Questions

[Guest guest]

Also, taking fish oil, up to five grams per day, is very helpful for stiff muscles and joints.It also has a high amount of vitamin D, which you might be deficient in. It has many other benefits as well.

I think some people take krill oil.

Questions

As you all know I had my saline implants removed about 5 months ago and I am feeling a lot better, but I have bad days for no reason at all, and also everytime I try and lay around or sit around for more than 2 hours at a time watching a movie with my husband my neck and across my shoulders get so stiff, it's almost as though my shoulders don't like touching the back of the couch. Anyone have this ? Its so weird >

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[Guest guest]

,

What you describe is typical for fibromyalgia . . .

What's happening is that the tissue covering the muscle becomes very tight . . . this pulls on the joints where they're attached, causing both muscle and joint pain. It's really important to keep moving, even if it's not vigorous movement. FM goes hand in glove with a sleep disorder . . . You must find a way to get sufficient deep sleep so your body will have time to do its repair work.

Yoga or deep massage will help a lot.

Rogene

[Guest guest]

Rogene,

Have you noticed that if you take to many at one time you get tired? Maybe this is what is going on with me, this is interesting. Thanks!

~

[Guest guest]

All the time. All my muscles tighten up...You should see how funny I look when I try to stand up after a movie with my hubby. God bless his heart, he says I look like a geriatric monkey! GMCLADY98@... wrote: As you all know I had my saline implants removed about 5 months ago and I am feeling a lot better, but I have bad days for no reason at all, and also everytime I try and lay around or sit around for more than 2

hours at a time watching a movie with my husband my neck and across my shoulders get so stiff, it's almost as though my shoulders don't like touching the back of the couch. Anyone have this ? Its so weird > -

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[Guest guest]

I can't lay on my back for more than a couple of hours or my fingers

go numb, I never had that problem until I got implants, and that's one

of the things that has stayed with me. Also at night when I sleep my

right ear hums, and I sure never had that until I got implants. I can

keep those symptoms somewhat at bay by going to the gym and using some

of the equipment that the physical therapist showed me how to use.

Sis

>

> As you all know I had my saline implants removed about 5 months ago

and I am

> feeling a lot better, but I have bad days for no reason at all, and

also

> everytime I try and lay around or sit around for more than 2 hours

at a time

> watching a movie with my husband my neck and across my shoulders get

so stiff,

> it's almost as though my shoulders don't like touching the back of

the couch.

> Anyone have this ? Its so weird >

>

[Guest guest]

I just started taking fish oil a few weeks ago and I haven't had any

side effects, and for me that's a good thing because everything

gives me side effects (except probiotics, they don't bother me). I

take the fish oil about 3 times a week because I notice I have side

effects if I take anything on a daily basis.

Sis

>

> Also, taking fish oil, up to five grams per day, is very helpful

for stiff muscles and joints.It also has a high amount of vitamin D,

which you might be deficient in. It has many other benefits as well.

> I think some people take krill oil.

> Questions

>

>

>

> As you all know I had my saline implants removed about 5

months ago and I am feeling a lot better, but I have bad days for no

reason at all, and also everytime I try and lay around or sit around

for more than 2 hours at a time watching a movie with my husband my

neck and across my shoulders get so stiff, it's almost as though my

shoulders don't like touching the back of the couch. Anyone have

this ? Its so weird >

>

>

>

> -------------------------------------------------------------------

---------

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.441 / Virus Database: 268.17.34/679 - Release

Date: 2/10/2007 4:08 PM

>

>

>

>

>

> -------------------------------------------------------------------

-----------

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.441 / Virus Database: 268.17.34/679 - Release Date:

2/10/2007 4:08 PM

>

[Guest guest]

