Guest guest Posted June 20, 2003 Report Share Posted June 20, 2003 If you don't have pain, I'm curious how you got diagnosed. Ann recovery possible? Im new here, 22 yrs old. Is it possible somehow to (almost fully) recover, or heal? Is there anyone who accomplished that? I have chondro (perhaps in an initial stage, cause no i have no pain yet, even after hard training) I've read plenty of messages here, and im getting more and more affraid. It would be very great, to have some hope. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2003 Report Share Posted June 20, 2003 uh im sorry, i lost my pass on my first day or something is wrong with my account. Sorry, my english is not that good but i try my best. So i dont have pain, even after 8 miles of running, or training ju- jitsu, etc. My problem was a noise in my knee, a click, and a strange feeling, when i bend my leg fully, and pull my foot towards me in one definite direction.. its a bit extreme position though, but sometimes it can happen. (But that feeling is scary, just like when /for example/ you wake up in the morning, and do a stretch and your elbow clicks and something moves inside.) If i let my leg then, then it clicks again, and everything goes back to normal. I think it cant be ok. I went to a doctor, they did x-ray, it was perfect. Then he examined me physically, and he found the problem: He pushed my patella up strongly with his hands, and it was very uncomfortable and a bit painful for me. More painful in my right knee, wich has the " click " -problem. He said that's because the cartilage on the patellas are too soft, and i have chondro. I have to give up running, fighting, do a lot of bike, and swimming. And he told me it wont ever heal, and that its a common illness. Im just scared of the problems i probably gonna have, and that's why i ask, is there hope for this chondro to get away, and my patella be ok and hard again? or it will be just worse by time? -- In chondromalacia treatment , " ruby2zdy " <ruby2zdy@l...> wrote: > If you don't have pain, I'm curious how you got diagnosed. > > Ann > recovery possible? > > > Im new here, 22 yrs old. > Is it possible somehow to (almost fully) recover, or heal? > Is there anyone who accomplished that? > I have chondro (perhaps in an initial stage, cause no i have no pain > yet, even after hard training) I've read plenty of messages here, and > im getting more and more affraid. It would be very great, to have > some hope. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2003 Report Share Posted June 20, 2003 Thanks for the details. I suspect, since you're only 22, that eventually they'll be doing autologous chondrocyte implantation on kneecaps (they may already do it, but I haven't found a reference to it on the Web). Also there's a doctor in NYC (and they also do this in Europe) who does " knee replacements " , i.e. he cuts off the backside of the kneecap & replaces it with a metal piece (he also has to replace the trochlear groove in your femur). His site is http://www.patellapain.com/arthritis_of_the_patella.htm Don't be thrown off by the title " arthritis of the patella " -- some doctors feel that CP is arthritis, others feel it's not. You could also try to find a prolotherapist. If some of your tendons aren't tight enough, that could cause your kneecap to slip out of its groove. If you got it (permanently) back in its groove, although you have some damage already, you might not get more, and even if you did, if would certainly slow it down. Another avenue is to find a physical therapist who understands kneecap movement & get them to show you how to do McConnell taping to hold the kneecap in the groove & allow you to be active. But meanwhile, before you find any solutions, you really should take it easy with that knee -- no soccer, rugby, marathon running, long bicycle races. I don't know what's required of knees in juijitsu, but if you can feel it when it clicks, then you shouldn't do that either. Do find SOMETHING you can do that's active & doesn't make your knee click or feel weird. It's very important to remain as active as you can. Ann recovery possible? > > > Im new here, 22 yrs old. > Is it possible somehow to (almost fully) recover, or heal? > Is there anyone who accomplished that? > I have chondro (perhaps in an initial stage, cause no i have no pain > yet, even after hard training) I've read plenty of messages here, and > im getting more and more affraid. It would be very great, to have > some hope. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2003 Report Share Posted June 21, 2003 I had a lot of trouble with the knee. All the constant motion caused my knee to start popping and clicking. I found that swimming was the best exercise for me. But if you do swim, be sure not to use just the breast stroke, try the froggie formation for your upper arms and try backstroking some to give your knees a rest inbetween your laps! http://plainjai.com/knee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2003 Report Share Posted June 21, 2003 Hello! thanks for the swimming advises. I've just met a guy today, he was a basketball coach, and he knows a lot about knees. He also had CP, but it turned out he had cp because of a torn meniscus. ( the patella was unstable because of one piece of a meniscus fragment ) He also had the clicking problem, what's exactly what i have. He had an arthoscopic meniscus surgery and he went