Megace

[Guest guest]

All I can say is WOW! I had a complete hyst at 39 due to endometrial cancer (13 years ago).

Surgical menopause was pretty bad but nothing like what you are describing. At that time there was hardly any info online like there is now. My dr had me petrified of using any E due after my hyst. Turns out I could have used it the moment my uterus was out.

Here’s a question for you and your dr. Why not keep your ovaries? You do not have cancer. Or let your body do what it’s going, and keep an eye on your uterus. If you get a tumor, than take it out. (The uterus)

I would love to know what you’ve been doing to control the E dominance (I to, don’t really believe that women have this, not like they think anyways.)

You feel so crappy most likely, because you are blocking your E and the P has overtaken your system along with the Megace.

If it were me, knowing what I know now, I would get some E on or in me.

My heart is going out to you.

Liz

I've been remiss in sending these out, but I'm back at it. Welcome to our newest members. The anon intros are below.

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> Both have gotten some big whammos. For years I've been mentioning Megace here on the group and this is our first member to have used the stuff. If you haven't heard of Megace, it's basically progesterone, but given to cancer patients or those who are wasting away - it's the special Magic-Fat Pill. I'm curious what our new member's experience has been.

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> Laurel

Hi Laurel:

Unfortunately there was no magic in what I " chose " to endure. I did not want to gain weight in fact, just the opposite I had just lost a lot of weight when I was diagnosed with complex atypical hyperplasia of the uterus. I was given a choice of castration at the age of 39 or I was to take very high doses of progesterone Megace, which the gynocological oncologist admittedly called " the devil " Well that is what her patients called it anyway, all 12 of them at the time. So this is not the first time I am the only one and I figured how bad could it be? Little did I know that I would experience almost every symptom of progesterone overdose. Luckily, I only had to take it for 3 months at a time. First time I gained 50lbs. I fell asleep at work, behind the wheel, and just cant stop eating. Blood sugar goes so low, and you can just never eat enough to stop the horrible feelings, the swollen legs and the unbearable fatigue that just doesn't get better even with sleep.

The second time I had to take it was after I did fertility treatments, which the doctor recommended because if I was to get pregnant, this condition would resolve itself. Well after the barrage of hormones I injected myself with, including estrogen, guess what? I didn't get pregnant and the condition returned immediately.

The third time I was not so stupid, I had to function. I talked the oncologist into giving me low dose diet pill to mitigate the progesterone symptoms. It works really well for about 2 and a half months and then you might as well not take it at all. Nothing helps the hunger and fatigue.

So now, after the 4th time (two years later), The diet pills did not work as well this time (the body gets used to it you have to take more and more and I was not willing to do that) I stopped taking the megace on June 13. I cant stop eating, I can barely lift my legs, I am incredibly achey and my eye sight is so bad, and so blurry.

The oncologist convince me that now at 46, it is time for a complete hysterectomy, (cant wait for the symptoms of surgical menopause to kick in) and I opted to have abdominoplasty (which will cost me 25,000 dollars) because of what the megace did to me. The surgery is in a month, progesterone lowers your immune system, can cause blood clots, which is not what you want when you are going into surgery.

So basically I am scared shit.

How do I get this progesterone out of my body? A cleanse would make the symptoms worse, if I lose the fat, the progesterone will all metabolize at once. I am willing to go to the gym twice a day, but I find it so hard to walk at times. I do not know how I work three jobs, I read that some people have to quit because of the horrible symptoms they endure.

Between the hormones from the fertility and the Megace, I feel like a lot of you went through the same thing using the same or similar hormones that I did.

I would be happy to share what I do nutritionally to control estrogen dominance, which is probably why I only had to take the Megace 3 months at a time to which the condition was resolved, for a while. Most women take it a lot longer and to be honest I don't know how they do that. By the way, I still am not and was never diagnosed with cancer, even after 6 years but what I do have has a 40% chance of the condition changing to cancer or it is there but they just cant see it. I personally do not think that is horrible odds but in the oncology world it is.

Now that I have to go through surgical menopause, I have to also think about hormone replacement. Scary proposition knowing what all of you go through.