Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 I received a post from a parent considering the protocol asking that I relate Connor's story to her After reading it I decided to post it to he list in case any othe new parent might be helped or fast tracked by reading my mistakes. For what it is worth: OK but first let me put this in perspective. This is my take on the protocol. It is NOT necessarily what my list mates have been through and is an interpretation of what I have learned from Dr G and Dr Klimas, it is not their vision nor quoted from what I have been told to do. If anyone on the list can add insights or identify any discrepancies please let me know, I am still on a learning curve. Additionally Connor is not recovered. We are still on a trek through this disorder. The path is not nearly as steep as it was but it is still an uphill battle. My son is not Marcia Hinds son and attending S Cal but the one thing we have in common is we truly believe that our kids can recover and are willing to do what ever it takes to get there. What the members of this group believe is that these kids have an immune disorder that may be caused by an underlying retro virus not unlike AIDS. This condition creates an environment in our children's system that allows a wide range of opportunistic viruses and bacterial infections to flurish. The immunology behind the protocol was best stated in an article I read earlier this year and is quoted below: “There are two broad aspects to the immune system, TH1 and TH2. TH1 involves Natural Killer (NK) cells whose job it is to identify and destroy viruses. The TH2 side of the immune system involves, amongst other things, antibodies which respond to threats. There is evidence in the literature that patients with ME/CFS are “TH2†biased, i.e. the TH2 aspect of the immune system is over-activated, causing suppression of the TH1 side and high levels of inflammatory cytokines; patients have lower Natural Killer (NK) cell immunity. This bias may mean that opportunistic viruses and bacterial infections can no longer be kept at bay effectively by the TH1 side of the system. RNase L conducts a function of holding the virus at bay until NK cells are available to eradicate the pathogen, however even the RNase L’s ability to perform this function can be compromised over time if TH2 dominates for too long. RNase L dysfunction was also reported in the prostate cancer cases of XMRV, although later research has not found a genetic link. In ME/CFS, any suspected Rnase L deficiency many simply be due to chronic TH2 dominance. If TH2 dominates for too long, it can be hypothesised that viruses such as HHV-6, Epstein Barr Virus (EBV), CMV and Parvovirus B19 can flourish, as well as bacterial infections such as mycoplasma and chlamydia pneumonia. It has been established that the majority of neurodegenerative disease, fatiguing illnesses and neurobehavioral disease patients have chronic bacterial and viral infections. (3). In fact the WPI research claimed to have found higher levels of XMRA in “atypical†MS and Autism.†That is for the med student we as parents slowly become for our children but lets lay out what to expect from this protocol. The protocol is not defined in the way most other treatments for the A disease. Every kid is different and reacts to a wide range of triggers that cause the immune system to become compromised and allows the opportunistic viruses and bacterial infections to once again flourish. This can happen within hours after the exposure and is the source of the meltdowns ETC. The environmental triggers can be readily controlled with simple nasal inhibitors and eventually the child can be desensitized to these after he has a healthy immune system. The food allergies can be much much harder and with Connor there are literally hundreds of them. I honestly don’t know all of them and never will. In similar protocols that address the diet such as DAN, they publish a specific diet such as GF/CF diets and if they are the only triggers you are dealing with they work but if your kids has a very compromised system that is unlikely. What Dr G did for Connor took time. He did not truly start until his was eight. (I have attached a piece I wrote about the pre DR G years for comparison) First the tests he ran ID’ed an immune problem and multiple food allergies. We started on an anti viral for several months and started logging his foods. The natural inclination of any parent is to assume that we can offer the kid a somewhat normal diet and exclude certain foods. In retrospect this is very wrong thinking. Each time we introduced a trigger it would take a month or more to get the back ground illnesses back under control. If you screw up ever two weeks you never get any progress. I believe this is why so many parents quit after a year or so. The best way to think about the diet is to identify 20 or 30 foods that do not cause a trigger and stay with them until his immune system heals Over this first few months Dr G tried endlessly to convince me to back off new foods and every time I screwed up several things happened. 1) The meds jut stopped working and his viral tiers skyrocketed. 