back to almost 100percent. I hope i will be that lucky as he. Im going to a sport-clinic next week. Anyway, i asked him a lot about everything, and he told me that if i swim, i must avoid breast stroke. Its not a movement, the human's knee designed for. ( knee is for bending, but if you do breast-stroke, force from the water is coming from the inside and the knee must keep it, not the muscles only) So the possible best for knees is backstroke. i dont have so much experience as you do, but i thought it might help you too > I had a lot of trouble with the knee. All the constant motion caused my knee > to start popping and clicking. I found that swimming was the best exercise > for me. But if you do swim, be sure not to use just the breast stroke, try the > froggie formation for your upper arms and try backstroking some to give your > knees a rest inbetween your laps! > > > http://plainjai.com/knee > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2003 Report Share Posted June 21, 2003 It sounds intuitive but it's not always true. I feel intense pain when I do the flutter kick (crawl or backstroke) but the frog kick (breaststroke) doesn't hurt at all. I told this to my PT. PT responded " do the breaststroke. " Don On Saturday, June 21, 2003, at 01:18 PM, taintedmelodies@... wrote: > I had a lot of trouble with the knee. All the constant motion caused > my knee > to start popping and clicking. I found that swimming was the best > exercise > for me. But if you do swim, be sure not to use just the breast > stroke, try the > froggie formation for your upper arms and try backstroking some to > give your > knees a rest inbetween your laps! > > > http://plainjai.com/knee > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2009 Report Share Posted September 27, 2009 Were just starting too with a low functioning child - I'm just shooting for a better quality of life than I can see for him now. I always say for my kid a 10% improvement is huge for him. So, I have to take baby steps and each little improvement is always so huge for him and our family. That my goal and then if I get more than 10% then it's a total bonus. Laureen On Sep 26, 2009, at 8:35 PM, " georgiasand32 " <georgiasand32@...> wrote: > I have read of patients that have been recovered by Dr. G. However, > they all seem to be high functioning in the first place. Are there > any cases of a low functioning child being recovered by him, and, if > so, how? I would really appreciate hearing back from anyone here > with a low functioning child and learning from your experience. It's > hard. My son did not go on a special diet and suddenly become > better, there's been no response to anything at all. We are in the > process of making an appointment with Dr. G. and would feel a whole > lot better talking to someone about this. Thank you very much. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 Yes, My son was classically autistic. Potty trained at five plus, language delays still at eleven but nearing normal vocab. He is now mainstreamed in fifth grade. The concept is these kids are just sick. Some are more sick than others. They can all get well it just takes longer if the are sicker longer. Once well they can catch up. It is a long slow process but yes, if your child's illness is related to Neuroimflamation that can be treated with antiviral therapy regardless of how sever, can get well again. From: georgiasand32 <georgiasand32@...> Subject: Recovery Possible? Date: Saturday, September 26, 2009, 11:35 PM Â I have read of patients that have been recovered by Dr. G. However, they all seem to be high functioning in the first place. Are there any cases of a low functioning child being recovered by him, and, if so, how? I would really appreciate hearing back from anyone here with a low functioning child and learning from your experience. It's hard. My son did not go on a special diet and suddenly become better, there's been no response to anything at all. We are in the process of making an appointment with Dr. G. and would feel a whole lot better talking to someone about this. Thank you very much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 Wonderful news would you mind sharing your biomed protocol? Thanks Sent from my BlackBerry® wireless device Recovery Possible? Date: Saturday, September 26, 2009, 11:35 PM  I have read of patients that have been recovered by Dr. G. However, they all seem to be high functioning in the first place. Are there any cases of a low functioning child being recovered by him, and, if so, how? I would really appreciate hearing back from anyone here with a low functioning child and learning from your experience. It's hard. My son did not go on a special diet and suddenly become better, there's been no response to anything at all. We are in the process of making an appointment with Dr. G. and would feel a whole lot better talking to someone about this. Thank you very much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 So well said!!! > > From: georgiasand32 <georgiasand32@...> > Subject: Recovery Possible? > > Date: Saturday, September 26, 2009, 11:35 PM > > > > > > > Â > > > > > > I have read of patients that have been recovered by Dr. G. However, they all seem to be high functioning in the first place. Are there any cases of a low functioning child being recovered by him, and, if so, how? I would really appreciate hearing back from anyone here with a low functioning child and learning from your experience. It's hard. My son did not go on a special diet and suddenly become better, there's been no response to anything at all. We are in the process of making an appointment with Dr. G. and would feel a whole lot better talking to someone about this. Thank you very much. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 Working the protocol but more than just the Bio med side. What is most important is to not accept any lowered expectations. Setting and academics . I am not sure recovery is accurate, at a minimum it is a relative term. There will always be an auto immune medical issue but developed, healthy and able for function as a self suffeinct productive member of society are our goals. From: georgiasand32 <georgiasand32@...> Subject: Recovery Possible? Date: Saturday, September 26, 2009, 11:35 PM            I have read of patients that have been recovered by Dr. G. However, they all seem to be high functioning in the first place. Are there any cases of a low functioning child being recovered by him, and, if so, how? I would really appreciate hearing back from anyone here with a low functioning child and learning from your experience. It's hard. My son did not go on a special diet and suddenly become better, there's been no response to anything at all. We are in the process of making an appointment with Dr. G. and would feel a whole lot better talking to someone about this. Thank you very much.                                  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 Thanks for sharing the good news. Yes, there are much hope our there for all our children. My child was not talking til almost 4yrs (2 years into the treatement at that time) and didn't respond to his name.  Now we are very thankful that he is doing fine (so far) at Gen. Ed. for the last 2 years. take care and God bless, eva  From: georgiasand32 <georgiasand32> Subject: Recovery Possible? groups (DOT) com Date: Saturday, September 26, 2009, 11:35 PM            I have read of patients that have been recovered by Dr. G. However, they all seem to be high functioning in the first place. Are there any cases of a low functioning child being recovered by him, and, if so, how? I would really appreciate hearing back from anyone here with a low functioning child and learning from your experience. It's hard. My son did not go on a special diet and suddenly become better, there's been no response to anything at all. We are in the process of making an appointment with Dr. G. and would feel a whole lot better talking to someone about this. Thank you very much.                                  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 Hi Bill, How is your son doing socially? Is he making friends? Does he 'fit in'? My son keeps up academically, he is self-sufficient (i.e. he can take care of himself age-appropriately), but he still has a journey to fit in socially. Language continues to be a hurdle. Kristy From: [mailto: ] On Behalf Of Bill klimas Sent: Monday, September 28, 2009 7:37 AM Subject: Re: Recovery Possible? Working the protocol but more than just the Bio med side. What is most important is to not accept any lowered expectations. Setting and academics . I am not sure recovery is accurate, at a minimum it is a relative term. There will always be an auto immune medical issue but developed, healthy and able for function as a self suffeinct productive member of society are our goals. From: georgiasand32 <georgiasand32@... <mailto:georgiasand32%40> > Subject: Recovery Possible? <mailto:%40> Date: Saturday, September 26, 2009, 11:35 PM I have read of patients that have been recovered by Dr. G. However, they all seem to be high functioning in the first place. Are there any cases of a low functioning child being recovered by him, and, if so, how? I would really appreciate hearing back from anyone here with a low functioning child and learning from your experience. It's hard. My son did not go on a special diet and suddenly become better, there's been no response to anything at all. We are in the process of making an appointment with Dr. G. and would feel a whole lot better talking to someone about this. Thank you very much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 Thanks for the responses. What were the therapies that seemed to work? Did anyone do DAN before this? My son has a terrible GI, scoped by Dr K. in June and has IBD, colitis, stomach erosion etc. He has a 900 IgE allergy score (normal is under 90), he has 500 times too much rubella and was immunized for HepB but shows no immunity to it at all. Does this sound familiar to anyone? Anyone have luck with with a kid with a terrible GI? And possible Lyme? We've done Valtrex and every type of diet with no help so while I am looking forward to working with Dr G. I can't help but be a little wary of having hope for anything at this point. My son turned 3 in August. Finally, how do you know if your child has neuroinlammation? He had a positive IgE on the Anne Connolly test--does this mean he's a candidate for ? In the past he partially responds to medical therapies for a day or two and then slips back and regresses, it's like something in him (virus? metals?) keeps on pulling him back and not allowing him to heal. None of the docs we've seen know what to make of this--has anyone experienced this? If so, what the heck is going on here??? Thank you for any help. > > > > From: georgiasand32 <georgiasand32@> > > Subject: Recovery Possible? > > > > Date: Saturday, September 26, 2009, 11:35 PM > > > > > > > > > > > > > > Â > > > > > > > > > > > > I have read of patients that have been recovered by Dr. G. However, they all seem to be high functioning in the first place. Are there any cases of a low functioning child being recovered by him, and, if so, how? I would really appreciate hearing back from anyone here with a low functioning child and learning from your experience. It's hard. My son did not go on a special diet and suddenly become better, there's been no response to anything at all. We are in the process of making an appointment with Dr. G. and would feel a whole lot better talking to someone about this. Thank you very much. