Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 My three boys all tried Paxil and it wasn't a good fit for them. We either saw no improvement or, as with my most affected son, a definite decline. He was agitated on Paxil. That doesn't mean that Paxil won't work for your son. You really have to go through the trial and error process with the SSRIs. What works on one child can be a lousy fit for another. The good thing is that Dr. G goes very slowly with the SSRIs. My son is verbal but has difficulty telling us how he feels. I just watched him closely every time we switched or added an SSRI. What we found is that a combination of several meds in low doses work best for my boys. HTH, Robyn ________________________________ From: kathd9 <kathyd3@...> Sent: Wed, March 3, 2010 5:50:06 PM Subject: 2 months on I have been reading on this site for months and am finally asking a question. My son is 7 and just started with Dr G in beginning of Jan 2010. We are 2 months in and have been on acyclovir and immunovir and Dr G is ready to try paxil soon. I know SSRI's are definitely part of his protocol but I'm nervous about paxil and would just like to hear if anyone saw definite improvement on it. My son is a severely affected non verbal kid so I'm concerned that I won't be able to tell if it is affecting him in a bad way other than more stimming. Thanks Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 Thank you for this information~ we are actually on Day 6 of Paxil and we are not sure we are seeing much improvement. He has actually been slightly more aggressive~and has been pushing his peers more (3.5yrs boy). Just curious, what other SSRIs have you been on? Also, how long is it before Dr G will switch? ________________________________ From: Robyn & Greg Coggins <rngcoggs@...> Sent: Thu, March 4, 2010 4:55:11 PM Subject: Re: 2 months on  My three boys all tried Paxil and it wasn't a good fit for them. We either saw no improvement or, as with my most affected son, a definite decline. He was agitated on Paxil. That doesn't mean that Paxil won't work for your son. You really have to go through the trial and error process with the SSRIs. What works on one child can be a lousy fit for another. The good thing is that Dr. G goes very slowly with the SSRIs. My son is verbal but has difficulty telling us how he feels. I just watched him closely every time we switched or added an SSRI. What we found is that a combination of several meds in low doses work best for my boys. HTH, Robyn ____________ _________ _________ __ From: kathd9 <kathyd3shaw (DOT) ca> groups (DOT) com Sent: Wed, March 3, 2010 5:50:06 PM Subject: 2 months on I have been reading on this site for months and am finally asking a question. My son is 7 and just started with Dr G in beginning of Jan 2010. We are 2 months in and have been on acyclovir and immunovir and Dr G is ready to try paxil soon. I know SSRI's are definitely part of his protocol but I'm nervous about paxil and would just like to hear if anyone saw definite improvement on it. My son is a severely affected non verbal kid so I'm concerned that I won't be able to tell if it is affecting him in a bad way other than more stimming. Thanks Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 We've been with Dr.G for a year. My son is 4 and takes a very small dose of Paxil. No negative effects for him. It seems to be helping. I trust Dr G. > > I have been reading on this site for months and am finally asking a question. My son is 7 and just started with Dr G in beginning of Jan 2010. We are 2 months in and have been on acyclovir and immunovir and Dr G is ready to try paxil soon. I know SSRI's are definitely part of his protocol but I'm nervous about paxil and would just like to hear if anyone saw definite improvement on it. My son is a severely affected non verbal kid so I'm concerned that I won't be able to tell if it is affecting him in a bad way other than more stimming. > Thanks > Kathy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2010 Report Share Posted March 6, 2010 I have a completely non-verbal, low functioning child and all I can say with the Paxil is WOW! So many tiny little changes that have been amazing to me. He actually went to Disney and looked around, went up to hug Mickey and Minnie (he never would have noticed before), petting the animals at the petting zoo (normally he would walk straight to the fence), coming over to sit next to me all on his own, wanting to sit on dads lap when he had my 2 girls on his lap, achieving IEP goals early, paying attention, sitting down to watch a cartoon and laughing at the appropriate parts. So, yes, it¹s been wonderful for us. He starts on such a low dose that if you see anything negative (which we do see some bouts of hyperness but that¹s kinda normal for all kids) you can switch it up. Good luck! I was nervous too but, these little things and him wanting to be in our world with us has been nothing short of amazing. Laureen On 3/3/10 5:50 PM, " kathd9 " <kathyd3@...> wrote: > > > > > > I have been reading on this site for months and am finally asking a question. > My son is 7 and just started with Dr G in beginning of Jan 2010. We are 2 > months in and have been on acyclovir and immunovir and Dr G is ready to try > paxil soon. I know SSRI's are definitely part of his protocol but I'm nervous > about paxil and would just like to hear if anyone saw definite improvement on > it. My son is a severely affected non verbal kid so I'm concerned that I won't > be able to tell if it is affecting him in a bad way other than more stimming. > Thanks > Kathy > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2010 Report Share Posted March 6, 2010 I can pretty much echo your experience with our sons experience on paxil. Trust Dr. G- he really wants the best for our kids! Sent from my iPhone On Mar 6, 2010, at 1:54 PM, Laureen Forman <lforman@...