I have that same problem Sis, If I try to lay on my back while sleeping, my whole arms go numb. So I end up "flip flopping" like a fish from one side to another. auntsisnj <auntsisnj@...> wrote: I can't lay on my back for more than a couple of hours or my fingers go numb, I never had that problem until I got implants, and that's one of the things that has stayed with me. Also at night when I sleep my right ear hums, and I sure never had that until I got

implants. I can keep those symptoms somewhat at bay by going to the gym and using some of the equipment that the physical therapist showed me how to use.Sis>> As you all know I had my saline implants removed about 5 months ago and I am > feeling a lot better, but I have bad days for no reason at all, and also > everytime I try and lay around or sit around for more than 2 hours at a time > watching a movie with my husband my neck and across my shoulders get so stiff, > it's almost as though my shoulders don't like touching the back of the couch. > Anyone have this ? Its so weird > >-

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[Guest guest]

,

You might fix up one of those multi-compartment pill containers so you can distribute your supplements throughout the day. I've found that my stomach gets irritated if I take too many at one time.

I can't think of any particular order to take them . . . Check the label though. Some will say before meals, on an empty stomach, or with meals.

Rogene

Re: Questions

Thanks Girls, don't get me wrong I do feel better, but never can I just have a lazy day....it makes me feel awful. All these things people say take, milk thistle x, fish oil, etc....how much stuff can you take together and how much is to much ? It scares me. Doctors can't advice on this since it's natural and vitamins. Thanks

[Guest guest]

,

Yes shoulders and neck very stiff it hurts so bad. I am always like

this it gives me headaches. Chiro helps but I wish I could go

everyday.

Terri P

>

> As you all know I had my saline implants removed about 5 months ago

and I am

> feeling a lot better, but I have bad days for no reason at all, and

also

> everytime I try and lay around or sit around for more than 2 hours

at a time

> watching a movie with my husband my neck and across my shoulders

get so stiff,

> it's almost as though my shoulders don't like touching the back of

the couch.

> Anyone have this ? Its so weird >

>

[Guest guest]

No, I haven't notice that . . . but if you're hypersensitive to silicone, this might be an issue. Check your supplements for silicone dioxide. Eliminate those and see how you feel.

Rogene

[Guest guest]

I understand this but what is to much ? I mean some many people take so many different things....how do I know what is to much ? Understand ? Like 15 pills a day 8 what ?

[Guest guest]

I mark the top of my bottles with a black marker, such as "Empty stomach" or 2 X for twice a day, and 3 X for three times a day.

It helps me remember what I need to take without having to look at each bottle and decide.

Patty

Re: Questions

Thanks Girls, don't get me wrong I do feel better, but never can I just have a lazy day....it makes me feel awful. All these things people say take, milk thistle x, fish oil, etc....how much stuff can you take together and how much is to much ? It scares me. Doctors can't advice on this since it's natural and vitamins. Thanks

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[Guest guest]

The bottle label usually tell you what a daily dose is.

The main thing you want to watch for is replicating fat soluable vitamins (A, D, E, K) to where you reach a toxic level. Normally this isn't a problem.

If you can afford it, a visit to a naturopath could help you select and organize your supplements.

Rogene

[Guest guest]

Gretchen, It's thrilling to know you've turned the corner and are feeling so much better. . . Undoubtedly, you'll have setbacks. How many? . .. For the most part, it depends on you. You know all the things you have to do to feel better. . . Doing them can be very difficult . . both when you're down and have a hard time mustering the discipline/energy to do them right. AND (as you found out) when you're feeling good and want to forget how sick you were. Personally, I'd vow to follow my program as closely as I possibly could and go back to work. You'll probably have a few bad days . . . but getting back to work will be good for you. They won't expect you to come back 100% after being so sick . .. But if you can show them you're determined to do whatever it takes to get better and do the best you can, I'd bet they'll give you the time you need

to do your job fully again. Just stay in touch with Dr. Kolb. Hopefully she'll let you begin using the ionic foot bath soon. . . The women she started on the foot baths, who have continued on them, are doing well - as compared to those who haven't done them. Hugs and prayers, Rogene

[Guest guest]

Dearest Gretchen:

This is wonderful news. We all want you to get well, and get on with your life, but please do not do too much. You know that we were all very worried about you, but you are back.