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 Kristy This is the end of the first month of Gen ED. He has had one week of mainstream aftercare. He has started playing board games this week end (first time ever) and talks about various " friends " . There is a lot of ground to cover in the next three years before high school but as I said, it is all relative. Where he was to where he is is unbelievable. Where he needs to go is a daunting journey. From: georgiasand32 <georgiasand32 <mailto:georgiasand 32%40. com> > Subject: Recovery Possible? groups (DOT) com <mailto:% 40groups. com> Date: Saturday, September 26, 2009, 11:35 PM I have read of patients that have been recovered by Dr. G. However, they all seem to be high functioning in the first place. Are there any cases of a low functioning child being recovered by him, and, if so, how? I would really appreciate hearing back from anyone here with a low functioning child and learning from your experience. It's hard. My son did not go on a special diet and suddenly become better, there's been no response to anything at all. We are in the process of making an appointment with Dr. G. and would feel a whole lot better talking to someone about this. Thank you very much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 Thank you! My husband and my son attended a father-son camping trip this weekend. There were about 400 fathers and sons. He said he was wondering if half the boys there are on the spectrum - so many of them had quirks! It makes me wonder if I'm just extra sensitive to my son, and if he really fits in much better than I think. Kristy From: [mailto: ] On Behalf Of Bill klimas Sent: Monday, September 28, 2009 3:18 PM Subject: RE: Recovery Possible? Kristy This is the end of the first month of Gen ED. He has had one week of mainstream aftercare. He has started playing board games this week end (first time ever) and talks about various " friends " . There is a lot of ground to cover in the next three years before high school but as I said, it is all relative. Where he was to where he is is unbelievable. Where he needs to go is a daunting journey. From: georgiasand32 <georgiasand32 <mailto:georgiasand 32%40. com> > Subject: Recovery Possible? groups (DOT) com <mailto:% 40groups. com> Date: Saturday, September 26, 2009, 11:35 PM I have read of patients that have been recovered by Dr. G. However, they all seem to be high functioning in the first place. Are there any cases of a low functioning child being recovered by him, and, if so, how? I would really appreciate hearing back from anyone here with a low functioning child and learning from your experience. It's hard. My son did not go on a special diet and suddenly become better, there's been no response to anything at all. We are in the process of making an appointment with Dr. G. and would feel a whole lot better talking to someone about this. Thank you very much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 To add, sometimes when a child does start to 'wake up', people discover that they know all sorts of things that they had been absorbing all along but couldn't express. Keep on teaching and talking to your child even if you think they don't understand, because when things start to 'click', it is amazing how rapidly some areas can progress, because they have been absorbing knowledge all along. ________________________________ From: Bill klimas <klimas_bill@...> Sent: Monday, September 28, 2009 6:22:15 AM Subject: Re: Recovery Possible?  Yes, My son was classically autistic. Potty trained at five plus, language delays still at eleven but nearing normal vocab. He is now mainstreamed in fifth grade. The concept is these kids are just sick. Some are more sick than others. They can all get well it just takes longer if the are sicker longer. Once well they can catch up. It is a long slow process but yes, if your child's illness is related to Neuroimflamation that can be treated with antiviral therapy regardless of how sever, can get well again. From: georgiasand32 <georgiasand32> Subject: Recovery Possible? groups (DOT) com Date: Saturday, September 26, 2009, 11:35 PM  I have read of patients that have been recovered by Dr. G. However, they all seem to be high functioning in the first place. Are there any cases of a low functioning child being recovered by him, and, if so, how? I would really appreciate hearing back from anyone here with a low functioning child and learning from your experience. It's hard. My son did not go on a special diet and suddenly become better, there's been no response to anything at all. We are in the