Re: New . My son turn 9 yrs old language and social skills at 8 yrs behind

[Guest guest]

Kathy,

My favorite thing to say is: an ounce of GOOD biomed is worth a pound of

therapy. If you get your kid medically stable the therapy can become obsolete

or extremely effective.

I was also told all of the things my daughter would never do when she was

diagnosed with autism 2 years ago. She had moderate autism. Today after less

than a year with Dr. and the NNY Autism Center my daughter is doing

things the doctors and therapists said she would never do and we have PEACE

again in my home. My daughter would not qualify today to have autism, although

she has language delay and that just takes some time to get better. It has been

a hard road but my child has a fighting chance at a normal life! Don't believe

what people tell you. Our kids are physically sick, they need help!

I have 2 NT children and they act atrociously when they are sick, what do we

expect from our chronically ill children with ASD to behave? These poor kids.

I pray people will wake up!

Good luck to you!

>

> Hi ,

>

> This should be a happy time of my life but every yr when my son gets older I

start to go in depression ,anger failure etc mode. I am sure you all have been

there. I remember saying when my son was 5yrs old he will be doing this

when he is 9 yrs old. Well that didn't happen.

> We have been doing the therapies that got us very little progress,but the

only progress we got was going more into debt. My husband is about to give up.

He keeps saying why put more money into things nothing is working. We stop ABA

since it was so rote and my son had more behavior problems than before starting

it. If I have to hear the word " mand " I think I will go crazy. We have done

OT ,PT and now we are attempting PROMPT speech therapy. Anyone with experience

with this type of speech? Currently my son repeats what we say . His speech is

hard to understand. He is limited with expressive language. He opens his mouth

while he repeats sounds like a ventiliquest.

> With the speech we travel every other week to get 1 hour of speech and I do

the rest during the week. SHe says this is a long process. It can take yrs and

yrs like 5 yrs. I think our family will be burn out before we get to go every

other week for 5 yrs.

> I have been reading some posts and I wonder if my son has viral issues that

keep him from opening his mouth and using his jaw more and knowing to move his

tongue on the roof of his mouth,. I mean if the child can roll his tongue doing

things with his tongue I can not do . I guess this is a motor processing problem

..

> Is there anyone out here that has a child similar that did this protocol

that made progress with language and speech and motor processing problems?

> We just need some progress here just a little light to show us we are on

the right path .

> We are doing RDI which is going well. I tried to homeschool and that is not

easy for me to do right now. I feel so lost with that.

> I have looked into the HANDLE program . Of course that can be expensive. IF

I knew that this would help my child I could care less how much money it takes.

After 7 yrs of DAN biomed , OT , PT speech and Yasko and homeopathy I need to be

on the right path.

> THe only thing that keeps me going is I don't want to quit and always ask

myself what if I did ..... The other thing is a doctor in my state told me

when my child was dx he would never amount to anything. Never have friends

,graduate get married basically it sounded like my son's life was a waste. I

really want my son back and I want to march right in that office and tell him

now try to diagnose him.

> sorry for such a long post . I had to vent and get this out.

> Thanks for listening

> Best

> Kathy

>

[Guest guest]

Kathy, my son is 5 1/2 he is doing better (very slowly...) socially, in terms of

attention, mood, etc. in terms of language he is not progressing very much...

but to be honest we've seeing a lot of progress during the last 3 months with

antivirals. he is a different child, and even though his language still not

hear, now I do have some hope that biomed will help there as well. therapy didnt

work when he wasnt feeling well, now is working a little better.

From: jlhank80 <jlhank80@...>

Subject: Re: New . My son turn 9 yrs old language and social skills at 8

yrs behind

Date: Thursday, August 20, 2009, 3:36 PM

 

Kathy,

My favorite thing to say is: an ounce of GOOD biomed is worth a pound of

therapy. If you get your kid medically stable the therapy can become obsolete

or extremely effective.

