RE: Follow-up on Introduction

[Guest guest]

I posted last week where I buy my estradiol. However, since your cancer has

now become invasive, I really think you need to deal with that. I would

not, for a minute, hang onto a breast where cancer has become invasive. I'd

also do it ASAP before it gets in your lymph nodes or bloodstream.

If I had ER/PR invasive BC, I would not be using any E or P. I'd surely

like to see those studies that say that 17-beta estradiol is good for breast

cancer. Those studies from the WHI were about the incidence of BC while

using Premarin. They had nothing to support using estrogen with an invasive

ER/PR cancer.

This is all about how much risk you're willing to take. These are my risks

with ER/PR:

Lumpectomy + radiation, with estrogen use after: 38% chance of relapse

Bilateral mastectomy with no estrogen use after: 2% chance of relapse

Bilateral mastectomy with estrogen use after: 3% chance of relapse.

By " relapse " I mean breast cancer subsequently showing up somewhere in the

body

Val

Follow-up on Introduction

Thanks Ladies for the replies. My cancer was estrogen/progesterone positive

in 2007. Arimidex was recommended that time but I had not taken it. The

recent biopsy report does not state if it's estrogen positive or not. It

says: " Invasive ductal carcinoma, no special type " . I find this really

strange. Basically, I do not have enough info to decide on the type of

surgery I should go for.

Yes, I am aware of the WHI study on the beneficial effect of the Premarin

only therapy. I still have my uterus, therefore, need to take some

progesterone with the estrogel if I decide to stay with the hormones. If

Estro-Rhythm is as good as they say, I would be really happy to try it. I

never came across anybody who took Estro-rhythm. I guess it does not do too

much for osteoporosis, brain functions and anti-aging in general. Might be

good for flashes.

Yes, you are right, the overdose of progesterone caused my symptoms and

also killed my libido completely. When I was on Progesterone only, I was so

numb, I could not feel anything from the waist down. It was brutal, yet the

progesterone mania still is in its renaissance stage in Toronto.

I still do not understand what is the science behind continuous combined

BHRT where estrogen is given in homeopathic doses with high doses of

progesterone. This is a practice followed by most doctors here.

I read the books I mentioned, yet I do not remember the studies about the

safety of 17 B estradiol.

Anyway, I firmly believe that balanced hormones save lives. Do you think I

could use the progesterone cream, I have, vaginally or use prometrium

instead?

I am going to contact Dr. Schwarzbein but I still need a doctor here. I

doubt I find one, so I have to look into getting the hormones without

prescription and go for blood tests to the Naturopathic Clinic. Costs $250

for estradiol and progesterone. How to find a Pharmacy where I can get

these hormones without a prescription, I do not know. They probably exist

somewhere, I saw on the net people talking about them, not mentioning the

names and locations though.

Regards, Sabriel

------------------------------------

click here for our webpage http://rhythmicliving.com/

**The group conversation is informational in nature and is not intended as

medical advice.**

[Guest guest]

Hi Val,

Thanks for your input. It makes sense what your are saying. It's hard to decide.

I do not know the receptiveness of this recurrence. One thing is sure: I would

never get a reconstruction surgery in Ontario if I did not submit myself

whatever treatments the doctors decide as necessary for me. It could be chemo

and the estrogen blocking pills.

Sabri

>

> I posted last week where I buy my estradiol. However, since your cancer has

> now become invasive, I really think you need to deal with that. I would

> not, for a minute, hang onto a breast where cancer has become invasive. I'd

> also do it ASAP before it gets in your lymph nodes or bloodstream.

>

> If I had ER/PR invasive BC, I would not be using any E or P. I'd surely

> like to see those studies that say that 17-beta estradiol is good for breast

> cancer. Those studies from the WHI were about the incidence of BC while

> using Premarin. They had nothing to support using estrogen with an invasive

> ER/PR cancer.