Honey, please stay close...sending love to you.......Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`

Questions

sent something similar this to some members so decided to post it. i felt the best i have in months yesterday .. i drove 30 miles eachway to see my parents alone, i went to the mall with my best friendand bought clothes, lunch with my parents, dinner with my boyfriend,typing emails, and actually calling up some old friends to say hi.i ate a crappy dinner last nite since i havent hung out with my bf as"myself" in a while we had fish tacos, some spinach dip, fries withranch and some brownie. ya i know... i was in a good mood so i wascelebrating.my back was hurting a little after dinner.. but i am not sure whatother consequences bad diet have on this illness. am i gonna have aterrible day tomorrow, all week, or just tonight? and what is a badweek? more brain fog, reverting to full sickness or little setbackslike pain or vision??? do you have days like this then a bad week? i was so excited today andtelling everyone how happy i was then my bf said not to get too happybecause ill be really depressed if i have bad days afterwards.ALSO.. BIGGIE.. my protected leave at work is up April 26th. I have togo back before then to not lose my job and I NEED the money or we willlose our apartment. I feel like I could go back today or next weekbut who know if I will have a set back. What do I do or how do I knowI am ready? Kolb said when I get on the antifungal but still how do Iknow I can go back?help!thanks,g

[Guest guest]

Gretchen ~ Bless you, you have been through some big challenges, and with time, things will get better. It would be nice if it were over night, just know that we all are here for you in full support, and sending positive energy and prayers to you ! Hugs ~ DedeAOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

I would trust the Rheumy over the Ortho doctor. Ortho is taught you must

have positive blood work to all it RA or AS. I would talk to your Rheumy

and express your confusion. Yes, AS often doesn't have the swelling that

RA has. But it can have some swelling. I was diagnosed with AS a year

ago. My doctor know that I had an auto-immune but was trying to narrow

down which one. I have early stages of degeneration in my right hip. My

pain is mainly in my right hip with some in my left. Lower back, neck, and

feet. This time of year I have issues in my wrist and hands.

Do you or you family have any auto-immune diseases?

Kate G

Hashi's

AS

At 04:09 PM 1/22/2008, you wrote:

>Hi everyone,

>

>I don't post often, but do read most posts. I am wondering if any

>of you can help.

>

>I have been having severe neck, collar bone and shoulder pain, so my

>wrist surgeon sent me to the neck and spine ortho doctor who ordered

>an MRI and the results came back that i have degenerative arthritis

>in my neck, and collar bone, with degenerative disc desease that is

>causing my discs to compress on my spinal cord and pinching a nerve

>that is causing my arm and hand to go numb and tingly. I've also

>had my left wrist examined recently with x-rays and they indicate

>arthretic changes, but my orho doc didn't suggest that it might be

>my ra. My right wrist had to be fused because of arthritis.

>

>I am so confused.

>

>I asked the doctor if she thought that it was my RA or AS? She told

>me there was no evidence of AS what so ever, nor did she believe

>that my arthritis is RA.

>

>My rheumy diagnosed me with AS because of my lack of joint

>swelling. Now, I'm wondering if I have RA, AS or any other auto

>immune joint disease. Maybe what i have is your basic garden

>variety osteoarthritis and will have to try to manage it on my own.

>What scares me is that I'm taking Methotrexate and Enbrel. I don't

>want to poison my body needlessly, but also want to get the maximum

>benefit from the meds if I really do have these autoimmune joint

>diseases.

>

>At this point, I just don't know what to do.

>

>I've described my lab tests in a previous post many months ago, and

>have had a 2nd opinion which was a waste of time. So, now what?

>This doctor comes highly recommended. So much so, that when you

>have an appointment, it's not uncommon to wait 2 hours to see her

>because she is so thorough with each patient.