I was also told all of the things my daughter would never do when she was

diagnosed with autism 2 years ago. She had moderate autism. Today after less

than a year with Dr. and the NNY Autism Center my daughter is doing

things the doctors and therapists said she would never do and we have PEACE

again in my home. My daughter would not qualify today to have autism, although

she has language delay and that just takes some time to get better. It has been

a hard road but my child has a fighting chance at a normal life! Don't believe

what people tell you. Our kids are physically sick, they need help!

I have 2 NT children and they act atrociously when they are sick, what do we

expect from our chronically ill children with ASD to behave? These poor kids.

I pray people will wake up!

Good luck to you!

>

> Hi ,

>

> This should be a happy time of my life but every yr when my son gets older I

start to go in depression ,anger failure etc mode. I am sure you all have been

there. I remember saying when my son was 5yrs old he will be doing this

when he is 9 yrs old. Well that didn't happen.

> We have been doing the therapies that got us very little progress,but the

only progress we got was going more into debt. My husband is about to give up.

He keeps saying why put more money into things nothing is working. We stop ABA

since it was so rote and my son had more behavior problems than before starting

it. If I have to hear the word " mand " I think I will go crazy. We have done

OT ,PT and now we are attempting PROMPT speech therapy. Anyone with experience

with this type of speech? Currently my son repeats what we say . His speech is

hard to understand. He is limited with expressive language. He opens his mouth

while he repeats sounds like a ventiliquest.

> With the speech we travel every other week to get 1 hour of speech and I do

the rest during the week. SHe says this is a long process. It can take yrs and

yrs like 5 yrs. I think our family will be burn out before we get to go every

other week for 5 yrs.

> I have been reading some posts and I wonder if my son has viral issues that

keep him from opening his mouth and using his jaw more and knowing to move his

tongue on the roof of his mouth,. I mean if the child can roll his tongue doing

things with his tongue I can not do . I guess this is a motor processing problem

..

> Is there anyone out here that has a child similar that did this protocol

that made progress with language and speech and motor processing problems?

> We just need some progress here just a little light to show us we are on

the right path .

> We are doing RDI which is going well. I tried to homeschool and that is not

easy for me to do right now. I feel so lost with that.

> I have looked into the HANDLE program . Of course that can be expensive. IF

I knew that this would help my child I could care less how much money it takes.

After 7 yrs of DAN biomed , OT , PT speech and Yasko and homeopathy I need to be

on the right path.

> THe only thing that keeps me going is I don't want to quit and always ask

myself what if I did ..... The other thing is a doctor in my state told me

when my child was dx he would never amount to anything. Never have friends

,graduate get married basically it sounded like my son's life was a waste. I

really want my son back and I want to march right in that office and tell him

now try to diagnose him.

> sorry for such a long post . I had to vent and get this out.

> Thanks for listening

> Best

> Kathy

>

[Guest guest]

Dear Kathy.

 

You sound like you are very hands-on and this will go very far to help your son.

There are a lot of good home therapy products from companies such as

Linquisystems,

Great Ideas for Teaching, and SuperDuperInc.  My son did not have any expressive

language until he learned how to read.   A lot of those programs combine using

the visual

(words) to help speed up the processing, develop expressive language, pragmatic

language

etc.  Once you son gets better expressively and gets the hang of it, then it

seems like

it is easier to learn language more and more naturally through the ear.  There

are also

exercises with these companies that help with specific auditory processing

exercises,

logic, reasonsing, etc.

 

The other thing that has been helpful is Floortime.  The basic premise is to

take

what your son is interested in, join in with him, and expand his play.  This

also creates

an interest in his part to interact with you and eventually, the circle gets

wider.

 

With any therapy, take the parts that you believe will work for you.  For

example, my son

was nine years old when we started Floortime, so I did not begin by having him

" feed the baby " .   If you google Stanley Greenspan, there are some terrific

books on DIR/Floortime

therapy.

 

I have found with my son, that I have to show him EVERYTHING.  Sometimes with

these

kids, it doesn't initially occur to then to try to communicate with you when

they have

a problem, something is bothering them, or they disagree with you about

something.  So

we started out that I would offer him a multiple choice and model the proper way

of

telling me what he needed (together.), to reviewing these situations that come

up in our

life on paper and writing down/talking about what is appropriate, to my just

asking him

these things and trying to preview with him.  You will often see behavior when a

child

just doesn't know how to effectively get his ideas across.

