Re: So disappointed after a wasted 2 hour drive to see this ...

[Guest guest]

Nanci, I feel for you, as I have been in the same boat and am now as well. I don't think my symptoms are quite as severe as yours, but I have had them all over the years, and as soon as one set clears up or gets more tolerable, another set appears. I have to tell you that even the doctors who listen don't seem to have much to offer in the way of help. They are constrained by "standard of care" and unable to offer much outside that box.

Hang in there as best you can. There are some very knowledgeable people here who are generous about sharing what they know. I know very little and my current brain fog prevents me from retaining much of anything that I learn, but I have done some baby steps gleaned from tidbits I picked up here and elsewhere in my reading. I don't have the energy or the will to do much more at this time.

Don't give up. It WILL get better and you WILL find someone who may have a key to a partial answer, and sometimes that helps enough to keep you going.

Best to you,

Gael

Hi,Yesterday got up very early to go with my son (who by the way took off from work to take me)the 2 + hours to get to this doctor who I thought was the answer....Needless to say, she was a great disappointment. I hate Western medicine. what they teach these doctors is a real crime. Drugs and drugs and more drugs. they don't know how to cure, but to treat with drugs and then they raise up their hands and say, I don't know, or could be, its a possibility and so on.I came to her all prepared and with a shopping bag of test results, information, emails from this group and others. I had written down everything. I told her she was my last hope. She was young and someone I thought would give me her time and understanding...after talking to her about my concerns and how I have been feeling (terrible) all she could do is write on her computer and not even look at me. I told her about my reverse T3 results, cortisol, progesterone and estradiol levels on the saliva tests. she was not that impressed or showed very little concern and said that western medicine is not that concerned about reverse T3 levels and they don't even teach that level in medical school. she told me to go see a naturopath who can address it and all the other concerns and health issues. To appease me, she ordered another TSH, but told me my levels were good. I think they are low (but what do I know) she ordered some other tests too (forgot what they were, but only 1 vial of blood was taken, so how many could she have ordered, not many) I forgot to ask her to add in a HGBA1C, Lyme and another T3, T4 and reverse T3. I called today and spoke with her nurse, but I seriously doubt she will do it. After talking to her for about 30 minutes, she took me into her exam room and gave me a literally 5 minute exam. she touched my thyroid for about 1 sec, listened to my heart for 3 seconds and made me push against her hands for another few seconds. and she had to go to medical school for this? I could do a better job as a former nurse. After the fact and leaving, I was livid, and felt like going back there and telling her off and saying to her, this is what I get for traveling so far away? shame on her. she came highly recommended by a friend who happened to like her, but then again, her case was an easy one. These doctors are a great disappointment. We are beholden to them for our care and when they don't know what to do or rely on what they learned in medical school, if you complain to them, they fire you and send you on your way. Thankfully I have an appt with a naturopath in July (yes, I have to wait that long to see him and he wanted a 50.00 deposit just to book the appointment, shame, shame) I don't know if I can hold out until then as I am feeling horrible and suffering terribly. It's been raininng non stop here in the Northeast, and my moods are matching as I feel, TERRIBLE and I am scared that I will never get better. One last thing, she told me the cortisol done by saliva is not reliable and she ordered a 24 hour urine test. Oh, remember I am 2 hours away from her and to have to travel back to her to drop off this urine is just not feasible. I don't drive anymore and have to rely on those who are busy and are working which makes it even more impossible. I have no friends to take me. I had to take a valium just to get through yesterday and if I have to take them until I get some real answers, I will get addicted. In a previous post, I posted my history and lab results regarding my progesterone, estradiol, DHEA and DHEAS, cortisol, and all the other tests I had. Now I am even more uncertain and don't know where else to go or who to turn to. This weather is making my muscles and neck ache and I am in so much pain, as it is just adding into my misery physically and mentally. Sorry to be venting so much here, but didn't know who else to turn to. I am so confused as I read so much about who has this and what they are doing and how their doctors are helping them. Since October, I have had not one doctor help me or know what to do or even believe me. My family is at their wits end with me, as I am with myself....Thanks so much,Take careNanci