all our efforts we can get Dr. Goldberg the recognition both he and our kids need so much! Gayle Larry King & > > > > > > > My daughter had a ph. consult with Dr. G few days ago I`ve mentioned to her would love to see Dr. Goldberg on Larry King to get his message out. > He told her he would love to do this & have a debate with other (DAN) ect Dr`s > Does anyone know the process how to get this done. Just curious anyones thoughts. > Thanks > Carole > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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