 

You are smart to question those ABA therapists.  Some are good, others not.  The

ones

that go by their own manuals all the time and never look at development are not

good. Also, the ones that all they want to do is collect data and give your kid

a gummy for doing something are the worst for our kids.  ABA should be natural.

I respectfully disagree with the comment about Biomed.  Biomed does not help a

child

catch up on development.  This work must be done by the parents and their

therapists.

Getting the body better is great, but whereever your son stopped developing is

where you should start from.  Kids don't automatically catch up because of

whatever they are

medically/biomedically doing.

 

Good luck to you. 

 

Lynn

From: jlhank80 <jlhank80 (DOT) com>

Subject: Re: New . My son turn 9 yrs old language and social skills at 8

yrs behind

groups (DOT) com

Date: Thursday, August 20, 2009, 3:36 PM

 

Kathy,

My favorite thing to say is: an ounce of GOOD biomed is worth a pound of

therapy. If you get your kid medically stable the therapy can become obsolete or

extremely effective.

I was also told all of the things my daughter would never do when she was

diagnosed with autism 2 years ago. She had moderate autism. Today after less

than a year with Dr. and the NNY Autism Center my daughter is doing

things the doctors and therapists said she would never do and we have PEACE

again in my home. My daughter would not qualify today to have autism, although

she has language delay and that just takes some time to get better. It has been

a hard road but my child has a fighting chance at a normal life! Don't believe

what people tell you. Our kids are physically sick, they need help!

I have 2 NT children and they act atrociously when they are sick, what do we

expect from our chronically ill children with ASD to behave? These poor kids. I

pray people will wake up!

Good luck to you!

>

> Hi ,

>

> This should be a happy time of my life but every yr when my son gets older I

start to go in depression ,anger failure etc mode. I am sure you all have been

there. I remember saying when my son was 5yrs old he will be doing this

when he is 9 yrs old. Well that didn't happen.

> We have been doing the therapies that got us very little progress,but the only

progress we got was going more into debt. My husband is about to give up. He

keeps saying why put more money into things nothing is working. We stop ABA

since it was so rote and my son had more behavior problems than before starting

it. If I have to hear the word " mand " I think I will go crazy. We have done OT

,PT and now we are attempting PROMPT speech therapy. Anyone with experience with

this type of speech? Currently my son repeats what we say . His speech is hard

to understand. He is limited with expressive language. He opens his mouth while

he repeats sounds like a ventiliquest.

> With the speech we travel every other week to get 1 hour of speech and I do

the rest during the week. SHe says this is a long process. It can take yrs and

yrs like 5 yrs. I think our family will be burn out before we get to go every

other week for 5 yrs.

> I have been reading some posts and I wonder if my son has viral issues that

keep him from opening his mouth and using his jaw more and knowing to move his

tongue on the roof of his mouth,. I mean if the child can roll his tongue doing

things with his tongue I can not do . I guess this is a motor processing problem

..

> Is there anyone out here that has a child similar that did this protocol that

made progress with language and speech and motor processing problems?

> We just need some progress here just a little light to show us we are on the

right path .

> We are doing RDI which is going well. I tried to homeschool and that is not

easy for me to do right now. I feel so lost with that.

> I have looked into the HANDLE program . Of course that can be expensive. IF I

knew that this would help my child I could care less how much money it takes.

After 7 yrs of DAN biomed , OT , PT speech and Yasko and homeopathy I need to be

on the right path.

> THe only thing that keeps me going is I don't want to quit and always ask

myself what if I did ..... The other thing is a doctor in my state told me when

my child was dx he would never amount to anything. Never have friends ,graduate

get married basically it sounded like my son's life was a waste. I really want

my son back and I want to march right in that office and tell him now try to

diagnose him.

> sorry for such a long post . I had to vent and get this out.

> Thanks for listening

> Best

> Kathy

>