process of making an appointment with Dr. G. and would feel a whole lot better talking to someone about this. Thank you very much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 As my daughter has improved she began showing me things that I did when we first adopted her. For instance I use to hold her and stroke her face while telling her that she was safe and we love her. When she first began reacting to us she stroked my face and said " uve oo. "  She also knew how to count and knew her letters, numbers, and several words. Surprisingly she could also county by 5's, 10's and 1's all the way up to 60. Sheri  From: georgiasand32 <georgiasand32> Subject: Recovery Possible? groups (DOT) com Date: Saturday, September 26, 2009, 11:35 PM  I have read of patients that have been recovered by Dr. G. However, they all seem to be high functioning in the first place. Are there any cases of a low functioning child being recovered by him, and, if so, how? I would really appreciate hearing back from anyone here with a low functioning child and learning from your experience. It's hard. My son did not go on a special diet and suddenly become better, there's been no response to anything at all. We are in the process of making an appointment with Dr. G. and would feel a whole lot better talking to someone about this. Thank you very much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 , This is a real important comment for parents that are in the first year or two of recovery with few words and little response.Over the years I came to realize the Connor was able to absorb peripherally. Very interesting concept but I have told many therapists and teachers that I believe it actually " Hurt " to talk or focus on things dead on. As a toddler and after I worked as an magazine editor and writer from home and I set Connor up on a lap top at my desk while I worked. I would give him early developmental programs as I worked. redirecting him as I worked. I would read out loud as I wrote articles and sorted acompaning images. After the first couple of years he would text me his early words and concerns, particularly when frustrated. (Daddy Mad, Mommy no home) He was watching but not directly but he was learning the key board It is very important to put all of your televisions on close caption for all shows. Even adult movies, news and game shows. I kept a paper and pen at hand and endlessly would write down notes with quick drawing when things did get his attention and then put them into his play space. If you consider these kids think in picture, realize that connecting simple concepts with images and then words is the learning system (as with all kids). If they can not actually organize this process they will absorb the info if you are doing this even if they are not directly paying attention. Things that happen quickly are absorbed as well. He would sit and run through the calendar pages on my computer organizer at high speed endlessly. Connor has been a calendar calculator for years. For any date in the past fifty years and the next fifty he can give the the day of the week. This is not a savant skill it is an uncluttered mind that has captured and organized images. I did not realize how he could accomplish this amazing task until one day a good friend he really likes asked him for a date in the late 1960's. He concentrated and worked for ten minutes or more than said " sorry I can't find that one " He probably never saw it in his computer ramblings. He did remember hundreds if not thousands of other pages he probably only saw at a glance. Never believe these kids aren't able to learn they are just unable to focus and communicate it back until the speech center starts to heal. When it does the amount of information and understanding is amazing! When this happened for us we went from 2nd grade school work to fifth grade home schooling over night. From: georgiasand32 <georgiasand32> Subject: Recovery Possible? groups (DOT) com Date: Saturday, September 26, 2009, 11:35 PM I have read of patients that have been recovered by Dr. G. However, they all seem to be high functioning in the first place. Are there any cases of a low functioning child being recovered by him, and, if so, how? I would really appreciate hearing back from anyone here with a low functioning child and learning from your experience. It's hard. My son did not go on a special diet and suddenly become better, there's been no response to anything at all. We are in the process of making an appointment with Dr. G. and would feel a whole lot better talking to someone about this. Thank you very much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 If any of you are interested, I can forward you some articles that help explain the and medical approach or you can go to Nids.net for other articles. Just email me privately so I know you want this information. Marcia Hinds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 Do the children who " wake up " all respond to SSRI's? Do they all have a form of brain inflammation? Don't all autistic children have brain inflammation? How can you screen the children who are good candidates for and those who are not? Did many rounds of Valtrex with no results and I am wondering if this is the cornerstone of the practice because, if so, my son was not a responder to this.....I really appreciate all the wonderful stories and wisdom shared. I am also trying to