Guest guest Posted November 10, 2003 Report Share Posted November 10, 2003 I can't help you with the medication question but if she will take supplements, she sure could try Sea Buddies Concentrate! Focus Formula or BeCalm'd or Attend! These can all be found on the internet. My thought is, if you haven't tried supplements that are specific to ADHD yet, why not try those before trying the meds? Another month or two of trying these types of supplements... Remember, with these supp's, as with meds, the child might go through a period of worsening at first. People get " scared " of this when it is a supplement but it often happens with meds too. I work with a boy who was tried on no less than ten different med configurations this summer. good luck with whatever you end up with! :-) W > Could anyone please offer opinions about which adhd medication seems to be the safest. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2003 Report Share Posted November 10, 2003 I really don't have any recommendations on medications - have you tried digestive enzymes instead. I was working to get my guy off of meds and for awhile we used Houston's AFP, Zyme-Prime and we still use no-fenol. Lynette > Could anyone please offer opinions about which adhd medication seems to be > the safest. I have heard so many pros and cons about lots of the drugs. We are > at a point where we need to put a teen on some kind of med for adhd. She is > not willing to make dietary changes or stick to them if I tried to mandate. > She will take supplements and I do give several (multi, Cal-mag, zinc, CLO). > If we are going to medicate I would like to start with the safest. Any > opinions would be helpful. Thanks. N. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2003 Report Share Posted November 11, 2003 > Could anyone please offer opinions about which adhd medication seems to be > the safest. I would vote to start with No-Fenol enzyme http://www.houstonni.com/ Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2003 Report Share Posted November 11, 2003 For my son who is now 14 1/2. We did the medication route prior to any supplements or dietary changes. He is DX Aspergers/ADHD. After being on Dexedrine and Risperidone for 2 years and really not seeing any changes in my son, I decided it was time to do something else. I completely changed my sons diet. NO Hydrogenated fat. No dyes, or artificial colors or flavors. High protein, low very low sugar. No processed foods. A lot of fresh food. Which means more cooking. The entire family changed their eating habits. No fastfood. I supplemented with Omega 3 (high dosage) Omega 6, Vitamin B, Vitamin C, Vitamin A, as well as gave him a high mineral content multivitamin. Purchased all of my vitamins from Kirkman Labs. I also " cleaned " up the air in my home. Air purifier in his room, along with cleaning all air ducts in the home. I also had my son join a workout gym. Here he is lifting weights for resistance. This seems to help with his feedback regarding sensory issues. I also eliminated all products that I use in my home that has dyes, perfumes or chemicals. This means laundry soap, shampoo, cleaning products etc. After 6 months of doing this, my son is no longer on any medication. He can now recognize when he has eaten something that causes him to become hyper, and less focused. We occasionally run into problems, but because he now feels better he can attend better. We still have impulsivity issues, but he recognizes it as well. I feed my son high protein meals at breakfast, and at 4:00 p.m. He needs the extra energy at these times of the day. It makes a huge difference when he doesn't get it. It has been a learning experience for all of us. We documented everything that we did. The changes that we saw. I would try this BEFORE any medication! It has made a world of difference for my son. Lori Manitoba/Canada [ ] Re: ADHD and medication > I can't help you with the medication question but if she will take > supplements, she sure could try > Sea Buddies Concentrate! Focus Formula > or > BeCalm'd > or > Attend! > > These can all be found on the internet. My thought is, if you > haven't tried supplements that are specific to ADHD yet, why not try > those before trying the meds? Another month or two of trying these > types of supplements... > > Remember, with these supp's, as with meds, the child might go > through a period of worsening at first. People get " scared " of this > when it is a supplement but it often happens with meds too. I work > with a boy who was tried on no less than ten different med > configurations this summer. > > good luck with whatever you end up with! :-) > W > > > > Could anyone please offer opinions about which adhd medication > seems to be the safest. > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 I tried everything, diet, behaviorl therapy, lots of love, but my son still couldn't focus and his bevior still didnt improve. He almost burned down our house and his grades at school were horrible. It took a tole on our family and I finally put him on meds for his ADHD. His behavior has seriously improved and he is a much happier child because of his success at school and no longer labeled as the bad kid. I feel medication was our answer and it works for us. ________________________________ From: Robyn & Greg Coggins <rngcoggs@...