Help NVA Collect Vital Data On Treatment Effectiveness

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Help NVA Collect Much-Needed Information on Treatment Effectiveness

First Multi-Site Treatment Registry to Enroll Additional 350 Women in 2012

NVA is committed to continuing its support of the first National Vulvodynia

Treatment Outcomes Registry, because due to a lack of research, clinicians and

patients have little to no scientific evidence on which to base important

medical decisions. The only way that women will ever be informed of the

treatment(s) proven effective for their specific vulvodynia subtype - thereby

decreasing the time between diagnosis and initiation of effective treatment - is

through this type of research! Please help us collect this vital data to help

women who are currently suffering as well as those who will come after us.

Over the next 10 months, an additional 350 women age 21 and older will be able

to participate in this important study. Registry investigators collect a wealth

of neurological, infectious, immunological and genetic data from participants at

several time points after initiating treatment - all of which will be correlated

to the effectiveness of different vulvodynia therapies. This study will not only

lead to the identification of factors that can predict treatment effectiveness,

but will help us understand the underlying mechanisms associated with different

vulvodynia subtypes. Participation is voluntary, does not include any

experimentation and does not change women's treatment recommendations.

To speak to the Registry's Research Coordinator Katy Capote about participating

at any of the sites, please call or send an email to

katerina.capote@....

Medical professionals interested in obtaining Registry flyers to distribute to

their patients should also contact Ms. Capote.

To read more about the project, including information on the Registry

Investigators, please visit NVA's web site.

Registry sites are located in:

Little Rock, Arkansas

Los Angeles, California

Denver, Colorado

Fort Lauderdale, Florida (coming soon)

Orlando, Florida

polis, land

New York City, New York (coming soon)

Akron, Ohio

Pittsburgh, Pennsylvania (coming soon)

Washington DC