Re: Dr. G and Supplements: Please help!

February 28, 2010

Mega doses of any vitamin are a no-no on the protocol. We use a

multivitamin and probiotics, and I did have the kids on Omega 3s until I

realized it was causing irritability. Once their immune systems have normalized,

I do plan to try it again. In preparation for seeing Dr. G for the first time

(two years ago for Noah), I took Noah off all of the supplements except a

multivitamin. He did not regress and we saw no adverse effects from removing all

those things except an improvement in appetite.

You hit the nail on the head when you said you are treating symptoms with all of

the supplements--not the underlying cause of the problem.

HTH,

Robyn

________________________________

From: Sloan <Sloan_smith@...>

Sent: Fri, February 26, 2010 6:04:41 AM

Subject: Dr. G and Supplements: Please help!

Hi all,

I have a concern I hoping you parents with more experience can help me

with.

My five year old PDD-NOS son is awaiting his appointment with Dr. G in a couple

months. He was diagnosed about a year and 1/2 ago. Since then, we have had him

on a strick DAN! protocol and done a little homeopathy. He had improved in terms

of his ASD symptoms but he is still sick. He still has viruses and Lyme disease

and his immune panel is bad. After reading everything I could get my hands on

involving , I realize we have treated the symptoms but the underlying

problem (immune system and the brain).

One of the most frightening things I heard Dr. G say in the videos Ive seen is

that some supplements may be increasing brain damage and/or exciting the immune

system too much. Im wondering if any of you know what supplements he would be

referring to? Since my son is on a DAN! protocol right now, he is on a lot. I am

reluctant to randomly stop them until we meet with Dr. G., but now Im terrified

that it may be harming him!

My son is on:

Pharma-grade multi

vit c

vit d

gaba

calcium

zinc

probiotics

monolaurin

B-6

B-12

Colostrum

Transfer Factor

Magnesium

Folate

Cod Liver Oil

Enzymes

Thank you in advance for any help!

Best, Sloan

March 1, 2010

Hi Sloan,

We¹ve been with Dr. G for 8 years now... my guess is that you he will want

you to stop most of the supplements. Of course, I can only speak from my

experiences with our two boys as his patients. I¹m sure others will chime

in if they have had different experiences... as each child is different and

therefore the course of their treatment varies.

He does recommend a basic multivitamin for kids (one he likes is

Flintstones, but he has us throw out the red ones). He doesn¹t want them to

have any dose over the RDA.

As far as enzymes, that is not something he has ever recommended for my

kids.

He does like Kids Kyo Dophilus as a probiotic. He has told me that he

doesn¹t want the probiotics to put anything into a child¹s body that

shouldn¹t already be there (so no unusual strains).

He says he believes that they should be getting enough calcium in their

diets through natural foods sources (even though the kids are dairy free) so

he does not recommend a calcium supplement as far as I have ever heard.

I remember asking him about cod liver oil at the beginning of my sons¹

treatment and he said ³No², but I can¹t remember why.

That¹s all I can think of now... best of luck and welcome to the group!

Caroline G.

March 1, 2010

I second Robyn on that. Not only are supplements not tested for purity or

cleanliness, but they may cause an allergic response in your child. Especially

if they take them everyday the body can mount an immune response to them. The

whole object of is to lower inflammation as much as you can and creating an

allergic response will set your child back. The best thing you can do is take

them away for a little bit and add them back in one at a time and then you will

know if your child is not tolerating them. That is a good thing to do with

foods you are suspecting as a trigger, too.

My kid is an allergy kid so I have a lot of experience in this area. Allergic to

everything so even supplements can cause a problem for her.

-

>

> Mega doses of any vitamin are a no-no on the protocol. We use a

multivitamin and probiotics, and I did have the kids on Omega 3s until I

realized it was causing irritability. Once their immune systems have normalized,

I do plan to try it again. In preparation for seeing Dr. G for the first time

(two years ago for Noah), I took Noah off all of the supplements except a

multivitamin. He did not regress and we saw no adverse effects from removing all

those things except an improvement in appetite.

>

> You hit the nail on the head when you said you are treating symptoms with all

of the supplements--not the underlying cause of the problem.

>

> HTH,

>

> Robyn

>

> ________________________________

> From: Sloan <Sloan_smith@...>

>

> Sent: Fri, February 26, 2010 6:04:41 AM

> Subject: Dr. G and Supplements: Please help!

>

> Hi all,

> I have a concern I hoping you parents with more experience can help me

with.

> My five year old PDD-NOS son is awaiting his appointment with Dr. G in a

couple months. He was diagnosed about a year and 1/2 ago. Since then, we have

had him on a strick DAN! protocol and done a little homeopathy. He had improved

in terms of his ASD symptoms but he is still sick. He still has viruses and Lyme

disease and his immune panel is bad. After reading everything I could get my

hands on involving , I realize we have treated the symptoms but the

underlying problem (immune system and the brain).

