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Hey All,

Here is a link to Dr. Klimas's lecture on XMRV. It is really top notch and

some people at Phoenix Rising have already transcribed most of the lecture.

http://cfsknowledgecenter.ning.com/video

If you go to website and look through the threads, you can read the

transcriptions to some of them. This is really great!

http://forums.aboutmecfs.org/showthread.php?t=1714

All the best,

Jill

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>

>

> I agree it is fantastic! I'm half way through, where she talks about how it

> attaches to the cell receptors ­ not known at the time. Actually one of them

> is known, but I wonder if CCR2 may be a major one as well? Bill, is there any

> way she would share her suspicions?

> this CCR2 imo could be highly implicated in autism...

> Natasa

>

>

> Hey All,

>

> Here is a link to Dr. Klimas's lecture on XMRV. It is really top notch

> and some people at Phoenix Rising have already transcribed most of the

> lecture.

>

> http://cfsknowledgecenter.ning.com/video

>

> If you go to website and look through the threads, you can read the

> transcriptions to some of them. This is really great!

>

> http://forums.aboutmecfs.org/showthread.php?t=1714

>

> All the best,

>

> Jill

>

>

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  • 1 year later...

Hi Marti!

Yes, on my visit w/Dr Klimas in Miami last October, I worked with her

physical therapist Connie. It seems like a very reasonable strategy.

The big hurdle for me is the cognitive one... I just can't seem to get

my brain organized to get me started on doing the exercises on any

given day. But the exercise levels are based on physiological

response, and so will avoid overdoing it. For me, the exercise

parameters work out to 3-5 mins of exercise, 5 minutes of rest, repeat

for a total of 3 cycles. Very do-able for me (if I can get myself to

do it).

Marcia on

in Salem, Massachusetts

On Aug 11, 2011, at 12:43 PM, marti_zavala wrote:

> Hi Marcia,

> I have been researching exercise protocols (using the word

> 'exercise' very loosely).

>

> I am curious if Dr. Klimas has discussed the exercise protocol she

> has worked up with a lady named Connie.

>

> I can provide links if you need them.

>

> Marti

>

> >

> > > What have been the experiences of people in this group with D-

> > > Ribose? Has it helped? What symptoms did it help? Were there side

> > > effects?

> > >

> > > I have severe cognitive problems and exhaustion. Would D-Ribose

> > > help? Are there other supplements you would recommend?

> > >

> > > Thank you!

> > >

> > > Sue

> > >

> > >

> > >

> >

> >

> >

> >

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Hi Marcia,

Respond as your energy dictates...I don't want to wear you out with questions.

I am looking for someone to do VO2 Max testing for me and I was wondering if

there is a Poor Man's VO2 Max test or set of symptoms that we can say - " this is

my guesstimate VO2 Max " .

Did you have the VO2 Max test done and could you feel the transition between

aerobic and anaerobic?

I finally joined the YMCA as I had not been able to get moving on Dr. Levine's

protocol (modified to lower level). Also, the ATP Fuel Supplement has been very

helpful to get me started.

Thanks for responding,

Marti

> > >

> > > > What have been the experiences of people in this group with D-

> > > > Ribose? Has it helped? What symptoms did it help? Were there side

> > > > effects?

> > > >

> > > > I have severe cognitive problems and exhaustion. Would D-Ribose

> > > > help? Are there other supplements you would recommend?

> > > >

> > > > Thank you!

> > > >

> > > > Sue

> > > >

> > > >

> > > >

> > >

> > >

> > >

> > >

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Hi Marti,

See my answers below...

It's late for me, so I'll keep it brief tonight.

M.

On Aug 13, 2011, at 1:03 PM, marti_zavala wrote:

> Hi Marcia,

>

> Respond as your energy dictates...I don't want to wear you out with

> questions.

>

> I am looking for someone to do VO2 Max testing for me and I was

> wondering if there is a Poor Man's VO2 Max test or set of symptoms

> that we can say - " this is my guesstimate VO2 Max " .

>

I don't know of a " poor man's VO2 Max " , but you might be able to fake

something with heart rate readings.

>

> Did you have the VO2 Max test done and could you feel the transition

> between aerobic and anaerobic?

>

Yes, I had the VO2 Max test done. You wear a mask that captures and

measures the content of your exhaled breath.

No, I couldn't feel the transition between the two states. Mostly I

was just pushing until Connie said, " stop, that's enough " . Maybe if I

were more accustomed to exercising I could feel the difference, but I

could only feel general sensations of " okay so far " and " now I'm

really working hard " and " okay, now I'm about to crash " .

>

> I finally joined the YMCA as I had not been able to get moving on

> Dr. Levine's protocol (modified to lower level). Also, the ATP Fuel

> Supplement has been very helpful to get me started.

>

> Thanks for responding,

> Marti

>

>

> > > >

> > > > > What have been the experiences of people in this group with D-

> > > > > Ribose? Has it helped? What symptoms did it help? Were there

> side

> > > > > effects?

> > > > >

> > > > > I have severe cognitive problems and exhaustion. Would D-

> Ribose

> > > > > help? Are there other supplements you would recommend?

> > > > >

> > > > > Thank you!

> > > > >

> > > > > Sue

> > > > >

> > > > >

> > > > >

> > > >

> > > >

> > > >

> > > >

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