>

>Any help will be greatly appreciated.

>

>

>Thanks,

>

>Les

>

>

>

>

>

>

>

>

>

>

[Guest guest]

--- Hi Kate,

I have auto immune thyroid, and rheummy says RA or AS or both. At

this point, I really want to get the actual diagnose so that I know

that I'm on the correct meds. I take MTX and Enbrel and have not seen

a difference yet. I don't want to take these poisons if my diagnosis

is different.

My neck, shoulder/collar bone, tail bone, hips, knees and wrist/hands

are all affected by pain, with little or no swelling.

Thanks,

Les

> I would trust the Rheumy over the Ortho doctor. Ortho is taught

you must

> have positive blood work to all it RA or AS. I would talk to your

Rheumy

> and express your confusion. Yes, AS often doesn't have the swelling

that

> RA has. But it can have some swelling. I was diagnosed with AS a

year

> ago. My doctor know that I had an auto-immune but was trying to

narrow

> down which one. I have early stages of degeneration in my right

hip. My

> pain is mainly in my right hip with some in my left. Lower back,

neck, and

> feet. This time of year I have issues in my wrist and hands.

>

> Do you or you family have any auto-immune diseases?

>

> Kate G

> Hashi's

> AS

>

>

>

> At 04:09 PM 1/22/2008, you wrote:

> >Hi everyone,

> >

> >I don't post often, but do read most posts. I am wondering if any

> >of you can help.

> >

> >I have been having severe neck, collar bone and shoulder pain, so my

> >wrist surgeon sent me to the neck and spine ortho doctor who ordered

> >an MRI and the results came back that i have degenerative arthritis

> >in my neck, and collar bone, with degenerative disc desease that is

> >causing my discs to compress on my spinal cord and pinching a nerve

> >that is causing my arm and hand to go numb and tingly. I've also

> >had my left wrist examined recently with x-rays and they indicate

> >arthretic changes, but my orho doc didn't suggest that it might be

> >my ra. My right wrist had to be fused because of arthritis.

> >

> >I am so confused.

> >

> >I asked the doctor if she thought that it was my RA or AS? She told

> >me there was no evidence of AS what so ever, nor did she believe

> >that my arthritis is RA.

> >

> >My rheumy diagnosed me with AS because of my lack of joint

> >swelling. Now, I'm wondering if I have RA, AS or any other auto

> >immune joint disease. Maybe what i have is your basic garden

> >variety osteoarthritis and will have to try to manage it on my own.

> >What scares me is that I'm taking Methotrexate and Enbrel. I don't

> >want to poison my body needlessly, but also want to get the maximum

> >benefit from the meds if I really do have these autoimmune joint

> >diseases.

> >

> >At this point, I just don't know what to do.

> >

> >I've described my lab tests in a previous post many months ago, and

> >have had a 2nd opinion which was a waste of time. So, now what?

> >This doctor comes highly recommended. So much so, that when you

> >have an appointment, it's not uncommon to wait 2 hours to see her

> >because she is so thorough with each patient.

> >

> >Any help will be greatly appreciated.

> >

> >

> >Thanks,

> >

> >Les

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

<<My neck, shoulder/collar bone, tail bone, hips, knees and wrist/hands

are all affected by pain, with little or no swelling.>>

I have the same symptoms- a lot of pain, little swelling. I also have extreme

fatigue, mental fog and severe headaches. I am on methotrexate- was on 12.5 mg,

rheumy increased it to 20 mg yesterday and told me to " give it a couple of

months " before deciding whether or not it is working. Apparently I am supposed

to be in this condition for months??? I wouldn't know what to do with

appropriate medical care...

At any rate, it's good to know that others are out there with similar

symptoms...

