Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 Robin, I'm so sorry about your flare and your infections and clotting. That's no good. How do you know your foot doesn't have a fracture? Be sure to mention it at your upcoming appointment. Mention the fever, too. Not an MD On Fri, Nov 6, 2009 at 6:31 AM, Robin <robinmk02@...> wrote: > Hello.... > > I do not post often, so I hope you don't mind me asking questions. > > I have RA and was diagnosed about 3 years ago. I was on Humira after being on many oral meds. Humira was truly a godsend for me, however, even after being off of it for three months prior to surgery earlier this year, I developed a very bad staph infection following surgery (along with DVT's and PE's). I am very afraid to restart the Humira even though the infection is long gone. I know that it lowers your immunity anyway, and after being literally on my death bed from the infection and clots, I am just too afraid to restart. > > I started a very bad flare two days ago. I have Prednisone at home for emergencies (and this I would consider an emergency). Due to the fact I could barely walk 10 ft to my bathroom, I took the Prednisone, and it has helped. My joints are stilll swollen and red, but at least I can walk a bit better. > > My question is this. The top of my right foot feels like it is broken! I know it isn't, but it feels that way. Has anyone else had this pain with RA? Further, the joints that are swollen are also numb! Has anyone had that before?? I was also running fever this time, something also that has never happened before. Anyone else have this happen to them?? > > Thank you so much for your time and listening. Again, I hope you don't mind my posting since I do not post very often. I probably have one bad flare a year, and this is by far, the worst since the diagnosis. I probably had RA a couple of years prior to the diagnosis. I had horrible shoulder joint pain, which they thought was my rotator cuff, but after the RA Diagnosis, my hand surgeon and rheumatologist said the rotator cuff and RA react similarly, so it was probably RA all along. > > Thank you again! > > Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 ________________________________ Robin, The RA began affect my right middle finger first. I swelled and hurt. I did the injections 2 times and they didn't help either time. However, they weren't painful to get. That was 3 years ago and today my finger is deformed and can't use it all. At that time, my dr. wouldn't put me on MTX because RA factor wasn't high....I'm seronegative. So is my mother and grandaughter who have it. I told her I told her I hurt all over. I felt so helpless because I hurt and no one seemed to believe me. I'm on the MTX pills now...they make me very sick for 2 days. I don't know how long I will continue if it doesn't get better. If t hey felt our pain one day I think they may appear to have empathy. No one knows it like we do. My grandaughter is on MTX injections and under control. She is now taking on Sunday so she can have fun with friends on the week end. My mother isn't on anything now because she has been through all of the meds and decided it's not for her. I go to a new doctor next week and I'm feeling hopeful. Good luck, Judith If the injections don't work...find something that does. Once is gone..it's gone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 Thank you, .. You are right, I don't know if my foot is broken. The pain is subsiding, so that is a good sign. I had not done anything to break my foot, but then again, I have severe Osteoporosis, so I don't have to do anything to break anything! I am going to mention it all to my Dr. tomorrow! Thank you again, !! Robin > > Hello.... > > > > I do not post often, so I hope you don't mind me asking questions. > > > > I have RA and was diagnosed about 3 years ago. �I was on Humira after being on many oral meds. �Humira was truly a godsend for me, however, even after being off of it for three months prior to surgery earlier this year, I developed a very bad staph infection following surgery (along with DVT's and PE's). �I am very afraid to restart the Humira even though the infection is long gone. �I know that it lowers your immunity anyway, and after being literally on my death bed from the infection and clots, I am just too afraid to restart. > > > > I started a very bad flare two days ago. �I have Prednisone at home for emergencies (and this I would consider an emergency). �Due to the fact I could barely walk 10 ft to my bathroom, I took the Prednisone, and it has helped. �My joints are stilll swollen and red, but at least I can walk a bit better. > > > > My question is this. �The top of my right foot feels like it is broken! I know it isn't, but it feels that way. �Has anyone else had this pain with RA? �Further, the joints that are swollen are also numb! �Has anyone had that before?? �I was also running fever this time, something also that has never happened before. �Anyone else have this happen to them?? > > > > Thank you so much for your time and listening. �Again, I hope you don't mind my posting since I do not post very often. �I probably have one bad flare a year, and this is by far, the worst since the diagnosis. �I probably had RA a couple of years prior to the diagnosis. �I had horrible shoulder joint pain, which they thought was my rotator cuff, but after the RA Diagnosis, my hand surgeon and rheumatologist said the rotator cuff and RA react similarly, so it was probably RA all along. > > > > Thank you again! > > > > Robin > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 Good luck at your Dr. appt. tomorrow. I sure hope it is not broken.  