> wrote: I have a completely non-verbal, low functioning child and all I can say with the Paxil is WOW! So many tiny little changes that have been amazing to me. He actually went to Disney and looked around, went up to hug Mickey and Minnie (he never would have noticed before), petting the animals at the petting zoo (normally he would walk straight to the fence), coming over to sit next to me all on his own, wanting to sit on dads lap when he had my 2 girls on his lap, achieving IEP goals early, paying attention, sitting down to watch a cartoon and laughing at the appropriate parts. So, yes, it’s been wonderful for us. He starts on such a low dose that if you see anything negative (which we do see some bouts of hyperness – but that’s kinda normal for all kids) you can switch it up. Good luck! I was nervous too but, these little things and him wanting to be in our world with us has been nothing short of amazing. Laureen On 3/3/10 5:50 PM, " kathd9 " <kathyd3@...> wrote: > > > > > > I have been reading on this site for months and am finally asking a question. > My son is 7 and just started with Dr G in beginning of Jan 2010. We are 2 > months in and have been on acyclovir and immunovir and Dr G is ready to try > paxil soon. I know SSRI's are definitely part of his protocol but I'm nervous > about paxil and would just like to hear if anyone saw definite improvement on > it. My son is a severely affected non verbal kid so I'm concerned that I won't > be able to tell if it is affecting him in a bad way other than more stimming. > Thanks > Kathy > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2010 Report Share Posted March 6, 2010 Laureen, That is so great to hear. Getting the right SSRI and the right dosage makes all the difference. I think that's why it's so hard to answer questions regarding an individual's experience with any SSRI. Our brain chemistry is slightly different and what may work for one child doesn't work for another. Congratulations! Robyn ________________________________ From: Laureen Forman <lforman@...> Sent: Sat, March 6, 2010 11:54:34 AM Subject: Re: 2 months on I have a completely non-verbal, low functioning child and all I can say with the Paxil is WOW! So many tiny little changes that have been amazing to me. He actually went to Disney and looked around, went up to hug Mickey and Minnie (he never would have noticed before), petting the animals at the petting zoo (normally he would walk straight to the fence), coming over to sit next to me all on his own, wanting to sit on dads lap when he had my 2 girls on his lap, achieving IEP goals early, paying attention, sitting down to watch a cartoon and laughing at the appropriate parts. So, yes, it¹s been wonderful for us. He starts on such a low dose that if you see anything negative (which we do see some bouts of hyperness  but that¹s kinda normal for all kids) you can switch it up. Good luck! I was nervous too but, these little things and him wanting to be in our world with us has been nothing short of amazing. Laureen On 3/3/10 5:50 PM, " kathd9 " <kathyd3shaw (DOT) ca> wrote: > > > > > > I have been reading on this site for months and am finally asking a question. > My son is 7 and just started with Dr G in beginning of Jan 2010. We are 2 > months in and have been on acyclovir and immunovir and Dr G is ready to try > paxil soon. I know SSRI's are definitely part of his protocol but I'm nervous > about paxil and would just like to hear if anyone saw definite improvement on > it. My son is a severely affected non verbal kid so I'm concerned that I won't > be able to tell if it is affecting him in a bad way other than more stimming. > Thanks > Kathy > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2010 Report Share Posted March 6, 2010 Thank you all for your posts. It has definitely lifted my spirits. I know I can only try! > > > > > > > > > > > > > I have been reading on this site for months and am finally asking a question. > > My son is 7 and just started with Dr G in beginning of Jan 2010. We are 2 > > months in and have been on acyclovir and immunovir and Dr G is ready to try > > paxil soon. I know SSRI's are definitely part of his protocol but I'm nervous > > about paxil and would just like to hear if anyone saw definite improvement on > > it. My son is a severely affected non verbal kid so I'm concerned that I won't > > be able to tell if it is affecting him in a bad way other than more stimming. > > Thanks > > Kathy > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2010 Report Share Posted March 6, 2010 To be honest - I really did not expect much after starting. I do agree that we are all different when it comes to meds. I'm just glad I can see the difference since he cannot tell me how he feels. It could also be the imunovir as well as we started that around the same time. I believe both are contributing to his small successes (but huge for him). His labs look so much better especially afte adding in the imunovir! But, we have a real long way to go - and I cann Laureen Thumb typed - typos will be a plenty! On Mar 6, 2010, at 12:00 PM, Robyn & Greg Coggins <rngcoggs@... > wrote: > Laureen, > > That is so great to hear. Getting the right SSRI and the right > dosage makes all the difference. I think that's why it's so hard to > answer questions regarding an individual's experience with any SSRI. > Our brain chemistry is slightly different and what may work for one > child doesn't work for another. > > Congratulations! > > Robyn > > ________________________________ > From: Laureen Forman <lforman@...