2) The fugal infections he was suffering with exploded and such. 3) the neuro inflammation exploded and the child regressed back into a screaming nightmare. With time we finally started to cool off the immune system. Dr G introduces an additional med after he determines effectiveness of the first. After a month we added an antibiotic Eyeped, a month later an antifungal. I started to see light behind his eyes but kept screwing up the diet, Candy at Halloween, birthday cake on his moms birthday, As a dad wanting to se him happy was keeping him sick. We got good days but few. Finally he added an SSRI (Mind you we went back and forth through several different anti-viral and SSRI’s until we found an effective combination) in September of 2008 we added Immunovir a drug that helps increase NK cells. At that time he had 3.75% NK cells with normal being about 18%. By January they were up to 5.5 % last May they were up to 15%. The meds started to take hold after six months or so and slowly but very slowly we saw steady development. Over the first year things started to fall in place but it was slowed down endlessly with minor food infractions. We started supplementing his academics after school and on weekends and he worked up from a kindergarten level to about second grade in reading and math. After an end of the year party at school when they gave him cupcakes coated with a butter icing that was red and blue. we reverted back to a screaming very sick kids and it took months to get him back. That was just last June. I finally grasped the concept of not what the diet was but how to implement it (above). I pulled him out of the autism class and got an IEP written that mainstreamed him in fifth grade and home schooled him in earnest. for the summer. I had finally “GOT†the diet and the right combos of meds and the kids just started to wake up. He became verbal – slowly developing the language skills We worked our tails off rushing through third and fourth grade reading comprehension and math to give him some bases to enter fifth grade at grade level. It was hard but he wanted it bad was willing to work and I saw my kid coming back and desperately wanted to get him in a normal environment where he could acquire skills sets and out of the prison that the school system had kept him. The first day of school last September was awesome, he was stressed but made through changing classes five times and just was so full of pride. Over the next three weeks he was in the office regularly learning the skills sets the hard way but two of his teachers and the assistant principle defended him and the other students supported him across the board. We lost our books; we traded for bad foods and had many issues over the first six weeks. I pulled him out when he was having bad reactions to foods for a day or two and convinced the administration to give is classmate a lecture on the dangers of foods allergies. Over the last month it has all fell in place. We do at least three hours of home work every day and work on weekends but as of today he has three A, two B, and one C And a D in Science but that is his favorite subject. He is starting to learn independently and just wants it soo bad. He has a girl he likes name Crystal that he lunches with and everyday does some of his homework alone. We are in full blow puberty and he is as difficult as any pre teen in a mainstream school with 1600 kids. There are still language issues but they are just melting away. When he gets the wrong foods or if I miss a med it is VERY obvious but if I keep it all inline he is great. And will be fine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 So... your son was non-verbal until the age of 8? My son is 6 and not speaking & that is the most frightening thing to me... fear he never will get his language back. Was it not until you started using Immunovir that he started speaking? Do you think it was primarily because of the Immunovir or a combination of everything? Thanks for sharing!! From: Bill klimas <klimas_bill@...> Subject: The short version Date: Wednesday, November 25, 2009, 12:46 PM  I received a post from a parent considering the protocol asking that I relate Connor's story to her After reading it I decided to post it to he list in case any othe new parent might be helped or fast tracked by reading my mistakes. For what it is worth: OK but first let me put this in perspective. This is my take on the protocol. It is NOT necessarily what my list mates have been through and is an interpretation of what I have learned from Dr G and Dr Klimas, it is not their vision nor quoted from what I have been told to do. If anyone on the list can add insights or identify any discrepancies please let me know, I am still on a learning curve. Additionally Connor is not recovered. We are still on a trek through this disorder. The path is not nearly as steep as it was but it is still an uphill battle. My son is not Marcia Hinds son and attending S Cal but the one thing we have in common is we truly believe that our kids can recover and are willing to do what ever it takes to get there. What the members