> Sent: Tue, February 2, 2010 12:28:55 PM Subject: Re: Re: Industrial chemical OSR#1 used as autism treatment  It shows how desperate some parents are. I just don't understand the wisdom of eschewing the use of pharmaceuticals, but then choosing to sprinkle an industrial chemical that hasn't been tested on humans on your kid's morning cereal.. Robyn ____________ _________ _________ __ From: <jlhank80 (DOT) com> groups (DOT) com Sent: Tue, February 2, 2010 7:21:30 AM Subject: Re: Industrial chemical OSR#1 used as autism treatment Ridiculous! And also, recently Kirkman labs had a huge recall on supps because they were laced with heavy metals and came from China. We have to be careful about supplements! !! They aren't always safe! > > http://www.latimes. com/features/ health/la- he-autism- chemical1- 2010feb01, 0,1654619. story > > Industrial chemical OSR#1 used as autism treatment > Used for toxic cleanup, it's also sold as a dietary supplement, even though it hasn't been evaluated for safety. > > By Trine Tsouderos > > February 1, 2010 > > An industrial chemical developed to help separate heavy metals from polluted soil and mining drainage is being sold as a dietary supplement by a luminary in the world of alternative autism treatments. > > The supplement, called OSR#1, is described on the company website as an antioxidant not meant to treat any disease. But the site lists pharmacies and doctors who sell it to parents of children with autism, and the compound has been promoted to parents on popular autism websites. > > " I sprinkle the powder into Bella's morning juice and onto Mia and 's gluten free waffle breakfast sandwich, " wrote Kim Stagliano, managing editor of the Age of Autism blog and mother of three girls on the autism spectrum, in an enthusiastic post last spring. " We've seen some nice 'Wows!' from OSR. " > > A search of medical journals unearthed no papers published about OSR#1, though the compound's industrial uses for toxic cleanup have been explored in publications such as the Journal of Hazardous Materials. > > Boyd Haley, who is president of the Lexington, Ky.-based company that produces the OSR#1 supplement, acknowledged its industrial origins but calls his product " a food " that is " totally without toxicity. " He said he has been taking the supplement for nearly three years. > > " Look, I put myself on the line, " he said. " I have taken 250 milligrams per day, on the average. " > > Federal law requires manufacturers to explain why a new dietary ingredient reasonably can be expected to be safe. The Food and Drug Administration told the Chicago Tribune that Haley had not submitted sufficient information. > > In an interview, Haley said that the compound had been tested on rats and that a food safety study was conducted on 10 people. Asked to provide documentation of the studies, he stopped communicating with the Tribune. > > Experts expressed dismay upon hearing children were consuming a chemical not evaluated in formal clinical trials for safety, as would be required for a drug prescribed by doctors. > > Ellen Silbergeld, an expert in environmental health and a researcher studying mercury and autism at s Hopkins University Bloomberg School of Public Health, said she found the sale of the chemical as a supplement for children " appalling. " > > Antioxidant expert Dr. L. , a pharmacologist at Vanderbilt University School of Medicine, said, " I would worry a lot about giving anything to a small child that hasn't been scrutinized for both safety and efficacy by the FDA. " > > OSR#1 supplements are one of many risky, unproven therapies given to children with autism by doctors who say they can successfully treat the disorder, which has no cure and very few proven treatment options. Last year, Chicago Tribune reporters examined alternative treatments for autism and uncovered a trail of junk science and false hopes. > > Haley, a retired professor at the University of Kentucky who once was chairman of the chemistry department, has spoken at autism conferences promoting alternative therapies. His fiery presentations connect autism and the mercury preservative that was once a common part of childhood vaccines, a proposed link that numerous scientific studies have failed to confirm. > > " We need to get mad, " he told an audience of hundreds at a national autism conference in Chicago last year. > > One of the most prominent autism groups, Generation Rescue, once named him to its Hall of Fame, citing his " clear, thoughtful, feisty testimony and writings " about mercury. > > On the Age of Autism blog, parents have hailed him as a hero for his new supplement, which Haley said " easily 1,000 people " have taken. > > " Boyd Haley should be 'Man of the Year,' " wrote one reader of the blog. > > Stagliano, the Age of Autism website's managing editor, declined to comment. > > The company that makes the supplement, CTI Science, describes it as an antioxidant. But pharmacologist Dr. Arthur Grollman, director of the Laboratory for Chemical Biology