Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 HI: Just a question; my daughter is 1 year in the Nids protocole, she is been improving all this time; i am very pleased with her progress, but her HHV6 levels are always high, 1: 302 (once 1:740). Dr. G tried Valtrex, Famvir (in my opinion the best) and because the virus level was still high with famvir he switched to acyclovir. 2 months after acyclovir she has the virus stil in 1:320. If anyone has a similar experience, please let me know, how long does it take to reduce the virus? is there any antiviral available different from the 3 mentioned? Thanks From: alaine <alaineandpaul@...> Subject: Second Grade Date: Wednesday, October 21, 2009, 12:30 PM Hi everyone, Getting ready for our annual IEP meeting - 's parttime in a substantially separate classroom, parttime inclusion (inclusion time about 40%, including science and social studies). The biggest challenge I'm hearing from his teacher (who is great) is his focus. His attention is very fleeting / scattered and he needs almost constant redirection to complete a task. He cannot complete a simple classroom assignment independently at this time, even in the small classroom. Teacher tried a token system the second half of last school year, with inconsistent results. We have purchased, and are just beginning the " Play Attention " system, but that produces results slowly (which is better), so I don't envision seeing any real effect in the classroom until at least January. He is currently taking prozac, tenex, famvir, erythrocin, nizoral and immunovir. Tried wellbutrin and effexor with BAD results. Dr G is suggesting increasing the prozac from one 10 mg tab per day to 1 & 1/4 tabs per day, which we will start when I get the refill tomorrow. Where you're all on the " front lines, " too, any other suggestions for things that might have worked with your kids in the classroom as they continue their recoveries?? Thanks!! Alaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2009 Report Share Posted October 29, 2009 Are you looking at her diet and environment? My son's titers were very low, then went back up during a phase when he wanted to eat only peanut butter and popcorn. I removed both and the titers went back down. Kristy From: [mailto: ] On Behalf Of Cueva Sent: Wednesday, October 21, 2009 5:45 PM Subject: Re: HHV6 / persistent HI: Just a question; my daughter is 1 year in the Nids protocole, she is been improving all this time; i am very pleased with her progress, but her HHV6 levels are always high, 1: 302 (once 1:740). Dr. G tried Valtrex, Famvir (in my opinion the best) and because the virus level was still high with famvir he switched to acyclovir. 2 months after acyclovir she has the virus stil in 1:320. If anyone has a similar experience, please let me know, how long does it take to reduce the virus? is there any antiviral available different from the 3 mentioned? Thanks From: alaine <alaineandpaul@... <mailto:alaineandpaul%40verizon.net> > Subject: Second Grade <mailto:%40> Date: Wednesday, October 21, 2009, 12:30 PM Hi everyone, Getting ready for our annual IEP meeting - 's parttime in a substantially separate classroom, parttime inclusion (inclusion time about 40%, including science and social studies). The biggest challenge I'm hearing from his teacher (who is great) is his focus. His attention is very fleeting / scattered and he needs almost constant redirection to complete a task. He cannot complete a simple classroom assignment independently at this time, even in the small classroom. Teacher tried a token system the second half of last school year, with inconsistent results. We have purchased, and are just beginning the " Play Attention " system, but that produces results slowly (which is better), so I don't envision seeing any real effect in the classroom until at least January. He is currently taking prozac, tenex, famvir, erythrocin, nizoral and immunovir. Tried wellbutrin and effexor with BAD results. Dr G is suggesting increasing the prozac from one 10 mg tab per day to 1 & 1/4 tabs per day, which we will start when I get the refill tomorrow. Where you're all on the " front lines, " too, any other suggestions for things that might have worked with your kids in the classroom as they continue their recoveries?? Thanks!! Alaine Quote Link to comment Share on other sites More sharing options...
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