Memory

[Guest guest]

hello piracetam has helped my cognitve a bit and have no side effects from

it ..known by alot of names also mentioned in ken lassersons cfids

treatment web site ..good luckk tealk

> [Original Message]

> From: Tomcy6 <tomcy6@...>

> < >

> Date: 4/22/2004 10:39:09 PM

> Subject: Memory

>

> Hi Peggy.

>

> I just wanted to testify too. CFIDS has devastated my cognitive

> abilities. I was above average in intelligence and memory. I am now

> stupid and have a terrible memory. I read and try to exercise my

> brain cells, but I feel that I am losing ground.

>

> Does anyone have any treatments that have helped cognitive

> function? I'm sure you've told us about it before, but I don't

> remember. Would you mind telling us again? Thanks.

>

> Tom

>

>

>

>

> This list is intended for patients to share personal experiences with

each other, not to give medical advice. If you are interested in any

treatment discussed here, please consult your doctor.

>

[Guest guest]

Memory

> Does anyone have any treatments that have helped cognitive

> function? I'm sure you've told us about it before, but I don't

> remember. Would you mind telling us again? Thanks.

For myself Samento TOA-free liquid extract. Wished I'd had it when I took my

exams!!

http://www.samento.com.ec/nutranews/ad001.html

Kezzi. . .

The Samento FAQ

http://samento-faq.eu.kz

[Guest guest]

I recently read about a study that found that even a slight iron deficiency

affects memory, and that it improves when iron is taken. The person doesn't

have to be anemic to be helped by taking iron. Sorry, but I don't have a

URL for more info.

sue ellen

On 4/23/04 Tomcy6 <tomcy6@...> wrote:

>Does anyone have any treatments that have helped  cognitive

>function?  I'm sure you've told us about it before, but I don't

>remember.  Would you mind telling us again?  Thanks.

[Guest guest]

here's the article, as posted on cnn. (it appeared in other news outlets,

too.)

--lurker maggie

Study: Mild iron deficiency affects thinking

Tuesday, April 20, 2004 Posted: 1:52 PM EDT (1752 GMT)

http://www.cnn.com/2004/HEALTH/04/20/iron.deficiency.reut/

WASHINGTON (Reuters) -- Women with even a small deficiency of iron may have

a little more trouble thinking and remembering than those those with

adequate iron levels, U.S. researchers reported Monday.

They found that young women with mild deficiency but not medical anemia who

took iron supplements for four months significantly improved their

performance on tests of attention, short-term and long-term memory. They

also did better on cognitive tasks.

In addition, anemic women clearly had trouble on the tests of mental

performance, the team at Pennsylvania State University reported. The more

anemic a woman was, the longer it took her to complete the tasks.

But when anemic women were given iron supplements, they also improved, the

researchers told a meeting of the American Society of Nutritional Sciences,

part of the Experimental Biology 2004 conference in Washington.

Dr. Murray-Kolb and Dr. Beard studied 113 women classified as

either iron-sufficient, iron-deficient but not anemic, or anemic.

The women were then given either 60-milligram iron pills or placebos for 16

weeks.

They were examined at the beginning and end of the four-month period.

Before getting the pills, women who were iron-deficient but not anemic did

as well on tests as women with normal iron levels, but it took them longer.

After taking the pills, they could work as fast, on average.

Murray-Kolb said in the United States 9 percent to 11 percent of women of

reproductive age are iron deficient and 25 percent of pregnant women are.

In the developing world 40 to 50 percent of women are anemic. The World

Health Organization considers iron deficiency the leading nutritional

disorder in the world, affecting 30 percent of the global population.

Iron deficiency causes poorer physical endurance, an impaired immune

response, temperature regulation difficulties, changes in energy metabolism,

and in children, a decrease in cognitive performance as well as negative

affects on behavior.

But adult men and women past childbearing age are very unlikely to have iron

deficiency and can develop iron overload, in which excess iron is found in

the blood and stored in organs such as the liver and heart.

