Guest guest Posted June 26, 2012 Report Share Posted June 26, 2012 I want to thank those of you that were kind enough to read my post be so sympathetic and supportive. I truly appreciate your time and opinions. I would like to delve a bit deeper and answer some of your questions about my situation. I would also like to ask some questions and make my own comments about your posts that I find intriguing. Point of reference, Please do not misinterpret any of my questions. I am truly fascinated by the diversity of experiences many of you had. Gael, and all of you, thank you for sharing your experiences with me. Please note that you do not have to answer any of my questions but I was really interested at what age you were diagnosed with complex endometrial hyperplasia with atypia. Did they find it post menopausal after you took estradiol? You said that you feel much better, I have no symptoms from this condition, I never had any symptoms except for one episode of bleeding between menstruation. In fact my menstruation was always quite " normal " . The research is pretty diverse when it comes to oophorectomy. Some researchers say not to take the ovaries, that women who are premenopausal will still get some hormones from the ovaries and that the mortality rate from an oophorectomy premenopausal is 170% more than women who did not have their ovaries removed. I assume that there is a much higher risk of heart disease, and osteoporosis, however they are not clear on how this number came to be. Still and WOW that is a big number. Most doctors feel that can be mitigated by hormone replacement or so they say. Here is my issue, although ovarian cancer is such a low risk, I do know for a fact that many times the ovaries shut down immediately, the blood supply and nerve supply is cut when the uterus is removed so within two years the ovaries will shut down anyway. I also read studies that the side effects of surgical menopause are the same whether you take out your ovaries or not. Now every person is different since we all have different blood supply, different nerve supplies and different surgeons, we will likely have different experiences. I do know that the ovaries are not " stupid " it knows there is no uterus there, it will stop producing hormones to build the endometrium. I hope that explains why they want to remove my ovaries WS. (Oh and the other opinions, oh yes I got them, they had no idea what I had 6 years ago, never heard of it, even at Sloan Kettering and their opinion was total hysterectomy immediately, but then again they were men) Not " believing " in estrogen dominance is puzzling to me. I am not sure what you would call gynecomastia (breasts) in young boys, young girls menstruating at 10 and younger etc. This is from the bombardment of hormones fed to animals, and what is found in milk. If you were born in the 60's odds are your mother fed you out of a disposable playtex nurser, made out of plastic and loaded with xenoestrogens, they weren't BPA free at the time. All the tupperware, plastic wrap, toys, this all contributes to estrogen dominance and endocrine disruption. That doesn't include the amount of estrogen in every fat cell in the body so if you are overweight well, you are also storing estrogen. Then don't forget the phytoestrogens in soy. All included in our estrogen supply, makeup, handcream, should I go on? Our world is full of estrogen, we cant help but be dominated! The high dose progesterone is the " gold standard " now for complex endometrial atypia, for someone who is opting out of hysterectomy. I asked for it in a way because I chose not to get a hysterectomy at 39. In fact I was in one of my oncologists research studies. Liz: I am so glad to hear that surgical menopause was not as bad as what I am enduring now. I did talk to my oncologist about hormone replacement at least for a while, not sure what will be effective. Liz I am not sure how they diagnosed you with endometrial cancer. Since I do not have cancer as far as they know, they staging is done at the time of hysterectomy. I actually did what you said, the keeping the eye on the uterus for 6 years. I am very conscious of everything and even the oncologist says, I have no idea how you seem to catch it every time, she said she would not be able to even in herself. I have had 6 D and C's, eventually the oncologist said look I am not happy doing this constantly mostly because of the exposure to the anesthesia, so a biopsy will have to do. I go every six months religiously. It has returned 4 times in six years (once because of the estrodiol in the fertility meds. The oncologist is not comfortable with letting this go on but it is my choice. She told me, with a straight face, look, this I can cure, if you have cancer, or it turns into cancer, I am not so sure I can cure it and then I have to give you chemo that will make you lose your hair, make you very very sick and maybe even radiation. Here is the big thing she said, " If you were my sister I would tell you it is time. " Now realize, it is the constant estrogen dominance that contributed to the complex atypia, along with the fact that I never had children, I never smoked, never took birth control pills and I have a very high genetic disposition to obesity, although I was obese a very small portion of my life. To be honest, I have a very highly stressed life and I think that is most of what is causing this rapid cell turnover with errors. The great thing is that I am really " healthy " in spite of all this. I have heard of women who had to quit their jobs and stay in bed because of this drug but I work three jobs. Don't ask me how. I have actually lost weight on the drug (well the third time, not this time) and I am glad to say my hormones are within normal levels. I do think my adrenals are shot, megase can do that but after the second round, that was after the fertility treatments, I went to an endocrinologist specifically to check my cortisol levels. It was at the very low end in fact was on the low end and he said well it is still within normal limits, what do you want me to do, as I crawled out of his office barely able to walk. So thanks for the hormone tips K9 but unless it is sub-clinical which it might be my thyroid is fine. Now ladies please understand I have also been a vegan for 15 years, no wheat for 10 years and no soy for 6 years. Oh and I am not a junk food vegan, in fact everything that goes into my mouth is for a reason mostly antioxidants and anti carcinogenic substances. So that might be part of it. I also take a variety of supplements. So has anyone successfully eliminated progesterone from their bodies in a rapid fashion without symptoms? E Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.