Guest guest Posted March 26, 2012 Report Share Posted March 26, 2012 Hi Everyone, I'm . I have systemic lupus and cranial neuralgias. I've had peripheral neuropathy almost 20 yrs, but the cranial is new and due to inflammatory processes in my blood vessels. I have a condition called trigeminal neuralgia, also called tic deleroux. It is said to be one of the most painful conditions known to man. It is a nightmare! I'm used to living with pain and I do my best to manage my diseases. I've been married 22 years, live in Phoenix, AZ, have two children, one grown and one 11 yrs old. I'm always open to new managing tools and to learn from other people's experiences. Anything I can say or do to help is my pleasure. Very nice to meet you and thank you for having me in your group. Love ________________________________ Hello, I am Rose your fearless leader ...I am 58 and live with my husband of 36 years Ken. Wow where did the years go..my husband is my greatest support and I sure thank God for that...I am blessed to have married my soulmate..I have diabetes, peripheral neuropathy which is nerve damage in my case caused by the diabetes being diagnosed after the damage.... I was diagnosed with Polymylagia Rheumatica, Reflex Sympathetic Dystrophy and FMS/CFS ... ,,,,,,,, Quote Link to comment Share on other sites More sharing options...
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