Some studies suggest but have not yet proven a link between high iron levels

and heart disease.

----------------------------------------------------------------------------

----

Copyright 2004 Reuters. All rights reserved.This material may not be

published, broadcast, rewritten, or redistributed.

Re: Memory

I recently read about a study that found that even a slight iron deficiency

affects memory, and that it improves when iron is taken. The person doesn't

have to be anemic to be helped by taking iron. Sorry, but I don't have a

URL for more info.

sue ellen

On 4/23/04 Tomcy6 <tomcy6@...> wrote:

>Does anyone have any treatments that have helped cognitive

>function? I'm sure you've told us about it before, but I don't

>remember. Would you mind telling us again? Thanks.

[Guest guest]

Hi

Daily shots of hydroxycobalamin (B12) shots has been the best for cognitive

problems. There is a lot about doseage etc in the archives.

Doris

----- Original Message -----

Does anyone have any treatments that have helped cognitive

function?

[Guest guest]

On 4/23/04 Tomcy6 <tomcy6@...> wrote:

>Does anyone have any treatments that have helped  cognitive

>function?  I'm sure you've told us about it before, but I don't

>remember.  Would you mind telling us again?  Thanks.

----------------------

I've had good experience with the information linked off of the iHerb

site. These are two (overlapping) relevant pieces found there:

(Most of the individual treatments are then clickable to get to a page

about each one.)

ENHANCING MEMORY AND MENTAL FUNCTION

http://healthinfo.healthgate.com/GetContent.aspx?token=e0498803-7f62-456

3-8d47-5fe33da65dd4 & chunkiid=35549

Principal Proposed Natural Treatments

• Bacopa Monniera (brahmi); Ginkgo; Ginseng; Phosphatidylserine

Other Proposed Natural Treatments

• Acetyl-L-carnitine; DHEA (Dehydroepiandrosterone); Huperzine A;

NADH; Rhodiola rosea; Tyrosine; Vitamin B12

MEMORY LOSS: ALZHEIMER’S DISEASE AND NON-ALZHEIMER’S DEMENTIA

http://healthinfo.healthgate.com/GetContent.aspx?token=e0498803-7f62-456

3-8d47-5fe33da65dd4 & chunkiid=38566

Principal Proposed Natural Treatments

• Acetyl-L-carnitine; Ginkgo; Huperzine A; Phosphatidylserine;

Vinpocetine

Other Proposed Natural Treatments

• Aromatherapy; Choline or Phosphatidylcholine; DHEA; Lemon Balm;

N-Acetyl Cysteine (NAC); Sage

My own experience, totally unscientific (I don't even try to change just

one thing at a time):

-Bacopa was bad.

-Ginkgo was not noticeable.

-Acetyl-L-carnitine, Ginseng, Rhodiola rosea, and Phosphatidylserine are

positive and I still take them. Phosphatidylserine I take in the more

active/available form of Seriphos.

-DHEA I found generally quite helpful, but have stopped with the sense

of not needing it anymore and therefore feeling " wired. "

-Huperzine A I found quite helpful, but a little increasingly goes a

long way, and I have stopped it now.

-Vinpocetine and N-Acetyl Cysteine (NAC) both seemed extremely active in

me, and scared me off right away. However, I still have the idea of

going back at some point and starting with really tiny amounts,

especially Vinpocetine.

On this page: http://www.iherb.com/health.html

There is a link to this book. But it was down just now when I tried it.

COMPLETE BOOKS ON-LINE:

MIND BOOSTERS: ENHANCE YOUR MIND, MEMORY, AND MOOD, RAY SAHELIAN, M.D.

[Guest guest]

Hi ,

the risk of iron overdose is more common than underdose level... many

foods are supplimented , fortified with iron Higher risk for males as they

tend to eat higher calories, hence more foods iron fortiefied than females

plus dont lose iron with montly menstrutation.... Plus suppliment companys

often make vitamin /mineral suppliments without iron and ? copper as the

risk of oversupplimntaion of these minerals is more dangerous.