> > > Sent: Sat, March 6, 2010 11:54:34 AM > Subject: Re: 2 months on > > I have a completely non-verbal, low functioning child and all I can > say with > the Paxil is WOW! So many tiny little changes that have been amazing > to me. > > He actually went to Disney and looked around, went up to hug Mickey > and > Minnie (he never would have noticed before), petting the animals at > the > petting zoo (normally he would walk straight to the fence), coming > over to > sit next to me all on his own, wanting to sit on dads lap when he > had my 2 > girls on his lap, achieving IEP goals early, paying attention, > sitting down > to watch a cartoon and laughing at the appropriate parts. So, yes, i > t¹s > been wonderful for us. > > He starts on such a low dose that if you see anything negative > (which we do > see some bouts of hyperness but that¹s kinda normal for all kids) y > ou can > switch it up. > > Good luck! I was nervous too but, these little things and him > wanting to be > in our world with us has been nothing short of amazing. > > Laureen > > On 3/3/10 5:50 PM, " kathd9 " <kathyd3shaw (DOT) ca> wrote: > > > > > > > > > > > > > I have been reading on this site for months and am finally asking > a question. > > My son is 7 and just started with Dr G in beginning of Jan 2010. > We are 2 > > months in and have been on acyclovir and immunovir and Dr G is > ready to try > > paxil soon. I know SSRI's are definitely part of his protocol but > I'm nervous > > about paxil and would just like to hear if anyone saw definite > improvement on > > it. My son is a severely affected non verbal kid so I'm concerned > that I won't > > be able to tell if it is affecting him in a bad way other than > more stimming. > > Thanks > > Kathy > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2010 Report Share Posted March 7, 2010 Hey I remember my kid pushing others when he started Paxil. He was continuously surprised by them being so close to him. He had not been aware of them enough before so he thought this was new, this 'crowding him'. That was one of the times I saw a 'negative' from a positive change. ________________________________ From: Terri <andersonterri@...> Sent: Thu, March 4, 2010 7:09:43 PM Subject: Re: 2 months on  Thank you for this information~ we are actually on Day 6 of Paxil and we are not sure we are seeing much improvement. He has actually been slightly more aggressive~and has been pushing his peers more (3.5yrs boy). Just curious, what other SSRIs have you been on? Also, how long is it before Dr G will switch? ____________ _________ _________ __ From: Robyn & Greg Coggins <rngcoggssbcglobal (DOT) net> groups (DOT) com Sent: Thu, March 4, 2010 4:55:11 PM Subject: Re: 2 months on  My three boys all tried Paxil and it wasn't a good fit for them. We either saw no improvement or, as with my most affected son, a definite decline. He was agitated on Paxil. That doesn't mean that Paxil won't work for your son. You really have to go through the trial and error process with the SSRIs. What works on one child can be a lousy fit for another. The good thing is that Dr. G goes very slowly with the SSRIs. My son is verbal but has difficulty telling us how he feels. I just watched him closely every time we switched or added an SSRI. What we found is that a combination of several meds in low doses work best for my boys. HTH, Robyn ____________ _________ _________ __ From: kathd9 <kathyd3shaw (DOT) ca> groups (DOT) com Sent: Wed, March 3, 2010 5:50:06 PM Subject: 2 months on I have been reading on this site for months and am finally asking a question. My son is 7 and just started with Dr G in beginning of Jan 2010. We are 2 months in and have been on acyclovir and immunovir and Dr G is ready to try paxil soon. I know SSRI's are definitely part of his protocol but I'm nervous about paxil and would just like to hear if anyone saw definite improvement on it. My son is a severely affected non verbal kid so I'm concerned that I won't be able to tell if it is affecting him in a bad way other than more stimming. Thanks Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2010 Report Share Posted March 7, 2010 He'll probably increase the dose before deciding if the SSRI is good or not, unless the behaviors are really troublesome. With the SSRI, you have to give it a couple of weeks to see any positives. I do agree with 's post. Sometimes an increase in awareness can bring about negative behavior temporarily. If this happens, I just deal with it like I would any negative behavior. With Noah, I taught him to keep an arms length between him and the student in front of him in line. HTH, Robyn ________________________________ From: <thecolemans4@...