Discouraged and need support

[Guest guest]

Carole,

It took years for these kids to become sick and it takes years to recover.

You don't wake up one morning and your child is better. Even if you had

them on all the optimum doses of the medicine and make their bodies normal,

they would have to learn everything they missed while they were sick. Most

of these kids have limited speech or no speech at all, it can take up to

three years for the language to come. Do you know how frustrating it is to

know what you want to say, but are not able to say it? I think that would

cause me to melt down too. Especially if I was more with it, but couldn't

communicate what I wanted. I believe that is the reason for the " terrible

two's. " Kids know what they want, but don't have the words to say it yet.

Sometimes bad behavior is actually a good thing. Children on the road to

recovery are no longer " zoned out " but actually participating in our world.

It is annoying that they sometimes pick up where they left off. Your

eleven-year-old grandson might be acting like he is two. All children have

to go through the same stages of development. And it doesn't look like it

is improvement when an eleven-year-old has a tantrum that a two-year-old

would have. He may not look like he is improving, but I suspect he is. It

is just much more difficult to control an eleven-year-old who is doing the

same thing he should have done at two.

Even though my son is now recovered, in college and " normal " in every way,

it was not an uphill climb. Usually, it was ten steps forward and three

steps back. The fatigue and anguish I felt when we would spiral backwards

was hard to deal with emotionally. If I had understood this is how kids

learn, I could have done a better job. But I'm not sure anything would have

equipped me to cope with the stress or neurotic behavior that resulted from

being 's mom.

Sometimes when I monitor the list, I become concerned about the parents who

are so engrossed in the details of what detergent to use or what soap to buy

that they miss the big picture of getting their kids healthy. Yes, when you

first start fixing their immune systems, they react to everything. But that

passes as they get better. It is much more important to save your strength

for the big things than concentrate on the minute details. Eliminate the

big triggers and forget about the rest.

I used " All Free and Clear " detergent because it was an easy change for me

to make, but when I was told it would be $9,000 to put hardwood in his

bedroom in our new house I elected to pass for financial reasons. The

interesting part was he did better in the new house with the carpet than he

did in the old house with hardwood in his bedroom. I'm guessing it was

because the house we moved to was newer and had less mold and a better

ventilation system. But who knows? We can drive ourselves absolutely nutty

trying to make the optimum conditions for our kids to get better. ( I know

I did.) But in hindsight, my time would have been better spent on working

educationally and behaviorally with my son to teach him what he missed.

Change the things that don't take too much effort but don't get " stuck " like

our kids do on the minute details. The mantra should be " Big Picture " , " Big

Picture " , " Big Picture. "

Now get busy working with your kid instead of talking about it.

Marcia Hinds

[Guest guest]

>

> Carole,

>

> It took years for these kids to become sick and it takes years to recover.

> You don't wake up one morning and your child is better. Even if you had

> them on all the optimum doses of the medicine and make their bodies normal,

> they would have to learn everything they missed while they were sick. Most

> of these kids have limited speech or no speech at all, it can take up to

> three years for the language to come. Do you know how frustrating it is to

> know what you want to say, but are not able to say it? I think that would

> cause me to melt down too. Especially if I was more with it, but couldn't

> communicate what I wanted. I believe that is the reason for the " terrible

> two's. " Kids know what they want, but don't have the words to say it yet.

>

>

>

> Sometimes bad behavior is actually a good thing. Children on the road to

> recovery are no longer " zoned out " but actually participating in our world.

> It is annoying that they sometimes pick up where they left off. Your

> eleven-year-old grandson might be acting like he is two. All children have

> to go through the same stages of development. And it doesn't look like it

> is improvement when an eleven-year-old has a tantrum that a two-year-old

> would have. He may not look like he is improving, but I suspect he is. It

> is just much more difficult to control an eleven-year-old who is doing the

> same thing he should have done at two.

>

>

>

> Even though my son is now recovered, in college and " normal " in every way,

> it was not an uphill climb. Usually, it was ten steps forward and three

> steps back. The fatigue and anguish I felt when we would spiral backwards

> was hard to deal with emotionally. If I had understood this is how kids

> learn, I could have done a better job. But I'm not sure anything would have

> equipped me to cope with the stress or neurotic behavior that resulted from

> being 's mom.

>

>

>

> Sometimes when I monitor the list, I become concerned about the parents who

> are so engrossed in the details of what detergent to use or what soap to buy

> that they miss the big picture of getting their kids healthy. Yes, when you

> first start fixing their immune systems, they react to everything. But that

> passes as they get better. It is much more important to save your strength

> for the big things than concentrate on the minute details. Eliminate the

> big triggers and forget about the rest.

>

>

>

> I used " All Free and Clear " detergent because it was an easy change for me

> to make, but when I was told it would be $9,000 to put hardwood in his

> bedroom in our new house I elected to pass for financial reasons. The

> interesting part was he did better in the new house with the carpet than he

> did in the old house with hardwood in his bedroom. I'm guessing it was

> because the house we moved to was newer and had less mold and a better

> ventilation system. But who knows? We can drive ourselves absolutely nutty

> trying to make the optimum conditions for our kids to get better. ( I know

> I did.) But in hindsight, my time would have been better spent on working

> educationally and behaviorally with my son to teach him what he missed.

> Change the things that don't take too much effort but don't get " stuck " like

> our kids do on the minute details. The mantra should be " Big Picture " , " Big

> Picture " , " Big Picture. "

>

>

>

> Now get busy working with your kid instead of talking about it.

>

> Marcia Hinds

>

>

>

>

[Guest guest]

Excellent advice, Marcia. One other things I noticed with Noah and the SSRIs . .

.. the increased blood flow to the brain seemed to cause hyperactivity, increased

emotionalism and lots of stimming. After about 10 days, this all calmed down.