Years ago my alternative md who figured out the nitrous oxide

connection for me early in the illness told me to get mineral/ vitamin

suppliments without iron etc.Plus their is a rare ? name of the illness

where people store too much iron in their bodies with major health

promblems but too tired to remember more about it..

Granted iron deficiency is possible but very easy to pick up with cbc

with differential, common blood test ordered by mds and if they suspect

they can further order tibc( total iron binding capacity ) and i think

their maybe be , some kind of iron saturation in the blood test etc...

iron defieicney anemia can cause fatigue... but their is also vitamin c ,

folic acid, b 12 deficiney anemia etc...

tealk

> [Original Message]

> From: Sue Ellen <sea@...>

> < >

> Date: 4/23/2004 8:32:35 AM

> Subject: Re: Memory

>

> I recently read about a study that found that even a slight iron

deficiency

> affects memory, and that it improves when iron is taken. The person

doesn't

> have to be anemic to be helped by taking iron. Sorry, but I don't have a

> URL for more info.

>

> sue ellen

>

>

> On 4/23/04 Tomcy6 <tomcy6@...> wrote:

>

> >Does anyone have any treatments that have helped  cognitive

> >function?  I'm sure you've told us about it before, but I don't

> >remember.  Would you mind telling us again?  Thanks.

>

>

>

> This list is intended for patients to share personal experiences with

each other, not to give medical advice. If you are interested in any

treatment discussed here, please consult your doctor.

>

[Guest guest]

Hi Puula & Tom,

a, am interested in the tendon damage you mentioned from taking

quinolones. I have a busted posterior tibial tendon and was on Flagyl. Wore a

black

boot for about three months and now will need a shoe with a brace that goes half

way up my leg. Pain was awful. Really need surgery but Drs. don't want to

because of my age, am senior citizen. Would have to be off that ankle and foot

for 3 months (on a walker) and the chance of infection would be great. So

a, have you heard of Flagyl being bad for tendons also?

Tom and Everyone that will listen to me. Have mentioned this before but

apparently no one has picked up on it. The most wonderful think for memory is

Phosphatidyl Serine, not anything else but PHOSPHATIDYL SERINE (nothing else

that

sounds like it) the difference is noticed right away.

Take Care,

H.

So what does this mean to you? Well, for one thing, be sure to find out as

best you can if you have ongoing infections. Find out if you seem to respond

to any antibiotics. Then stick with the antibiotics as long as necessary.

For me it took several years. Watch out for the quinolones, as they can

cause severe central nervous system and tendon damage which will be worse

than your original disease. If you want to find a doctor who understands

this write me off list. I MAY know of a doctor near you. I am not a doctor,

and I do not know how to treat your case - just giving you some ideas to

pursue with a knowledgeable doctor.

Glad to help if I can,

a Carnes

[Guest guest]

NAAAAH !!

SC

memory

I have been having some memory lapses and have to think harder

sometimes. Could be that age thing too!

Charlie

[Guest guest]

I wouldn't be surprised if it was. I'm surprised when

I do remember something with either my short term or

long term memory.

ak

--- soulpalace1 <soulpalace1@...> wrote:

> I have been having some memory lapses and have to

> think harder

> sometimes. Could be that age thing too!

> Charlie

>

>

>

>

>

[Guest guest]

you must not be too old. either that or you keep your

mind sharp by reading and other things that require

your mind to think.

ak

--- Sue Chapman <chapmn47@...> wrote:

> NAAAAH !!

>

> SC

> memory

>

>

> I have been having some memory lapses and have to

> think harder

> sometimes. Could be that age thing too!

> Charlie

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

[Guest guest]

Whew~

Glad to see that many others are seeing short term mempry lapses as

well.

>

> I have been having some memory lapses and have to think harder

> sometimes. Could be that age thing too!

> Charlie

>

[Guest guest]

me too.

ak

--- splcll <splcll@...> wrote:

> Whew~

> Glad to see that many others are seeing short term

> mempry lapses as

> well.

