Re: New Patient of Dr. Goldberg

October 29, 2009

Colleen,

With all due respect to Dr. Cave, she is doing your son a grave mistake not

addressing the real issue your son has by not treating his viral issues.

doctors do not believe metals to be a root cause of our children's

problems.

Let me share that I was told my daughter had " metal " issues, my husband and I

did not agree, we found and our daughter has been treated by Dr.

for a little over a year now. We addressed her HHV6, yeast, and allergies and

she doesnt have anymore sensory issues. I think those sensory issues our kids

have are due to inflammation/inflammatory cytokines (which are also

neurotransmitters, by the way) Once you take care of inflammation (not as

simple as it sounds, it takes time) your kids sensory issues will dissipate.

My daughter is doing awesome, she is 4 years old and nearly indistinguishable

from her peers. She has done a total 180!!! The DAN docs are going in the

wrong direction, its time to start treating the infectious and immune

dysfunction components!!!

Sorry if I made people angry with what I say but I care more about getting kids

better than anything else.

-

>

> Hi Everyone,

> I know this is a general question, but I have a 4 1/2 year old son who was

born with congenital CMV. We live in Baton Rouge, LA and have been seeing Dr.

Cave, a well known DAN doctor for the last two years. Though our son has done

very well under her care, we have felt that not addressing his initial virus is

a mistake so we are now going to California to meet with Dr. Goldberg and have a

spect scan run. I know the first time I saw Dr. Cave I had no idea what she was

talking about and felt totally overwhelmed. Since then I have learned A LOT.

If anyone has any general advice on anything I should be doing before our visit

or tips please send them my way. I have been hesitant to add on the expense of

a new doctor and really believed in the DAN protocol so I am feeling like I'm

leaving one church for another. According to Dr. Cave for instance, a lot of

our son's sensory and attention issues are related to metals in his system.

Chelation doesn't seem to be a part of Dr. Goldberg's protocol so I'm feeling a

a bit torn. However, I know his problems all stem from an initial virus and

it's time to get an expert opinion on how to treat this aspect.

> Thank you in advance for any advice-

> Colleen

>

October 29, 2009

,

I agree with you 100%.

I know some parents feel just as strongly about treatment for metals as we

do. I support their intuition for their children. I will say, though, that

it makes me sad ;-( We went to a beach playdate for families on the

spectrum. Guess who was the healthiest looking, most social and most

appropriately behaved out of the group? The only child - my son - being

recovered the way Dr. G does it. That should have been an eye opener to

those other families, but it wasn't ;-(

Kristy

From: [mailto: ] On Behalf Of

Sent: Thursday, October 29, 2009 7:59 AM

Subject: Re: New Patient of Dr. Goldberg

Colleen,

With all due respect to Dr. Cave, she is doing your son a grave mistake not

addressing the real issue your son has by not treating his viral issues.

doctors do not believe metals to be a root cause of our children's

problems.

Let me share that I was told my daughter had " metal " issues, my husband and

I did not agree, we found and our daughter has been treated by Dr.

for a little over a year now. We addressed her HHV6, yeast, and

allergies and she doesnt have anymore sensory issues. I think those sensory

issues our kids have are due to inflammation/inflammatory cytokines (which

are also neurotransmitters, by the way) Once you take care of inflammation

(not as simple as it sounds, it takes time) your kids sensory issues will

dissipate.

My daughter is doing awesome, she is 4 years old and nearly

indistinguishable from her peers. She has done a total 180!!! The DAN docs

are going in the wrong direction, its time to start treating the infectious

and immune dysfunction components!!!

Sorry if I made people angry with what I say but I care more about getting

kids better than anything else.

-

>

> Hi Everyone,

> I know this is a general question, but I have a 4 1/2 year old son who was

born with congenital CMV. We live in Baton Rouge, LA and have been seeing

Dr. Cave, a well known DAN doctor for the last two years. Though our son has

done very well under her care, we have felt that not addressing his initial

virus is a mistake so we are now going to California to meet with Dr.

Goldberg and have a spect scan run. I know the first time I saw Dr. Cave I

had no idea what she was talking about and felt totally overwhelmed. Since

then I have learned A LOT. If anyone has any general advice on anything I

should be doing before our visit or tips please send them my way. I have

been hesitant to add on the expense of a new doctor and really believed in

the DAN protocol so I am feeling like I'm leaving one church for another.

According to Dr. Cave for instance, a lot of our son's sensory and attention

issues are related to metals in his system. Chelation doesn't seem to be a

part of Dr. Goldberg's protocol so I'm feeling a a bit torn. However, I know

his problems all stem from an initial virus and it's time to get an expert

opinion on how to treat this aspect.

> Thank you in advance for any advice-

> Colleen

>

October 29, 2009

Kristy,

How wonderful and yet discouraging...why dont these parents GET IT?!?! Thanks

for sharing

-

> >

> > Hi Everyone,

> > I know this is a general question, but I have a 4 1/2 year old son who was

> born with congenital CMV. We live in Baton Rouge, LA and have been seeing

> Dr. Cave, a well known DAN doctor for the last two years. Though our son has

> done very well under her care, we have felt that not addressing his initial

> virus is a mistake so we are now going to California to meet with Dr.

> Goldberg and have a spect scan run. I know the first time I saw Dr. Cave I

> had no idea what she was talking about and felt totally overwhelmed. Since

> then I have learned A LOT. If anyone has any general advice on anything I

> should be doing before our visit or tips please send them my way. I have

> been hesitant to add on the expense of a new doctor and really believed in

> the DAN protocol so I am feeling like I'm leaving one church for another.