realistically pace myself here with any hopes for recovery for such a sick child. It's hard. > > If any of you are interested, I can forward you some articles that help > explain the and medical approach or you can go to Nids.net for other > articles. Just email me privately so I know you want this information. > > Marcia Hinds > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 Did it seem like your son was born healthy and then developed symptoms as an infant/toddler? Kristy From: [mailto: ] On Behalf Of georgiasand32 Sent: Tuesday, September 29, 2009 3:58 PM Subject: Re: Recovery Possible? Do the children who " wake up " all respond to SSRI's? Do they all have a form of brain inflammation? Don't all autistic children have brain inflammation? How can you screen the children who are good candidates for and those who are not? Did many rounds of Valtrex with no results and I am wondering if this is the cornerstone of the practice because, if so, my son was not a responder to this.....I really appreciate all the wonderful stories and wisdom shared. I am also trying to realistically pace myself here with any hopes for recovery for such a sick child. It's hard. > > If any of you are interested, I can forward you some articles that help > explain the and medical approach or you can go to Nids.net for other > articles. Just email me privately so I know you want this information. > > Marcia Hinds > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 Yes, my son was born healthy with two 9 apgars. He was progressing normally until I had to stop nursing him and then the projectile vommitting began. So, you'd think that once we took away the gluten, casein, basicaly EVERYTHING except for soup meat and veggies that the diet would help him. But it has not. While the projectile vommitting stopped with the milk there have been NO improvements from the diet which really scares me as it sounds like all the parents I've spoken to-- and DAN--say that the diet was a hug factor in recovery--well it doesn't seem like we even have that going for us--so now what? He was developing, albiet a little slow to hit the milestones but still getting there, until about 12 months of age. And then he lost his dozen words and started stimming like crazy and this was followed by head banging and up all night screaming etc. Also have done all the yeast meds and Valtrex without ever seeing anything. > > > > If any of you are interested, I can forward you some articles that help > > explain the and medical approach or you can go to Nids.net for other > > articles. Just email me privately so I know you want this information. > > > > Marcia Hinds > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2009 Report Share Posted October 9, 2009 Have you had your son tested for heavy metal levels in his body? I found a book online that talks about this it's called " I cured my Candida-So Can You by Ian Solley. It's VERY intersting only $27 maybe you may find something new to look into? ________________________________ From: georgiasand32 <georgiasand32@...> Sent: Sunday, October 4, 2009 10:27:55 PM Subject: Re: Recovery Possible? Â Yes, my son was born healthy with two 9 apgars. He was progressing normally until I had to stop nursing him and then the projectile vommitting began. So, you'd think that once we took away the gluten, casein, basicaly EVERYTHING except for soup meat and veggies that the diet would help him. But it has not. While the projectile vommitting stopped with the milk there have been NO improvements from the diet which really scares me as it sounds like all the parents I've spoken to-- and DAN--say that the diet was a hug factor in recovery--well it doesn't seem like we even have that going for us--so now what? He was developing, albiet a little slow to hit the milestones but still getting there, until about 12 months of age. And then he lost his dozen words and started stimming like crazy and this was followed by head banging and up all night screaming etc. Also have done all the yeast meds and Valtrex without ever seeing anything. > > > > If any of you are interested, I can forward you some articles that help > > explain the and medical approach or you can go to Nids.net for other > > articles. Just email me privately so I know you want this information. > > > > Marcia Hinds > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 Hi there an informative and inspiring thread. what you say is well-supported by research into memory. It is easier to retain/recall information that has already been exposed to processing. Eileen in UK > > From: georgiasand32 <georgiasand32> > Subject: Recovery Possible? > groups (DOT) com > Date: Saturday, September 26, 2009, 11:35 PM > > Â > > I have read of patients that have been recovered by Dr. G. However, they all seem to be high functioning in the first place. Are there any cases of a low functioning child being recovered by him, and, if so, how? I would really appreciate hearing back from anyone here with a low functioning child and learning from your experience. It's hard. My son did not go on a special diet and suddenly become better, there's been no response to anything at all. We are in the process of making an appointment with Dr. G. and would feel a whole lot better talking to someone about this. Thank you very much. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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