Guest guest Posted October 29, 2009 Report Share Posted October 29, 2009 Do you think he is interested in mom's with fibromyalgia with children on the spectrum? Kristy Sent from my Verizon Wireless BlackBerry FW: lab-based study of XMRV virus in moms with CFS & autistic child Fwd with permission & this message may be forwarded furtherly: Hi I reached out to a president of a lab that is testing for the newly found XMRV virus which is being found ninety eight percent of the time in CFS. They have had small samplings in autistic children, also testing positive. I contacted him to see if I couldn't get him to realize, that maybe this virus is passed down to baby. I have CFS and two with autism. Atypical MS is also involved in this virus. If you have these two situations, CFS and Autism in your children, please contact me? So, he offered to study the results of anyone with CFS who has a child with autism. All would be free. I would love if you can reach out to your lists, and facebook accounts, and let them know that they can test for this virus for free, for a study we are putting together. He was quite interested in the fact that this could be vectored in lyme ticks. The virus is a mouse leukemia virus, which acts as an immune depresser much like HIV, but non fatal persistent and slow. Many who have lyme often have fatiguing illnesses. He will expose the mouse to lyme infected ticks and see if those ticks carry the virus after biting the mouse who is infected with the virus. Then, he will test those with CFS and Autism...it would be especially intriguing if you also have diagnosees of lyme disease in both? If not, that's ok, just the CFS and Autism will do. I need around fifty families with this case history. I would need people in this study who have a diagnosis of CFS by their doctors, and of course children on the spectrum. I have contacted CFS groups, Autism groups, Lyme groups...if you have any pertinent people I can talk with, can you please contact me? kblanco1@ msn.com ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2009 Report Share Posted October 29, 2009 I am in my second month of treatment for Lymes and my son has Autism. I have had chronic fatigue since the summer before sophomore year in high school when I had Mononucleosis. Very interesting research. Sent via BlackBerry by AT & T FW: lab-based study of XMRV virus in moms with CFS & autistic child Fwd with permission & this message may be forwarded furtherly: Hi I reached out to a president of a lab that is testing for the newly found XMRV virus which is being found ninety eight percent of the time in CFS. They have had small samplings in autistic children, also testing positive. I contacted him to see if I couldn't get him to realize, that maybe this virus is passed down to baby. I have CFS and two with autism. Atypical MS is also involved in this virus. If you have these two situations, CFS and Autism in your children, please contact me? So, he offered to study the results of anyone with CFS who has a child with autism. All would be free. I would love if you can reach out to your lists, and facebook accounts, and let them know that they can test for this virus for free, for a study we are putting together. He was quite interested in the fact that this could be vectored in lyme ticks. The virus is a mouse leukemia virus, which acts as an immune depresser much like HIV, but non fatal persistent and slow. Many who have lyme often have fatiguing illnesses. He will expose the mouse to lyme infected ticks and see if those ticks carry the virus after biting the mouse who is infected with the virus. Then, he will test those with CFS and Autism...it would be especially intriguing if you also have diagnosees of lyme disease in both? If not, that's ok, just the CFS and Autism will do. I need around fifty families with this case history. I would need people in this study who have a diagnosis of CFS by their doctors, and of course children on the spectrum. I have contacted CFS groups, Autism groups, Lyme groups...if you have any pertinent people I can talk with, can you please contact me? kblanco1@ msn.com .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2009 Report Share Posted October 30, 2009 I have fibromyalgia and two kids on the spectrum and one with ADHD. We're all patients of Dr. G's. I would be interested in participating. Robyn > > Do you think he is interested in mom's with fibromyalgia with children on the spectrum? > > Kristy > > Sent from my Verizon Wireless BlackBerry > > FW: lab-based study of XMRV virus in moms with CFS & autistic > child > > > Fwd with permission & this message may be forwarded furtherly: > > Hi > I reached out to a president of a lab that is testing for the newly > found XMRV virus which is being found ninety eight percent of the time > in CFS. They have had small samplings in autistic children, also > testing positive. I contacted him to see if I couldn't get him to > realize, that maybe this virus is passed down to baby. I have CFS and > two with autism. Atypical MS is also involved in this virus. If you > have these two situations, CFS and Autism in your children, please > contact me? > > So, he offered to study the results of anyone with CFS who has a child > with autism. All would be free. I would love if you can reach out to > your lists, and facebook accounts, and let them know that they can test > for this virus for free, for a study we are putting together. He was > quite interested in the fact that this could be vectored in lyme ticks. > The virus is a mouse leukemia virus, which acts as an immune depresser > much like HIV, but non fatal persistent and slow. Many who have lyme > often have fatiguing illnesses. He will expose the mouse to lyme > infected ticks and see if those ticks carry the virus after biting the > mouse who is infected with the virus. Then, he will test those with CFS > and Autism...it would be especially intriguing if you also have > diagnosees of lyme disease in both? If not, that's ok, just the CFS and > Autism will do. I need around fifty families with this case history. > > I would need people in this study who have a diagnosis of CFS by their > doctors, and of course children on the spectrum. I have contacted CFS > groups, Autism groups, Lyme groups...if you have any pertinent people I > can talk with, can you please contact me? > > > kblanco1@ msn.com > > .. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2009 Report Share Posted October 30, 2009 I just heard back from she has 20 families and is looking to fill another 30. From what I know of her she seems legit. Fibromyalgia and cfs go hand in hand. Kavita From: bzboysmom <rngcoggs@...> Subject: Re: FW: lab-based study of XMRV virus in moms with CFS & autisticchild Date: Friday, October 30, 2009, 4:19 PM I have fibromyalgia and two kids on the spectrum and one with ADHD. We're all patients of Dr. G's. I would be interested in participating. Robyn > > Do you think he is interested in mom's with fibromyalgia with children on the spectrum? > > Kristy > > Sent from my Verizon Wireless BlackBerry > > FW: lab-based study of XMRV virus in moms with CFS & autistic > child > > > Fwd with permission & this message may be forwarded furtherly: > > Hi > I reached out to a president of a lab that is testing for the newly > found XMRV virus which is being found ninety eight percent of the time > in CFS. They have had small samplings in autistic children, also > testing positive. I contacted him to see if I couldn't get him to > realize, that maybe this virus is passed down to baby. I have CFS and > two with autism. Atypical MS is also involved in this virus. If you > have these two situations, CFS and Autism in your children, please > contact me? > > So, he offered to study the results of anyone with CFS who has a child > with autism. All would be free. I would love if you can reach out to > your lists, and facebook accounts, and let them know that they can test > for this virus for free, for a study we are putting together. He was > quite interested in the fact that this could be vectored in lyme ticks. > The virus is a mouse leukemia virus, which acts as an immune depresser > much like HIV, but non fatal persistent and slow. Many who have lyme > often have fatiguing illnesses. He will expose the mouse to lyme > infected ticks and see if those ticks carry the virus after biting the > mouse who is infected with the virus. Then, he will test those with CFS > and Autism...it would be especially intriguing if you also have > diagnosees of lyme disease in both? If not, that's ok, just the CFS and > Autism will do. I need around fifty families with this case history. > > I would need people in this study who have a diagnosis of CFS by their > doctors, and of course children on the spectrum. I have contacted CFS > groups, Autism groups, Lyme groups...if you have any pertinent people I > can talk with, can you please contact me? > > > kblanco1@ msn.com > > .. > > Quote Link to comment Share on other sites More sharing options...
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