Hugs,  Barbara From: Robin <robinmk02@...> Subject: [ ] Re: Questions Date: Sunday, November 8, 2009, 9:57 AM  Thank you, .. You are right, I don't know if my foot is broken. The pain is subsiding, so that is a good sign. I had not done anything to break my foot, but then again, I have severe Osteoporosis, so I don't have to do anything to break anything! I am going to mention it all to my Dr. tomorrow! Thank you again, !! Robin > > Hello.... > > > > I do not post often, so I hope you don't mind me asking questions. > > > > I have RA and was diagnosed about 3 years ago. �I was on Humira after being on many oral meds. �Humira was truly a godsend for me, however, even after being off of it for three months prior to surgery earlier this year, I developed a very bad staph infection following surgery (along with DVT's and PE's). �I am very afraid to restart the Humira even though the infection is long gone. �I know that it lowers your immunity anyway, and after being literally on my death bed from the infection and clots, I am just too afraid to restart. > > > > I started a very bad flare two days ago. �I have Prednisone at home for emergencies (and this I would consider an emergency). �Due to the fact I could barely walk 10 ft to my bathroom, I took the Prednisone, and it has helped. �My joints are stilll swollen and red, but at least I can walk a bit better. > > > > My question is this. �The top of my right foot feels like it is broken! I know it isn't, but it feels that way. �Has anyone else had this pain with RA? �Further, the joints that are swollen are also numb! �Has anyone had that before?? �I was also running fever this time, something also that has never happened before. �Anyone else have this happen to them?? > > > > Thank you so much for your time and listening. �Again, I hope you don't mind my posting since I do not post very often. �I probably have one bad flare a year, and this is by far, the worst since the diagnosis. �I probably had RA a couple of years prior to the diagnosis. �I had horrible shoulder joint pain, which they thought was my rotator cuff, but after the RA Diagnosis, my hand surgeon and rheumatologist said the rotator cuff and RA react similarly, so it was probably RA all along. > > > > Thank you again! > > > > Robin > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 Hi Judith, I did MTX before anything else. I could not handle it. I was very sick for five days. By the time I was feeling better, it was time for the next dose. I did this for about four months and I had to finally stop. The headaches the MTX gave me, were just horrible. The Humira worked very well, however, since being so ill this year, I am just afraid to take it again. I know the Humira did not cause my problems, but knowing what can happen with Humira, I am just a bit leery. I hope you are doing well, Judith. Thank you very much!! Robin > > > > > > ________________________________ > > Robin, > The RA began affect my�right middle finger first. I swelled and hurt. I did the injections 2 times and they didn't help either time. However, they weren't painful to get. > That was 3 years ago and today my finger is deformed and can't use it all.�At that time, my dr. wouldn't put me on�MTX because RA factor wasn't high....I'm seronegative. So is my mother and grandaughter who have it. I told her�I told her I hurt all over. I felt so helpless because I hurt and no one seemed to believe me.�I'm on the MTX pills now...they make me very sick for 2 days. I don't know how long I will continue if it doesn't get better. If t hey felt our pain one day I think they may appear to have empathy. No one knows it like we do. > My grandaughter is on MTX injections and under control. She is now taking on Sunday so she can have fun with friends on the week end.� My mother isn't on anything now because she has been through all of the meds and decided it's not for her. > I go to a new doctor next week and I'm feeling hopeful. > Good luck, > Judith If the injections don't work...find something�that does.� Once is gone..it's gone. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 I have posted this same message wks. ago couldn`t get posted hope this gets through I need some answers. My grandson age 11 is experiencing hair loss Dr. Goldberg says this happens with autoimmune disease. Has anyone experienced this with their child?If so what can have you done? Dr. Goldberg give us ingredients to look for in shampoos. I`ve seen side affect with zoloft is hair loss. He is now on celexa. Appreciate any replies we are deeply concerned. Also another question: Has anyone had their child on immunivor with no breaks? My grandson started Nov. 10- 09 Dr. said to continue with immunivorwith no breaks. Just curious if any other child is like ours. I know he is a tough case. Hopefully this will get posted. Carole Quote Link to comment Share on other sites More sharing options...
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