OT: Herx reactions (was) Re: OT: MMS irritating the bladder...or annoying the spirochetes in

[Guest guest]

Good luck with your hearing! Some people have to use an attorney in order to

get SSDI--it can be really hard. If you are not successful, your local LD

association might now an attorney with SS experience.

Khaya

>

> thanks so much for understanding my crazy ups and downs. it is hard to see

> myself as this 'crazy flake', as we often see ourselves as we wish we were

> instead of who/how we are right now. the trick is to see ourselves beyond

> what the disease and/or drugs have made us by their symptoms. i guess it

> is good we tend to see the better part of us, otherwise it would be too

> discouraging. i try to see me through god's eyes and that helps.

>

> most of my family is trying to see that it is the drug that makes me weird.

> but it is still hard for some of them. what is nice here is that everyone

> not only sees, but KNOWS it is the disease/drugs. there is a lot of grace

> there that is very comforting.

>

> i have my ssid hearing in late june. i think i will still be on the drug

> by then, so thought i would plan a drop in dose a couple days before the

> hearing. then they can see what a disabled flake i really am. wouldn't

> want to risk having one of those rare good days and blow the hearing. not

> trying to 'rig' my hearing and be dishonest, just want them to be able to

> see the real, everyday me. will see.

>

> barbara