of this group believe is that these kids have an immune disorder that may be caused by an underlying retro virus not unlike AIDS. This condition creates an environment in our children's system that allows a wide range of opportunistic viruses and bacterial infections to flurish. The immunology behind the protocol was best stated in an article I read earlier this year and is quoted below: “There are two broad aspects to the immune system, TH1 and TH2. TH1 involves Natural Killer (NK) cells whose job it is to identify and destroy viruses. The TH2 side of the immune system involves, amongst other things, antibodies which respond to threats. There is evidence in the literature that patients with ME/CFS are “TH2†biased, i.e. the TH2 aspect of the immune system is over-activated, causing suppression of the TH1 side and high levels of inflammatory cytokines; patients have lower Natural Killer (NK) cell immunity. This bias may mean that opportunistic viruses and bacterial infections can no longer be kept at bay effectively by the TH1 side of the system. RNase L conducts a function of holding the virus at bay until NK cells are available to eradicate the pathogen, however even the RNase L’s ability to perform this function can be compromised over time if TH2 dominates for too long. RNase L dysfunction was also reported in the prostate cancer cases of XMRV, although later research has not found a genetic link. In ME/CFS, any suspected Rnase L deficiency many simply be due to chronic TH2 dominance. If TH2 dominates for too long, it can be hypothesised that viruses such as HHV-6, Epstein Barr Virus (EBV), CMV and Parvovirus B19 can flourish, as well as bacterial infections such as mycoplasma and chlamydia pneumonia. It has been established that the majority of neurodegenerative disease, fatiguing illnesses and neurobehavioral disease patients have chronic bacterial and viral infections. (3). In fact the WPI research claimed to have found higher levels of XMRA in “atypical†MS and Autism.†That is for the med student we as parents slowly become for our children but lets lay out what to expect from this protocol. The protocol is not defined in the way most other treatments for the A disease. Every kid is different and reacts to a wide range of triggers that cause the immune system to become compromised and allows the opportunistic viruses and bacterial infections to once again flourish. This can happen within hours after the exposure and is the source of the meltdowns ETC. The environmental triggers can be readily controlled with simple nasal inhibitors and eventually the child can be desensitized to these after he has a healthy immune system. The food allergies can be much much harder and with Connor there are literally hundreds of them. I honestly don’t know all of them and never will. In similar protocols that address the diet such as DAN, they publish a specific diet such as GF/CF diets and if they are the only triggers you are dealing with they work but if your kids has a very compromised system that is unlikely. What Dr G did for Connor took time. He did not truly start until his was eight. (I have attached a piece I wrote about the pre DR G years for comparison) First the tests he ran ID’ed an immune problem and multiple food allergies. We started on an anti viral for several months and started logging his foods. The natural inclination of any parent is to assume that we can offer the kid a somewhat normal diet and exclude certain foods. In retrospect this is very wrong thinking. Each time we introduced a trigger it would take a month or more to get the back ground illnesses back under control. If you screw up ever two weeks you never get any progress. I believe this is why so many parents quit after a year or so. The best way to think about the diet is to identify 20 or 30 foods that do not cause a trigger and stay with them until his immune system heals Over this first few months Dr G tried endlessly to convince me to back off new foods and every time I screwed up several things happened. 1) The meds jut stopped working and his viral tiers skyrocketed. 2) The fugal infections he was suffering with exploded and such. 3) the neuro inflammation exploded and the child regressed back into a screaming nightmare. With time we finally started to cool off the immune system. Dr G introduces an additional med after he determines effectiveness of the first. After a month we added an antibiotic Eyeped, a month later an antifungal. I started to see light behind his eyes but kept screwing up the diet, Candy at Halloween, birthday cake on his moms birthday, As a dad wanting to se him happy was keeping him sick. We got good days but few. Finally he added an SSRI (Mind you we went back and forth through several different anti-viral and SSRI’s until we found an effective combination) in September of 2008 we added Immunovir a drug that helps increase NK cells. At that time he had 3.75% NK cells with normal being about 18%. By January they were up to 5.5 % last May they were up to 15%. The meds started to take hold after six months or so and slowly but very slowly we saw steady development. Over