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Re: failed barium marilyn

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hi marilyn, thanx for the input and hope. erika used to have the tracheal

malesia,/broncomalesia, now the ONLY reason we can not decannulate is b/c

they say she cannot swallow, its a catch 22. we have been to 3 ENT's

including dr. cotton, they want her capped for 24 hrs/day several days before

we decannulate., i have heard that other drs. do not require this. we are

tempted to do it at home. it is more difficulte to cap the trach and breath

b/c thje trach is blocking 80% of the airway! i al going to write all this

up and go see her ENT again and tell him all the stories i hear about better

swallowing after trach is out etc.

thanx

cathie, mom to erika

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