Jump to content
RemedySpot.com

Re: FW: lab-based study of XMRV virus in moms with CFS & autisticchild

Rate this topic


Guest guest

Recommended Posts

Do you think he is interested in mom's with fibromyalgia with children on the

spectrum?

Kristy

Sent from my Verizon Wireless BlackBerry

FW: lab-based study of XMRV virus in moms with CFS & autistic

child

Fwd with permission & this message may be forwarded furtherly:

Hi

I reached out to a president of a lab that is testing for the newly

found XMRV virus which is being found ninety eight percent of the time

in CFS. They have had small samplings in autistic children, also

testing positive. I contacted him to see if I couldn't get him to

realize, that maybe this virus is passed down to baby. I have CFS and

two with autism. Atypical MS is also involved in this virus. If you

have these two situations, CFS and Autism in your children, please

contact me?

So, he offered to study the results of anyone with CFS who has a child

with autism. All would be free. I would love if you can reach out to

your lists, and facebook accounts, and let them know that they can test

for this virus for free, for a study we are putting together. He was

quite interested in the fact that this could be vectored in lyme ticks.

The virus is a mouse leukemia virus, which acts as an immune depresser

much like HIV, but non fatal persistent and slow. Many who have lyme

often have fatiguing illnesses. He will expose the mouse to lyme

infected ticks and see if those ticks carry the virus after biting the

mouse who is infected with the virus. Then, he will test those with CFS

and Autism...it would be especially intriguing if you also have

diagnosees of lyme disease in both? If not, that's ok, just the CFS and

Autism will do. I need around fifty families with this case history.

I would need people in this study who have a diagnosis of CFS by their

doctors, and of course children on the spectrum. I have contacted CFS

groups, Autism groups, Lyme groups...if you have any pertinent people I

can talk with, can you please contact me?

kblanco1@ msn.com

...

Link to comment
Share on other sites

I am in my second month of treatment for Lymes and my son has Autism. I have had

chronic fatigue since the summer before sophomore year in high school when I had

Mononucleosis. Very interesting research.

Sent via BlackBerry by AT & T

FW: lab-based study of XMRV virus in moms with CFS & autistic

child

Fwd with permission & this message may be forwarded furtherly:

Hi

I reached out to a president of a lab that is testing for the newly

found XMRV virus which is being found ninety eight percent of the time

in CFS. They have had small samplings in autistic children, also

testing positive. I contacted him to see if I couldn't get him to

realize, that maybe this virus is passed down to baby. I have CFS and

two with autism. Atypical MS is also involved in this virus. If you

have these two situations, CFS and Autism in your children, please

contact me?

So, he offered to study the results of anyone with CFS who has a child

with autism. All would be free. I would love if you can reach out to

your lists, and facebook accounts, and let them know that they can test

for this virus for free, for a study we are putting together. He was

quite interested in the fact that this could be vectored in lyme ticks.

The virus is a mouse leukemia virus, which acts as an immune depresser

much like HIV, but non fatal persistent and slow. Many who have lyme

often have fatiguing illnesses. He will expose the mouse to lyme

infected ticks and see if those ticks carry the virus after biting the

mouse who is infected with the virus. Then, he will test those with CFS

and Autism...it would be especially intriguing if you also have

diagnosees of lyme disease in both? If not, that's ok, just the CFS and

Autism will do. I need around fifty families with this case history.

I would need people in this study who have a diagnosis of CFS by their

doctors, and of course children on the spectrum. I have contacted CFS

groups, Autism groups, Lyme groups...if you have any pertinent people I

can talk with, can you please contact me?

kblanco1@ msn.com

..

Link to comment
Share on other sites

I have fibromyalgia and two kids on the spectrum and one with ADHD. We're all

patients of Dr. G's. I would be interested in participating.

Robyn

>

> Do you think he is interested in mom's with fibromyalgia with children on the

spectrum?