[Guest guest]

- It really is good to hear that others have similar symptoms. I keep

trying to figure out if I really have RA or some other degenerative

disorder/disease. It's been difficult to come to terms with all the

meds I have to take and wonder if I'm taking it needlessly if I truly

have something else wrong with me. Now that you have mentioned

similar symptoms, I guess I am on the right track, and will hope for

the best. I too have to be on the methotrexate and Enbrel a bit

longer to see if it does any good. I also take mobic and ultram and

of course folic acid because of the MTX. I hope you see great

improvement very soon.

Take care,

Les

-- In , " Marie Miley- " <mrussell@...>

wrote:

>

> <<My neck, shoulder/collar bone, tail bone, hips, knees and wrist/hands

> are all affected by pain, with little or no swelling.>>

>

> I have the same symptoms- a lot of pain, little swelling. I also

have extreme fatigue, mental fog and severe headaches. I am on

methotrexate- was on 12.5 mg, rheumy increased it to 20 mg yesterday

and told me to " give it a couple of months " before deciding whether or

not it is working. Apparently I am supposed to be in this condition

for months??? I wouldn't know what to do with appropriate medical care...

>

> At any rate, it's good to know that others are out there with

similar symptoms...

>

>

[Guest guest]

I'm an adult who sees Dr. G along with my three boys. He's had me on Ery-Ped

since last November. I've noticed no side effects and it is working to combat

the strep. My titres went from over 2,000 to just below 900. They are supposed

to be 0-200.

HTH,

Robyn

________________________________

From: chocolatiluv <chocolatiluv@...>

Sent: Friday, October 2, 2009 8:31:18 PM

Subject: questions

Hoping this post will be accepted .

I would like to know if anyone has had their child on Eryped(Erythromycin )?any

problems with this? an antibiotic Dr. G put my grandson on for strep he will be

on this for 1 mth.

Also info on Immunovir all the positives & negatives & cost about this drug &

how long your child was on it ect.?

Has anyone given their child the pheumococal vaccine? Dr. G reccomended

this for all in family & children.

My granddaughter has had only 1 vaccination is 5 doing great although her

titers were up when tested a yr. ago. The local ped said not to worry this is

normal. Still worrying about her even though she is doing great.

Her brother is / autism vaccinated since birth - 1st grade is 11 struggling

everyday from being so sick. Afraid not to give this shot & afraid to do this

with these children. Would like imput from parents greatly appreciated.

Hoping this gets posted.

Thanks

Carole

[Guest guest]

>

> I'm an adult who sees Dr. G along with my three boys. He's had me on Ery-Ped

since last November. I've noticed no side effects and it is working to combat

the strep. My titres went from over 2,000 to just below 900. They are supposed

to be 0-200.

>

> HTH,

>

> Robyn

>

> Robyn

How long did it take to see if this antibiotic was working?

We think he has had hidden strep thru blood work 2 yrs ago this was never

treated.

Also read on this site Marcia H`s son had tonsils removed. Did your child have

this done?.

This little boy desperately need this antibiotic to work.Praying this will work

for him.

Saw Saving Sammy on Today Show this wk. about a PANDAS child want to get the

book.Correct me if Iam wrong thought I read he was on Augmentin 2000mg/day.

Amazing this child is like my grandson.

He is having lots of headaches the advil works but does not help long term. He

has his titers are up & down I do think he is having a PANDAS flare.He has all

symtoms.

Thanks

Carole

>

> ________________________________

> From: chocolatiluv <chocolatiluv@...>

>

> Sent: Friday, October 2, 2009 8:31:18 PM

> Subject: questions

>

>

> Hoping this post will be accepted .

> I would like to know if anyone has had their child on Eryped(Erythromycin

)?any problems with this? an antibiotic Dr. G put my grandson on for strep he

will be on this for 1 mth.

>

> Also info on Immunovir all the positives & negatives & cost about this drug &

how long your child was on it ect.?

>

> Has anyone given their child the pheumococal vaccine? Dr. G reccomended

this for all in family & children.

> My granddaughter has had only 1 vaccination is 5 doing great although her

titers were up when tested a yr. ago. The local ped said not to worry this is

normal. Still worrying about her even though she is doing great.