>

> This is all about how much risk you're willing to take. These are my risks

> with ER/PR:

>

> Lumpectomy + radiation, with estrogen use after: 38% chance of relapse

> Bilateral mastectomy with no estrogen use after: 2% chance of relapse

> Bilateral mastectomy with estrogen use after: 3% chance of relapse.

>

> By " relapse " I mean breast cancer subsequently showing up somewhere in the

> body

>

> Val

>

>

> Follow-up on Introduction

>

> Thanks Ladies for the replies. My cancer was estrogen/progesterone positive

> in 2007. Arimidex was recommended that time but I had not taken it. The

> recent biopsy report does not state if it's estrogen positive or not. It

> says: " Invasive ductal carcinoma, no special type " . I find this really

> strange. Basically, I do not have enough info to decide on the type of

> surgery I should go for.

> Yes, I am aware of the WHI study on the beneficial effect of the Premarin

> only therapy. I still have my uterus, therefore, need to take some

> progesterone with the estrogel if I decide to stay with the hormones. If

> Estro-Rhythm is as good as they say, I would be really happy to try it. I

> never came across anybody who took Estro-rhythm. I guess it does not do too

> much for osteoporosis, brain functions and anti-aging in general. Might be

> good for flashes.

> Yes, you are right, the overdose of progesterone caused my symptoms and

> also killed my libido completely. When I was on Progesterone only, I was so

> numb, I could not feel anything from the waist down. It was brutal, yet the

> progesterone mania still is in its renaissance stage in Toronto.

> I still do not understand what is the science behind continuous combined

> BHRT where estrogen is given in homeopathic doses with high doses of

> progesterone. This is a practice followed by most doctors here.

> I read the books I mentioned, yet I do not remember the studies about the

> safety of 17 B estradiol.

> Anyway, I firmly believe that balanced hormones save lives. Do you think I

> could use the progesterone cream, I have, vaginally or use prometrium

> instead?

> I am going to contact Dr. Schwarzbein but I still need a doctor here. I

> doubt I find one, so I have to look into getting the hormones without

> prescription and go for blood tests to the Naturopathic Clinic. Costs $250

> for estradiol and progesterone. How to find a Pharmacy where I can get

> these hormones without a prescription, I do not know. They probably exist

> somewhere, I saw on the net people talking about them, not mentioning the

> names and locations though.

> Regards, Sabriel

>

>

>

>

> ------------------------------------

>

> click here for our webpage http://rhythmicliving.com/

>

> **The group conversation is informational in nature and is not intended as

> medical advice.**

[Guest guest]

Sabri,

I had concurrent reconstruction with a fat transplant from my abdomen. Its

called a DIEP. My breasts look pretty natural. Given that I have Lyme

disease, I did not want anything foreign in my body that might cause a new

immune reaction. I had a total choice of what to do and relied only on

their expert opinion and my research. I got a couple of opinions.

Ultimately, how I handled it was my choice.

I can't believe it took you four months to get a biopsy after you'd already

had cancer. How long before they get moving on treatment?

Val

Follow-up on Introduction

>

> Thanks Ladies for the replies. My cancer was estrogen/progesterone

positive

> in 2007. Arimidex was recommended that time but I had not taken it. The

> recent biopsy report does not state if it's estrogen positive or not. It

> says: " Invasive ductal carcinoma, no special type " . I find this really

> strange. Basically, I do not have enough info to decide on the type of

> surgery I should go for.

> Yes, I am aware of the WHI study on the beneficial effect of the Premarin

> only therapy. I still have my uterus, therefore, need to take some

> progesterone with the estrogel if I decide to stay with the hormones. If

> Estro-Rhythm is as good as they say, I would be really happy to try it. I

> never came across anybody who took Estro-rhythm. I guess it does not do

too

> much for osteoporosis, brain functions and anti-aging in general. Might

be

> good for flashes.

> Yes, you are right, the overdose of progesterone caused my symptoms and

> also killed my libido completely. When I was on Progesterone only, I was

so

> numb, I could not feel anything from the waist down. It was brutal, yet

the

> progesterone mania still is in its renaissance stage in Toronto.