the first year things started to fall in place but it was slowed down endlessly with minor food infractions. We started supplementing his academics after school and on weekends and he worked up from a kindergarten level to about second grade in reading and math. After an end of the year party at school when they gave him cupcakes coated with a butter icing that was red and blue. we reverted back to a screaming very sick kids and it took months to get him back. That was just last June. I finally grasped the concept of not what the diet was but how to implement it (above). I pulled him out of the autism class and got an IEP written that mainstreamed him in fifth grade and home schooled him in earnest. for the summer. I had finally “GOT†the diet and the right combos of meds and the kids just started to wake up. He became verbal – slowly developing the language skills We worked our tails off rushing through third and fourth grade reading comprehension and math to give him some bases to enter fifth grade at grade level. It was hard but he wanted it bad was willing to work and I saw my kid coming back and desperately wanted to get him in a normal environment where he could acquire skills sets and out of the prison that the school system had kept him. The first day of school last September was awesome, he was stressed but made through changing classes five times and just was so full of pride. Over the next three weeks he was in the office regularly learning the skills sets the hard way but two of his teachers and the assistant principle defended him and the other students supported him across the board. We lost our books; we traded for bad foods and had many issues over the first six weeks. I pulled him out when he was having bad reactions to foods for a day or two and convinced the administration to give is classmate a lecture on the dangers of foods allergies. Over the last month it has all fell in place. We do at least three hours of home work every day and work on weekends but as of today he has three A, two B, and one C And a D in Science but that is his favorite subject. He is starting to learn independently and just wants it soo bad. He has a girl he likes name Crystal that he lunches with and everyday does some of his homework alone. We are in full blow puberty and he is as difficult as any pre teen in a mainstream school with 1600 kids. There are still language issues but they are just melting away. When he gets the wrong foods or if I miss a med it is VERY obvious but if I keep it all inline he is great. And will be fine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2009 Report Share Posted November 26, 2009 Bill, Thank you SO MUCH for sharing this. Alaine > > I received a post from a parent considering the protocol asking that I relate Connor's story to her > After reading it I decided to post it to he list in case any othe new parent might be helped or fast tracked by reading my mistakes. > > For what it is worth: > > OK but first let me put this in perspective. This is my take on the protocol. It is NOT necessarily what my list mates have been through and is an interpretation of what I have learned from Dr G and Dr Klimas, it is not their vision nor quoted from what I have been told to do. If anyone on the list can add insights or identify any discrepancies please let me know, I am still on a learning curve. > > Additionally Connor is not recovered. We are still on a trek through this disorder. The path is not nearly as steep as it was but it is still an uphill battle. My son is not Marcia Hinds son and attending S Cal but the one thing we have in common is we truly believe that our kids can recover and are willing to do what ever it takes to get there. > > What the members of this group believe is that these kids have an immune disorder that may be caused by an underlying retro virus not unlike AIDS. This condition creates an environment in our children's system that allows a wide range of opportunistic viruses and bacterial infections to flurish. > > The immunology behind the protocol was best stated in an article I read earlier this year and is quoted below: > > “There are two broad aspects to the immune system, TH1 and TH2. TH1 involves Natural Killer (NK) cells whose job it is to identify and destroy viruses. The TH2 side of the immune system involves, amongst other things, antibodies which respond to threats. There is evidence in the literature that patients with ME/CFS are “TH2†biased, i.e. the TH2 aspect of the immune system is over-activated, causing suppression of the TH1 side and high levels of inflammatory cytokines; patients have lower Natural Killer (NK) cell immunity. This bias may mean that opportunistic viruses and bacterial infections can no longer be kept at bay effectively by the TH1 side of the system. > > RNase L conducts a function of holding the virus at bay until NK cells are available to eradicate the pathogen, however even the RNase L’s ability to perform this function can be compromised over time if TH2 dominates for too long. RNase L dysfunction was also reported in the prostate cancer cases of XMRV, although later research has not found a genetic link. In ME/CFS, any suspected Rnase L deficiency many simply be due to chronic TH2 dominance. If TH2 dominates for too long, it can be hypothesised that viruses such as HHV-6, Epstein Barr Virus (EBV), CMV and Parvovirus B19 can flourish, as well as bacterial infections such as mycoplasma and chlamydia pneumonia. > > It has been established that the majority of neurodegenerative disease, fatiguing illnesses and neurobehavioral disease patients have chronic bacterial and viral infections. (3). In fact the WPI research claimed to have found higher levels of XMRA in “atypical†MS and Autism.