>

>

>

> >

> > I have been having some memory lapses and have to

> think harder

> > sometimes. Could be that age thing too!

> > Charlie

> >

>

>

>

>

>

>

[Guest guest]

Hi Kathy K,

I have a 13 year old son with AS - I have the same thing! he often says he can't

remember what he did last week let alone last Chistmas! Sometimes though, with

gentle prompting or saying 'Do you remember when we did 'x'', he will remember,

other times not. To me, I think it is he remembers the things he is interested

in (particulalry hard facts) but the general stuff just seems to get lost in the

ether of his mind.

H.

( ) memory

My son says he can't remember back very far, like even last Christmas. IF

you give him a fact, he will hand on to it forever, but general memories we

have growing up, interacting with other people, just don't seem to stick.

He is 13, so I would think he could remember last Christmas, or even Easter

this spring?? Anyone else see this??

Kathy K

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[Guest guest]

Our son is 12 and we see the same thing. Heck, he can't remember

what happened at school by the time he gets home sometimes. They do

remember what is interesting to them. I've realized that our son

remembers all the negative things from the past (car breaking down,

pet dying, etc) much more often then he remembers vacations,

holidays, and accomplishments.

>

> Hi Kathy K,

>

> I have a 13 year old son with AS - I have the same thing! he often

says he can't remember what he did last week let alone last

Chistmas! Sometimes though, with gentle prompting or saying 'Do you

remember when we did 'x'', he will remember, other times not. To me,

I think it is he remembers the things he is interested in

(particulalry hard facts) but the general stuff just seems to get

lost in the ether of his mind.

>

> H.

>

> ( ) memory

>

>

> My son says he can't remember back very far, like even last

Christmas. IF

> you give him a fact, he will hand on to it forever, but general

memories we

> have growing up, interacting with other people, just don't seem

to stick.

> He is 13, so I would think he could remember last Christmas, or

even Easter

> this spring?? Anyone else see this??

>

> Kathy K

>

> _____

>

> I am using the free version of SPAMfighter for private users.

> It has removed 15625 spam emails to date.

> Paying users do not have this message in their emails.

> Try SPAMfighter <http://www.spamfighter.com/go.asp?t=249> for

free now!

>

>

[Guest guest]

I am so glad to know that our kids are so much alike.. It helps to feel not

so alone..

My son is the same way!!!

-- Re: ( ) memory

Our son is 12 and we see the same thing. Heck, he can't remember

what happened at school by the time he gets home sometimes. They do

remember what is interesting to them. I've realized that our son

remembers all the negative things from the past (car breaking down,

pet dying, etc) much more often then he remembers vacations,

holidays, and accomplishments.

>

> Hi Kathy K,

>

> I have a 13 year old son with AS - I have the same thing! he often

says he can't remember what he did last week let alone last

Chistmas! Sometimes though, with gentle prompting or saying 'Do you

remember when we did 'x'', he will remember, other times not. To me,

I think it is he remembers the things he is interested in

(particulalry hard facts) but the general stuff just seems to get

lost in the ether of his mind.

>

> H.

>

> ( ) memory

>

>

> My son says he can't remember back very far, like even last

Christmas. IF

> you give him a fact, he will hand on to it forever, but general

memories we

> have growing up, interacting with other people, just don't seem

to stick.

> He is 13, so I would think he could remember last Christmas, or

even Easter

> this spring?? Anyone else see this??

>

> Kathy K

>

> _____

>

> I am using the free version of SPAMfighter for private users.

> It has removed 15625 spam emails to date.

> Paying users do not have this message in their emails.

> Try SPAMfighter <http://www.spamfighter.com/go.asp?t=249> for

free now!

>

>

[Guest guest]

In a message dated 9/27/2006 11:49:48 AM Eastern Standard Time,

toozie@... writes:

He is 13, so I would think he could remember last Christmas, or even Easter

this spring?? Anyone else see this??

