RECAP- mxrv in CFS video presentation right now!

[Guest guest]

> There will be day 2 via video, all day today starting 9am eastern time.

>

>

> day 1: I missed some of the morning science session, original presentation,

> only heard comments and recap from other scientists. Some great things were

> said (hugely relevant to autism imho), lots of them urged future research to

> link to what is already known about CFS and other viruses, role of

> Herpesviruses in CFS, and why many patients feel better etc on herpes

> antivirals, and how it links to mxrv, could it herpes be integrating itself

> into retroviral dna etc. One researcher urged they start looking into CSF and

> brain tissue for viral presence, not only blood.

>

> what was stunning that all this new research came about from private money,

> now everyone was urging CDC and NIH to carry on and start funding this type of

> research. High time.

>

> lots of them were very very negative about government agencies, even

> scientists, and especially later comments from public, some of them were so

> openly attacking it was pleasure to hear. Big outpoor of emotions, anger etc.

> Some tragic stories from sick people who have been ignored and called crazy in

> the past. One woman pleading CFS ³is not in my head! This is real diseases².

> She is sick and dying.

>

> one women used to be phd university lecturer and researcher, came down with

> cfs 20 years ago and now almost recovered herself through treatments that she

> listed ­ almost all of them ³borrowed² from autism ­ methylation agents,

> antioxidants, amino acids...

>

> it was all great to hear and imagine one day our children could be speaking up

> like that, ask why their parents research money was being used for decades by

> gov agencies ³to prove that the earth was flat².

>

> one gay calling CDC a criminal organisation. Lovely.

>

> me sitting there wishing we had this level of science inquiry and CURIOSITY in

> autism research.

>

> I also missed afternoon session, not sure if anyone mentioned autism.... (not

> sure if too late to register now if anyone wishes to participate over the

> phone, check contact details I posted yesterday)

>

>

> Natasa

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> I know they'll post the video in the archives in a few days, but can anyone

> summarize what they might have heard on this video conference?

> Thank you for posting the link.

>

>

> ________________________________

> From: natasa778 <neno@... <mailto:neno%40dalmaholidays.co.uk>

> >

> <mailto:%40>

> Sent: Thu, October 29, 2009 10:16:06 AM

> Subject: Watch mxrv in CFS video presentation right now!

>

>  

> http://videocast. nih.gov/

>

>