Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 Hi, I am trying to get contact info for the office to set up an apt- can someone send me a phone number? I can't find a phone number or address or e-mail on the website! Does this practice take insurance, and what is the wait time to get in? My son is currently on SGIG weekly and was diagnosed by Dr.Gupta with immune deficiency. SCIG is the only treatment that has given us any hope and we would not be willing to go off of it, and I understand Dr.Goldberg does not " approve " of IVIG. I am wondering if we would be a good match with this protocol? I am a very experienced mom who has been treating my son for about 12 years- he is doing pretty well, although still struggles with chronic fatigue, severe food sensitivities, and chronic constipation. Before IVIG he had very elevated strep titers-ASO and the other one. Chronically elevated IgG viral titers to the HHV-6 family, although tested negative for HHV-6 by extremely sensitive PCR testing. Diagnosed with IgG subclass deficiency. Chronic skin infections. Went through a period of prolonged low-grade fevers, severe debilitating fatigue, weight loss. Suspected lyme but test was inconclusive. Was sick for 2 straight years and IVIG got him to where he was mostly functional. Diet is extremely limited as many foods make him tired. Thanks for any feedback! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 Where do you live? There is a doctor on the east coast. Here is the website: www.nnyautismcenter.com Their phone: 315-773-5405 We see them and they are wonderful. - > > > Hi, > > I am trying to get contact info for the office to set up an apt- can someone send me a phone number? I can't find a phone number or address or e-mail on the website! > > Does this practice take insurance, and what is the wait time to get in? > > My son is currently on SGIG weekly and was diagnosed by Dr.Gupta with immune deficiency. SCIG is the only treatment that has given us any hope and we would not be willing to go off of it, and I understand Dr.Goldberg does not " approve " of IVIG. I am wondering if we would be a good match with this protocol? > > I am a very experienced mom who has been treating my son for about 12 years- he is doing pretty well, although still struggles with chronic fatigue, severe food sensitivities, and chronic constipation. Before IVIG he had very elevated strep titers-ASO and the other one. Chronically elevated IgG viral titers to the HHV-6 family, although tested negative for HHV-6 by extremely sensitive PCR testing. Diagnosed with IgG subclass deficiency. Chronic skin infections. Went through a period of prolonged low-grade fevers, severe debilitating fatigue, weight loss. Suspected lyme but test was inconclusive. Was sick for 2 straight years and IVIG got him to where he was mostly functional. Diet is extremely limited as many foods make him tired. > > Thanks for any feedback! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 Below is some contact information for Dr. Goldberg's office. And yes, I couldn't find it on the Web site either. office@...<https://mail.google.com/mail/contacts/ui/ContactManager\ ?js=RAW & maximize=true & hide=true & position=absolute & hl=en & emailsLink=true & sk=true & \ titleBar=false & border=NONE & eventCallback=ParentStub1267370564083 & zx=m3o7ju5z06hs\ #> (818) 343-1010 - Work (818) 343-6585 - Work Fax 5620 Wilbur Ave. Suite #318 Tarzana CA 91356 Dan Jagnow On Thu, Jan 28, 2010 at 11:05 AM, CYNDITK <cyndi@...> wrote: > > > > Hi, > > I am trying to get contact info for the office to set up an apt- can > someone send me a phone number? I can't find a phone number or address or > e-mail on the website! > > Does this practice take insurance, and what is the wait time to get in? > > My son is currently on SGIG weekly and was diagnosed by Dr.Gupta with > immune deficiency. SCIG is the only treatment that has given us any hope and > we would not be willing to go off of it, and I understand Dr.Goldberg does > not " approve " of IVIG. I am wondering if we would be a good match with this > protocol? > > I am a very experienced mom who has been treating my son for about 12 > years- he is doing pretty well, although still struggles with chronic > fatigue, severe food sensitivities, and chronic constipation. Before IVIG he > had very elevated strep titers-ASO and the other one. Chronically elevated > IgG viral titers to the HHV-6 family, although tested negative for HHV-6 by > extremely sensitive PCR testing. Diagnosed with IgG subclass deficiency. > Chronic skin infections. Went through a period of prolonged low-grade > fevers, severe debilitating fatigue, weight loss. Suspected lyme but test > was inconclusive. Was sick for 2 straight years and IVIG got him to where he > was mostly functional. Diet is extremely limited as many foods make him > tired. > > Thanks for any feedback! > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.