Hi,

My son remembered something which never happened to him. I suppose it was

a dream he remembered as real? His dad used to say things about people he

swore happened, but never did, so it may be something hereditary instead of

aspergers. He remembered going to the shore, but all his memories about the trip

were incredibly distorted or completely false, so I think he must have been

dreaming about the trip and he got mixed up (he thought we were at the shore in

the middle of a hurricane, and he wore him swimsuit and sandals the entire time

along with a lot of other false memories). He was so sure it happened the way

he remembered too. I had photos from our trip where he had the false memory,

and it was the only thing that could convince him otherwise. Meg

[Guest guest]

I am glad he is not the only one out there then!! He really retains those

facts. He loves to hear stories of when he was little, maybe because he

can't remember anything. He does seem to hang on to the more negative

things, but happy times seem to get 'lost' in there somewhere. It is like

if it is not something he finds important or interesting or had an impact at

the time it just doesn't 'stick'. IT is funny how they are, but at least

he is not alone.

Kathy K

toozie@...

_____

From:

[mailto: ] On Behalf Of Terry & Hocking

Sent: Saturday, September 23, 2006 12:06 AM

Subject: Re: ( ) memory

Hi Kathy K,

I have a 13 year old son with AS - I have the same thing! he often says he

can't remember what he did last week let alone last Chistmas! Sometimes

though, with gentle prompting or saying 'Do you remember when we did 'x'',

he will remember, other times not. To me, I think it is he remembers the

things he is interested in (particulalry hard facts) but the general stuff

just seems to get lost in the ether of his mind.

H.

( ) memory

My son says he can't remember back very far, like even last Christmas. IF

you give him a fact, he will hand on to it forever, but general memories we

have growing up, interacting with other people, just don't seem to stick.

He is 13, so I would think he could remember last Christmas, or even Easter

this spring?? Anyone else see this??

Kathy K

_____

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It has removed 15625 spam emails to date.

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<http://www.spamfighter.com/go.asp?t=249> ter.com/go.asp?t=249> for free

now!

[Guest guest]

I wish I remembered where I was reading an article recently on memory and

autism. I don't know if it was on the net or in a book. shoot. But there is

actually some type of study done or knowledge about the way memory works with

people who have autism. And they apparently do not store the personal

information the same way that we do. I may get part of this information

incorrect because I don't remember it clearly (HA!) but in the blurb I was

reading, it talked about a person with autism witnessing a car accident or

something like that on the way to school. And then it discussed what the person

(child) remembered from that. If I can remember where I was reading that, I

will send it to the list. I have had a cold this week and my head is halfway

full of cotton! What is not stuffy, is heavily medicated with cold medicine.

So I may remember once I get over this cold.

Roxanna

( ) memory

My son says he can't remember back very far, like even last Christmas. IF

you give him a fact, he will hand on to it forever, but general memories we

have growing up, interacting with other people, just don't seem to stick.

He is 13, so I would think he could remember last Christmas, or even Easter

this spring?? Anyone else see this??

Kathy K

_____

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It has removed 15625 spam emails to date.

Paying users do not have this message in their emails.

Try SPAMfighter <http://www.spamfighter.com/go.asp?t=249> for free now!

[Guest guest]

My six year old has terrible trouble with memory. He is very inconsistent. He

may know something one moment but be unable to recall it the next. He has

struggled to retain simple information like colours and numbers, etc. So yes we

have the same problem here.

beck

( ) memory

My son says he can't remember back very far, like even last Christmas. IF

you give him a fact, he will hand on to it forever, but general memories we

have growing up, interacting with other people, just don't seem to stick.

He is 13, so I would think he could remember last Christmas, or even Easter

this spring?? Anyone else see this??

Kathy K

_____

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It has removed 15625 spam emails to date.

Paying users do not have this message in their emails.