†> > That is for the med student we as parents slowly become for our children but lets lay out what to expect from this protocol. > > The protocol is not defined in the way most other treatments for the A disease. Every kid is different and reacts to a wide range of triggers that cause the immune system to become compromised and allows the opportunistic viruses and bacterial infections to once again flourish. This can happen within hours after the exposure and is the source of the meltdowns ETC. The environmental triggers can be readily controlled with simple nasal inhibitors and eventually the child can be desensitized to these after he has a healthy immune system. The food allergies can be much much harder and with Connor there are literally hundreds of them. I honestly don’t know all of them and never will. In similar protocols that address the diet such as DAN, they publish a specific diet such as GF/CF diets and if they are the only triggers you are dealing with they work but if your kids has a very compromised system that is unlikely. > > What Dr G did for Connor took time. He did not truly start until his was eight. (I have attached a piece I wrote about the pre DR G years for comparison) First the tests he ran ID’ed an immune problem and multiple food allergies. We started on an anti viral for several months and started logging his foods. > > The natural inclination of any parent is to assume that we can offer the kid a somewhat normal diet and exclude certain foods. In retrospect this is very wrong thinking. Each time we introduced a trigger it would take a month or more to get the back ground illnesses back under control. If you screw up ever two weeks you never get any progress. I believe this is why so many parents quit after a year or so. The best way to think about the diet is to identify 20 or 30 foods that do not cause a trigger and stay with them until his immune system heals > > Over this first few months Dr G tried endlessly to convince me to back off new foods and every time I screwed up several things happened. 1) The meds jut stopped working and his viral tiers skyrocketed. 2) The fugal infections he was suffering with exploded and such. 3) the neuro inflammation exploded and the child regressed back into a screaming nightmare. > > With time we finally started to cool off the immune system. Dr G introduces an additional med after he determines effectiveness of the first. After a month we added an antibiotic Eyeped, a month later an antifungal. I started to see light behind his eyes but kept screwing up the diet, Candy at Halloween, birthday cake on his moms birthday, As a dad wanting to se him happy was keeping him sick. We got good days but few. Finally he added an SSRI (Mind you we went back and forth through several different anti-viral and SSRI’s until we found an effective combination) in September of 2008 we added Immunovir a drug that helps increase NK cells. At that time he had 3.75% NK cells with normal being about 18%. By January they were up to 5.5 % last May they were up to 15%. > > The meds started to take hold after six months or so and slowly but very slowly we saw steady development. Over the first year things started to fall in place but it was slowed down endlessly with minor food infractions. We started supplementing his academics after school and on weekends and he worked up from a kindergarten level to about second grade in reading and math. > > After an end of the year party at school when they gave him cupcakes coated with a butter icing that was red and blue. we reverted back to a screaming very sick kids and it took months to get him back. That was just last June. I finally grasped the concept of not what the diet was but how to implement it (above). I pulled him out of the autism class and got an IEP written that mainstreamed him in fifth grade and home schooled him in earnest. for the summer. I had finally “GOT†the diet and the right combos of meds and the kids just started to wake up. He became verbal †" slowly developing the language skills > > We worked our tails off rushing through third and fourth grade reading comprehension and math to give him some bases to enter fifth grade at grade level. It was hard but he wanted it bad was willing to work and I saw my kid coming back and desperately wanted to get him in a normal environment where he could acquire skills sets and out of the prison that the school system had kept him. > > The first day of school last September was awesome, he was stressed but made through changing