>

> One of the most frightening things I heard Dr. G say in the videos Ive seen is

that some supplements may be increasing brain damage and/or exciting the immune

system too much. Im wondering if any of you know what supplements he would be

referring to? Since my son is on a DAN! protocol right now, he is on a lot. I am

reluctant to randomly stop them until we meet with Dr. G., but now Im terrified

that it may be harming him!

>

> My son is on:

>

> Pharma-grade multi

> vit c

> vit d

> gaba

> calcium

> zinc

> probiotics

> monolaurin

> B-6

> B-12

> Colostrum

> Transfer Factor

> Magnesium

> Folate

> Cod Liver Oil

> Enzymes

>

> Thank you in advance for any help!

> Best, Sloan

>

March 2, 2010

Thanks all for your comments! I appreciate the info. I'm realizing why this idea

is so difficult for me. Untill I read about dr. G I wasnt hearing anybody other

than the dan! docs talk about recovery... And alot of the dan stuff is

supplements. So to walk away from something that has given you hope for your

child is hard. Especially when I know some of it really helped. I'm sure you've

all had the same feelings!

Thanks, Sloan

Sent from my iPhone

March 2, 2010

Hi Sloan,

just wondering what you are doing to treat Lymes,our son has hugh viral

issues,but i think

Lymes is by far the hardest battle,along with all its co infections,if you

have success with any treatment i would be intrested

On Tue, Mar 2, 2010 at 2:18 PM, Sloan <Sloan_smith@...> wrote:

>

> Thanks all for your comments! I appreciate the info. I'm realizing why this

> idea is so difficult for me. Untill I read about dr. G I wasnt hearing

> anybody other than the dan! docs talk about recovery... And alot of the dan

> stuff is supplements. So to walk away from something that has given you hope

> for your child is hard. Especially when I know some of it really helped. I'm

> sure you've all had the same feelings!

> Thanks, Sloan

>

> Sent from my iPhone

>

--

Cotter

5 Pollerton Manor

Carlow

059 9134964

087 2637921

March 2, 2010

Like with any serious medical decision, it is hard to shift mindsets when you've

been convinced there's only one way to go. What convinced me and my husband was

the logic and medical science behind Dr. G's treatment protocol. It just makes

so much sense. Hopefully, with the release of recent medical studies, more

people will come to realize how our kids fit into this complex issue of

neuroimmune dysfunction. All three of my kids have made wonderful strides since

being on the protocol.

All the best,

Robyn

________________________________

From: Sloan <Sloan_smith@...>

" " < >

Sent: Tue, March 2, 2010 6:18:05 AM

Subject: Re: Dr. G and Supplements: Please help!

Thanks all for your comments! I appreciate the info. I'm realizing why this idea

is so difficult for me. Untill I read about dr. G I wasnt hearing anybody other

than the dan! docs talk about recovery... And alot of the dan stuff is

supplements. So to walk away from something that has given you hope for your

child is hard. Especially when I know some of it really helped. I'm sure you've

all had the same feelings!

Thanks, Sloan

Sent from my iPhone

March 2, 2010

>

> Hi all,

> I have a concern I hoping you parents with more experience can help me

with.

> My five year old PDD-NOS son is awaiting his appointment with Dr. G in a

couple months. He was diagnosed about a year and 1/2 ago. Since then, we have

had him on a strick DAN! protocol and done a little homeopathy. He had improved

in terms of his ASD symptoms but he is still sick. He still has viruses and Lyme

disease and his immune panel is bad. After reading everything I could get my

hands on involving , I realize we have treated the symptoms but the

underlying problem (immune system and the brain).

>

> One of the most frightening things I heard Dr. G say in the videos Ive seen is

that some supplements may be increasing brain damage and/or exciting the immune

system too much. Im wondering if any of you know what supplements he would be

referring to? Since my son is on a DAN! protocol right now, he is on a lot. I am

reluctant to randomly stop them until we meet with Dr. G., but now Im terrified

that it may be harming him!

>

> My son is on:

>

> Pharma-grade multi

> vit c

> vit d

> gaba

> calcium

> zinc

> probiotics

> monolaurin

> B-6

> B-12

> Colostrum

> Transfer Factor

> Magnesium

> Folate

> Cod Liver Oil

> Enzymes

>

> Thank you in advance for any help!

> Best, Sloan

>

Sloan

When my grandson started seeing Dr. G.he was on twice as many supp. as you

little one. I can tell you first thing he did for him was take him off

everything This made a world of difference for him he was a different child we

were so happy to see him feel better look better appetite back.Still have a long

road ahead for him but he is healthier.

We have been going on 3 yrs.on protocol we know we are on the what track.

We were with DAN too for 2yrs. for some children this may be ok but for my

grandson he just got worse He was terribly sick so sick he lost 2 yrs. of

school, therapy ect.

Now he is back in school able to move on & go forward. We still have rough days

but we feel good about this protocol.

Carole

March 2, 2010

My son and I are being treated for Lymes. You need to see a Lyme literate dr. My

son is on cefdenier and azithromycin.