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[Guest guest]

The part of the memory that you are referring to is called executive

function or in this case executive dysfunction. If you google this term you

will

come up with TONS of information but basically executive dysfunction is the

inability to compartmentalize the information they receive in appropriate files

in their brains and then the inability to retrieve that information. The

part of the brain that is responsible for executive dysfunction is the frontal

cortex and it is proven that our children have different formation in their

frontal cortex so this is literally brain based. They are not doing it on

purpose. This is not intentional. They literally are unable to retrieve the

information. I utilize the ROPES curriculum thru Schetter. It

utilizes graphic organizers and can be used with curriculum and social

settings.

_http://www.autismandbehavior.com/services.htm#ropes_manual_

(http://www.autismandbehavior.com/services.htm#ropes_manual)

Connie Ajay

[Guest guest]

Gretchen, Although I have not become as acutely sick as some of the other ladies here, I have been suffering chronically from these periods where I just feel so 'out of it' that I don't know what I am doing and can't think or concentrate. It's like I am super spaced out for like a whole day sometimes. If I don't write everything down I forget!! And yesterday I had re-ccurring intense dizziness, lightheadedness with nausea and chest pains on and off all day. I have been having days like this for no apparrent reason for years now, and Dr.s have told me that what I am experiencing are panic attacks. These seem to be common symptoms experienced by alot of the women in the group, so the likelihood of it being connected to implants is huge. Katy:) foxygretchy <gretchenc@...> wrote: i feel that this week i have lost my short term memory really bad.i am seeing kolb monday and thats all i can do to stay sane.did you all lose your memory with implants? if so, did it come back?i will be lost for the rest of my life if i stay like this!

Ask a question on any topic and get answers from real people. Go to Answers.

[Guest guest]

Katy,

The only time in my life that I had panic attacks was when I had

implants - I had them very frequently during the 6 months that I had

implants, and haven't had a single once since explant.

Sis

> i feel that this week i have lost my short term memory

really bad.

> i am seeing kolb monday and thats all i can do to stay sane.

> did you all lose your memory with implants? if so, did it come

back?

> i will be lost for the rest of my life if i stay like this!

>

>

>

>

>

>

> ---------------------------------

> Ask a question on any topic and get answers from real people. Go

to Answers.

>

[Guest guest]

Yes, I think panic attacks occur with a lot of our implanted women,

and sometimes also during detoxing.

Lynda

At 09:45 AM 2/15/2007, you wrote:

>Katy,

>

>The only time in my life that I had panic attacks was when I had

>implants - I had them very frequently during the 6 months that I had

>implants, and haven't had a single once since explant.

>

>Sis

>

>

> > i feel that this week i have lost my short term memory

>really bad.

> > i am seeing kolb monday and thats all i can do to stay sane.

> > did you all lose your memory with implants? if so, did it come

>back?

> > i will be lost for the rest of my life if i stay like this!

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Ask a question on any topic and get answers from real people. Go

>to Answers.

> >

>

>

[Guest guest]

Katy,

I think these episodes could be related to the adrenal glands. Have you had yours checked, either through allopathic medicine, or naturopathic doctors, or both?

They can test your cortisol levels by saliva, and it may be helpful to find out if your adrenal glands are going through "sputters" or adrenal exhaustion.

Patty

Re: memory

Gretchen,

Although I have not become as acutely sick as some of the other ladies here, I have been suffering chronically from these periods where I just feel so 'out of it' that I don't know what I am doing and can't think or concentrate. It's like I am super spaced out for like a whole day sometimes. If I don't write everything down I forget!!

And yesterday I had re-ccurring intense dizziness, lightheadedness with nausea and chest pains on and off all day. I have been having days like this for no apparrent reason for years now, and Dr.s have told me that what I am experiencing are panic attacks. These seem to be common symptoms experienced by alot of the women in the group, so the likelihood of it being connected to implants is huge.

Katy:)

foxygretchy <gretchencgmail (DOT) com> wrote:

i feel that this week i have lost my short term memory really bad.i am seeing kolb monday and thats all i can do to stay sane.did you all lose your memory with implants? if so, did it come back?i will be lost for the rest of my life if i stay like this!

Ask a question on any topic and get answers from real people. Go to Answers.

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