classes five times and just was so full of pride. Over the next three weeks he was in the office regularly learning the skills sets the hard way but two of his teachers and the assistant principle defended him and the other students supported him across the board. We lost our books; we traded for bad foods and had many issues over the first six weeks. > > I pulled him out when he was having bad reactions to foods for a day or two and convinced the administration to give is classmate a lecture on the dangers of foods allergies. Over the last month it has all fell in place. We do at least three hours of home work every day and work on weekends but as of today he has three A, two B, and one C And a D in Science but that is his favorite subject. He is starting to learn independently and just wants it soo bad. He has a girl he likes name Crystal that he lunches with and everyday does some of his homework alone. We are in full blow puberty and he is as difficult as any pre teen in a mainstream school with 1600 kids. There are still language issues but they are just melting away. When he gets the wrong foods or if I miss a med it is VERY obvious but if I keep it all inline he is great. And will be fine. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2010 Report Share Posted January 26, 2010 > > > > I received a post from a parent considering the protocol asking that I relate Connor's story to her > > After reading it I decided to post it to he list in case any othe new parent might be helped or fast tracked by reading my mistakes. > > > > For what it is worth: > > > > OK but first let me put this in perspective. This is my take on the protocol. It is NOT necessarily what my list mates have been through and is an interpretation of what I have learned from Dr G and Dr Klimas, it is not their vision nor quoted from what I have been told to do. If anyone on the list can add insights or identify any discrepancies please let me know, I am still on a learning curve. > > > > Additionally Connor is not recovered. We are still on a trek through this disorder. The path is not nearly as steep as it was but it is still an uphill battle. My son is not Marcia Hinds son and attending S Cal but the one thing we have in common is we truly believe that our kids can recover and are willing to do what ever it takes to get there. > > > > What the members of this group believe is that these kids have an immune disorder that may be caused by an underlying retro virus not unlike AIDS. This condition creates an environment in our children's system that allows a wide range of opportunistic viruses and bacterial infections to flurish. > > > > The immunology behind the protocol was best stated in an article I read earlier this year and is quoted below: > > > > “There are two broad aspects to the immune system, TH1 and TH2. TH1 involves Natural Killer (NK) cells whose job it is to identify and destroy viruses. The TH2 side of the immune system involves, amongst other things, antibodies which respond to threats. There is evidence in the literature that patients with ME/CFS are “TH2†biased, i.e. the TH2 aspect of the immune system is over-activated, causing suppression of the TH1 side and high levels of inflammatory cytokines; patients have lower Natural Killer (NK) cell immunity. This bias may mean that opportunistic viruses and bacterial infections can no longer be kept at bay effectively by the TH1 side of the system. > > > > RNase L conducts a function of holding the virus at bay until NK cells are available to eradicate the pathogen, however even the RNase L’s ability to perform this function can be compromised over time if TH2 dominates for too long. RNase L dysfunction was also reported in the prostate cancer cases of XMRV, although later research has not found a genetic link. In ME/CFS, any suspected Rnase L deficiency many simply be due to chronic TH2 dominance. If TH2 dominates for too long, it can be hypothesised that viruses such as HHV-6, Epstein Barr Virus (EBV), CMV and Parvovirus B19 can flourish, as well as bacterial infections such as mycoplasma and chlamydia pneumonia. > > > > It has been established that the majority of neurodegenerative disease, fatiguing illnesses and neurobehavioral disease patients have chronic bacterial and viral infections. (3). In fact the WPI research claimed to have found higher levels of XMRA in “atypical†MS and Autism.