> I still do not understand what is the science behind continuous combined

> BHRT where estrogen is given in homeopathic doses with high doses of

> progesterone. This is a practice followed by most doctors here.

> I read the books I mentioned, yet I do not remember the studies about the

> safety of 17 B estradiol.

> Anyway, I firmly believe that balanced hormones save lives. Do you think I

> could use the progesterone cream, I have, vaginally or use prometrium

> instead?

> I am going to contact Dr. Schwarzbein but I still need a doctor here. I

> doubt I find one, so I have to look into getting the hormones without

> prescription and go for blood tests to the Naturopathic Clinic. Costs $250

> for estradiol and progesterone. How to find a Pharmacy where I can get

> these hormones without a prescription, I do not know. They probably exist

> somewhere, I saw on the net people talking about them, not mentioning the

> names and locations though.

> Regards, Sabriel

>

>

>

>

> ------------------------------------

>

> click here for our webpage http://rhythmicliving.com/

>

> **The group conversation is informational in nature and is not intended as

> medical advice.**

[Guest guest]

Val,

They do not do the reconstruction concurrently here. The surgeon said may be 1

year after surgery. It took 4 months because of the " wonderful " health system in

Ontario. The waiting time is ridiculously long for everything. We have shortages

of doctors on every level. Perhaps, my family doctor played a role here, but I

cannot find another one due to shortage of MD's.

In one of your posts, you mentioned some numbness. Could you explore on that a

bit please. I have numbness in my left arm due to lymphnode dissection in 2007.

I am contemplating to opt out BHRT but I need to find something for my brain to

function reasonably well. I was searching for some designer estrogen which would

positively affect brain health.

I am aware that research is going on, however, no product is available yet. Have

you heard of Dr a Brinton in South California? A trial is underway there

for an estrogen variant which is good for brain functions but does affect the

breast or uterus.

I also would like to find some natural remedies which can be applied locally to

the breast to prevent inflammation and irregularities in tissue.

Another thought: What is the difference between 17B and 17Alpha estradiol and

how they work differently?

Thanks. Sabri

> >

> > I posted last week where I buy my estradiol. However, since your cancer

> has

> > now become invasive, I really think you need to deal with that. I would

> > not, for a minute, hang onto a breast where cancer has become invasive.

> I'd

> > also do it ASAP before it gets in your lymph nodes or bloodstream.

> >

> > If I had ER/PR invasive BC, I would not be using any E or P. I'd surely

> > like to see those studies that say that 17-beta estradiol is good for

> breast

> > cancer. Those studies from the WHI were about the incidence of BC while

> > using Premarin. They had nothing to support using estrogen with an

> invasive

> > ER/PR cancer.

> >

> > This is all about how much risk you're willing to take. These are my

> risks

> > with ER/PR:

> >

> > Lumpectomy + radiation, with estrogen use after: 38% chance of relapse

> > Bilateral mastectomy with no estrogen use after: 2% chance of relapse

> > Bilateral mastectomy with estrogen use after: 3% chance of relapse.

> >

> > By " relapse " I mean breast cancer subsequently showing up somewhere in the

> > body

> >

> > Val

> >

> >

> > Follow-up on Introduction

> >

> > Thanks Ladies for the replies. My cancer was estrogen/progesterone

> positive

> > in 2007. Arimidex was recommended that time but I had not taken it. The

> > recent biopsy report does not state if it's estrogen positive or not. It

> > says: " Invasive ductal carcinoma, no special type " . I find this really

> > strange. Basically, I do not have enough info to decide on the type of

> > surgery I should go for.

> > Yes, I am aware of the WHI study on the beneficial effect of the Premarin

> > only therapy. I still have my uterus, therefore, need to take some

> > progesterone with the estrogel if I decide to stay with the hormones. If

> > Estro-Rhythm is as good as they say, I would be really happy to try it. I

> > never came across anybody who took Estro-rhythm. I guess it does not do

> too

> > much for osteoporosis, brain functions and anti-aging in general. Might

> be

> > good for flashes.

