Discouraged need support

[Guest guest]

I am writing for my daughter My grandson age 11 has had nurmerous treatments

since being diagnosed. The protocol we really had our hope this would be

the one to help him. Feeling this treatment may not be working for him.

He has been on celexa for 9 mths. this is supposed to get the blood flowing as

to help with speech & help inc. melatonin so he could finally get a nights sleep

once on the full dose. We were hanging in their thinking this would work. Now

at 9 mths on this he is still very irritable now more so than ever not sleeping,

no speech has inc. OCD incidences.

He was on Paxil this drug was a nightmare. We were thinking lexapro is a SSRI

he was on this while in pre school and slept through the night did well on

this. Does anyone know why Dr. G. doesn`t use this drug?.

Last test his titers were up. He is such a difficult case. This little boy is so

tired from not sleeping he goes to school cries everyday same time of day

11:00p.m. 1st few days now he is raging very angry.

.. Don`t know what to do need to help this child tired of seeing him so unhappy

& miserable getting very discouraged with all of this. Need to talk to someone

preferrably phone who has been through this. Has anyone been through this this

child & family needs help.

Sincerely

Carole

[Guest guest]

Hi Jim

My name is and I have a 4 years old son who started a protocol

about a mounth ago.

My son also has truoble sleeping and we also use melatonin. He usually has no

problem falling asleep but he wakes up around 1 or 2 am pretty cranky. Dr.

Goldberg as told us to use melatonin on a very limited basis and in extreme

cases, use a very small dose of valium.

I wanted to know how long after starting the protocol you stopped using

melatonin. Also, what results did your daughter experience with valtrex?

Positive or negative?

Regards

Delacroix

El 25/09/2009, a las 15:12, " chocolatiluv " <chocolatiluv@...> escribió:

> >

> > I am writing for my daughter My grandson age 11 has had nurmerous treatments

since being diagnosed. The protocol we really had our hope this would be

the one to help him. Feeling this treatment may not be working for him.

> > He has been on celexa for 9 mths. this is supposed to get the blood flowing

as to help with speech & help inc. melatonin so he could finally get a nights

sleep once on the full dose. We were hanging in their thinking this would work.

Now at 9 mths on this he is still very irritable now more so than ever not

sleeping, no speech has inc. OCD incidences.

> > He was on Paxil this drug was a nightmare. We were thinking lexapro is a

SSRI he was on this while in pre school and slept through the night did well on

this. Does anyone know why Dr. G. doesn`t use this drug?.

> > Last test his titers were up. He is such a difficult case. This little boy

is so tired from not sleeping he goes to school cries everyday same time of day

11:00p.m. 1st few days now he is raging very angry.

> > . Don`t know what to do need to help this child tired of seeing him so

unhappy & miserable getting very discouraged with all of this. Need to talk to

someone preferrably phone who has been through this. Has anyone been through

this this child & family needs help.

> > Sincerely

> > Carole

> >

>

[Guest guest]

I think Diflucan gets rid of the overgrowth of yeast in the body right? If I'm

right then look this up-I was looking up yeast overgrowth and ran across a site

about fixing the reason your (or your child's) body creates an overabundance of

yeast instead of just " chasing the symptoms " -like using Diflucan

I'm not knocking ANY medicine or mdeical treatment! I just think it is

interesting. I think I remember reading that the overgrowth of yeast can come

back once you are off Diflucan so look up Candida-someone wrote a book called I

cured my Candida do can you ( I think this is the correct title) maybe you can

try this for your child? I haven't read it yet because I have been unable to

purchase the book. I think it is only available to order online. It is about $18

I came across it looking up leaky gut syndrome

________________________________

From: <jlhank80@...>

Sent: Friday, September 25, 2009 2:37:38 PM

Subject: Re: Discouraged need support

 

Hi Robyn, My daughter is 4 and we have been working with the NNY autism center

for a year now. My daughter did Valtrex, Diflucan, and Celexa for a while and

Valtrex and Diflucan really helped, but then she became intolerant of the drugs

so now we are just working on her allergies, which seems to be her biggest

issue.

-

> >

> > I am new to so I am still learning, I don't know anything about the

meds used or the reasons why BUT. This little guy probably DOES have reasons for

everything he does, nobody knows children the way their parents do-his mom knows

what is best for him and she should get as much information as possible and I

know this is the hard part but MAKE the doctors listen. I just read

McCarthy's book about her journey through autism. I know autism is different

than but the point I'm trying to make is this-She knew what was right for

her son and if the doctor wouldn't listen to her she made sure she researched

and came right back at those doctors. We all need to have faith in our doctors

but we also need to have faith in ourselves, when your little guy has a

meltdown, look for ANYTHING that may have set him off, chances are if after a

couple of times you start probong as to WHY he is melting you will find the

answer. My psyc teacher said that

> children

> > live in the ID stage-the pleasure state-meaning kids just want to do what is

fun or makes them feel good and they have no concept of waiting, if they want

something or to do something then they want it NOW! Maybe he is melting because

he suddenly wants something or to be able to do something and simply doesn't

know how to ask for it or get it himself? I feel I've offered no help at all but

trust me-if you are determined to help him you are going to succeed. GOOD LUCK

Sorry I wasn't more helpful.

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: chocolatiluv <chocolatiluv@ ...>

> > groups (DOT) com

> > Sent: Thursday, September 17, 2009 10:41:03 AM

> > Subject: Discouraged need support

> >

> >

> >

> > My grandson age 11 non verbal has been a patient for 2 yrs. have been

on numerous treatments lots of out of pocket money.

> > Wondering whether to continue this protocol

> > When first started he got better physically(he was very sick) pale, not

eating, we actually thought he may not make it.

> > Last testing hid titers are up has been on the same antiviral(famvir since

starting this treatment.. Dr. G didn`t want to change.

> > He is on Celexa full dose it took app. 9 mths to get to the full dose. I

guess are thoughts were he would be more pleasant, happy, sleep thru night, more

speech. Right now at this point in treatment we want a happy child that can

sleep through the nite function like a little boy should. We hope speech will

come eventually . We do not have that.

> > This little boy is difficult to understand we constantly observe while on

this med. he is so unpredictable he can be doing good then have a melt down.

Most of the time there is no reason for behavior.

> > My daughter called Dr. G. tallked to receptionist he only wants to lower the

celexa, she mentioned lexapro to her he was on this at a younger age did well

slept through night.He mentioned paxil this drup was a nightmare for him.

> > Has anyone been through thisI am questioning the affect of these SSRI`s on

him PLEASE need to talk to someone.

> > Carole

> >

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