>

> Kristy

>

> Sent from my Verizon Wireless BlackBerry

>

> FW: lab-based study of XMRV virus in moms with CFS & autistic

> child

>

>

> Fwd with permission & this message may be forwarded furtherly:

>

> Hi

> I reached out to a president of a lab that is testing for the newly

> found XMRV virus which is being found ninety eight percent of the time

> in CFS. They have had small samplings in autistic children, also

> testing positive. I contacted him to see if I couldn't get him to

> realize, that maybe this virus is passed down to baby. I have CFS and

> two with autism. Atypical MS is also involved in this virus. If you

> have these two situations, CFS and Autism in your children, please

> contact me?

>

> So, he offered to study the results of anyone with CFS who has a child

> with autism. All would be free. I would love if you can reach out to

> your lists, and facebook accounts, and let them know that they can test

> for this virus for free, for a study we are putting together. He was

> quite interested in the fact that this could be vectored in lyme ticks.

> The virus is a mouse leukemia virus, which acts as an immune depresser

> much like HIV, but non fatal persistent and slow. Many who have lyme

> often have fatiguing illnesses. He will expose the mouse to lyme

> infected ticks and see if those ticks carry the virus after biting the

> mouse who is infected with the virus. Then, he will test those with CFS

> and Autism...it would be especially intriguing if you also have

> diagnosees of lyme disease in both? If not, that's ok, just the CFS and

> Autism will do. I need around fifty families with this case history.

>

> I would need people in this study who have a diagnosis of CFS by their

> doctors, and of course children on the spectrum. I have contacted CFS

> groups, Autism groups, Lyme groups...if you have any pertinent people I

> can talk with, can you please contact me?

>

>

> kblanco1@ msn.com

>

> ..

>

>

Link to comment
Share on other sites

I just heard back from she has 20 families and is looking to fill

another 30.

From what I know of her she seems legit. Fibromyalgia and cfs go hand in hand.

Kavita

From: bzboysmom <rngcoggs@...>

Subject: Re: FW: lab-based study of XMRV virus in moms with CFS &

autisticchild

Date: Friday, October 30, 2009, 4:19 PM

 

I have fibromyalgia and two kids on the spectrum and one with ADHD. We're all

patients of Dr. G's. I would be interested in participating.

Robyn

>

> Do you think he is interested in mom's with fibromyalgia with children on the

spectrum?

>

> Kristy

>

> Sent from my Verizon Wireless BlackBerry

>

> FW: lab-based study of XMRV virus in moms with CFS & autistic

> child

>

>

> Fwd with permission & this message may be forwarded furtherly:

>

> Hi

> I reached out to a president of a lab that is testing for the newly

> found XMRV virus which is being found ninety eight percent of the time

> in CFS. They have had small samplings in autistic children, also

> testing positive. I contacted him to see if I couldn't get him to

> realize, that maybe this virus is passed down to baby. I have CFS and

> two with autism. Atypical MS is also involved in this virus. If you

> have these two situations, CFS and Autism in your children, please

> contact me?

>

> So, he offered to study the results of anyone with CFS who has a child

> with autism. All would be free. I would love if you can reach out to

> your lists, and facebook accounts, and let them know that they can test

> for this virus for free, for a study we are putting together. He was

> quite interested in the fact that this could be vectored in lyme ticks.

> The virus is a mouse leukemia virus, which acts as an immune depresser

> much like HIV, but non fatal persistent and slow. Many who have lyme

> often have fatiguing illnesses. He will expose the mouse to lyme

> infected ticks and see if those ticks carry the virus after biting the

> mouse who is infected with the virus. Then, he will test those with CFS

> and Autism...it would be especially intriguing if you also have

> diagnosees of lyme disease in both? If not, that's ok, just the CFS and

> Autism will do. I need around fifty families with this case history.

>

> I would need people in this study who have a diagnosis of CFS by their

> doctors, and of course children on the spectrum. I have contacted CFS

> groups, Autism groups, Lyme groups...if you have any pertinent people I

> can talk with, can you please contact me?

>

>

> kblanco1@ msn.com

>

> ..

>

>

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...