> Sent: Sun, March 7, 2010 8:57:39 AM Subject: Re: 2 months on Hey I remember my kid pushing others when he started Paxil. He was continuously surprised by them being so close to him. He had not been aware of them enough before so he thought this was new, this 'crowding him'. That was one of the times I saw a 'negative' from a positive change. ____________ _________ _________ __ From: Terri <andersonterri@ ymail.com> groups (DOT) com Sent: Thu, March 4, 2010 7:09:43 PM Subject: Re: 2 months on Thank you for this information~ we are actually on Day 6 of Paxil and we are not sure we are seeing much improvement. He has actually been slightly more aggressive~and has been pushing his peers more (3.5yrs boy). Just curious, what other SSRIs have you been on? Also, how long is it before Dr G will switch? ____________ _________ _________ __ From: Robyn & Greg Coggins <rngcoggs@sbcglobal . net> groups (DOT) com Sent: Thu, March 4, 2010 4:55:11 PM Subject: Re: 2 months on My three boys all tried Paxil and it wasn't a good fit for them. We either saw no improvement or, as with my most affected son, a definite decline. He was agitated on Paxil. That doesn't mean that Paxil won't work for your son. You really have to go through the trial and error process with the SSRIs. What works on one child can be a lousy fit for another. The good thing is that Dr. G goes very slowly with the SSRIs. My son is verbal but has difficulty telling us how he feels. I just watched him closely every time we switched or added an SSRI. What we found is that a combination of several meds in low doses work best for my boys. HTH, Robyn ____________ _________ _________ __ From: kathd9 <kathyd3shaw (DOT) ca> groups (DOT) com Sent: Wed, March 3, 2010 5:50:06 PM Subject: 2 months on I have been reading on this site for months and am finally asking a question. My son is 7 and just started with Dr G in beginning of Jan 2010. We are 2 months in and have been on acyclovir and immunovir and Dr G is ready to try paxil soon. I know SSRI's are definitely part of his protocol but I'm nervous about paxil and would just like to hear if anyone saw definite improvement on it. My son is a severely affected non verbal kid so I'm concerned that I won't be able to tell if it is affecting him in a bad way other than more stimming. Thanks Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2010 Report Share Posted March 7, 2010 It's definitely a marathon and not a sprint! Noah's been with Dr. G for two years now and my other two boys for almost that long. We've seen tremendous improvement in Noah and steady improvement in the other two (they are less affected). Take care, Robyn ________________________________ From: Laureen Forman <lforman@...> " " < > Sent: Sat, March 6, 2010 6:00:38 PM Subject: Re: 2 months on To be honest - I really did not expect much after starting. I do agree that we are all different when it comes to meds. I'm just glad I can see the difference since he cannot tell me how he feels. It could also be the imunovir as well as we started that around the same time. I believe both are contributing to his small successes (but huge for him). His labs look so much better especially afte adding in the imunovir! But, we have a real long way to go - and I cann Laureen Thumb typed - typos will be a plenty! On Mar 6, 2010, at 12:00 PM, Robyn & Greg Coggins <rngcoggssbcglobal (DOT) net > wrote: > Laureen, > > That is so great to hear. Getting the right SSRI and the right > dosage makes all the difference. I think that's why it's so hard to > answer questions regarding an individual's experience with any SSRI. > Our brain chemistry is slightly different and what may work for one > child doesn't work for another. > > Congratulations! > > Robyn > > ____________ _________ _________ __ > From: Laureen Forman <lformanlforman (DOT) com> > groups (DOT) com > Sent: Sat, March 6, 2010 11:54:34 AM > Subject: Re: 2 months on > > I have a completely non-verbal, low functioning child and all I can > say with > the Paxil is WOW! So many tiny little changes that have been amazing > to me. > > He actually went to Disney and looked around, went up to hug Mickey > and > Minnie (he never would have noticed before), petting the animals at > the > petting zoo (normally he would walk straight to the fence), coming > over to > sit next to me all on his own, wanting to sit on dads lap when he > had my 2 > girls on his lap, achieving IEP goals early, paying attention, > sitting down > to watch a cartoon and laughing at the appropriate parts. So, yes, i > t¹s > been wonderful for us. > > He starts on such a low dose that if you see anything negative > (which we do > see some bouts of hyperness but that¹s kinda normal for all kids) y > ou can > switch it up. > > Good luck! I was nervous too but, these little things and him > wanting to be > in our world with us has been nothing short of amazing. > > Laureen > > On 3/3/10 5:50 PM, " kathd9 " <kathyd3shaw (DOT) ca> wrote: > > > > > > > > > > > > > I have been reading on this site for months and am finally asking > a question. > > My son is 7 and just started with Dr G in beginning of Jan 2010. > We are 2 > > months in and have been on acyclovir and immunovir and Dr G is > ready to try > > paxil soon. I know SSRI's are definitely part of his protocol but > I'm nervous > > about paxil and would just like to hear if anyone saw definite > improvement on > > it. My son is a severely affected non verbal kid so I'm concerned > that I won't > > be able to tell if it is affecting him in a bad way other than > more stimming. > > Thanks > > Kathy > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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