> According to Dr. Cave for instance, a lot of our son's sensory and attention

> issues are related to metals in his system. Chelation doesn't seem to be a

> part of Dr. Goldberg's protocol so I'm feeling a a bit torn. However, I know

> his problems all stem from an initial virus and it's time to get an expert

> opinion on how to treat this aspect.

> > Thank you in advance for any advice-

> > Colleen

> >

>

October 29, 2009

-

I was there at this event and yes, her son was the most Œtypical¹ that I¹ve

seen.

I¹m just starting with Dr. G myself and am just hoping to not have a sick

year like we did last year. We¹re seeing some nice gains very small

because my son is very affected.

I do find myself talking to more and more parents about and have gotten

the CFS paper into the hands of some researchers at Pharma/Biotech companies

as well. Trying to push from all areas.

Laureen

On 10/29/09 11:57 AM, " " <jlhank80@...> wrote:

>

> Kristy,

>

> How wonderful and yet discouraging...why dont these parents GET IT?!?! Thanks

> for sharing

> -

>

>>> > >

>>> > > Hi Everyone,

>>> > > I know this is a general question, but I have a 4 1/2 year old son who

was

>> > born with congenital CMV. We live in Baton Rouge, LA and have been seeing

>> > Dr. Cave, a well known DAN doctor for the last two years. Though our son >>

has

>> > done very well under her care, we have felt that not addressing his initial

>> > virus is a mistake so we are now going to California to meet with Dr.

>> > Goldberg and have a spect scan run. I know the first time I saw Dr. Cave I

>> > had no idea what she was talking about and felt totally overwhelmed. Since

>> > then I have learned A LOT. If anyone has any general advice on anything I

>> > should be doing before our visit or tips please send them my way. I have

>> > been hesitant to add on the expense of a new doctor and really believed in

>> > the DAN protocol so I am feeling like I'm leaving one church for another.

>> > According to Dr. Cave for instance, a lot of our son's sensory and

>> attention

>> > issues are related to metals in his system. Chelation doesn't seem to be a

>> > part of Dr. Goldberg's protocol so I'm feeling a a bit torn. However, I

>> know

>> > his problems all stem from an initial virus and it's time to get an expert

>> > opinion on how to treat this aspect.

>>> > > Thank you in advance for any advice-

>>> > > Colleen

>>> > >

>> >

November 14, 2009

Laureen,

good for you! I wish that people would listen more about . I thought they

would listen to me when I had my daughter get better. Unfortunately that isn't

the case. I am not sure what I should do anymore!

Good luck to you

> >>> > >

> >>> > > Hi Everyone,

> >>> > > I know this is a general question, but I have a 4 1/2 year old son who

> was

> >> > born with congenital CMV. We live in Baton Rouge, LA and have been seeing

> >> > Dr. Cave, a well known DAN doctor for the last two years. Though our son

>>

> has

> >> > done very well under her care, we have felt that not addressing his

initial

> >> > virus is a mistake so we are now going to California to meet with Dr.

> >> > Goldberg and have a spect scan run. I know the first time I saw Dr. Cave

I

> >> > had no idea what she was talking about and felt totally overwhelmed.

Since

> >> > then I have learned A LOT. If anyone has any general advice on anything I

> >> > should be doing before our visit or tips please send them my way. I have

> >> > been hesitant to add on the expense of a new doctor and really believed

in

> >> > the DAN protocol so I am feeling like I'm leaving one church for another.

> >> > According to Dr. Cave for instance, a lot of our son's sensory and

> >> attention

> >> > issues are related to metals in his system. Chelation doesn't seem to be

a

> >> > part of Dr. Goldberg's protocol so I'm feeling a a bit torn. However, I

> >> know

> >> > his problems all stem from an initial virus and it's time to get an

expert

> >> > opinion on how to treat this aspect.

> >>> > > Thank you in advance for any advice-

> >>> > > Colleen

> >>> > >

> >> >

January 27, 2010

Colleen,

Sorry so late.... your e-mail just came to my house within the last couple

of days (it seems to take a long time sometimes for new members posts to

come through for the first time... sorry about that).

If you haven¹t seen it, there is a video presentation by Dr Goldberg at...

http://www.tarzanacme.com/main.asp

You go to that link and then enter ³Goldberg² in the search window. His

lecture from Wednesday, March 18, 2009

³What if this is not autism?² should come up.

You can also watch a youtube broadcast of his called...

³AUTISM VIEWED AS DISEASE- DR. MICHAEL GOLDBERG²

I¹m not sure if these are the same or not... my daughter broke the headphone

jack off in our computer a couple of years ago, so I¹ve never gotten to

watch them!

There¹s also another youtube broadcast called...

³Autism - Dr. Goldberg - USAAA 2009 Conference²

that you can pull up... once again my apologies if some of these are the

same.

You can check out his website www.neuroimmunedr.com as well.

The big buzz here lately has been the XMRV retrovirus (I¹m sure you¹ve

noticed). Dr. Goldberg is in close contact with Dr. Judy Mikovits regarding

our kids.

If you want to know more about that, you can go to www.wpinstitute.org and

click around. They¹re the ones who did the study.

That¹s what I can think of off hand... following this list is a great way to

find out more.

I wish you luck on your visit to Dr. G. He has watched over two of our 5

kids for years now, and although I know it¹s a big decision to go to

Tarzana, I do feel that for us, our sons are in very capable hands. And it

has been a great relief to have someone that I trust to who is continually

surfing the edge of the wave of the latest good, hard science to help us

make medical decisions.

Caroline G.

>Hi Everyone,

I know this is a general question, but I have a 4 1/2 year old son who was