> > Yes, you are right, the overdose of progesterone caused my symptoms and

> > also killed my libido completely. When I was on Progesterone only, I was

> so

> > numb, I could not feel anything from the waist down. It was brutal, yet

> the

> > progesterone mania still is in its renaissance stage in Toronto.

> > I still do not understand what is the science behind continuous combined

> > BHRT where estrogen is given in homeopathic doses with high doses of

> > progesterone. This is a practice followed by most doctors here.

> > I read the books I mentioned, yet I do not remember the studies about the

> > safety of 17 B estradiol.

> > Anyway, I firmly believe that balanced hormones save lives. Do you think I

> > could use the progesterone cream, I have, vaginally or use prometrium

> > instead?

> > I am going to contact Dr. Schwarzbein but I still need a doctor here. I

> > doubt I find one, so I have to look into getting the hormones without

> > prescription and go for blood tests to the Naturopathic Clinic. Costs $250

> > for estradiol and progesterone. How to find a Pharmacy where I can get

> > these hormones without a prescription, I do not know. They probably exist

> > somewhere, I saw on the net people talking about them, not mentioning the

> > names and locations though.

> > Regards, Sabriel

> >

> >

> >

> >

> > ------------------------------------

> >

> > click here for our webpage http://rhythmicliving.com/

> >

> > **The group conversation is informational in nature and is not intended as

> > medical advice.**

[Guest guest]

I talked to my surgeon's nurse today. She said once you've had radiation,

reconstruction does have to be put off, maybe a year. Nevertheless, four

months for a biopsy for a cancer survivor is unconscionable. Do people in

your community or province complain? The procedure I had is called DIEP

flap. There are only about 80 DIEP surgeons in the U.S. and only two in

Colorado. I had both of them as it takes two to do the surgery.

Numbness. It comes from nerves being severed during surgery. While I had a

fat transplant and my veins were reconnected, both in my breasts and

abdomen, science, so far, has not provided for any nerve reconnection. One

of my plastic surgeons is doing research into reconnecting nerves but it is

not available anywhere as far as I know.

I don't know the difference between 17-alpha and 17-beta. I wish you well

in your search for something to relieve your symptoms. This is a tough time

for you and my best wishes are with you.

Val

Follow-up on Introduction

> >

> > Thanks Ladies for the replies. My cancer was estrogen/progesterone

> positive

> > in 2007. Arimidex was recommended that time but I had not taken it. The

> > recent biopsy report does not state if it's estrogen positive or not. It

> > says: " Invasive ductal carcinoma, no special type " . I find this really

> > strange. Basically, I do not have enough info to decide on the type of

> > surgery I should go for.

> > Yes, I am aware of the WHI study on the beneficial effect of the

Premarin

> > only therapy. I still have my uterus, therefore, need to take some

> > progesterone with the estrogel if I decide to stay with the hormones. If

> > Estro-Rhythm is as good as they say, I would be really happy to try it.

I

> > never came across anybody who took Estro-rhythm. I guess it does not do

> too

> > much for osteoporosis, brain functions and anti-aging in general. Might

> be

> > good for flashes.

> > Yes, you are right, the overdose of progesterone caused my symptoms and

> > also killed my libido completely. When I was on Progesterone only, I was

> so

> > numb, I could not feel anything from the waist down. It was brutal, yet

> the

> > progesterone mania still is in its renaissance stage in Toronto.

> > I still do not understand what is the science behind continuous combined

> > BHRT where estrogen is given in homeopathic doses with high doses of

> > progesterone. This is a practice followed by most doctors here.

> > I read the books I mentioned, yet I do not remember the studies about

the

> > safety of 17 B estradiol.

> > Anyway, I firmly believe that balanced hormones save lives. Do you think

I

> > could use the progesterone cream, I have, vaginally or use prometrium

> > instead?

> > I am going to contact Dr. Schwarzbein but I still need a doctor here. I

> > doubt I find one, so I have to look into getting the hormones without

> > prescription and go for blood tests to the Naturopathic Clinic. Costs

$250

> > for estradiol and progesterone. How to find a Pharmacy where I can get

> > these hormones without a prescription, I do not know. They probably

exist

> > somewhere, I saw on the net people talking about them, not mentioning

the

> > names and locations though.

