Re: Is there anyone out there trying and YAsko

[Guest guest]

Hello~

 

We tried DAN! and Yasko.

The only thing we saw was a drain in our pocket book.

Not sure if we would see a difference with and Yasko.  We just started

6 weeks ago.  Dropped DAN! and Yasko. 

I probably wasn't much help.  But, that is our experience!!

 

~

-ED

    

From: nm042 <sd042@...>

Subject: Is there anyone out there trying and YAsko

Date: Wednesday, October 28, 2009, 11:58 AM

 

Both of these appoaches make so much sense, just wandering if anyone is tring to

do both.

[Guest guest]

Just a quick question. Did your child have a CBS++ up regulation?? The whole

concept of supplementing with low dose Bh4 makes so much sense to me. And

trying to keep Ammonia levels down too. I never put my eggs in one basket. I

was with for a while, but then we were sure we were going to get a Complex1

mito disorder diagnosis, but we never did. We were however low in Carnitine and

that has by far the best thing I have done for him yet. ZWe are schedule to see

Dr. Natowicz at the cleveland clinic and have yet another nuermuscular disease

evaql, as my pulmonologist is insistent that this child indeed has a muscle

disorder. So musch to do at once. I agree that Dan really don't know what they

are always doing. Helpful yes, but just a guessing game. I know that

ultimately I will be back with , I I feel we still neeed to address viral

issues. Valtrex did not help us, but that does not mean that other antivirals

wont. It is amazing how much you can learn and basically become you own childs

doctor in time. Good luck to you. I don't know if you are seeing Dr. goldberg

ofr Dr. , but if you are seeing Dr. , his nurse is

awesome and very smart.

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> From: nm042 <sd042@...>

> Subject: Is there anyone out there trying and YAsko

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> Date: Wednesday, October 28, 2009, 11:58 AM

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