> Her brother is / autism vaccinated since birth - 1st grade is 11

struggling everyday from being so sick. Afraid not to give this shot & afraid

to do this with these children. Would like imput from parents greatly

appreciated.

> Hoping this gets posted.

> Thanks

> Carole

>

>

>

>

>

[Guest guest]

At first I was unsure about Immunovir, but thought to give it a try since it is

a newer approach. At first my son had some stomach discomfort and he was not

getting all of the doses. But he adjusted, and we figured out the best way to

give it, and we have seen some noticeable improvements.

1....He is growing better, he has more energy, he looks like he is maturing, he

acts more " robust "

2....He does not seem to have the nasal and sinus issues he has had in the past.

My son has been on an antibiotic twice a year for the last 10 years. Since

Immunovir, he has less post nasal drip, and has no sinus infections.

3... I think it was $285 for 100 days of medicine.

>

> Anyone with experience on Immunovir & the cost of this drug? Want to hear the

positives & negatives all details length on it ect.

>

> Also Has anyone had their child on Eryped( Erythromycin) antibiotic? Treating

for strep if so the Positives & negatives about both.

>

> Also Is anyone giving their children the pneumicocal(sp) vaccine? Dr. G

suggested for us all & our Nids child & 4 yr. old with also immune problems.

This is so scary for us but afraid not to. Any thoughts appreciated.

> Thanks

> Carole

>

[Guest guest]

>

> I'm an adult who sees Dr. G along with my three boys. He's had me on Ery-Ped

since last November. I've noticed no side effects and it is working to combat

the strep. My titres went from over 2,000 to just below 900. They are supposed

to be 0-200.

>

> HTH,

>

> Robyn

>

>

> Robyn

Is that viral or strep titers?

Carole

> ________________________________

> From: chocolatiluv <chocolatiluv@...>

>

> Sent: Friday, October 2, 2009 8:31:18 PM

> Subject: questions

>

>

> Hoping this post will be accepted .

> I would like to know if anyone has had their child on Eryped(Erythromycin

)?any problems with this? an antibiotic Dr. G put my grandson on for strep he

will be on this for 1 mth.

>

> Also info on Immunovir all the positives & negatives & cost about this drug &

how long your child was on it ect.?

>

> Has anyone given their child the pheumococal vaccine? Dr. G reccomended

this for all in family & children.

> My granddaughter has had only 1 vaccination is 5 doing great although her

titers were up when tested a yr. ago. The local ped said not to worry this is

normal. Still worrying about her even though she is doing great.

> Her brother is / autism vaccinated since birth - 1st grade is 11

struggling everyday from being so sick. Afraid not to give this shot & afraid

to do this with these children. Would like imput from parents greatly

appreciated.

> Hoping this gets posted.

> Thanks

> Carole

>

>

>

>

>

[Guest guest]

Thank you, Mousie!

Each morning I wake up, it is slightly better. Right now, my middle finger on

my right hand is still pretty painful and doesn't want to bend fully.

I will call Monday. I am also seeing my Pain MD Monday. I will mention it to him

as well. I may ask him to inject my joint while under anesthesia for my other

nerve blocks (I have something called RSD~Reflex Sympathetic Dystrophy, aka

CRPS~Complex Regional Pain Syndrome, in both upper extremities and my left leg).

As well, I h ave a protruding disk at L5-S1..I'm a mess if you haven't already

noticed .

Thank you again, Mousie!! I really appreciate you taking time out of your day

to post back to me.

Robin

>

> Hi Robin,

> �

> I would�CALL your Rhuemy 1st & let him know what's going on. He can than

direct you to the best care possible if this includes Humira or other Meds.

Remember our body is compromised & we are very Delicate & need to take proper

care of ourselves ASAP. Hope you feel better soon as you have been under alot of

stress and pain lately.

> �

> Mousie in Calif.

>

>

>

>

>