†> > > > That is for the med student we as parents slowly become for our children but lets lay out what to expect from this protocol. > > > > The protocol is not defined in the way most other treatments for the A disease. Every kid is different and reacts to a wide range of triggers that cause the immune system to become compromised and allows the opportunistic viruses and bacterial infections to once again flourish. This can happen within hours after the exposure and is the source of the meltdowns ETC. The environmental triggers can be readily controlled with simple nasal inhibitors and eventually the child can be desensitized to these after he has a healthy immune system. The food allergies can be much much harder and with Connor there are literally hundreds of them. I honestly don’t know all of them and never will. In similar protocols that address the diet such as DAN, they publish a specific diet such as GF/CF diets and if they are the only triggers you are dealing with they work but if your kids has a very compromised system that is unlikely. > > > > What Dr G did for Connor took time. He did not truly start until his was eight. (I have attached a piece I wrote about the pre DR G years for comparison) First the tests he ran ID’ed an immune problem and multiple food allergies. We started on an anti viral for several months and started logging his foods. > > > > The natural inclination of any parent is to assume that we can offer the kid a somewhat normal diet and exclude certain foods. In retrospect this is very wrong thinking. Each time we introduced a trigger it would take a month or more to get the back ground illnesses back under control. If you screw up ever two weeks you never get any progress. I believe this is why so many parents quit after a year or so. The best way to think about the diet is to identify 20 or 30 foods that do not cause a trigger and stay with them until his immune system heals > > > > Over this first few months Dr G tried endlessly to convince me to back off new foods and every time I screwed up several things happened. 1) The meds jut stopped working and his viral tiers skyrocketed. 2) The fugal infections he was suffering with exploded and such. 3) the neuro inflammation exploded and the child regressed back into a screaming nightmare. > > > > With time we finally started to cool off the immune system. Dr G introduces an additional med after he determines effectiveness of the first. After a month we added an antibiotic Eyeped, a month later an antifungal. I started to see light behind his eyes but kept screwing up the diet, Candy at Halloween, birthday cake on his moms birthday, As a dad wanting to se him happy was keeping him sick. We got good days but few. Finally he added an SSRI (Mind you we went back and forth through several different anti-viral and SSRI’s until we found an effective combination) in September of 2008 we added Immunovir a drug that helps increase NK cells. At that time he had 3.75% NK cells with normal being about 18%. By January they were up to 5.5 % last May they were up to 15%. > > > > The meds started to take hold after six months or so and slowly but very slowly we saw steady development. Over the first year things started to fall in place but it was slowed down endlessly with minor food infractions. We started supplementing his academics after school and on weekends and he worked up from a kindergarten level to about second grade in reading and math. > > > > After an end of the year party at school when they gave him cupcakes coated with a butter icing that was red and blue. we reverted back to a screaming very sick kids and it took months to get him back. That was just last June. I finally grasped the concept of not what the diet was but how to implement it (above). I pulled him out of the autism class and got an IEP written that mainstreamed him in fifth grade and home schooled him in earnest. for the summer. I had finally “GOT†the diet and the right combos of meds and the kids just started to wake up. He became verbal †" slowly developing the language skills > > > > We worked our tails off rushing through third and fourth grade reading comprehension and math to give him some bases to enter fifth grade at grade level. It was hard but he wanted it bad was willing to work and I saw my kid coming back and desperately wanted to get him in a normal environment where he could acquire skills sets and out of the prison that the school system had kept him. > > > > The first day of school last September was awesome, he was stressed but made through changing classes five times and just was so full of pride. Over the next three weeks he was in the office regularly learning the skills sets the hard way but two of his teachers and the assistant principle defended him and the other students supported him across the board. We lost our books; we traded for bad foods and had many issues over the first six weeks. > > > > I pulled him out when he was having bad reactions to foods for a day or two and convinced the administration to give is classmate a lecture on the dangers of foods allergies. Over the last month it has all fell in place. We do at least three hours of home work every day and work on weekends but as of today he has three A, two B, and one C And a D in Science but that is his favorite subject. He is starting to learn independently and just wants it soo bad. He has a girl he likes name Crystal that he lunches with and everyday does some of his homework alone. We are in full blow puberty and he is as difficult as any pre teen in a mainstream school with 1600 kids. There are still language issues but they are just melting away. When he gets the wrong foods or if I miss a med it is VERY obvious but if I keep it all inline he is great. And will be fine. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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