at State University of New York at Stony Brook, said it is obvious from the product's chemical structure that it is also a " powerful chelator " -- a compound that binds to heavy metals such as mercury. > > The FDA has approved several chelators as drugs to treat heavy metal poisoning. Some doctors also use the drugs -- which carry significant risks -- to treat children with autism based on the scientifically unfounded idea that their disorder is linked to toxic metals. > > But the chemical being sold as OSR#1 is part of a family of chelators originally developed for industrial purposes, according to a U.S. patent issued in 2003 and assigned to the University of Kentucky Research Foundation. > > A university spokesman said Haley's company has licensing rights to that patent, which discusses ways to use the compound to remove heavy metals from soil and acid mine drainage. > > In a 2006 interview for the magazine Medical Veritas, Haley told a reporter from AutismOne Radio, produced by an autism parent organization, that he was interested in developing better chelators for people. > > " We've made compounds that . . . work tremendously " in a test tube, he said. " However, we've got to show that they're not toxic. That costs a lot of money and it's very difficult to do, you have to have the right facilities. That's where we're hung up right now, the question is, 'How do we get somebody to do these studies?' " > > In January 2008, Haley changed the name of his company from Chelator Technologies Inc. to CTI Science Inc. Less than a month later, he notified the FDA he would be introducing the compound as a new dietary ingredient. > > Federal law allows manufacturers of dietary supplements to market them without the rigorous testing for safety and efficacy the FDA requires of drugs. Developing, testing and bringing a drug to market can cost hundreds of millions of dollars, according to some studies. > > But the law does require makers of supplements containing new dietary ingredients -- such as OSR#1 -- to establish that the product can be expected to be safe. > > In June 2008, an FDA senior toxicologist sent a letter to Haley that questioned on what basis the product could be expected to be safe and could be considered a dietary ingredient. According to FDA spokeswoman Siobhan DeLancey, Haley has not responded to the request for more information. > > DeLancey declined to discuss OSR#1 specifically, but she said the government prohibits companies from selling a product until the safety requirement is satisfied. Penalties can include warning letters, seizure of products or criminal prosecution. DeLancey said she did not know of any actions taken against Haley or his company. > > The question of whether OSR#1 was developed as an industrial chelator apparently was first raised by blogger Kathleen Seidel of neurodiversity. com, which covers autism issues, who wrote several long posts about the product. > > On its website, CTI Science flatly denies that the supplement is an industrial chelator. > > " There is an Internet rumor that OSR#1 is an Industrial Chelator. Is this true? " a statement reads. > > Then it answers: " No. " > > Haley said he is marketing the product only as an antioxidant supplement. > > " I am not breaking any law, " Haley said. " We are being very, very careful. " > > He did not respond to questions about the FDA. > > Because taking chelators carries significant risks, treatments for metal poisoning are carried out under a doctor's care, with regular lab testing and only in severe cases. Among other dangers, chelating drugs can strip the body of metals necessary for health. > > " Treatment of autistic children with a potent chelator is potentially hazardous and offers no benefits, " Grollman said. > > A note on CTI Science's website indicates the product has been " rarely associated with short term diarrhea, constipation or fever. " > > The website also states that OSR#1 " scavenges " hydroxyl free radicals, " allowing the body to maintain its own natural detoxifying capacity. " > > But Vanderbilt's said that claim is absurd. Because hydroxyl radicals are so very reactive, he said, pretty much any molecule in the body would react with them and in essence " scavenge " them. > > Consumers must get the product through a dentist or doctor, according to the website, which lists more than 550 doctors, dentists and others who work with the company. But the Chicago Tribune was able to buy 30 capsules of OSR#1 for $60 directly from a compounding pharmacy listed on the site. > > A year after the FDA requested answers about the safety of Haley's product, an autism group interviewed him about OSR#1. In the interview, posted on YouTube, Haley warns parents to be exacting when choosing what to give their children. > > " Parents should know if you can't test and show the efficaciousness of anything you are taking for your child, don't do it, " he said. " There are so many snake oil salesmen out there, it's just incredible. " > > ttsouderos@. .. > > Copyright © 2010, The Los Angeles Times > Quote Link to comment Share on other sites More sharing options...
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