> > Regards, Sabriel

> >

> >

> >

> >

> > ------------------------------------

> >

> > click here for our webpage http://rhythmicliving.com/

> >

> > **The group conversation is informational in nature and is not intended

as

> > medical advice.**

[Guest guest]

Thanks Val,

God Bless You.

Sabri

> > >

> > > I posted last week where I buy my estradiol. However, since your cancer

> > has

> > > now become invasive, I really think you need to deal with that. I would

> > > not, for a minute, hang onto a breast where cancer has become invasive.

> > I'd

> > > also do it ASAP before it gets in your lymph nodes or bloodstream.

> > >

> > > If I had ER/PR invasive BC, I would not be using any E or P. I'd surely

> > > like to see those studies that say that 17-beta estradiol is good for

> > breast

> > > cancer. Those studies from the WHI were about the incidence of BC while

> > > using Premarin. They had nothing to support using estrogen with an

> > invasive

> > > ER/PR cancer.

> > >

> > > This is all about how much risk you're willing to take. These are my

> > risks

> > > with ER/PR:

> > >

> > > Lumpectomy + radiation, with estrogen use after: 38% chance of relapse

> > > Bilateral mastectomy with no estrogen use after: 2% chance of relapse

> > > Bilateral mastectomy with estrogen use after: 3% chance of relapse.

> > >

> > > By " relapse " I mean breast cancer subsequently showing up somewhere in

> the

> > > body

> > >

> > > Val

> > >

> > >

> > > Follow-up on Introduction

> > >

> > > Thanks Ladies for the replies. My cancer was estrogen/progesterone

> > positive

> > > in 2007. Arimidex was recommended that time but I had not taken it. The

> > > recent biopsy report does not state if it's estrogen positive or not. It

> > > says: " Invasive ductal carcinoma, no special type " . I find this really

> > > strange. Basically, I do not have enough info to decide on the type of

> > > surgery I should go for.

> > > Yes, I am aware of the WHI study on the beneficial effect of the

> Premarin

> > > only therapy. I still have my uterus, therefore, need to take some

> > > progesterone with the estrogel if I decide to stay with the hormones. If

> > > Estro-Rhythm is as good as they say, I would be really happy to try it.

> I

> > > never came across anybody who took Estro-rhythm. I guess it does not do

> > too

> > > much for osteoporosis, brain functions and anti-aging in general. Might

> > be

> > > good for flashes.

> > > Yes, you are right, the overdose of progesterone caused my symptoms and

> > > also killed my libido completely. When I was on Progesterone only, I was

> > so

> > > numb, I could not feel anything from the waist down. It was brutal, yet

> > the

> > > progesterone mania still is in its renaissance stage in Toronto.

> > > I still do not understand what is the science behind continuous combined

> > > BHRT where estrogen is given in homeopathic doses with high doses of

> > > progesterone. This is a practice followed by most doctors here.

> > > I read the books I mentioned, yet I do not remember the studies about

> the

> > > safety of 17 B estradiol.

> > > Anyway, I firmly believe that balanced hormones save lives. Do you think

> I

> > > could use the progesterone cream, I have, vaginally or use prometrium

> > > instead?

> > > I am going to contact Dr. Schwarzbein but I still need a doctor here. I

> > > doubt I find one, so I have to look into getting the hormones without

> > > prescription and go for blood tests to the Naturopathic Clinic. Costs

> $250

> > > for estradiol and progesterone. How to find a Pharmacy where I can get

> > > these hormones without a prescription, I do not know. They probably

> exist

> > > somewhere, I saw on the net people talking about them, not mentioning

> the

> > > names and locations though.

> > > Regards, Sabriel

> > >

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > > click here for our webpage http://rhythmicliving.com/

> > >

> > > **The group conversation is informational in nature and is not intended

> as

> > > medical advice.**