Guest guest Posted July 15, 2009 Report Share Posted July 15, 2009 Hi , This should be a happy time of my life but every yr when my son gets older I start to go in depression ,anger failure etc mode. I am sure you all have been there. I remember saying when my son was 5yrs old he will be doing this when he is 9 yrs old. Well that didn't happen. We have been doing the therapies that got us very little progress,but the only progress we got was going more into debt. My husband is about to give up. He keeps saying why put more money into things nothing is working. We stop ABA since it was so rote and my son had more behavior problems than before starting it. If I have to hear the word " mand " I think I will go crazy. We have done OT ,PT and now we are attempting PROMPT speech therapy. Anyone with experience with this type of speech? Currently my son repeats what we say . His speech is hard to understand. He is limited with expressive language. He opens his mouth while he repeats sounds like a ventiliquest. With the speech we travel every other week to get 1 hour of speech and I do the rest during the week. SHe says this is a long process. It can take yrs and yrs like 5 yrs. I think our family will be burn out before we get to go every other week for 5 yrs. I have been reading some posts and I wonder if my son has viral issues that keep him from opening his mouth and using his jaw more and knowing to move his tongue on the roof of his mouth,. I mean if the child can roll his tongue doing things with his tongue I can not do . I guess this is a motor processing problem .. Is there anyone out here that has a child similar that did this protocol that made progress with language and speech and motor processing problems? We just need some progress here just a little light to show us we are on the right path . We are doing RDI which is going well. I tried to homeschool and that is not easy for me to do right now. I feel so lost with that. I have looked into the HANDLE program . Of course that can be expensive. IF I knew that this would help my child I could care less how much money it takes. After 7 yrs of DAN biomed , OT , PT speech and Yasko and homeopathy I need to be on the right path. THe only thing that keeps me going is I don't want to quit and always ask myself what if I did ..... The other thing is a doctor in my state told me when my child was dx he would never amount to anything. Never have friends ,graduate get married basically it sounded like my son's life was a waste. I really want my son back and I want to march right in that office and tell him now try to diagnose him. sorry for such a long post . I had to vent and get this out. Thanks for listening Best Kathy Quote Link to comment Share on other sites More sharing options...
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