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What was your eosinophils before the diet became so restricted?  Have you seen

improvement in the blood results with the restriction?

Re necessity - I suspect something else is causing the high levels besides

allergy.  I remember someone else dealing with that too... It took forever to

come down.  But when they're so high, then your kid will also react to foods as

well even if they aren't the cause.

What meds is he on?  Is everything dye-free?

Any gut issues?  There are parasites that increase eosiniphils too.  Ask Dr G

if there is an eosiniphilic disease (eos colitis) that he could be tested for?

(although I don't know that many of those illnesses increase eos's in the blood

work but rather are in situ.  Have you made his bedroom strictly

hypoallergenic?

That's a tough case. 

________________________________

From: Martha Wood <marthawood70@...>

" groups (DOT) com " < >

Sent: Mon, January 25, 2010 9:24:26 AM

Subject: Food allergies and

 

Hello listmates,

It has been awhile since I have written, but we would so appreciate

your help. Our son has been a patient with Dr. Goldberg for over a

year and a half and we are still not able to get his high IGE and

esonophil levels down. (IGE 714 and Eosinophils 8.6) We have taken the

results of the Meridian Valley test as well as the results from our

local allergist (Labcor test) and eliminated all foods that even

registered in the insignificant range out of his diet. He is only

eating lamb, tuna, trout, turkey, nitrate free bacon, sweet potatos

and white grapes with NO infractions. Another listmate gives a very

convincing argument for P/N testing which I really want to try. But,

Dr. G doesn't want us to do this. We are at our wits end with this

diet and beginning to wonder if such a restricted diet is even

necessary.

Has anyone out there done P/N testing with success? (I know has)

Does anyone have recommendations about this? Does anyone know Dr. G's

rationale for not doing P/N testing?

On a good note our son is making progress, but it is so very slow. He

just turned 5. We were hoping we would be on our way to a mainstreamed

class by now. It looks to us that the allergy issue is what is

standing in the way.

Thank you for your help.

Martha

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,

These are great questions. I went back to track the esonophils levels and

found that when we started with Dr. G pre diet the eos were 3.0 . . . then

over the next several months where we made many diet mistakes they were 2.4

(10/08), 2.5 (11/08), 5.1 (1/09), 4 (3/09), 6.2 (5/09),3.5 (6/09), strict

elimination diet begins on 6/15/09, 3.1 (7/09), 4.1 (8/09), 5.9 (9/09) and

now we are 7.4

I do think one of the reasons they are this high now is because of the

trout. He reacted with whelps around his mouth the last two times we gave it

to him.

I do think there is something else at play here, though. Maybe even the meds

or environmental stuff. When I asked Dr. G about this he says no . . . that

high IEG and eos are only due to what he is eating. Is this right? He is

currently on pills: acyclovir, paxil, immunovir, melatonin, tenex and

fluconazole.

His room is definitely hypoallerginic, as is the laundrey detergent.

I will ask about the parasites. There are no gut issues.

Thanks for your input.

Martha

On Tue, Jan 26, 2010 at 7:51 AM, <thecolemans4@...>wrote:

>

>

> What was your eosinophils before the diet became so restricted? Have you

> seen improvement in the blood results with the restriction?

> Re necessity - I suspect something else is causing the high levels besides

> allergy. I remember someone else dealing with that too... It took forever

> to come down. But when they're so high, then your kid will also react to

> foods as well even if they aren't the cause.

> What meds is he on? Is everything dye-free?

> Any gut issues? There are parasites that increase eosiniphils too. Ask Dr

> G if there is an eosiniphilic disease (eos colitis) that he could be tested

> for? (although I don't know that many of those illnesses increase eos's in

> the blood work but rather are in situ. Have you made his bedroom strictly

> hypoallergenic?

> That's a tough case.

>

>

> ________________________________

> From: Martha Wood <marthawood70@... <marthawood70%40gmail.com>>

> " groups (DOT) com " < <%40>

> >

> Sent: Mon, January 25, 2010 9:24:26 AM

> Subject: Food allergies and

>

>

>

> Hello listmates,

> It has been awhile since I have written, but we would so appreciate

> your help. Our son has been a patient with Dr. Goldberg for over a

> year and a half and we are still not able to get his high IGE and

> esonophil levels down. (IGE 714 and Eosinophils 8.6) We have taken the

> results of the Meridian Valley test as well as the results from our

> local allergist (Labcor test) and eliminated all foods that even

> registered in the insignificant range out of his diet. He is only

> eating lamb, tuna, trout, turkey, nitrate free bacon, sweet potatos

> and white grapes with NO infractions. Another listmate gives a very

> convincing argument for P/N testing which I really want to try. But,

> Dr. G doesn't want us to do this. We are at our wits end with this

> diet and beginning to wonder if such a restricted diet is even

> necessary.

>

> Has anyone out there done P/N testing with success? (I know has)

> Does anyone have recommendations about this? Does anyone know Dr. G's

> rationale for not doing P/N testing?

>

> On a good note our son is making progress, but it is so very slow. He

> just turned 5. We were hoping we would be on our way to a mainstreamed

> class by now. It looks to us that the allergy issue is what is

> standing in the way.

>

> Thank you for your help.

> Martha

>

>

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