Sent from my iPhone

On Mar 2, 2010, at 11:33 AM, Cotter <cotter.mary1@...> wrote:

Hi Sloan,

just wondering what you are doing to treat Lymes,our son has hugh viral

issues,but i think

Lymes is by far the hardest battle,along with all its co infections,if you

have success with any treatment i would be intrested

On Tue, Mar 2, 2010 at 2:18 PM, Sloan <Sloan_smith@...> wrote:

>

> Thanks all for your comments! I appreciate the info. I'm realizing why this

> idea is so difficult for me. Untill I read about dr. G I wasnt hearing

> anybody other than the dan! docs talk about recovery... And alot of the dan

> stuff is supplements. So to walk away from something that has given you hope

> for your child is hard. Especially when I know some of it really helped. I'm

> sure you've all had the same feelings!

> Thanks, Sloan

>

> Sent from my iPhone

>

--

Cotter

5 Pollerton Manor

Carlow

059 9134964

087 2637921

March 3, 2010

Hi

we are living in Ieland and our docters and consultants

dont believe our son has lymes as his tests came back neg,but i have seen

them on

a live blood analysis and when we treated them with rife and minocycline wow

massive

regression in our son,we are now using homeoapathy to see if we can hit it

more gently

On Wed, Mar 3, 2010 at 6:26 AM, Sheryl <ssaturnino@...> wrote:

>

> My son and I are being treated for Lymes. You need to see a Lyme literate

> dr. My son is on cefdenier and azithromycin.

>

> Sent from my iPhone

>

> On Mar 2, 2010, at 11:33 AM, Cotter

<cotter.mary1@...<cotter.mary1%40gmail.com>>

> wrote:

>

> Hi Sloan,

>

> just wondering what you are doing to treat Lymes,our son has hugh viral

> issues,but i think

> Lymes is by far the hardest battle,along with all its co infections,if you

> have success with any treatment i would be intrested

>

> On Tue, Mar 2, 2010 at 2:18 PM, Sloan

<Sloan_smith@...<Sloan_smith%40>>

> wrote:

>

> >

> > Thanks all for your comments! I appreciate the info. I'm realizing why

> this

> > idea is so difficult for me. Untill I read about dr. G I wasnt hearing

> > anybody other than the dan! docs talk about recovery... And alot of the

> dan

> > stuff is supplements. So to walk away from something that has given you

> hope

> > for your child is hard. Especially when I know some of it really helped.

> I'm

> > sure you've all had the same feelings!

> > Thanks, Sloan

> >

> > Sent from my iPhone

> >

>

> --

> Cotter

> 5 Pollerton Manor

> Carlow

> 059 9134964

> 087 2637921

>

March 3, 2010

Lyme treatment is very tricky... and controversial.

It is not unusual for the mom's of ASD kids and the child to both have Lyme!

That is true in my case as well. In some cases a child might be born with Lyme

in others it is just another opportunistic bacteria preying on a weakened immune

system. The problem with Lyme bacteria is that is can change form inside the

body to hide from antibodies and antibiotics, making it very difficult to treat.

I have no idea what Dr. G does for Lyme, but standard mainstream treatment is 1

month of antibiotics. That didn't work for my son (it only works if the Lyme is

caught right away). We went to see an Lyme doc (Dr. Warren Levin). He did 3.5

months of 2 different antibiotics (amoxicillin and clarythromycin).

Interestingly, he looks at the same NK levels as the protocol as markers of

chronic Lyme infection. That is to say, I believe he is looking at immune

function the same way Dr. G is.

My sons CD57 and c4a (immune markers) improved with antibiotics, but as a result

of being on them he got all the candida back as well as clostridia. So he was on

another antibiotic. Now he is still testing positive for Lyme (by Western Blot)

and now his NK panel looks bad again.... as I said very hard to treat. This is

one of the things I am very curious about with Dr. Goldberg. It seems logical to

me that if the immune system is improved that the body will better be able to

kick the Lyme out.

Best, Sloan

>

> >

> > Thanks all for your comments! I appreciate the info. I'm realizing why this

> > idea is so difficult for me. Untill I read about dr. G I wasnt hearing

> > anybody other than the dan! docs talk about recovery... And alot of the dan

> > stuff is supplements. So to walk away from something that has given you hope

> > for your child is hard. Especially when I know some of it really helped. I'm

> > sure you've all had the same feelings!

> > Thanks, Sloan

> >

> > Sent from my iPhone

> >

>

> --

> Cotter

> 5 Pollerton Manor

> Carlow

> 059 9134964

> 087 2637921

>

March 3, 2010

Hi Sloan,

I believe Dr G sees Lyme as a symptom. He said once when talking about whether a

kid actually had lyme or not that it really doesn't matter - the protocol is

going to address it more appropriately. He was against the very strong

antibiotics being used.

HTH

________________________________

From: Sloan <Sloan_smith@...>

Sent: Wed, March 3, 2010 8:30:53 AM

Subject: Re: Dr. G and Supplements: Please help!

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