Robyn

________________________________

From: Marcia Hinds <hindssite@...>

Sent: Saturday, September 26, 2009 8:40:47 AM

Subject: Discouraged and need support

Carole,

It took years for these kids to become sick and it takes years to recover.

You don't wake up one morning and your child is better. Even if you had

them on all the optimum doses of the medicine and make their bodies normal,

they would have to learn everything they missed while they were sick. Most

of these kids have limited speech or no speech at all, it can take up to

three years for the language to come. Do you know how frustrating it is to

know what you want to say, but are not able to say it? I think that would

cause me to melt down too. Especially if I was more with it, but couldn't

communicate what I wanted. I believe that is the reason for the " terrible

two's. " Kids know what they want, but don't have the words to say it yet.

Sometimes bad behavior is actually a good thing. Children on the road to

recovery are no longer " zoned out " but actually participating in our world.

It is annoying that they sometimes pick up where they left off. Your

eleven-year- old grandson might be acting like he is two. All children have

to go through the same stages of development. And it doesn't look like it

is improvement when an eleven-year- old has a tantrum that a two-year-old

would have. He may not look like he is improving, but I suspect he is. It

is just much more difficult to control an eleven-year- old who is doing the

same thing he should have done at two.

Even though my son is now recovered, in college and " normal " in every way,

it was not an uphill climb. Usually, it was ten steps forward and three

steps back. The fatigue and anguish I felt when we would spiral backwards

was hard to deal with emotionally. If I had understood this is how kids

learn, I could have done a better job. But I'm not sure anything would have

equipped me to cope with the stress or neurotic behavior that resulted from

being 's mom.

Sometimes when I monitor the list, I become concerned about the parents who

are so engrossed in the details of what detergent to use or what soap to buy

that they miss the big picture of getting their kids healthy. Yes, when you

first start fixing their immune systems, they react to everything. But that

passes as they get better. It is much more important to save your strength

for the big things than concentrate on the minute details. Eliminate the

big triggers and forget about the rest.

I used " All Free and Clear " detergent because it was an easy change for me

to make, but when I was told it would be $9,000 to put hardwood in his

bedroom in our new house I elected to pass for financial reasons. The

interesting part was he did better in the new house with the carpet than he

did in the old house with hardwood in his bedroom. I'm guessing it was

because the house we moved to was newer and had less mold and a better

ventilation system. But who knows? We can drive ourselves absolutely nutty

trying to make the optimum conditions for our kids to get better. ( I know

I did.) But in hindsight, my time would have been better spent on working

educationally and behaviorally with my son to teach him what he missed.

Change the things that don't take too much effort but don't get " stuck " like

our kids do on the minute details. The mantra should be " Big Picture " , " Big

Picture " , " Big Picture. "

Now get busy working with your kid instead of talking about it.

Marcia Hinds

[Guest guest]

This happened with my son, too. And, now that he seems to be on the right SSRI

and the right dose, I have noticed that if I give him the dose a little later

than usual, he seems to be more 'off'. It is one of the faster acting ones.

Kristy

Sent from my Verizon Wireless BlackBerry

Discouraged and need support

Carole,

It took years for these kids to become sick and it takes years to recover.

You don't wake up one morning and your child is better. Even if you had

them on all the optimum doses of the medicine and make their bodies normal,

they would have to learn everything they missed while they were sick. Most

of these kids have limited speech or no speech at all, it can take up to

three years for the language to come. Do you know how frustrating it is to

know what you want to say, but are not able to say it? I think that would

cause me to melt down too. Especially if I was more with it, but couldn't

communicate what I wanted. I believe that is the reason for the " terrible

two's. " Kids know what they want, but don't have the words to say it yet.

Sometimes bad behavior is actually a good thing. Children on the road to

recovery are no longer " zoned out " but actually participating in our world.

It is annoying that they sometimes pick up where they left off. Your

eleven-year- old grandson might be acting like he is two. All children have

to go through the same stages of development. And it doesn't look like it

is improvement when an eleven-year- old has a tantrum that a two-year-old

would have. He may not look like he is improving, but I suspect he is. It

is just much more difficult to control an eleven-year- old who is doing the

same thing he should have done at two.

Even though my son is now recovered, in college and " normal " in every way,

it was not an uphill climb. Usually, it was ten steps forward and three

steps back. The fatigue and anguish I felt when we would spiral backwards

was hard to deal with emotionally. If I had understood this is how kids

learn, I could have done a better job. But I'm not sure anything would have

equipped me to cope with the stress or neurotic behavior that resulted from

being 's mom.

Sometimes when I monitor the list, I become concerned about the parents who

are so engrossed in the details of what detergent to use or what soap to buy

that they miss the big picture of getting their kids healthy. Yes, when you

first start fixing their immune systems, they react to everything. But that

passes as they get better. It is much more important to save your strength

for the big things than concentrate on the minute details. Eliminate the

big triggers and forget about the rest.

I used " All Free and Clear " detergent because it was an easy change for me

to make, but when I was told it would be $9,000 to put hardwood in his

bedroom in our new house I elected to pass for financial reasons. The

interesting part was he did better in the new house with the carpet than he

did in the old house with hardwood in his bedroom. I'm guessing it was

because the house we moved to was newer and had less mold and a better

ventilation system. But who knows? We can drive ourselves absolutely nutty

trying to make the optimum conditions for our kids to get better. ( I know

I did.) But in hindsight, my time would have been better spent on working

educationally and behaviorally with my son to teach him what he missed.

Change the things that don't take too much effort but don't get " stuck " like

our kids do on the minute details. The mantra should be " Big Picture " , " Big

Picture " , " Big Picture. "

Now get busy working with your kid instead of talking about it.

Marcia Hinds